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Post by gezunked on Jan 17, 2007 6:17:13 GMT -5
changewaves.socialtechnologies.com/home/2007/1/10/is-the-internet-a-vector-for-socially-transmitted-disease.htmlIs the Internet a Vector for "Socially Transmitted Disease"? A phenomenon dubbed Morgellons may be the first "socially transmitted disease" in which the "vector" is the Internet. According to news reports, some people start experiencing Morgellons-like symptoms only after reading about it on the Internet -- where it was first described and named in 2001 -- and the Internet has given rise to an active community of self-diagnosed sufferers, researchers, and conspiracy theorists around the condition. The question is whether the condition is physical, as its sufferers insist, or purely psychological, as most medical practitioners maintain. How we deal with this kind of question can have profound implications for the future. The history of dealing with new medical disorders during the latter part of the 20th century has a checkered track record. Health problems caused by Agent Orange and dioxin poisoning in Vietnam veterans, exposure to toxic chemicals at places like Love Canal, chronic fatigue syndrome, and other serious health problems have often been initially dismissed as a psychological problem experienced by the victim. The societal reaction to AIDS/HIV in the early years of its emergence, when moral and political issues interfered with medical research, was also a telling indicator of how emerging diseases can go unrecognized. Typically, the fewer easily observed physical manifestations there are, the more likely the victim’s complaints are to be dismissed. Even when there are physical symptoms, there is a tendency to minimize them or attribute them to some other, more “conventional” disease. Dismissing emerging medical disorders and health issues is common, particularly when the first victims are among society’s disadvantaged. Morgellons’ symptoms cluster around a sensation of millions of tiny insects crawling under the skin. Sufferers often feel their lives are dominated by constant itchiness and pain. The only visible symptoms, however, are persistent skin lesions—which may result from sufferers’ own scratching or other ordinary causes. Although Morgellons sounds like science fiction, in a world in which genetic engineering and nanotech are becoming widespread, it becomes increasingly important for organizations like CDC be able to move quickly to identify the true nature of weird medical conditions. A recent History Channel documentary on the Black Death was both enlightening and frightening in its depiction of the profound destruction epidemics can wreak. It is humbling to think how all that we have built could be swept away as quickly as the social, political, and economic structures of 14th century Europe. Morgellons may be nothing more than a product of the fevered minds of an active Internet community of self-diagnosed sufferers. Let’s hope it is. The danger is that if the CDC finds no medical basis to Morgellons, criticism from naysayers and “told-you-so-ers” will discourage future investigations of other weird and fantastic ailments, hindering the early warnings that we will need when the real thing emerges.
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Post by valerie on Jan 17, 2007 6:50:41 GMT -5
Who would want this disease who didnt really have it.....I had full fledge symptons when I started on my internet search....whoever came up with this theory is h##l bent on blaming it on anything other than what it is....so sad....
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Post by laylo on Jan 17, 2007 6:58:50 GMT -5
One thing I can truly say whether the finding are good or bad for Morgellons sufferers. This has been a real eye opener as far as discovering about our doctors how shallow, lazy and all about money they really are. I now have very little confidence on our doctors.
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Post by godog on Jan 17, 2007 8:58:18 GMT -5
Little confidence and zero respect. They only know how to push drugs and order expensive tests and if you do not fall into their comfort zone of drug treatments, then you are delusional. I did for a time suffer from delusions. The delusion that some doctor might help me. Wrong. Now I am completely delusion free.
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Post by tonie on Jan 17, 2007 9:02:19 GMT -5
You know....it's just as Dr. Wymore said, something like (doctors) that are saying that "these people claiming morgellons are injecting things into their skin, or stuffing threads in" sounds crazier than what the people with Morgellons are saying.
I'll say! Talk about NUTTY statements.
We've heard them out of some real backwards and foolish doctors mouths on tv.
Anyone that even COULD conjure up such a thought, I think they need a pill. Only someone NOT mentally stable really is the one who could go that far into fantasy to come up with such imagination.
Think about that one, a doctor...he sees a patient with Morgellons. Doesn't think...hum, this is very peculiar, but in fact he goes into fantasy land "INSTEAD". Talk about out there!
There's something else I have to say.
It's obvious 'these people' who say such things about something like this are actually such narcissistic and arrogant fools to even believe that they can dub so many with a lesser IQ than theirs.
Only a complete idiot would believe so many would actually think they can "catch" something off the internet. Another fantasy land statement from someone who needs real mental help.
And....another thought, people too are going to be coming out "from under their rock" to discredit, because the time now is critical for us to have CDC look at this.
Please do not feel or think WE are defeated by people who try to intervene, they have shown their level of intelligence, really.
And that is where now we see how to overcome and nip the objections.
By now writing papers, (I know I'm reiterating) but really we need to ask...WHO REALLY SOUNDS DELUSIONAL HERE?
Thousands complaining with the same exact problem, or the ones who are exposing their degree of imagination?
What sounds more credible:
Parasitic epidemic and Lyme or
Thread stuffers that believe the computer is contagious?
