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Post by laggica on Jul 20, 2005 12:15:12 GMT -5
I just wantd to thank all of you! And I do mean all of you before I found you guys I thought I was all alone and insane close to giving up. You have given me hope and thats somthing i have not had I cry as I write this :'(maybe im over sensitive but you guys are great thank you for saving my life!! love and more love, Jessica
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Post by bugged1 on Jul 20, 2005 12:56:43 GMT -5
Lotsa love right back at ya Jess. Remember to try to keep a positive attitude, as difficult as it may be, as that helps your immune system against this. I'll be in San Diego in a few weeks - maybe we'll have to make a "drug run" to Tijuana together - LOL!
Be WELL,
Chemist G
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Post by laggica on Jul 20, 2005 13:01:30 GMT -5
chem G I'm up for that lol Cheers sweetness, Jessica
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Post by Jess on Jul 20, 2005 19:08:07 GMT -5
uuDear Jess,
I know how you feel; coming down with this disease makes you feel just awful, not to mention you may have already tried going to the doctor and had them spend all of 5 minutes with you before announcing how "crazy" you are for being itchy.
It is incredibly annoying and painful at times, but knowing that other people are suffering too, and being able to contact them via internet communication, has helped me tremendously. I'm so glad that you found this board and that your spirits have been lifted somewhat, knowing that we're all in this together.
much love back ;D
Jess
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Post by ANTHILL on Jul 20, 2005 19:48:32 GMT -5
hi Jessica hopefully you wont have to suffer allot of the pit falls that allot of us went through you came on board just at the right time four years ago there was hardly anything being done to stop this lunacy the only thing better would be if you would of got on the cootie train a few years from now when doctors fully recognize that this is a real medical illness
you will get better I believe things are taking a turn in my favor and it will for you too sending you back some of that love --ant
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wally
New Member
Posts: 35
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Post by wally on Jul 20, 2005 22:43:22 GMT -5
;)I am glad that you found us too Jessica. I think we have all been depressed and ready to give up. Read the entries on the site and hopefully your despair will turn to anger like the rest of us have at the incompetence of the dermafraudulists and the medical community. Treat them the same way that they treat you, with arrogance and disdain. Remember, these are the same people that have poisoned our children for the last couple of decades with mercury laden vaccines that have caused a plague of autism in this country. these are the same people who turned a blind eye to the aids epidemic years ago and did nothing. And Yes these are the same people who push every pill known to man on us regardless of the side effects. Yeah, we should really take great stock and have blind faith in what they have to say. Tell them to go to hell and seal your medical records as soon as possible.. We all need to become more informed about our health and medical providers.
I may sound a little angry tonite because I am! I am upset with a medical system that drives people like you and me to despair. I am almost over this disease and am really upset that I had to go it alone without any help at all from the dermafraudulists. But then why should I expect any help from them. IF you visit there office what do you see in the lobby? Ads for Botox and pimple cream! These guys are nothing but modern day snake oil salesman. Do you thing they really care about anything other than making a payment on the new Beamer? Don't bet on it. IF they really cared they would spend more than five minutes with you. I never miss a chance to trash the dermafraudulists in my daily life people ask me for advice on dermafraudulists and I tell them to make that the last resort. Go see a shaman before you see a dermafraudulist, you might be better off.
I was getting ready to bail out of this whole thing and put this all behind me now that I am almost well, but maybe I should stick around if I can help someone else out or boost there spirits a little. There are really some caring folks on this site so hang in there with us and we will all find an answer some day.
I want to close this out with something that I have been thinking about for a long time. Do you remember the guy who was wrongly accused of the Olympic Park bombing back in the '96 Olympics in Atlanta. They had no evidence what so ever to link him with the bombing, but he fit some kind of profile that the FBI had. I cannot even begin to imagine the personal torture that this poor man went through during this time. And yet here we are with the same kind of situation, although not nearly as huge as what his situation was . We fit a profile of a dop and that is all there is to it! So don't expect any help from the dermafraudulists.
Forge on and don't despair, get mad! Wally
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Post by ANTHILL on Jul 20, 2005 22:55:43 GMT -5
Wally I love that word that you coin dermafraudulists that hit's the nail right on the head and probably a thumb or two ;D
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Post by rickndebby on Jul 20, 2005 23:49:09 GMT -5
Hey Wally, You hit the nail on the head with your last posting.....I agree with you...Yes I remember the 96 olympics...If you remember right NBC and especially the Today show had the guy guilty as hell.....He even won a sizeable lawsuit from NBC for their rush to judgement...
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Post by bb on Jul 21, 2005 21:30:52 GMT -5
That is right......hope.
We walk in the door to see a doctor and all they do is dash our hopes. They are the direct cause of the suicides, and they've got to be stopped. Immediate care is what is needed. Darn Idiots.
