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Post by bugsy on Jul 24, 2007 10:23:21 GMT -5
Just went in for an eye exam. Severe pain in right eye and floaters in both. The doctor just kept saying "interesting" abnormal cell growth in both eyes, worse in right eye. I told them that my right eye felt like it was "dying." Vision goin dark in right one. He just gave me steroid drops and I'll go back in 10 days. Says if drops make it worse stop them immediately. I'm scared. He kept asking me odd questions about my health and skin related questions......any psoriasis...eczema..justed seemed odd for an eye doc to ask about skin. I REALLY wanted to say I have Morgellon's but I had a feeling I shouldn't so I didn't. He saw SOMETHING but didn't want to say what.......this suc ks. ~Bugsy
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Post by liz on Jul 24, 2007 10:28:16 GMT -5
My last eye exam doc told me he saw unexplained shadows..whatever that means...both Tom and my eyesight has gotten bad....I had to switch from contacts to glasses...fibers and contacts didn't mix well for me....
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Post by bugsy on Jul 24, 2007 11:13:08 GMT -5
Thanks Liz. I was getting quite scared due to JoseJ's post about his wife, her floaters and ensuing retinal detachment. Prompted me to go get checked. Nothing that serious but I just hope I can see for enough years until my daughter can drive herself to school....that is all I ask. Eyes are still dialated. Going to go lay down now. Didn't Carrie have a biopsy today? Hope it went well if she did.
~Bugsy
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Post by browncircles on Jul 24, 2007 12:45:55 GMT -5
I recently went to my eye doctor and took him the paper from OSU and the CDC website. He didn't find anything on me but tam tam said sometimes it would be a brown mass (I think) in the back sides of the eyes when they look at it with a slit lamp.
I have the gunk coming out of the corners of my eyes all the time.
My lyme doctor says to use the sulfa eye drops and lay down for a while so it can get to the back of the eyes.
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Post by prevenge on Jul 24, 2007 13:06:44 GMT -5
abnormal cell growth in you eye... wonder if he mean abnormal looking .. or abnormally fast growing.
i swear i feel like i'm changing % by % into something else. the crawling in my face literally feels like it's changing the BONE. like the cheekbones and rims around my eyes are getting ".."wider"? dont know if thats the word.. just feels like everything... EVERYTHING in my skeletal/musculature is .. shifting.. rearranging.. altering.
not just a descriptive notion...... i can feel it happening.
-M
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Post by bugsy on Jul 24, 2007 13:10:49 GMT -5
I know I should have asked and WHAT SHAPE IS IT? He probably would have thought me a weirdo. Well if some things grow larger that could have its advantages......j/k Am kinda happy. Resubmitted a claim to INs co. and 100% covered!!!!!Woo hoo...finally. dang ~Bugs
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Post by bugsy on Jul 25, 2007 13:59:11 GMT -5
Wow.....the Pred-Forte steroid eye drops are helping my eye pain. This is the first day that my eyes have been pain free for and entire YEAR. This is just after using them for a day and a half. I wish someone would have told me about these before. P.S. If I go blind I am going to personally beat Dan Rutz and Julie Gerberding with my cane. ~0^0~ ~Bugsy
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Post by Patti on Jul 25, 2007 14:08:49 GMT -5
Lol Bugsy! And thanks for the info about the eye drops, I'm so glad they are working for you and I think I'll explore getting some for my Mother. She is having a horrible time and we need to try something new anyway. I really hope this progress continues for you!
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Post by bugsy on Jul 25, 2007 14:30:03 GMT -5
Thank you Patti. Your kind words have meant a lot to me over these very trying months.... My mom used to have a kitty that looked like your avatar. Reminds me of "Bessie" everytime I see it. She had a heart shape on her side. ~Bugsy
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Post by glennb on Jul 28, 2007 18:19:03 GMT -5
When I notice increasing amounts of floaters in my eyes I dose myself with ivectermin and that seems to stop them for awhile. I also use MSM eyedrops every day and that helps. I have occasionally put a couple of drops of Paragone tincture into sterile water and then used that for eyedrops. Whenever I do this dead Morgie stuff ends up in the corners of my eyes.
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josej
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Post by josej on Jul 28, 2007 19:02:47 GMT -5
Bugsy, glad you went and checked your eyes out. Hmmm... KJ's floaters (and partially detached retina) was also on her right eye. After it was lasered she still felt quite a bit of pain for the next two weeks. Then she went back for follow-up and the eye doc said the laser therapy was 100% and no more detachments, etc. However, today... it's now about three weeks later... the floaters are still there. They have lessened somewhat, but not altogether. Periodically one of the larger ones will break off and divide into 2 or 3 smaller ones. The eye pain comes and goes. He also gave her the steroidal eye drops. Not sure if they have helped or not. Of course, both of her eye docs say there are no bugs or parasites in there. That's what the shapes look like to her... looking from the inside out... but the pain continues.
