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Post by Hope on May 20, 2005 17:58:45 GMT -5
OMG, I just notice this stuff on my Aunt!!! She doesn't believe me, I don't think; even though I pointed it out on her skin, my kid’s skin, and my skin. She has the barley visible zig zags along with the “freckles”. That can only mean one thing because we have them too. I live in a world happy to live in denial, while denial is not an option for me any longer. I feel like some kind of medical psychic woman because I can see this disease on others while they are clueless.
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Post by marabelle on May 23, 2005 11:37:11 GMT -5
hi, Hope--i really like that: "denial is not an option for me anymore"--i am in the same place--my extended family is all infected, but refused to hear it--they even tried to rationalise by saying, "well, this must just be a normal thing for people...since we ALL have it (the fibers)..." and i suspect that everyone i work with has been infected, as well--and when i tried to "confess" to my own "condition", and urged all of them to seek medical treatment ....they all looked the other way and never spoke of it again...and i see them all getting worse evry day--rubbing eyes, itching, exhibiting brain fog, ETC!!! it is truly frightening to witness, and makes all the more apparent to myself, the Grave Importance of the persistence and brainstorming that we see on this board...literally, you guys here are the only thing that gives me hope for the future for my sons--i have sobbed myself into oblivion, which graduated to 'motivational rage', over the legacy our so-called leaders are tossing down to our children, like so much festering garbage!!!! i guess the people here are meant to enlighten and save the rest, only explantion i can find for our insistence on remaining WIDE AWAKE, AND KICKING!!! peace, marabelle
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Post by Guest on May 24, 2005 10:27:46 GMT -5
We're keeping samples to take with us to the doctor we have several of the skin burrowers, fat ones, too. And we've got a couple of the feather-looking fibrous "drillers". I swear I've seen them launch themselves. I've also thought I've seen the nymph "pop" through the skin fairly high (relatively speaking), but I was deliriously tired. Currently, I have several fibrous ones drilling into my head. We've only had it for two weeks and some change. It continues to get worse. My wife, my son, my mother-in-law, and myself all have it, though my wife and I have had it about one week longer.
Will it ever stop, please?
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Post by gmsscared on May 24, 2005 23:28:17 GMT -5
Marabelle, I feel your pain! I once again tried to tell my mother of this disease. I recently moved close enough to visit more then ever. You know how that feels. She only said she hoped me being closer would make me more healthy mentally because she expects this of me. And she said those wonderful words I BELIVE U BELIEVE THERE IS SOMETHING WRONG I told her she had know idea how that put me into rage and we quickly got back to normal activities and spoke of it no more. I hate this so much. And the worst of all is the children, the yern to save them from something only I can see and I have pretty much been labeled a nut case. I just keep repeating everything is going to be ok.
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Post by nightnurselurk on May 25, 2005 3:42:13 GMT -5
Here's my take on the matter: Most people don't want to hear they've caught something bad if they can just ignore it. (especially if there's no pill for it!). I think I might have had symptoms for years: eg: out-of-control hangnails, horribly itchy scalp with red bumps (1 year prior), out-of-control buttocks acne that demanded scratching at night and left purplish scars (I remember a doctor's recoil & shocked look, while I'd been casually applying medicine off & on for years and not thinking about it or looking hardly), a few months with blackened toes, way too much dust, and I suppose there's more. But if someone told me they were symptoms of a disease that has hardly been researched, and hasn't a certain cure, almost no one knows about etc. I might think "Get lost, man - you're probably listening to too many hysterical health reports in the news and obsessing about every little thing in your own body."!! But then I got bit by mites and injected with whatever it is. Once I experienced the biting lint and crawling sensations, I needed to learn what was going on - it was acting ALIVE!. So many of our S.O.'s think the "crazies on the internet" talked us into thinking we have this - but that's so insulting. I did learn on the internet that the fibers move on thier own, though. I might never have watched one closely otherwise, but when I saw one move I knew my life might never be the same again (turn on Twilight Zone music now). At a funeral last year, I watched in the pew ahead of me as a wavey fiber around 3 inches long danced on my cousin's husband's shoulder through the whole service! I noticed him scratching himself a lot. Lunch afterwards - still scratching. Jump ahead one year to the next funeral. Now his head was shaved! Also new baby. Didn't sit behind them, though, to observe scratching activity. Now I'm trying to get up the nerve to call my cousin who I don't know very well, and ask her about any um..problems, so I could offer to help. I almost never see these people but she had a horse boarding at the same place as mine, not kept together. My infectious mites jumped off my horse to me, and there are birds all over the place in the rafters. The vet said the birds only have mites in their nests (I say maybe). Gmscared,...Mothers can be exasperating! I have a regular Toxic Mom myself, but she stopped listening to my S.O. and believes me instead after I showered her with information. Its really good to have her to talk to (not too much, of course, cause she doesn't want to get depressed ) My actual friends, eyes aglazing, seem totally disinterested in the whole subject - its lonely having this. I have a sister nearby who believes 100% my problem is real but she pushes the panic button so easily I have to be careful not to cause alarm. If I saw any Morgellons signs on her I wouldn't say anything. Would that be wrong? From your R.N. on duty tonight
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Post by SpecueLatin on May 25, 2005 6:14:48 GMT -5
Hello night nurse RN (llurker):
Did the horse have any crescent shaped lesions on the neck area? Or any kidney bean shaped lumps, or curvy looking nodules? or any missing patches of hair, even small areas, especially on the neck or shoulder area?
