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Rage2
Jun 7, 2005 18:08:28 GMT -5
Post by Hope on Jun 7, 2005 18:08:28 GMT -5
I'll take this opportunity to give you a quick update on my treatment.
Still on antibiotics (two months) 500mg 3X. I started treating with antimalaria med 24 days ago. Approximately two weeks after I started this new med, things changed dramatically. I remember when I first did the microscope thing, it’s all different now! The fibers are dying. All of them. Not to say I am rid of them, but to describe how every kind, type, and color are dying off. Not cured by any way shape or form yet but, what I can say is that my specimens are weak, unhealthy looking, and less fibers are attached. What ever is going on, I can tell that they are dying. I now have tiny black splinters that surface through my skin. They hurt and are leaving my body by making small sores and sometimes they bleed, itch, and hurt. They never heal until the last of the tiniest black splinters are out. This is pretty scary guys because I ran out of money already and I’m almost out of meds.
I look like I have chicken pox or worse, and way too many spots and sores and (small) lesions to count!!!
Can’t afford to treat with my doctor anymore, I’m broke! And I’m very angry at my insurance company about everything. So many issues there that I don’t know where to begin.
Under the microscope, some of these splinters appeared to have two appendages on one end in which red and blue fibers twist together and assumingly grow and attach. It is my hypothesis that this is the catalyst that produces my fibers. I am not convinced that it is a parasite but it is undeniably close in its characteristics and effects. This cannot be a bug of any kind if you ask me due to the fact that it does not resemble one in any way. Never moves, has a face or an eye, nothing ever like that.
I’m already out of my one prescription and only have two days left of the other. Will be taking a visit to the ER this evening to beg for mercy. Wish me luck because if they wind up strapping me to some gurney, I’ll not be responsible if I go postal! Pray for me!!!!
(Bugs, wouldn’t this be a great opportunity to ask for some help with Drucker street business?)
I’m not going to mention Morgellons to anybody there. I’ll just act puzzled and pretend to think that they will have good advice and an opinion to offer. Have an appt at a University hospital in hopes to find any help in the future in about two weeks. Don’t get to excited, Mary is from the same area as me and has been there and done that to no avail already. I’ll ask this er doctor tonight to get my current meds approved for me until this Pitt appt as no one else will do this for me.
I really don’t know what to do about this splinter problem. My “freckles” are shrinking, fading, and the dark ones surface to be the splinters. A lesion is the result of several splinters in one area. Last month my body purged hair type fibers, the past week and a half or so, they are purging these splinters. I hate to imagine what could be next.
My zig zagges are now far and few and that is a good sign too!
Has anyone out there ever experienced anything like this before? What is happening?
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Rage2
Jun 7, 2005 19:57:50 GMT -5
Post by skytroll on Jun 7, 2005 19:57:50 GMT -5
Hope,
I have had those splinters too. What I found today was a fiber nest, like what you would find in a pillow or on a cotton ball. It seems like these things are more like microbes, not necessarily parasites.
Take care , skytroll
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Rage2
Jun 9, 2005 1:35:27 GMT -5
Post by susiebelle on Jun 9, 2005 1:35:27 GMT -5
In the beginning of my journey the bottom of my heel was sore and felt like I a splinter or a piece of glass in it so I started digging and ended up with a big hole and it didn't heal for several months. The nurse at work thought it looked like sporotrochosis (a fungus), because there was little black things in it, but when I went to doctor they xrayed and cultured it and of course nothing showed up. Then a few weeks later I had a deep lesion on my thigh and when they xrayed it the technition said that there were tiny blacks specks and that she had never seen this befor, but the doctor said it was nothing. The last mammagram I had was abnormal so I had to get a second one. The nurse said that tiny specks showed up and she had never seen anything like it. The second one was ok. I was wondering if anyone else has experienced anything like this. I'm like you though I don't think it's an insect, but probably a nematode. I haven't been tested for lyme but I'm planning on it if I can make myself face another doctor. I'm in central Illinois and not alot of cases have been reported but my husband has been an avid deer hunter for the past 25 years and turkey hunter for 15. I always do his laundry. Has anyone else had hunters in their environment. Also I wondered if eating the deer meat could a possible source. I took 4 days worth of meds from asia that is supposed to cover all types of worms. I'm supposed to repeat it 3 weeks and then 4 times a year. A lot of them are coming out around my neck and ribcage. I'm so glad I found a place to vent everything because even though people care it's just not something they want to hear about. Good luck at the emergency room. The nurse at work suggested to me to go to different hospitols especially if there is a major one that's not too far away. susiebelle
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faith
New Member
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Rage2
Jun 9, 2005 3:18:28 GMT -5
Post by faith on Jun 9, 2005 3:18:28 GMT -5
Susiebelle, just recently I had a CAT scan of my arteries and lungs. Doctor found a nodule in my left lung. I have developed asthma with illness. When I asked them how I got it, he said sometimes people just grow them. I thought that was a lazy answer. I is having me go get another CAT scan in a couple months to see if it is still there. I didn't even bother asking him just how it would disappear, what he really means is "check to see if it gets bigger".
