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Post by Jenny on Aug 9, 2005 17:19:43 GMT -5
Hello Everyone, I have never posted before but am doing so now because I can't find anyone who is talking about what I have experienced. I want to know if any of you have had this experience. Ok, The first thing I remember several months ago with this disease is that I was finding scars on the side of my head and vaginal area, they could have been elsewhere, but not noticed. One day, I felt something on my inner thigh, it was kind of big, was round and felt bristly on the edges. It was also halfway in my skin. Soon, my skin began to cover it over and it was absorbed inside. After that I find similar ones on the sides of my head, inside one nostril, and in the tops of my ear lobes. In fact, in my nose and ears, I can still feel a small edge of these disk shaped things. One day, my skin opened and I saw two football shaped white objects that looked like thread, I got scared and taped the holes together and when my skin when back I had two scratches where this happened. I know know that what the lumps are under my skin are these football shapes. I can't explain it, but I think someone something entered our skin and made these football shapes of white almost translucent threads. I think the fibers come from these. In the beginning, I had fiber balls coming from the vaginal area, they were white and looked like a bunch of smashed threads. Occasionally, I saw some navy blue mixed in. All seem to be guided by a clear thread sticking out of the ball of fiber. On the side of my head I have caught many clear fibers coming out. I didn't see them, but felt something on my face and took tape to my face and when I would put the tape on the side where my temples are, I would pick up 5 or 6 at a time. Now this is not all the time, much of the time they are not there or I don't catch them. From the disk shape in my nose, I have found clear fibers wiggling around, they only come from the left side where this bristly thing had wedged itself. In my ears It seems something is always there. I find tiny mite looking things with this hanging thread coming from them.They seem to have a line down the center of them. I will stop there, but would someone make sense of this for me? Did anyone else experience this? I hear about Dr. Scwarz, would antibiotics make this fiber balls go away. Thankyou. Jenny
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Post by bb on Aug 9, 2005 19:49:38 GMT -5
Jenny, you have come to the right place. There is lots of advice here.
The football shaped things I saw just sliced through my skin without bleeding and went under it like butter. They were very black, and very tiny. When I bathed in the yeast enzyme product three of them made red zigzag lines under my skin trying to get out. I have found fibers, balls of fibers, and even bugs of all sorts.
Nothing sounds strange to us, I promise.
I have lots of advice, as everyone here knows. You can click on the yellow "bb" to see my advice.
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Post by wolfe1 on Aug 9, 2005 21:28:51 GMT -5
bb, I have also watched the very tiny black things get agitated when I use baby oil, ivermectin topically, neosporin,etc. When I flick them off off onto white paper to observe I have noticed that it is like my fingernails are magnets to the critters. They whisk under my nails to get in. Almost like they are drawn to my nails with static electricity.
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Post by bugged1 on Aug 10, 2005 1:27:57 GMT -5
I would suggest you get skin scrapings done to determine if you have scabies (sounds a lot like that to me). If negative then start treating like morgs. Both have solid cures but different approaches.
Be well,
Chem G
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Post by Jenny on Aug 10, 2005 12:19:55 GMT -5
Hi, Thankyou for your replys. Chem, I have been to three doctors and two dermatologist, and keep getting diagnosed with folititis (sp). I got Bactrim for a couple of months and did have more strength, but don't have any now. I have read that if you pick up scabies from someone who has norwegian type, you may not display the signs on your skin that are typical of scabies. I had a yellow area across my knuckles and went to the ER and he said he didn't know what it was but I saw it on the man I dated. I didn't know about scabies, I did get a couple tubes of something and put it on and it seemed to work, but not for long. Maybe I do have some scabies that never seem to go away and if so, how do I ever get rid of them? I remember it all started in my right hand and no one could tell me why and no scrapings were ever done. I couldn't stand the crawling so I put a latex glove on my right hand and that stopped the crawling. Then I decided to try to drown whatever was in my hand so I filled the glove with salt water and duct taped it around my wrist, I did get some sore skin that eventually came off but I didn't care. After about a week, my glove was filled with what looked like pumpkin seeds. I put another glove on and same thing. I wish I would have kept them. I stopped putting saltwater in the glove because all those seeds scared me and I couldn't understand how something that big could get out of my hand. BB, thank God, you believe me about things slicing through skin without bleeding, I can't understand how that can be. I have never read that and thought I was the only one this happened to. Mine aren't black or little though, these pumpkin seed disks are large and white, the ones stuck in me still, I feel but don't see, but wondering if the seed disks from my hand are the same thing? I'm glad to know I'm not alone with these oddities. I found this site when I put fuzz balls into google. I want to try taking antibiotics again because I have so little energy, but all my doctors keep getting rid of me and I'm without a doctor again. This is a small town and all the doctors talk and they all think I'm psychotic. Does anyone know where I can get this Bactrim online that people have tried and is a place I can trust? I'm really afraid I'm going to die I feel so sick. Thankyou so much, Jenny
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Post by Jenny2 on Aug 11, 2005 15:12:26 GMT -5
I am really dissapointed in the lack of replys. I guess I am to assume that you think that I'm just crazy. Thanks
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Post by ANTHILL on Aug 11, 2005 15:35:31 GMT -5
Welcome to lymebusters Jenny I wouldn't worry about the lack of replies some of use are so spent that some times all we can manage is to peck off a few words just keep posting and hopefully you will get your questions answered Take a look at my mug shots and see if you see anything familiar www.trillybillers.zoomshare.com/1.shtml
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Post by TonyM on Aug 11, 2005 19:32:40 GMT -5
Anthill, Just wanted to let ya knkow that on yer web site, pic 7, can't read the writing on the bottom...LOL.....man, i'd take the scabies Any day over this crap!!!!!
