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Post by RobininHouston on Jun 2, 2005 16:35:06 GMT -5
Jeff, Do you have lyme with the morgellons? Does dr swartz feel the bactrim will keep the lyme in check as well as this other bacteria? Thanks, Robin
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Post by JEFF on Jun 2, 2005 17:25:49 GMT -5
i dont know if i have lyme still or not..I have the morgellons for shure. My positive was over a year ago and since then ive been through 6 weeks of iv rocfin at 4 grams a day for the lyme...and now the septra for them..even though I have no followup tesing I feel I may have lyme still but very near to sero converting. thats another reason Im staying on the septra...the old theroy from harvey was eraticate the lyme and the morgellons will clear up on its own...I have not talked with swartz at all lately..so i dont know his opinion on the lyme issue..I am getting the meds and what not from a natropath his name is also swartz
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Post by Robininhouston on Jun 3, 2005 7:45:29 GMT -5
Jeff, are you from Houston? Did you see Harvey? I did until he left. Well thanks for your help! Robin inHouston
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Post by JEFF on Jun 3, 2005 19:55:18 GMT -5
Jeff, are you from Houston? Did you see Harvey? I did until he left. Well thanks for your help! Robin inHouston no the info i got from harvey was from indirect contact with a member of mrf about 1 year ago or more..the word then was 4 grams rocefin a day clears the lyme and the morgellons clears soon after..looks like it didnt pan out..but swartz shed some light on this and after reading maltophilia studies ive read they are susceptible to rocefin in the test tube. but treatment seems to fail clinicaly with rapid resistence. this is what i experenced with the rocefin...Inital great success and then resistence..It jives with the malto reasearch, as does the septra success and the possible need for combo theropys..where did harvey go.??you say he left??
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Post by RobininHouston on Jun 3, 2005 21:14:34 GMT -5
He left Houston and went to Del Rio. He is seeing patients there now it is too far away for me though. I started on 3 ds a day and instantly almost no symptoms it made a big difference however this is only my third day and tonight i am feeling some kidney pain so i am going to stick with just two today and if tomorrow i feel fine i will go back up to three. I only weigh 110 pounds so not sure my body can handle those high dosages even though it did make a difference right away! I don't know if milkthistle helps the kidneys i know it does the liver i need to get some! Thanks, Robin
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Post by JEFF on Jun 4, 2005 11:31:14 GMT -5
He left Houston and went to Del Rio. He is seeing patients there now it is too far away for me though. I started on 3 ds a day and instantly almost no symptoms it made a big difference however this is only my third day and tonight i am feeling some kidney pain ........................................................................................do you mean 3 pills a day? or triple dose 6pills a day..I take 4 pills a day..but im 240lbs..so I can see if you were taking triple dose..(6pills) that would be like me taking 6x dose..12 pills!! but if you take 3. that would be like me taking 6>>I only take 4 but im shure 6 would be more effective..you have to drink ALOT of water it will really help...I know drinking water is boring but I found I like these artifically flavored sero calorie waters from wallmart at 50 cents a bottle..(clear american) i got a taste for it and I can down liters of that stuff,,,glad you are doing better..I hear that from about everyone who does the septra..further evidence that swartz is right..
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Post by RobininHouston on Jun 5, 2005 10:49:16 GMT -5
Jeff, Thanks for your message i had to back off a day and then i did three ds yesterday so it is like 6 i guess. Well i am drinking alot of water probably 8 to 10 glasses a day maybe i just need to drink even more! Then i am having Kidney pain again today. But i think i will do 3 again today and see how it goes and just continue with the water. Yes it has made a definite improvement i just hope i can coninue with it! Robin
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