|
Post by mfromcanada on Jan 3, 2007 18:22:07 GMT -5
Whenever a scab(callus) forms over a lesion it never falls off naturally anymore. It adheres like crazy glue and practically has to be torn off of the lesion. Once the scab is ripped off there is a small deep hole or several holes together in a line, in the lesion but not necessarily in the center. Not long after a little red itchy mosquito bite like "whatever" appears somewhere on the spot and the whole thing starts all over again. The "whatever" is enbedded in the skin very deeply and is also very hard to get out. It has to be ripped out of the flesh.It never heals unless you get the "whatever" out slowly over time. It leaves a dark bluish colour or pigment where normal skin used to be rather than a normal scar. Part of this microorganism is like a super glue. Does everyone else have this same problem?
|
|
|
Post by janedough on Jan 3, 2007 18:37:21 GMT -5
That (sticky glue) is the biofilm. Peppermint oil will remove this film. Then apply a coat of terramycin. It takes many applications but you notice the effects immediately. I have been working on a lesion on my face since Xmas eve. It is almost gone. Slow and painful process. But amazing what is removed.
|
|
|
Post by tonie on Jan 3, 2007 19:35:45 GMT -5
Also products with glycolic or salicylic in them dissolve it too, and these things hate it - which is why I love it.
|
|
|
Post by godog on Jan 3, 2007 20:01:34 GMT -5
I have this exact thing in my buttcrack. This started in "95 and has drove me crazy 24/7 every day. And in an extremely hard area to treat!!! And hard to show to doctors expeciallly when they already don't quite believe you. I am tired of showing my *ss to doctors and them not knowing anything and I was told to just live with it. I didn't know then what it was. Most didn't know and I think the hospital knew but didn't tell me, one tried but got hushed I think. Anyways, sorry for the rant. But yes, I get that. In my buttcrack.
|
|
|
Post by victoreah on Jan 3, 2007 22:23:47 GMT -5
You have just described the appearance and feel/texture and tenaciity of my lesions to a T! The thick film that forms over the lesion is like the toughest durn leathery substance and it will NOT HEAL and go away on it's own. It feels so crusty and yucky to touch and I have the natural inclination to want to get it off of my skin - almost like the same sensation you get when you have received a really bad sunburn and your skin begins to peel. You have the desire to get that dry, peeling skin off to reveal fresh new skin underneath. Only for me - that is a very long and very slow process. Even if I do manage to remove the hard, slick but crusty covering over the lesion - it does not heal immediately. (Perhaps eventually after 6 to 12 months - leaving behind the horrible blue/purple scars.) By the next day or two - the crap is right back there again. NOW - I WILL say this - I went to a new dermatologist and he did acknowledge that there was something going on with my skin that scientists can not explain at this point and that he is seeing other patients with the same thing going on. He said he had been having some success with clearing up the lesions with shooting them directly with cortisone shots. He shot 3 of my lesions and one very bad one on my back that had been there for at least 6 months has completely healed, leaving behind a nasty scar and several "craters". Another one that he shot on my leg has healed completely - leaving a blue scar but no crater. One on my right arm that he shot has not healed, but it formed a very deep scab that sort of released and was just hanging there on my arm when I went to take a shower one night. I pulled it off and when looking at it under a magnifying glass it had nasty protuberences on the underside that looked like some of the photos of Jan Smith's skin samples that Dr. Staninger had posted. Another scab has formed in that place and it is still there and feels very thick and deep. Has anyone else heard of getting cortisone shots directly into the lesions? I am supposed to go back on the 8th and have him shoot more lesions. I NEVER mentioned the "Morg" word in front of him because I wanted to hear what he had to say. He did not call my condition Morgellons - but something else - and I can't remember what - but I am going to have him write it down for me when I go on Monday. THIS IS SO CRAZY ISN'T IT? I have also started my itching all over phase again. That sort of went away for a while - but OH BABY - is it ever back in full force...about to drive me nuts. WILL THIS EVER END???
|
|
|
Post by mfromcanada on Jan 4, 2007 0:24:37 GMT -5
victoreah, I have not used cortosone but the last derm I went to shot them with liquid nitrogen and they turned purple. He told me I was pigmenting and gave me some cream to take the purple away. It did not work and I told him not to do that again. I think he pushed them deep into my arm. I think he did more harm than good. My inner thighs have each got about 10 purple lesions marks. I also have one on my cheek that appears indented and then there is my nose and it is a mess most of the time, but never purple like the others.
|
|
|
Post by Sidney on Jan 4, 2007 2:01:01 GMT -5
I feel the descriptions the sufferers have described in this thread are remarkably identical to my own except any scarring I have as a result of the lesions from hell have no pigment. (not blue or purple)
My facial lesions will become covered with the callous that appears to form in multiple layers. They're like hardened glue and could be a result of a glue like substance from bacterial infection, fungal infection, or Collembola infestation as Collembola create glue.
