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Post by toni on Apr 20, 2007 16:38:57 GMT -5
If you live near Boston MA, I just got word from Kelly Henry of WSVN (special reports) she wants people.
Anyone, please if you're in the vicinity, this is a GREAT opportunity to tell them and ASK about CDC too!
Thank you all.
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Hello Susan, I received your email from our sister station WSVN in Miami.
We would like to do a story on this up here in Boston. Do you know of anyone in the Boston area that is suffering from this terrible disease?
Your help would be greatly appreciated. Thank You, Kelly Kelly K. Henry Executive Producer, Special Projects WHDH-TV - CW56 7 Bulfinch Place Boston, MA 02114
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Post by toni on Apr 20, 2007 16:43:19 GMT -5
This is the letter I'd sent:
Dear Lillian Rivera and News Team, My name is also Susan. I live in Nevada. You just did a TV news segment on Bugs. There is a site on the internet where thousands of people are trying to "self medicate" and 'self treat' and console each other, 8,000 "registered" with this board (Morgellons Research Foundation) and (Lyme Busters) the name Lyme is because these "anthropods" have vectored many many pathogens to us, and Lyme disease is one of the many diseases that these bugs are transmitting. And because we have all been complaining and doing everything we can to get CDC to look into this LIFE SERIOUS devastating problem, still NO ONE IS LISTENING. Thank GOD you are, and you see what we've had our lives ruined over this infestation. I myself and hundreds of others I know personally have contacted CDC, news media's across the nation, to no avail. We are all infested with many different "types of bugs". And we do not know how this happened. All of us have done nothing but try and figure out what is a commonality, and we cannot find any, because we all live in each and every state across the country. We don't know if this is terrorism, something in the water, something in the food, or what! WE ARE ALL, AND MANY MORE PEOPLE ARE CONTAMINATED WITH BUGS COMING OUT OF OUR SKIN! PLEASE HELP US! WE ALL have been deemed "nuts" from our medical doctors. I too, have been told I needed to see a phychiatrist, I have been to many many doctors to no avail, and so many others have also because I and we all have all kinds of bugs coming out of my skin daily. NO ONE HAS LISTENED and finally when I saw your tv segment, I cried, because NOW someone is. This has been known by CDC for several years, and been ignored. I've written many blood banks across the nation, and hundreds of schools, warning them and asking them to take additional measures, because this is another means of spreading this horror, the bug contraction. There has been a few TV broadcasts about this, called "MORGELLONS" but no one is YET taking this serious. People I speak with about the same exact symtoms live all aross the USA, in each and every state. Daily we phone call each other and we are all very afraid, and our spouses and children also have this MORGELLONS and daily we see more people contracting this epidemic. We have no medical treatment. We all have been using everything on the market, and taking all kinds of medications just to try and survive one more day. Some people have committed suicide, because they cannot stand it. I will admit myself, this has caused those thoughts, because the crawling and itching, and watching of larvae and bugs coming out of the skin is sometimes too much to bare. Your broadcast only mentioned a few people have this...that is not true. If you please will look on the internet under Morgellons you will see...10's of thousands on other sites ALL are devastated with the same exact problem, and still....no one listens. Please just search "Morgellons" which was the name deemed, and we are all here, all begging for help, and any of us are willing, myself to to be examined but no one will examine. Doctors have said it's only dermatitis, which this is not. We have been all infested or contaminated with something that has allowed the human body to "become infested" as never in life before.
All of us have been told to take anti-psychotics by our doctors. We desperately need help. I too have sores from head to toe, hundreds of them, where flies leave my body, larave I pick out daily from my face, and every doctor I've been to says it's nothing but my imagination, which this IS NOT. There is nothing "psychotic" about this, this IS and HAS been going on, this IS already a new epidemic, and whether or not it's "arrogance or ignorance" as far as our medical community goes, we only know, that thousands and thousands of us have been ignored. You can call me, I am here as I've been imprisioned in my home for over a year. I cannot and have not gone outside my doors except to go to doctors, in hopes that the next doctor will do something, and to date FEB 16, 2007, not one single doctor will listen...they refuse to look closer to see this is in fact happening, and this has been going on for quite awhile with all the other thousands of people I've spoken with too. My name is Susan and my husband is Frank. My phone number is (( ///// //////// )) Please for GOD's sake help, we need your help. We are all begging for help, and have been, and thank GOD you and your news team have heard some of our pleas for help. Thank you for life, Sincerely, Susan
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Post by cozmikanjel on Apr 20, 2007 17:19:32 GMT -5
good job toni-susan at your letter. so glad you heard back....such a great feeling when someone finally responds. i hope someone in Boston gets in touch with them!
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Post by toni on Apr 20, 2007 17:51:34 GMT -5
Thanks Coz,
I hope so too, that someone will do this in the area (Boston), otherwise this will only look like it was an "incident" in Florida, and the CDC question can be asked and asked and asked..."where are they when thousands have called and written letters about this" and why won't they respond, which THEY CDC does to everything else, which I've written them...but as for Morgellons, or anything like it, they TOTALLY ignore it.