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Post by Carrie♥ on Jul 28, 2007 21:49:26 GMT -5
Hey Bugsy...I'm so sorry about this!!! The eczema and psoriasis are both immune diseases...if he prescribed the steroids he's saying that your eye problem is immune system related...don't you think? That's what I hear but I probably shouldn't try to analyze things to much, Boyfriend says I do that too much. Maybe that's why he asked about any skin disorders. In which I feel yes, they are all connected. I had huge eye issues at the onset of my disease! Whoa...one of the big lil' bastards jumped the bridge of my nose when I was a 24/7 picker...(tryin' to get those beasts off my face) twice. The first time I put some clotrimazole on a q-tipp...haha Hannah on a "cotton bud" and it drifted away and out of my eye but the second time it didn't and now I have in both eyes what they call epil scleritis. The NP that I saw at the County last week gave it another name but I haven't had a chance to look it up and couldn't begin to tell you what it even looks like (the name). Another thing, epil scleritis is also associated with Lyme...but I don't think my disease is Lyme related. I haven't had eye problems since the onset but something strange the last couple weeks...check this out. Friday morning I was up...my left eye is glued shut like major...like pink eye. I've got sulfur drops from Dr. Schwartz still and Daryl had some antibiotics...something I think Keflex so I took those for the week and it got better, plus I got yeast infection symptoms again...damn that. Anyway, a week later, this morning I woke up and photophobia...the left eye again, the light from the window was kickin' my butt. Not sealed shut but I've been drifting in and out of sleep all day...somethin' ain't quite right with that. How the heck am I gettin' pink eye like this? I don't like that. I've been gettin' better too...makes you wonder!!! My dogs has had major eye issues. My daughter has talked about her eyes feeling scratchy. Daryl always has eye herx as he calls them...so far Kado has been okay but I think he has photo phobia too, not as bad as me this last couple weeks but a mild case since the onset of our disease. I've had it mild since the onset too. There is absolutely something but I think our systems are all screwed up from what ever it is that sends us exactly to the state of a very difficult return to normal health function. What exactly are floaters? You guys get fibers in your eyes?I'll have to check out some of Dr. Clark's writings and see what she says about the eyes. I've not really read much about that. She says all pain stems from the bacterial infection part of our illness and that the bacterial infections that are "immortal" because they are not in their "normal" home are are there because there is a metal pollutant that the bacteria need to survive that has claimed that particular part of the body. She also says that's what causes the "drug resistant" bacteria's...because they are not in their normal space, like Staph or Strep (causes tinnitus she says and I've got that too) in the mouth or skin and E. Coli, Salmonella or Shigella in the bowels. She says when these flora microbes escape their normal residence (because their food, a metal pollutant) has accumulated in the eye, heart, brain area or where ever they cause us great grief and pain. She makes sense...the only way to get them the bacteria out of these places is to remove the heavy metals and feed our immune systems so they can do their job to begin to snatch up the bacteria again after being relieved of the heavy metals that have clogged them up not allowing them to to to their job. There's a great picture in her new book that has kind of helped me to understand what she's talkin' about...I'll take it to work and scan it and post it. I know she's hard for many to take but she's the bomb baby...the best! Yeah I know...JoseJ...me...blah, blah, blah, it's always a novel. I'm sorry you guys...sorry we are all suffering. I wish there was something we could do to make it all go away. Sending you all my love .
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josej
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Post by josej on Jul 28, 2007 23:22:06 GMT -5
What are floaters? They're matza balls that don't sink to the bottom of the soup. ;D OK seriously: Floaters are those "annoying" little spots that a lot of people see in their field of vision. They look like specks or shadowy shapes that usually move from side to side. Sometimes they even look like a little bug flying around everywhere you look. That's because the floaters are inside your eyes and they move with your eyes when you try to see them. Here's an example of what floaters can look like viewed against a blue sky. What causes them? Sometimes (as we get older) the vitreous gel inside the eye degenerates and forms bits of debris. This debris may be seen as dots, streaks, spider webs, etc. These objects appear to be in front of the eye, but they are really floating in the vitreous fluid. In a severe case, the vitreous gel may tug on the retina wall and actually cause a piece to pull away, causing a small detachment. As the retina detaches it may also sever a small blood vessel, causing a slight bleeding in the eye. Or... maybe it's another part of our having Morgellons. Eye parasites? Hmmm?
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Post by Carrie♥ on Jul 29, 2007 1:36:47 GMT -5
I had those too...a couple years before the onset. About the time I got tinnitus. I don't have that problem anymore though.
Dr. Clark does talk about the stages getting into the eyes and I can see how they'd easily call those stages "us" and our "immune systems."
Thanks for taking the time to inform me Jose. Hope KJ gets to feeling better soon. You too Bugsy.
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Post by prevenge on Jul 29, 2007 4:21:54 GMT -5
i've had floaters all my life. talked to people about them.. nobody ever said they had them.
when i used to daydream and let my eyes go out of focus they'd be there.. circles.. moving when i blink.. slowly moving down.. till you blink again.
like some mystery man once said on this forum... .. forgot the name of the person... which now i heartily agree...