When I got ill, I was exceptionally tired that day. I had not slept well the night before. I had just gotten married a month before. My husband is a carpenter. He was remodeling a cabin in East Texas. The job took about three weeks....heavy pine trees with other trees. The wooded area is very thick with trees and wildlife. I was doing laundry that day, reached into the hall closet where we keep our jackets and coats, this black bug jumped at me from one of the jackets hanging. The bite was so hard and piercing...that my eyes did not follow the insect, I looked at the site of the bite on my a right arm, just below the elbow. I had a mark for at least two weeks. It did not look like the mark described by the deer tick. It all started exactly 6 hours after that bite....I have never been the same. All the symptoms...itching as if I were going out of my mind....crawling sensations.....my eyes completely swelled shut for two days....it was intense and very painful. It was the third week October in 2003.
Its been a long road.....many many changes....I believe I had to make so many changes so I could get well. The Doctors were not that much help. I found one that did help me get better, although I am not sure he ever really understood what I have, he still tried and did get me on the right track. I also found out I had a couple different fungus infections going on at the same time. I have also been treated for those. Usually the black specs are about the size of a pin head. What is the size of yours. I think sometimes there are several issues going on inside the body and they feed each other. The bacteria and fungi hang together and that is what the parasites feed on, also allow the parasites or worms not to show up on Xrays because fungi and be so dense, they blend in. By reducing the fungi infection, or bacterial infection this disrupts the colony of something else and then it gets dumped in the system again. It either leaves, some how or another or finds another location to stay.
I have no idea really....I came up with all this on my own just trying to get well. I could be totally off. Who knows.....?
I think my insect bite came from my husbands clothes....so I think that could of happened to you too. It was nice to read your post because I was wondering the same thing.
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Rage2
Jun 9, 2005 8:16:15 GMT -5
Post by bb on Jun 9, 2005 8:16:15 GMT -5
Hope, have you tried castor oil?
You are the only one I've heard mention the zigzaggies. I had that also in the beginning, when I would bathe in the yeast enzyme product. Three times I showed my husband red zig-zag lines on my legs, which later scabbed over (tiny scabs) and I scrubbed them off as they healed.
I saw many tiny, black, round, thin, extremely hard specs. When I tried to pick one off the bottom of my foot it went into my skin like butter. It was these things that made the zigzag lines because I watched one of them. I never did catch one, because I didn't know to put them on shipping tape at that time.
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Rage2
Jun 9, 2005 18:56:25 GMT -5
Post by Lisa on Jun 9, 2005 18:56:25 GMT -5
Susiebelle, if you get tested for Lyme, make sure it's through the lab Igenex or Bowen. I do believe Igenex (Palo Alto, CA 1800-832-3200) is what's recommended though. You order the test kit and have your blood work results sent to your doctor. I also had the same experience with what felt like pieces of glass. It happened in my fingers and toes. I proceeded to try and dig whatever it was out. Since I never could get all of it or figure out what it even was, I left it alone and it went away. Still happens in my fingers at times and it's very painful.
Hope, sorry if you have already told us, but what antibiotics are you taking? I'm wondering if they're the same as what I will be starting. Yep, I've seen those splinters with the fibers wrapped around too. It almost looks like a type of wood material....it's been a while since I've looked, but I think they had lines going through and a few black dots thrown in sometimes as well. I had the zig zags on my shins, but not for very long. I hope to hear about your ER visit soon.
Faith, I know it happened so fast, but do you remember what the bug looked like? Did it jump or was it more like it flew or zipped by real fast? Did it look like a fly or gnat of some sorts? I've had more than one experience where one of these things flew out of the laundry when I opened the washer. This happened after it had gone through a long, bleached, very hot cycle. How the heck did it survive that? Same as you, my eyes swelled real bad for a few days during the first few months of this...not all the way shut, but my eyelids got grossly puffed out and it was obvious something was wrong. Of course, then it just disappeared like so many of my symptoms do. Some return later and others don't.
Everything that I view under the scope ALWAYS has a clear tube-like structure attached to it. Is it that way for the rest of you? Also, do you notice a re-occurrence at the site of an old scar....say a year later?
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Rage2
Jun 9, 2005 22:20:00 GMT -5
Post by spiderlegs on Jun 9, 2005 22:20:00 GMT -5
I had a strange (and quite painful) ingrown thumbnail recently. It was quite infected and blobbed out to about half a centimeter. I couldn't BELIEVE how effing painful it was. I soaked in in peroxide, then rotated alcohol, neosporin and bactra-ban. It is almost completely gone now. At first, it seemed like a splinter or some sort of jagged article shoved into the quick of my nail.