Once the callous is removed beneath it are protruding white sebaceous glands. (my opinion) They appear white, (on the surface, but when removed are opaque) and are swollen and deformed due to debris beneath them or near them. Again, these comments are based on my own experience. They do look exactly like Jan Smith's little sacs as depicted at the Rense web site. When picked out of the lesion or jerked out, whichever works, they stretch out as they emerge, and I get the impression they're going to be long and skinny, and sometimes they are. More often that not if I don't get them on the first attempt they slip way back into the skin and become more difficult to remove. Quite often instead of being long and skinny they turn out to be fat little fellers and will leave behind a socket that bleeds. Always reminds me of having a tooth pulled. What fun.
Sebaceous glands are more plentiful in the face and head than say, on our legs. There's not just one or two, but layers of them, layer upon layer. When a foreign body is near or beneath a sebaceous gland then we get a foreign body reaction/response. They're not just straight down in our tissue in neat little ladder-style, but are on or in the "sides" of a lesion (crater) because that's where they're supposed to be.
If I have a lesion and have removed callous, debris, say a couple of sebaceous glands with debris beneath, I can be sure that the gland or glands to the side will likely be protruding from that crater as well. Usually this means more foreign body response.
Didn't mean to just go on and on, but for me, if I can get the debris removed, clean the lesion and tape it (Hy-Tape is great) I will have some relief from pain, the lesion will be safeguarded from further fiber assaults, and the lesion will finally heal.
Sometimes it works well. Sometimes it doesn't. Sometimes it just means that as soon as the lesion appears to be healing well I will soon feel more junk being taken in like a slithering worm, which in reality will be fibers, hair or other trash.
I've had steroids injected into lesions years ago and unfortunately they never helped me at all and were so painful I'd cry...no joke. Terribly embarrassing, but the sweet little derm I saw was such a sweetheart (not an arrogant a-hole) that he was usually as distressed as I was.
Enough. That's my reality.
|
|
|
Post by Orion*** on Jan 4, 2007 4:18:34 GMT -5
The answering post part of this board has quit working for me so I have to C&P + Whenever a scab(callus) forms over a lesion it never falls off naturally anymore. It adheres like crazy glue and practically has to be torn off of the lesion. Once the scab is ripped off there is a small deep hole or several holes together in a line, in the lesion but not necessarily in the center. Not long after a little red itchy mosquito bite like "whatever" appears somewhere on the spot and the whole thing starts all over again. The "whatever" is enbedded in the skin very deeply and is also very hard to get out. It has to be ripped out of the flesh.It never heals unless you get the "whatever" out slowly over time. It leaves a dark bluish colour or pigment where normal skin used to be rather than a normal scar. Part of this microorganism is like a super glue. Does everyone else have this same problem? ==============I have one on my collar bone just like that---if some one could make a cement like it and put it in a tube they would be million aires.
|
|
|
Post by victoreah on Jan 4, 2007 7:58:56 GMT -5
Orion- I think they have and probably ARE ..... ;D It is called Gorilla Glue! Once that stuff swells and hardens "it ain't goin' nowhere"! Powerful stuff it is!
Sidney - thank you so much for your descriptions - I too experience the same much the way you write. And actually - for me - some of the scars are bluish purple and like the big one on my back that got shot with the cortisone and left a big crater - it has very little pigmentation - more white and pinkish. I am going to see if my husband will take a few pictures of my lesions (for historical reasons) but also so I can post them so others can tell me if they look the same as their own.
I just don't know what to think about getting more cortisone shots from the derm. Like I said - 2 did heal up - BUT I have probably developed 4 NEW lesions on other places on my body!