We are exploring the Onchocerca that normally invade horses and are transmitted by midges, rather than the black flies of South America.
Spec
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Post by SpecueLatin on May 25, 2005 6:31:37 GMT -5
PS here is a link. Two thirds of the way down you will see a picture of a horse's neck that has infection of onchocerca. There are two types possible for the horse, O. cervicalis and the other, which is the one i am focused on is O. rickella (or something like that). www.cheval-bretagne.com/asp/actu/detail.asp?idc=119I have crescent shaped lesions, and kidney-bean shaped nodules and curved nodules that are more lengthy, that follow the distribution pattern of these particular types. If you are interested, the general board has a current thread called Onchocerca Volvulus.. which also incorporates info on the "zoonotic"? forms. spec
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Post by marabelle on May 25, 2005 13:04:02 GMT -5
OH--I ALMOST FORGOT TO TELL YOU GUYS: WE HAVE HAD TWO DEAD BIRDS IN MY YARD IN THE PAST MONTH...!!!! I CALLED THE LOCAL HEALTH DEPT. BUT THEY DIDNT SEEM TOO CONCERNED! ONE WAS A SPARROW, THERE OTHER A HUGE CROW!! THESE BIRDS WERE NOT TORN APART AS IF BY ANOTHER ANIMAL, JUST LYING DEAD ON THE GROUND WHEN I WLAKED OUTSIDE EACH DAY!!! WHAT THE @#$% IS GOING ON???!!!
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Post by guest on May 25, 2005 14:34:58 GMT -5
In Wisconsin, the health authorities regularly remind people to report all dead birds, especially crows, because deaths without apparent cause can be from West Nile Virus, and they want to test the birds and track its spread.
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Post by to speculatin on May 26, 2005 20:01:49 GMT -5
Hi Spec
Thanks for the link. My horse had nothing on his neck, or unusual lesions like you describe, or that looked like the ones in the picture. Although he'd gotten Ivermectin 3 x per year, I started giving it more often (to me too) since it also kills mites.
Didn't I read that you took Ivermectin (Stromectol)? Did it help?
Any clue whats inside the nodules? Maybe you could get a worm out for a specimen. But I'm giving a recommendation to cut yourself, of course!
Your friend, Nightnurse
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Post by spiderlegs on May 26, 2005 20:06:39 GMT -5
My wife and I took Ivermectin 3 times. It does bad things to your liver or causes leukemia. Now, I'm confused: permethrin causes leukemia and Ivermectin liver damage, or the other way around?
Anyway, they're both bad. The cure shouldn't be worse for you than the disease.
