Post by kiki on Apr 2, 2007 16:13:15 GMT -5
My Dr. said one of my tests showed a "high titer" for babesia--I also tested positive for lichen schlerosis, vit D deficiency, and a tilt table test diagnosed POTS(postural orthostatic tachycardia). My question is about the babesia. An ID Dr at Johns Hopkins said that only means that I did have it at one time but dont anymore and to put it out of my mind. My primary Dr said bull! and put me on Clindamycin, quinine sulfate and 2 doses of ivermectin. Oh, stromectrol too. I was on them for 3 months. I didnt feel any different taking them-no side effects at all but about a month after last dose symptoms lessened but never disappeared. this was last year. I have monthly Dr appts and she orders new tests each time. she freely admits that many are probably far-fetched or to simply rule out things-mostly to keep insurance co busy scratching their head so they dont try to interfere and say that what shes doing isnt warranted! Last mo one of the tests showed another high titer for histoplasma-it was only one # below positive cutoff-hope that makes sense. She has me on doxycyline(sp?), ketonazole, and gave me another script for clindamycin to use when any dental work is done. She said she wants me to take the clindamycin for the rest of my life during dental work. She also had me take 2 ivermectin doses for 2 wks and refills to use as I see fit. When she puts me on multiple meds that I never took before she has me start one of them right away and wait a few days before adding another so if I have trouble w/them I'll know which one. I started the keto first and felt human in just a couple days(my pharmacist said he was doubtful that it was indeed the anti-fungal working that fast as he felt it would need to build up in my system(a couple mo) before having that kind of results but never say never). I took the ivermectin for 2 wks(4 doses), took 20 doses of the clindamycin for 7 or 10 days as perscribed for tooth transplant prep work and havebeen on the doxy and keto for about 2 months. No problems till a wk ago when all !@!! broke loose. Im having projectile vomiting and dry heaves when theres nothing left to throw up. My scalp and eyes are in a constant uproar and the tiny black specks and baby fine "wanna be" hairs have gone insane. Could this be a good sign(herx?) or am I setting myself up for a major disappointment? Also she said I may want(need) to take the keto for 2 yrs-and maybe for ever w/breaks as/if needed. She wants me on the doxy for 3-4 months and decide at that time if I feel I need to be on it longer. I trust her implicitly but would value opinions of those that have first hand experience. She also gave me a script w/refills for erythomycin oph ointment but asked me to check w/pharmacist before using as it may be bad to take w/the other meds and some abx are not to be used if fugus is involved. Can anyone share some words of wisdom? To top things off, she thinks I gave myself a hernia from the severe retching! I can endure the misery easily if I know its helping me in the longrun. I didnt intend to write a novel--thanks for hearing me out and for any opinions you care to share w/me. BTW, my Dr is an internist not ID but shes everything and then some of what a Dr could hope to be. She believes that prescription meds AND alternative medicine is valuable. she is in MD if anyone is close and needs a good Dr. I'll warn you though-for the first yr. my appts were 2-3 hrs(monthly) however she is driven by her refusal to fail and Im quite sure she would adapt her treatment as much as she could if distance were an issue. The bad thing is I think she will only take patients w/insurance(but Im not positive about that). Thanks again for taking the time to read all this.