"you're all going to feel real embarrassed when you realize what this actually is"
-M
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Post by liz on Jul 29, 2007 6:40:45 GMT -5
Your right about this changing your entire body systems....from and x girly girl ....now when I go our I wear sweats or jeans...no makeup....baseball cap to cover my skanky hair....long sleeve t-shirts ....too cover my scars ....today someone actually called me sir...thats it! no more outings for me!
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Post by bugsy on Jul 29, 2007 8:33:13 GMT -5
Wow, what a nice explaination of what a floater is. Are you a teacher JoseJ? And Carrie there is something to the chelation aspect. We were taking Detoxitrol with EDTA for a while to get rid of metals in blood and we both felt a lot better!! My floaters are vary in shape from circular to wormy shape. Ha. And Prevenge as far as what your friend says..I hope they are absolutely right...and it is an EASY fix that we just haven't stumbled upon yet. Aw joy. Ouch. Yeah I was called "sir" once when I was working as a telephone operator and that does hurt. Thanks for all of the wonderful input and insight. ~Bugsy
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Post by toni on Jul 29, 2007 9:31:33 GMT -5
About 6 months before the onset of Morgellons, which I had no clue about even the word Morgellons, I thought I had a piece of suctures or something or "glass" in my eye...didn't know, but every time I blinked my eyes, either my left one felt scratchy, like I had something in it, or the right one had that feeling.
I use to say how rare it was to have both eyes feeling fine at the same time, because the "something in my eye feeling" was always in either one. But never both at the same time...which was odd too.
Well...I got my 10X mirror and looked in the sunlight one day at my left eye. I SAW something tiny and white, like a minature worm sticking out of the iris, the colored part, and I freaked out. Thought it really was suture material coming out my eyeball!
We went to the eye doc, and he examined and said my eyes were only dry. (RIGHT-O) But he couldn't see a thing even viewing with that machine up to my eye.
Then I took some "Refresh PM" it's an "eye goop" stuff, like an "eye vaseline" and put that on a q-tip and literally touched and pressed on the iris where this white tiny thing was protruding. I wanted that on the q-tip so the cotton fibers wouldn't scratch the eyeball, which that worked perfectly. It literally pushed it back into the iris, and didn't scratch any more.
But that was only a temporary fix.
It didn't stick out all the time, and only when it did, I could feel that scratchiness when I blinked...like a piece of sand was in my eye actually is how it felt.
Well... it sickened me thinking I've got a suture inside my eyeball...and pushing it back in believe me, gave me the creeps beyond words. I didn't know really what it was, glass or suture.
After I began using the "baby tearless shampoo" washing my face with it, and after the suds from splashing water on it were really all bubbly on my face, I allowed the bubbles to get into my eyes, and seriously doing that once a week has totally stopped my scratchiness problem and I've never seen that white thing stick out of either eye after that and have not had any more eye blurriness, nothing, my eye sight is great again, and no scratchies at all.
I do feel there's something in that "tearless" baby shampoo that destroys these things when they get into the eyes. Just have to not overdo the shampoo in the eyes. 2X a week max is probably very safe.
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Post by Carrie♥ on Jul 29, 2007 11:08:51 GMT -5
Toni...you are so observative...I just love it.
Joy...can I call you Liz still? When I'd have serious issues I'd cover my face with calamine and act like I had a sunburn. It really stops the ohs and oooooohs! Last summer Gretchen came over and I had just done that coming home from Costco...she cracked up and thought that was so funny. She told me about how she was getting fatter because of this mess and she'd wear a maternity swim suit to the river so it'd look like she was pregnant, not just fat. I cracked up...again...it lessens the impact. We gotta do what we got to do to get out of the house...if it's a Sir...then so be it. You're funny...you were a girly girl?
Bugsy...I've been wanting to look in to EDTA, I just haven't gotten that far yet. How do you like it? I've just been drinking DMSO to chelate the metals and it's really done something to my face but not sure for the rest of my body because I started doing other things about that same time. All in all I'm feeling better. I hear it could take like six months to remove all the metals with DMSO, do you know about EDTA? But that's when you've had your teeth work done...I don't know when I'll be able to do that...what do you know about that stuff? Whoever turned you on to EDTA did they talk to you about your dental work and how long it would take with or with out having your dental work done?
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Post by toni on Jul 29, 2007 11:32:25 GMT -5
Carrie, yeah...I've got nothin else to do...hahaha but this. Well and letters and phone calls. But picking is part of life now, isn't that awful...like chimps preening (sp?) picking lice off of themselves.
But I was so afraid it was suture stuff..or something. And you're saying that because of the "only one eye at a time part right"?
Isn't that interesting? How this stuff "goes symmetrical" yet, it only acts up on one side of the body at a time.
I think there is much to say about that part.
I am polarized. I know this. Because of the "volt meter too". I register positive readings on my left side, and negative on my right side - you know, when I switch hands holding the volt meter? That is when I can see the minus sign only when I switch hands.
I think that too has something to do with "this stuff" we have.
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