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Post by gmsscared on May 28, 2005 22:31:48 GMT -5
nightnurselurk, hi! I havent got to talk 2 u since ive been gone awhile. u r right, i have decided to just tell her not to worry i would only tell her test results and that would be all. she ask if i would lie and i wont. i promised her,she is very worried. so i dont want that, she has it so ill worrie 4 both of us. i hate to see her worried. she has a bad heart and is an rn also, the worst pts.......hahaha but ty for helping me think through this. we all need each other here. see u helped me understand. do u have morgellions or lyme i might have missed a post u made.TEXT i was in the medical field before i started curling and spasms and on on and on. unable to work since 1998. take care love (G)
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Post by SpecueLatin on May 29, 2005 6:21:52 GMT -5
Hello nightnurselurk Yes I took Ivermectin (stromectol) at the beginning of May for the first time. It will kill certain young forms but not the adult ones of the Onchos. I have had this in various progressions atleast 9 years. I am diagnosed with Lyme/babeosis, thanks to this site! I otherwise would not have begun to suspect it. It also gave my dermatologist a basis to believe that the lesions were caused by some sort of symbiotic parasite. I have four suspects that I have discerned through studying the internet and examining samples with the digital blue. In some ways this is fascinating. I do have little clear fibers that grown on specimens. I suspect these to be feeding tubes and microfilaria in other cases. I do not have these dreadful fibers others here experience. I do have the itching (much better since use of enzyme baths from naturalginesis.com) and the biting sensation inside the skin, mental confusion, exhaustion etc. I do believe my immune system is strong but fighting 24/7 so is taxed. When all this is under control, I believe I will be healthy for my age. For that I feel very lucky. Thank goodness for this site, I have learned so much and felt so much less ostracized (always pertending to the world I was just fine and these are just some sort of insect in my yard). I was a virtual ball of anxiety, sleep deprived, on worthless antidepressants... The salt and Vitamin C protocol has helped a lot already in just a few months. The rest of this is about the parasite suspects, I know it is long, when you get a chance I think you will be interested. I was bitten by something in my yard (200 to 300 times) without ever feeling a thing one afternoon in 1999, this is when I suspect I could have contracted Onchos. If these were not horse/midges carrying Oncho then these bites may have been tick nymphs. There had been a sick dog in the yard a few years before when the fences all blew down in the storm 1995. He had large blood filled ticks. My dog got some of them. Later my dog got a huge lump and swollen leg and had to be put down. I still suspect this exposure may have caused Nuggets condition and possibly something to do with my lyme/babeosis... etc. Yes, there are pictures of thing expirated at the photos page.. normally my lesions have a hard raised ring on the edge and within that ring is these worm things. wahhh! Have you been there yet? I am not getting a lot of new lesions. This makes me think the Ivermectin is working at the blood level. The lesions themselves I am using a piperzine deriative on that is a D-wormer (piperzine citrate) for cats and dogs. I have a second bottle from petsmart but it is sticky. I like this brand D-wormer from feed and grain store. This seems to be doing a lot for the lesions. I have learned from reading, that DEC that they have mostly replaced with Ivermectin, as partially because was not able to thouroughly eliminated the larva, some would be missed, but it is also a piperzine derivative. No surprise that it was helping the lesions clear up. But the nodule/lesions are long established and suspect this will take time. Another person posted as to have used the cattle dousing liquid made of Ivermectin and cleared lesions with it. "Unknown" did this. I did not want to overdose Ivermectin by having more enter the bloodstream after taking the oral dose. So i have been using the D-wormer. Bubba and Xander have both used this with success, Bubba works on a horse ranch near San Diego. Recently after 5 years, he reinfected, so is doing the antihelminths again. Additionally, I was exposed to what appeared to be Schistosoma Mansoni cercaria. In the water at a hot spring where they are seen in Arizona. The department of health told me they could not grow to adulthood and only give me swimmers itch. Wrong. The earlier stage, starts with an "m" needs the snail vector. The cercaria that swim are ready to infect people. These adults can live 20 to 40 years. There is a link on the General Board with much information about this one also. Linda posted an excellent video of the stages by wellcome.com I think I started the thread with a double arrow>> before the words. It should be somewhere before page 5. If you are interested. I have "blood monsters" which are likely from this exposure. They are blood flukes. Very nasty things to see. They appear as "clots" when they come out of the lesion. Until I became suspicious and put them in alcohol, I thought this is what they were. No. They are likely the stage that is in the bloodstream that lives long in the body. For this I am ordering Praziquantel from mexico. This is with my derms approval. I took my laptop an showed him slides. I asked heim if he had ever seen anything like this in medschool, he laughed and said. no! He also found the blood monster in a vial pretty disgusting and remarked this really looks like a parasite. I wish everyone here had a doctor like him. I have also seen Anyclostome Brasillience mouth with teeth in my specimens. These are an important source of CLM in north america. They normally inhabit the dog or cats intestine. Exposure is through the humans skin. It is suppose to die in our skin within a few months. the Ivermectin should be working on