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Post by rickndebby on Jul 21, 2005 22:52:40 GMT -5
Assembly line medicine....That's the problem...Since the start of HMO's etc. Drs. today tend to only treat the symptoms rather than the cause...Theres no money in finding out what the root cause is....The answer today is examine and prescribe....In our cases they hope we just go away....In everthing that I have read it seems that very few doctors are willing to go on the record for us.....Is it arrogance??? or is it FEAR??? This is not a psycosamitic illness....WE ARE NOT IMAGINING THESE CREATURES.....Debby and I are awaiting our test results from the University of Michigan....oh yea....the doctor there said '' Its not a parasite " thats all in you minds...we just can only hope...Rick of rickndebby
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Post by Betsy on Jul 21, 2005 23:26:14 GMT -5
Message (question ) from Betsy for Wally Wally, You said you were almost well. Do you think you had Morgellon-like symptoms? Waht did you do to get well? Betsy
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Post by Betsy on Jul 21, 2005 23:32:51 GMT -5
There is a new book out called Lisa's Disease, Fiber Disease (Morgellons). It can be found on the Healling Research Institute website (hot off the press). I just mailed away for it but have not yet received the book. Hopefully it will shed some light. Dr. Swartz (talked to him about 2 months ago by phone) seemed to have some insight. It seems to me we need a way to get this disease catagorized by symptoms and a way to get a positive diagnosis. Secondly we then need a remedy that works for healing our bodies and the environment. By the way, does anyone think this is contageous? for now --Betsy p.s. Hope this book has some answers.
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Post by Hope on Jul 21, 2005 23:34:06 GMT -5
I guess I don’t fit anybody’s profile since I have never had the DOP diagnoses. Can’t figure out why no one has told me to see a shrink yet. I already have one of those anyway and even he believes me. OMG, I’m not even a normal Morgie! All my medical records pretty much backed up what I was claiming when I went to any appointments, I have visible lesions, and now I have video! I would have never guessed in a million years how easy it is to throw off the medical establishment. I can freak them all out very easily now. I've had two doctors tell me, "I'm not sure what I just saw!" They really don’t know what to do with us, they are scared of us, and they are completely clueless. Yes, Wally, a Shaman is an excellent choice! ;D Peace, Hope
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Post by bugged1 on Jul 22, 2005 0:52:05 GMT -5
I guess I don’t fit anybody’s profile since I have never had the DOP diagnoses. Can’t figure out why no one has told me to see a shrink yet. I already have one of those anyway and even he believes me. OMG, I’m not even a normal Morgie! All my medical records pretty much backed up what I was claiming when I went to any appointments, I have visible lesions, and now I have video! I would have never guessed in a million years how easy it is to throw off the medical establishment. I can freak them all out very easily now. I've had two doctors tell me, "I'm not sure what I just saw!" They really don’t know what to do with us, they are scared of us, and they are completely clueless. Yes, Wally, a Shaman is an excellent choice! ;D Peace, Hope Yeah Hope but my fear is that when the medical community figures out this is REAL they'll be, like, "HOLY CRAP , we'd better quarantine these guys!" How's the treatment working? Hugs, Chemist G
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Post by Hope on Jul 22, 2005 1:46:23 GMT -5
Dear Chem, That’s because we know we should be quarantined! I’ll probably be the first one they come for too!!! The treatment is going well so far and I feel the Cipro making a difference. I have so much to clear out that I don’t know if this purging will ever stop. I get less and less movement every day now, no new lesions, and visible healing with the existing ones. I no longer constantly feel those "hairs" on me any more. Thanks for asking Chem and hugs back to you. Dear Laggica, Welcome to the board. You are not alone anymore and you are not insane. Having hope is the first step to getting better, your doing great. If you have any questions don't be afraid to ask and read the old posts as much as you can. Peace, Hope
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Post by laggica on Jul 22, 2005 12:07:37 GMT -5
yeah i see those floaters every where on everything. My friend said its just dust i see floating through the air when im in the car alone i see these thing but then i look at a q tip and they wiggle to so maybe its just me. or maybe i infect everything i touch i went to the doctor AGAIN same ol story I got really upset and started rubbing my self on everthing in the waiting room and said call me in a few years butthead!!
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Post by scratchy on Jul 22, 2005 18:29:18 GMT -5
Jessica, you showed him! I would have done the same thing, if not worse.
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wally
New Member
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Post by wally on Jul 22, 2005 20:56:46 GMT -5
Message (question ) from Betsy for Wally Wally, You said you were almost well. Do you think you had Morgellon-like symptoms? Waht did you do to get well? Betsy
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wally
New Member
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Post by wally on Jul 22, 2005 21:04:53 GMT -5
Message (question ) from Betsy for Wally Wally, You said you were almost well. Do you think you had Morgellon-like symptoms? Waht did you do to get well? Betsy If you look at my earlier postings titled " a treatment that works" or some of Specuelatins posting about "micanazole Nitrate (wally's cure)" it is detailed in there. I don't want to rehash it all again other than to say that I am about 99% free of the skin problems now and continue to improve every day. The bad part is that it takes a while. I have been using the treatment for the last 18 months, but at least I am improving! I went through a living hell with this stuff for three years before I finally got a handle on it. If you are looking for a two week cure, this ain't it, but I am a lot better than I was two years ago. Good luck Betsy. Forge on......
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