I just read in another thread about a Dr. Overman who claims to know what is causing this - I may have to check out his book - but I feel SO tired of the "merry-go-round" I have been on for the past two years... while attempting to lead a "normal, productive, upstanding, responsible" life. It is difficult to do at times. In fact, I just got an employee review at work yesterday. I have been there 15 years. I was told I was "exceptional" and very much a "professional" and that I managed my department in such an excellent manner that my boss says he is blessed because he doesn't have to worry about my department at all - that he knows I cover all my bases and that I make things happen with such professionalism. (I am the Food Service Director for a large church.) Well, of course that made me feel good, but I have tried to share with my superiors the nature of what I am dealing with (health issues) but they look at me with such a puzzled and clueless look. I guess in their view - if a doctor can't tell me what is wrong with me - and can't give me a "cure" - it isn't in their realm of reality. And as long as I try to hide my pain and discomfort and continue to perform my job in spite of all of that - then I MUST be okay! But I am NOT okay... I have forced myself to live with this nightmare and just try to function. But it is getting old, very old and I want to be rid of this crap for good. Sorry for ranting one so much... I haven't vented much lately ... Thanks creators of this site for a place to do so and a place to find others who share the same burdens.
|
|
|
Post by tonie on Jan 4, 2007 8:42:45 GMT -5
I had that with every one of my zillions of lesions over the year too. I know my opinion is only my own, but I've gotten rid of those ones.
And "to me" the only reason that remains, (the gorilla glue-which is the perfect term) is because there IS still some "critters" still in that particular lesion(s).
It "to me" seems to be their "protector" and enables "them" to keep their 'breathing hole' open, even though it seems to cover completely there's still a pin hole of a breathing hole.
Once all the "critters" or whatever is in there, is KILLED/MURDERED haha the gorilla glue is no more. That's sort of my "indicator" too that I've finally got them all.
On my body...as you Godog...have in your poor 'crack'...if you daily can apply a salicylic product and tape it over as to not have it get cleaned off...the salicylic product will eventually (after a few days use, like a week) will finish them off...and they won't return - nor will the glue.
Because you have an "open wound" you would want a low strength and it will rid those once and for all...just takes constant application of a salicylic product without the spots getting air which rids it quicker.
That "Platinum Skin Care" product, Copper Peptide Serum with salicylic acid has 2 or 3 percent salicylic in it. I'm sure there's other products but I know for a fact this one works great.
If you could dab some on, and tape it with something that will stick and stay, "like the Hy-tape" within one week of doing that daily those will be gone, then apply bismuth subgallate. I know those products aren't cheap...but they work on the body like nothing else could I do believe.
This stuff can't be used in the same manner though on the face. There's a different technique needed.
But the body..oh...it works.
|
|
|
Post by tonie on Jan 4, 2007 9:07:42 GMT -5
God...something just hit me...in remembering something too that I tried and it worked well on my 'rear end cheek'. Completely forgot about this...I'd never put these on my face, but my rear end didn't mind. Those Dr. Scholls "little corn pad things"...they contain salicylic acid in them...they stick on...they're to be worn for days to remove a corn...and those DO work on lesions. If you stick that on the "crack" ones..and leave on and replace them if they get wet, and try that for several days...I think you've got a good chance too of suffocating and killing those off. Please never use these on any exposed areas of the skin though...it "could" hypopigment/lighten the skin. So if you don't mind a lighter spot "in your crack" this can work too. After a few days if wearing this stuck on the spot...then use Neosporin. That's it! Here they are: www.drscholls.com/product.aspx?prodid=47
|
|
|
Post by godog on Jan 4, 2007 9:54:47 GMT -5
One thing I've learned, you cannot tape your buttcrack. Victoreah and Sidney, your posts are right on. This is my misery also, and I am darn sick of it too. I look okay health-wise, which is a handicap as people think I am, when in reality I have big, big health issues. I'm exhuasted most of the time and barely getting by. Plus all the mental crap just trying to function with the unfairness, the anger, the brainfog, the revulsion at my condition and mortification at having "worms" coming out of my most personal areas. Not to mention gaining weight as the only thing I can do is eat and watch tv. I would just love to drink my life away at this point, but I can't really even do that anymore. Jeez, what contest in hell did I win to get this?
|
|
|
Post by tonie on Jan 4, 2007 10:18:10 GMT -5
|
|
|
Post by godog on Jan 4, 2007 12:22:01 GMT -5
It's worth a try. Maybe I can find it otc.
|
|
|
Post by in tokyo on Jan 4, 2007 21:51:31 GMT -5
I get those deep gel scabs too, when my morgellons is more active. I rip them off and medicate underneath. (Leaves scars.) I call them Carrot Scabs because they grow tens of little roots down into the skin- and they look like the tips of carrots. Fibers can be seen growing from the tips of the more developed roots. Looked at under a microscope it's incredible. The roots grow deeper the longer I leave the scab on, and that's why I want to rip them off. Leaves holes in my skin, that are NOT pores- in fact, it eats the skin around the pores/follicles.