See....they are hanging themselves, that's why WE need to more than ever get this out there.
We really can use their idiot statments against them, best sales technique there's ever been. That is a FACT.
Because the majority of the public aren't that stupid.
Please don't let "stupid" get in our way. Because truly...it's got no weight. Logic and smarts will always prevail, and that WE have.
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Post by victoreah on Jan 17, 2007 9:39:47 GMT -5
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Post by janedough on Jan 17, 2007 9:46:45 GMT -5
I don't understand this article. It says that it sounds like science fiction yet it fails to mention the fibers anywhere. If you think that having a feeling of bugs crawling on you sounds like sci fi, why leave out the Most sci fi like symptom of fibers?
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Post by tonie on Jan 17, 2007 10:04:45 GMT -5
I really think "things/symptoms" are going to be "left out" in more articles to twist the symptoms people get, and give it even "more" of a spin to the direction of 'fantasy'.
We MUST write. If media is only hearing from our opponents, then they out weigh what we have to say.
Please write, I'll post some links in awhile to make it easy to just click on and send off.
You can just simply write your symptoms and ask for help in getting the word out by them...the media.
It will also "feel good" to express all of your symtoms, I've found that too in writing letters, there's a sense of acomplishment in helping our cause and saving your life, and a sense of relief to get it off your chest and tell someone.
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Post by prevenge on Jan 17, 2007 10:35:52 GMT -5
but tonie... if the majority of the public isn't that stupid, it still doesn't matter if they are not informed correctly as to the actual facts we experience. it all depends upon what information they consume. if you shove something down someones throat enough.... they'll believe it. many americans believed we were attacking iraq because they had somehow attacked us. i mean think about that.
i'm of full confidence that there's a complete top-down conspiracy going on regarding the DOP and internet-contagious concepts. nobody would go THIS far to come up with THIS wild of theories... instead of just using a damnn microscope. after such a long time.. and so much discussion about it.. only a FEW doctors actually said.. hmmm .. well now lets just LOOK damnit!.. no that didnt happen... they've been TOLD how to treat this.. and they obey because theres other things afoot here.
either this is a ghastly mistake... and they dont want to cause panic... or this phenomena HAS A PURPOSE... a purpose that belongs in the twilight zone.. a purpose not even WE could accept as truth because its so horriffic and inhuman.
-M
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Post by tonie on Jan 17, 2007 10:48:10 GMT -5
Prevenge,
Right, the majority isn't that stupid. And that's true what you said, they're not informed correctly...so WE need to inform them correctly.
And in this case (the bigger mouth wins) so WE need to get our voices heard more than ever ..... COMPLETELY regardless of what anyone else is doing or saying.
Which THIS is our "clue/cue"....WE need to say more, we can see that by every article written that is put out there that sounds ridiculous and is only going to hurt/damage everyone who breathes.
I'm not a back seat sheep...I don't WAIT to see what my opponent is up to or doing. Never.
Who cares what they're doing and why they're doing it at this point, cause we already know...or we'd not be in this situation/predicament STILL.
We have to "EXPOSE" their twilight zone idiot statments, because those are actually MORE bizzare than the truth, and I do believe, and I know we all know this...the truth always always wins!
And in this life .... there IS only one reason that the truth cannot win, and that is and always has been (because the truth never got heard).
So WE must make it heard. That is our job, we ((OWE)) that to our right to live, and our families, and even the idiots who don't understand still.
It is our number one priority, doing all we can to enable our voices to be heard.
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Post by See Jane Crawl on Jan 17, 2007 12:05:40 GMT -5
Only someone who does not have it would write BS like that!!
Idiots, gotta love um!
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Post by heyjewde on Jan 17, 2007 12:51:40 GMT -5
prevenge-primary area of issue---this is not horrid or inhuman--it is,in my humble opinion,intelligent,worthy of respect so that it may learn respect...it is a stranger in a strange land--and remember- it's in our blood--it is us-we are it..and what's so great about human anyways--money hungry/power hungry/-i'm sure we all are aware that that list could get very long!!!!. twilight zone was a very good show in the 60's...rod serling -a very talented man. startrek was way out there when it first came out but space station is reality and one no longer has to be an astronaut to travel in space...just have to have enough sheckels(sp?)
i'm thinkin that the way out--if one has that desire is to reallly get into it...and find a way to lighten up --morgs have no sense of humor so we must show good examples--like perhaps by next halloween there may be a Morgy costume proceeds of sales to go to research--and the entity gets to learn fun---yeah--all stupid sounding bs perhaps but-ya just never know--ya know???