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Rage2
Jun 10, 2005 9:28:58 GMT -5
Post by bb on Jun 10, 2005 9:28:58 GMT -5
spiderlegs, I've experienced them getting under my nails like that too, so I clip them weekly, which works great.
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faith
New Member
Posts: 0
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Rage2
Jun 13, 2005 12:55:02 GMT -5
Post by faith on Jun 13, 2005 12:55:02 GMT -5
Lisa,
My initial onset of symptoms came from a bug bite. You asked what type of bug. This is what happened: I opened the hall closet door, to either get a jacket out or put some clothing in, I touched the sleeve of my black blazer, which was hanging next to clothing of my husbands. He had been working in East Texas, building a cabin for a customer. They have tons of deer, that walk right up to your home in this area. Lots of pine trees too.
Okay it was about 3 feet off the ground (which I read somewhere, that is about the highest level a tick will climb). It shot straight at my left arm, between my forearm and elbow. It bit or stung me and whipped on down the hall. I was unsure if it bit me and darted, or my jerk of my arm flung it off. I do not think it entered me. Its poison probably did, this bug was the size three fourths of the size of a dime. Black is the color and the main thing I remember. I could not find it when I looked in the location I thought it went. I guess I would have to say it could fly unless a tick can hop or jump several feet to get away....I am not sure.
I've had a horrific fly experiences that I just can bring myself to post, but if you like, send me a email and I will be happy to share the ordeal. Although I am so much better, I still can not believe some of the symptoms I have experienced. I have not taken it too lightly....any how posting some of my most morbid symptoms on a message board is more difficult than I can handle at this time...however if anyone reading would like more information on flys, then please feel free to email me also and I would share anything I can so someone else may not have to feel so alone in their fight. I am happy to share, if it means enough for you to ask.
I have tried to register on this board numerous times and I cant seem to be able to get the email for the initial password. I have adjusted the spam and all that....still no good.
Faith
gccofok@aol.com
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Rage2
Jun 18, 2005 12:33:15 GMT -5
Post by Hope on Jun 18, 2005 12:33:15 GMT -5
Skytroll, Susiebelle, bb, Faith, Spiderlegs, and Lisa,
Thanks for responding to my post. My ER visit went very well. I got scripts for my meds but no authorization for my insurance company so I can wipe my but with those scripts because I don’t have the money to fill them.
The doctor I had said she saw a patient last week with what looked like the same thing I was showing her. She also said that that patient was an IV drug user. Well, I’m not one of those nor do I look like one so I think she ruled that out when I produced my lyme test results in black and white.
My point is, I bet lots of druggies have this and if we think we have problems, think again! I feel really bad for the druggies and fear that they will never get the help they need no matter what.
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Rage2
Jun 18, 2005 14:37:06 GMT -5
Post by justice on Jun 18, 2005 14:37:06 GMT -5
When this first began to manifest in my skin, it was the splinter of glass in my hand that was always just out of reach. I had been beading (something I used to do before all of this) and I had a blue glass tube bead (very small~ interesting now that I think about it, the color that is)) that was next to my crimp bead at the end of a bracelet. The bead broke in the crimping process and I felt something enter my skin. I tried to dig it out but it was ellusive. If I had not "known better" I would swear I was chasing it without any success. Shortly after this my hands and nails/cuticles became very bad (and still are 4 years later). There is a huge overproduction of "skin" on and around my fingers- as well as my toes. They are swollen/tender and extremely painful. Often I can't feel what I am touching and if I can , it is the piercing pain of the pressure between the nail and skin underneath it. I had a strange experience about a week ago. While pouring boiling water for coffee I spilled it onto my thumb. (I am usually very careful with anything hot because of the aforementioned problems and the fact that as a carpenter in combination with this disease I experience my arms and hands falling asleep often) I pulled my hand back immediately- more reactionary than because I felt any pain. I looked at my thumb and it was red but the only actual pain I felt was a miniscule amount near the cuticle. Upon closer inspection, I saw threads/fibers and tiny white "worms" exiting the pad of my thumb. I put some oil of oregano on it and watched them "grow." Very interesting. Perhaps this stuff we all have is a bioengineered military skin protective suit gone awry in its study and production. Just kidding~ kind of. So that was a yes on the splinters if I lost you on the way. And one more thing that dawned on me while writing this. The beads I was working with were very old. I had inherited a huge box of crafting stuff (truly one of the best presents I've ever received!) from my stepmoms' mom when she passed away. She had been a huge crafter and worked for Disney most of her life in California, where she lived basically next door to the place. I'm not sure I can fathom the possibilities of a connection there. But stranger things have definately happened and continue to do so. Justice
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