I rip them off, then put oregano extract directly on the bleeding wound. (ouch) I spray them with eco-vie. I cut slices of garlic, mash it with the back of a knife to activate the good chemicals, and use medical tape to tape garlic to my face. Feels really good, actually- a healthy burn. Leaves blisters and scars if you overdo it and leave it on too long. I also use a strong cortisone (elocon 0.1%) cream which is not supposed to be used on the face. If I catch a lesion early with that stuff, it seems to go away. Gives you migraines- not good for your body. But anything to fight morgellons.
|
|
|
Post by beckybailey on Jan 4, 2007 22:42:42 GMT -5
Dissolve the hard top with wart dissolve meds, then paint the lesion with liquid bandage. Remove the bandage with shipping tape before showering or taking a bath. Reapply the wart stuff, then repaint with liquid bandage. Keep doing this and you may not even scar.
|
|
|
Post by Sidney on Jan 4, 2007 23:41:58 GMT -5
Becky, when you remove the dried liquid bandage with shipping tape (assuming it's the clear tape) do you examine the sticky side of the shipping tape and if so, what do you find there?
|
|
|
Post by victoreah on Jan 5, 2007 1:17:32 GMT -5
YES! I would be very interested to know as well!
|
|
|
Post by tonie on Jan 5, 2007 9:47:37 GMT -5
In Tokyo,
I can totally relate to what you mean about the "carrot scabs".
If a lesion "it seems" isn't "cleaned" out, because they seem to be full of "life" be that fungal, bacterial or parasitic, the upper dermis does seem to grow that multi-rooted shield.
And sometimes too, one long root I'd have grow into the skin where I thought a somewhat normal scab was growing over top...but it wasn't "normal" as that root or muti tiny little roots were underneath it.
I'm sorry you're pulling off those "scabs" and getting scared from that. There truly is an easier way to eliminate those scabs with the little tiny roots that grow.
Salicylic creams or lotions seem to kill that type of growth. I've found that using Copper Peptides products help so much because of the salicylic ingredient in some, and the copper peptide helps the skin heal also.
|
|
bayou
New Member
Posts: 9
|
Post by bayou on Jan 5, 2007 10:10:12 GMT -5
victoreah In the beginning of my infection I too had steroid injections into the original lesions on my back. They would help to clear that lesion but always popped up in a new spot. This was not long after being bitten in 2 spots on my back. These would come and go and clear only to be replaced with lesions around the original sites. I went in telling this doc that I had been bitten by something. (Should have sent up a flag to SOMEONE) Now I know that this was lyme and had I gotten the antibiotics at this point I may have been ok. After all the research I've done over the years I realize that this is very consistant with lyme even though it wasn't the classic bullseye. After that I was prescribed a steroid cream that did help with the intense itching at lesion sites, but I now believe that this only drove them deeper. I am deathly afraid of steroids. My llmd told me that steroids are like fertilizer to the lyme spirochetes. This is just my experience but everytime I hear of steroids I just cringe. So much of my anger stems from this time when I feel the doctors failed me the most.
Sidney, Always good to read your posts. You were the first person to respond to my posts so long ago on the old board. My hubby is working in Kansas and I may make a trip up thru Ok. Would love to meet a fellow morgie.
godog, My lesions are mostly on my scalp and some at the top of my butt crack too and then others appear at random sites. Everytime I use the flour and water I think of you and the endless struggles we all face daily.
To anyone with scalp lesions, The flour and water is very good to take down some of the layers of the callous that forms around the lesions. I even use it on my head and even though it IS hard to get out, the gunk it brings out of my scalp is worth it. Just don't ever let it dry. It works immediately to bring out the stuff, so before it dries I get in the tub and submerge my head and comb as much out as I can with my hair under water. My hair is short so that helps and then I use a comb and get under the shower spray and use some shampoo with conditioner and a fine tooth comb. Also I always rub the flour mixture in one direction from front to back and make sure I comb in one direction. When I rub my hand behind the comb I can feel if there is any of it and I just keep combing and rubbing my hand across my head until the water washes them out of my hair and down my back. This helps to remove or at least loosen the scabs on my head. I may end up bald from the lesions but I just can't bring myself to shave my head so using tape is not an option.
tonie, thanks for reminding us about the platinum copper peptide serum, I remember you mentioning that before but had forgotten, think I will give it a try. Do you know if it is ok to use these acids on hair?
Thanks to all of you that bring some joy into my life. It so helps to know that we can still laugh about some of this craziness. Even though I don't post much I sure enjoy reading and draw strength from those of you that do. All of you make such a differnce in my life, especially like now when I am in such a deep deppresion.
bayou
|
|