There's a good reason for that...and "I've heard" they're (CDC) is doing the "stall again" on looking at this.
So the ONLY way we're going to get them to EVEN look, is to do these public news casts, with the question of what the HELL is going on???
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cj
New Member
Posts: 49
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Post by cj on Apr 20, 2007 18:50:41 GMT -5
good job tony!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Post by toni on Apr 20, 2007 19:36:41 GMT -5
Thanks Cj,
We just need to find someone who can do this, that lives in the area.
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Post by toni on Apr 21, 2007 10:57:56 GMT -5
Can anyone tell me of other sites that are about Morgellons, maybe in the eastern USA, so I might write to them to see if there's someone who lives in this area that would be able to do this?
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Post by cozmikanjel on Apr 21, 2007 13:42:33 GMT -5
what about contacting Mary or Dr. Buckner and see if they can give references? "Doc" is a sweetheart! i can pm you
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Post by belikewater on Apr 21, 2007 14:15:07 GMT -5
There should be tons of people on the East Coast as Lyme is rampant there. I know Taratula38 is in New Jersey, maybe the doctor she sees has other patients.
Really, really good letter, toni. Thanks.
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Post by cozmikanjel on Apr 21, 2007 14:43:19 GMT -5
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Post by toni on Apr 21, 2007 14:46:12 GMT -5
Coz, got your PM, and thank you! Belikewater, thank you, it was from the guts.
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Post by liatris on Apr 21, 2007 21:48:19 GMT -5
Hi Toni. Darn ! This is SUCH a great opportunity ! I can't believe nobody on this board is from Boston. Hey, KOZMIKANJEL - Do you know if anyone contacted Mary ? WHo is Dr. Buckner and how can he be reached ? Please let me know and I will contact the above-mentioned. TONI - Will this reporter speak with anyone or do they have to be from Boston ? I would do a phone interview !! I would do a kick-ass job too, if I do say so myself ;D !! Liatris
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Post by liatris on Apr 21, 2007 21:51:12 GMT -5
I am in New York State - could not travel -- but if they want to speak with someone on the East Coast.
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Post by cheetah on Apr 22, 2007 1:45:13 GMT -5
CDC is not the only ones stalling!!!!!!!!!!!!!!!!!
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Post by toni on Apr 22, 2007 8:25:17 GMT -5
Liatris,
I know you'd do a great job. A "on tv" interview is what is needed. I would have done the "phone interview" if that were all that they wanted, and I don't mean that in any way except to express that the exective producer Kelly Henry of WHDH is willing to do this - for them and it would work for us too - the exposure that we so desperately need about :
(Where the hell is CDC when we're being literally eaten alive with bugs and sores and bacterial and fungal pathogens and becoming disabled with every day that goes by!)
I HOPE we can find someone really soon, or this sister station of Fox in Miami will fizzle away...and we don't want that, because Fox is national...and one dominos to the next, from east to west.
I've been posting this info elsewhere too...we cannot let this go to a dead end.
If you all can do this too...seek and ye shall find, so lets all try to find someone.
Thank you
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Post by liatris on Apr 22, 2007 9:25:34 GMT -5
Toni - Mary would know about any people registered around Boston. Did you email MRF/Mary ?
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Post by toni on Apr 22, 2007 13:07:37 GMT -5
No, I didn't, and I NEED to so I WILL....THANK YOU...geeeze where's my head.
Well..now I'm not sure about the email address? Do you have it, and I'll be on it, or is her address on the MRF site???
Well...I just went to MRF, didn't see her address to email her, can you help me?
Thank you!!!
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Post by liatris on Apr 23, 2007 21:19:44 GMT -5
TONI - Sorry - was asleep that long - just saw your post. I do not have her emial address. Geez... you'd figure there was some way of emailing her at least through the website. Sorry.
How is it going ? Anyone yet ? Have you told the woman at the station that the delay is not for lack of interest but that we have not been able to locate a Boston person yet ? That may help.
Thanks for what you are doing.
Liatris
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Post by toni on Apr 24, 2007 8:39:01 GMT -5
Liatris,
Yes, I looked on the MRF site, but her address wasn't there.
I'm trying another way, and yes, I gave her another way to contact some Morgies "possibly"...as for how is it going, I don't know, I'm hoping. And thank you Liatris.
I had a thought....let me run this by all you.
I'm going to write Kelly Henry the Exec Producer in a few mintues. If "she's" not got anyone yet, well...here's my thoughts okay - maybe I should make a new thread if she's not got anyone in the area.
If anyone is willing and would do this tv interview and lives within 2 or 3 hundred miles, "maybe *just a thought*" we can all donate $20 bucks, and someone here "hold" that, and with all the $20 donations we could "use that to fly them there".
What do you think?
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Post by lydski on Apr 24, 2007 19:33:27 GMT -5
That would work for me. Cuz I.m like you Toni, thinking we definately (sp) need this interview to happen!
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