tonie--speaking of the truth--only we can do that--gov't officials will never as a whole do that---they cannot--they have not the moxy..an ol buddy came back from nam in 72 with an attitude of""you OWE IT TO YOURSELF MXXXXXFXXXXXX"-- and t h e r e was the bottom line--who said"to thine own self be true"?--same difference--but yes we owe it to ourselves to speak the truth spread the word -speak to everyone who will listen and loud enough that one or two others may"overhear"...we owe it to ourselves to walk tall with pride and dignity and head held high and when the stares come politely say "morgellons""--that gives the public an opportunity to look and inquire without feeling guilty as we engage in conversation of the injustices we are facing ...i may not write letters but for 2 yearts now i talk to everyone who's glance i catch--- on the street or on the bus or in restrooms all over the city---(ever go shopping and get stuck in the restrm for an hour while this crap keeps going off?--yeah i've had GOOD TALKS in restrooms!!) ok --i'll get off the soap box now--thx for lettin me vent--
jude
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Post by heyjewde on Jan 17, 2007 12:59:05 GMT -5
oops--that was years n o t yearts!!!--damn these fingers--gotta trade 'em in soon!!!
jude
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Post by tonie on Jan 17, 2007 13:13:37 GMT -5
Jewde,
You've sure got the right attitude, thank you, cause what you said is what it's going to take.
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Post by discovery on Jan 17, 2007 14:20:25 GMT -5
Morgellons may be nothing more than a product of the fevered minds of an active Internet community of self-diagnosed sufferers. Let’s hope it is. The danger is that if the CDC finds no medical basis to Morgellons, criticism from naysayers and “told-you-so-ers” will discourage future investigations of other weird and fantastic ailments, hindering the early warnings that we will need when the real thing emerges. This part tells it all. The "attitude" is "hope". Whoever wrote the article isn't convinced that it isn't a real disease entity but hoping it is. The scary part is, as I've felt all along, if the CDC doesn't come up with a medical basis to Morgellons, then Morgellons sufferers will be permanently labeled DOP with no other avenue for help. Again, I'm sorry for the doomsday but this is my fear. Whoever wrote the article shares that fear for future investigations into other conditions that arise.... problem is there's a "now" condition with Morgellons that could fall through the cracks. Unfortunately, the jury is out for us and we hang in the balance with what the CDC finds. Otherwise, the article does present evidence of past events and the consequences, so it seemed pretty balanced overall. It's just insane to even contemplate that we have nothing better to do in our lives but to become hypochondriacs, totally convinced that we share the same malady. For what purpose?!!!!! I was happy with my life just fine before, thank you!
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Post by tonie on Jan 17, 2007 15:12:23 GMT -5
Discovery,
Very perseptive of you!
That's right, they do sound not sure.
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Post by prevenge on Jan 17, 2007 15:23:36 GMT -5
discovery .. very true.. i've thought about the implications of that outcome for way too long. its the lowest possible point in life when you realize that you have to argue these innane points to a doctor.. ie: " It's just insane to even contemplate that we have nothing better to do in our lives but to become hypochondriacs, totally convinced that we share the same malady. For what purpose?!!!!!"
heyjewed.. i couldnt really understand your response to what i had said. i appreciate your optimism.. and i can only get through my day by being cheerful and having frun with friends and doing what i love like i did before this...
but i don't think of my disease as having a personality.
-M
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leighann
Full Member
Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on Jan 17, 2007 19:01:27 GMT -5
My concern is that it will end up like the report from the Duval County Health Department. It appears that most of the reports fizzled out, as you can see from a portion of this report issued from that same department from 2005, to wit:
"Of the 76 total inquiries, 65 were callers who believed they had Morgellons Disease. These callers were classified as cases or non-cases based on the initial call. Thirty-seven of these were lost to follow-up, most often because they could not be reached by telephone or they were a resident of another state (out-of-state callers were referred to the respective health department). Of the remaining 28, only eight Duval County residents met the case definition. The other 20 had other conditions such as MRSA, scabies, allergies, or did not have symptoms consistent with other description of Morgellons disease. DCHD also received calls from professionals interested in researching this disease and also calls from the public requesting general information."
and
"...further dermatological research is not practical. DCHD then consulted with the Centers for Disease Control and Prevention in Atlanta, GA. The reply was the same in that there was no interest to support research into Morgellons disease. Additionally, only eight Duval County cases were identified. This was not a large enough sample to conduct sound epidemiological research. Finally, most of the cases suffered from other comorbidities, including depression, anxiety, and thoughts of suicide. DCHD Epi staff felt it was a priority to refer these individuals to seek medical attention before participating in any research study, here or anywhere else."
Since the CDC will not divulge any info as of yet, how can we ensure that this same scenerio isn't repeated on a national level??
Everyone has to participate!! I believe there are still too many who are not willing to come forward in the public realm for fear of discrimination, losing their job or worse and ridicule. So we end up coming out of the gate strong only to whither away.
Any thoughts?
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Post by lurker on Jan 17, 2007 20:17:32 GMT -5
You mean this is all really a delusion? Oh thank goodness, I feel so much better now, you should see all the people being cured, we're all switching to CB radio's and feel so much better, breaker, breaker bedbug, this is nematode1 speaking ....
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Post by bigmike on Jan 17, 2007 20:40:04 GMT -5
Truth is contagious.
We know the truth.
It's REAL.
It exists.
It's CONTAGIOUS.
They will learn the truth.
And we can't stop that.
or it.
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