any of its stages. I have not posted all the images lately as I am really tired and trying to get well this summer so I can be more successful in school this fall. I have to get this degree wound up and into a real job, soon. Do not plan to do health departments job forever! The last suspect I have is really worth a good google. It is the sparagum mansoni. This can come from not thourougly cooked fish. I have even seen a worm in the phony crabmeat I use to like to eat, that is stored in the freezer, I will need to photograph this soon. I am now a vegetarian.. I just couldn't take it anymore! The adult is in the intestine of humans. It lives a long time and produces an abundance of borehead little larva. These get out and move into the skin and cause irritation and nodules. I have only recently gone back to investigate this. It is white. I have many white specimens. I am betting that the little varmint that the doctor removed from an untampered nodule on my back is this thing. It was still very small, and very painful! Maybe the State department of Health here in Arizona will identify it. A microbiologist is who does the job there. If you think antihelminths are something to investigate, there is a great link that Bubba posted. Here at this site, they believe in the symbiosis of bacteria, fungus, parasite: www.fungusfocus.com/html/most_common_parasitic_drugs.htmThey do have a store, but provide information on all kinds of treatment.. even the best OTC vet medicines for use on "pets". The filariajournal.com that skytroll posted also have some interesting info, and continually post new. I read your other post about your Dad, what a wonderful man he must have been. I am sure he was quite proud of you. Thank you for sharing about him. Spec
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Post by Southcity on May 29, 2005 15:56:15 GMT -5
Hi Spec.. while I feel you are close with the onchocerca perhaps streptocerca is a closer match. do some research on this and you will find that the fed govt is recruiting people for the study of this skin disease as well. HMMMM co-inkidink? I have a hard time believing that. Notice how the streptocerca is described as living a millimeter or less below the surface of the skin. for pictures and videos of this nightmare go here: free.hostdepartment.com/N/NOTDelusional/
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Post by SpecueLatin on May 31, 2005 19:36:11 GMT -5
Hello Southcity, It is interesting that the Mansonella streptocerca is being investigated here when it is described as from West Africa! The link you sent is either down or inoperable at present. I have looked at this, and again, when it came up on the site here. I do not believe that it is my problem, though it may be helpful to others to have this information. I've looked at the differences. Mine is more of a nodule-maker, with heavy fibrous content to protect, tightly coiled. Many surface from a nodule, one after the other. I have never had pruritic lesions. When the nodules do at last burst, the lesions look like the horses crescent shaped, hair is missing from the vicinity of the lesion, and I have seen it drug inside.. incorporated into the specimen in the nodule below the skin, which is what I think happens with the horses lesions as well. There are two horse varieties, O. reticulata and O. cervicalis. I believe my troublemaker is the O. reticulata. I do not believe I have the O.volvulus, which is the only one of this group that selects human as its preferred host. O. volvulus is not carried by the culicoides (sandflies).. where the horse varieties are; O. volvulus is carried by a type of black fly that I don't think we have up here, though anything is possible. This is why I think those that suspect the Onchocerca should thoroughly investigate the zoonotic forms. I did not see any zoonotic forms for mansonella streptocerca, are you aware of any? It is transmitted by the sandflies. Thanks, though, for the post. Here is one site that compares the O. Volvulus against the Mansonella Streptocerca for anyone interested in the differences. www.btinternet.com/~ukneqas.parasitologyscheme/Blood_Scheme/Teaching_Information/Microfilariae_in_skin_tissue/microfilariae_in_skin_tissue.htmlkeep in touch, Spec
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Post by Orion*** on May 31, 2005 21:04:42 GMT -5
OH--I ALMOST FORGOT TO TELL YOU GUYS: WE HAVE HAD TWO DEAD BIRDS IN MY YARD IN THE PAST MONTH...!!!! I CALLED THE LOCAL HEALTH DEPT. BUT THEY DIDNT SEEM TOO CONCERNED! ONE WAS A SPARROW, THERE OTHER A HUGE CROW!! THESE BIRDS WERE NOT TORN APART AS IF BY ANOTHER ANIMAL, JUST LYING DEAD ON THE GROUND WHEN I WLAKED OUTSIDE EACH DAY!!! WHAT THE @#$% IS GOING ON???!!! ==-=-=-=-= Sounds to me like West Nile Viris.. The dead crow is the tip off. It's that time of year again . Due to the moisture this spring they expect it to be much more prevailent than the last few years. West NV is a much more serious illness then was thought of in the past. If the mosquitos are out,wear your bug spray..a must. Use DEET in high consetrations...
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Post by Newby on Aug 15, 2005 23:45:34 GMT -5
Hello? I have, in retrospect, had this all my life. It's just that it didn't over run me until after 9/11 when all of the polluted air reached my area. Help!!! I just want to die. I have tried everything except acid and fire (ha, ha} to alleviate this unbelievable blight. I also belileve that I had a close encounter with this at my bearty salon. ( Is that possible?) My husband of 22 years seems to be unaffected (thank God). I used to be a niice looking person and now I could be a stand-in for a B horror movie. Yeah I know that this encompasses more than just looks, but I would like to resemble the me that I have been for more than 50 years. My pcp does n's believe me, nor do the dermatologists believe that I have ever looked more than slightly deformed. I know that looks aren't everything, but I would like to go outside and not be shied away from or met with utter disgust.
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