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Post by bb on Aug 11, 2005 20:22:58 GMT -5
Jenny, the board has been pretty slow and boring lately. That's all.
Everyone here has some weird story to tell. Yours is pretty amazing to me. And we learned we might can drown them, or suffocate them.
wolfe1, KEEP YOUR NAILS TRIMMED EXTREMELY SHORT. Don't hurt yourself, but I swear this works. I don't know why.
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Post by ebgbgms on Aug 13, 2005 1:13:31 GMT -5
Hi Jenny2, Ant is right we r all busy, sick and tired. We welcome u and your story is very much like what has happened to me. I almost lost it, well I probably did. But, somehow I got myself together and got some help from the board. U feel left out at first, everyone (the oldies but goodies) talking like best freinds. Before u know it u will be too. Everyone here is supportive and kind. I'm sorry u had to find us, but thank god u did. I have had several strange things go in and out of different places on my body, melt into the floor and never came up. It's difficult to digest, and family support which I dont have is so important. I know I'm not crazy and Jenny2 u r not either. People r working very hard on this so keep the faith and hang in read the board and post with us. God bless and (((((hugs to u)))))))))
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Post by Jenny2 on Aug 13, 2005 15:22:34 GMT -5
Hi all, sorry to have jumped on anyone. I just don't know how much longer I can stand all this. I get confused because I read that some are cured and then there is no cure and it messes with my mind. As far as scabies, why after all the doctors haven't they diagnosed that? I have no visable signs they say, but no one will look further. Right now I really need to get some antibiotic, its the only time I can function at all, the Bactrim the derm gave me for folitis is gone. So if anyone has an online site that has this bactrim or septra and have not been killed by them (just joking) please E-mail me at Shakenreality@yahoo.com. Thankyou and sorry for getting upset, I'm just so scared. Jenny
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Post by ebgbgms on Aug 14, 2005 0:53:39 GMT -5
U will see we all get upset. U will get better at reading the post and figuring out which is best for u. They get confusing for me too. I don't know a pharm. online, but someone will jump in and tell u a few. I'm so sorry u r scared, I wish I wasn't. But, the board and wonderful people here will guide u. U will soon learn that many have more experience and u can trust them. God Bless and hang in there.
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Post by jeffinhburg on Aug 14, 2005 1:04:54 GMT -5
Jenny, Got you covered on the Bactrim supply. If that's the one that helps you, you are lucky in that it's relatively cheap. Check your email and let me know here if you didn't get it.
Jeff
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Post by bb on Aug 14, 2005 16:01:10 GMT -5
Better yet, get on Cumanda. Very cheap, and supposedly can kill lyme, and many other things.
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Post by bigmike on Aug 14, 2005 16:33:53 GMT -5
Jenny, Nothing is unusual here or to us, as we share the same or very similar unusual experiences. I have them in my ears, after 6 months of them not being there (to my knowledge). I had a bristly feller come out of my nose. What I experience is only different in shape from what you experience. When you talked about disk shaped objects, I felt compelled to share the following, which I had not shared before, because although similar, I did not believe it was what was frequenting my body. This one is disk shaped and is in a book on entomology. Within the book are depicted real and accepted insects and their products of living and surviving. The following is a e-mail I sent to a fellow sufferer. Dear Fellow Sufferer, ITS IN A BOOK, well sort of, at least something similar. All those things we (and especially others) say are bizarre, really are not so bizarre, in the world of insects. Unfortunately they are doing it in our skins/pores and sticking their "fibers" out of our skin, just like you get when one works with fiber glass. If you can check out a book from your local library titled "For Love of Insects," by Thomas Eisner. It has pictures showing stuff very similar to what we see, fibers, globs, and occasional larva inside have been reported by sufferers. See pages 119 through 127 plus pages 158 thru 160. This is a relatively new book. Unfortunately, it is not exactly the appearance that we are familiar with, although it looks very much like what one sufferer posted for his fibers (Eisner calls it thatch). I believe he is a college professor at Cornell. He is passionate about his studies, as voiced by him on one of the multitude of links on him. I think it was off of the Cornell University based link. www.nbb.cornell.edu/neurobio/eisner/eisner.htmlwww.npr.org/templates/story/story.php?storyId=1511501I am tempted to tell and show him just enough to challenge him to identify what we are seeing. www.hup.harvard.edu/catalog/EISFOR.htmlwww.hup.harvard.edu/pdf/EISFOR.pdfwww.nap.edu/openbook/0309052815/html/219.htmlEisner, T. and D.J. Aneshansley. 2000. Defense by foot adhesion in a beetle (Hemisphaerota cyanea). Proc. Natl. Acad. Sci. USA 97:6568-6573. Eisner, T. and M. Eisner. 2000. Defensive use of a fecal thatch by a beetle larva (Hemisphaerota cyabea). Proc. Natl. Acad. Sci. USA. 97:2632-2636. www.archbold-station.org/ABS/library/STABIB/STABIBalpha.htmBig Mike
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Post by Jenny2 on Aug 15, 2005 15:35:13 GMT -5
Jeff,
I'm sorry I am so late getting back but I don't have a computer and the library is closed on Sundays. I just wanted to tell you I didn't get your E-mail. Please send it to me again. It's Shakenreality@yahoo.com. Or if it's ok, you can post it on here if you can't get the mail to work, I don't know why it wouldn't, but I don't know if there are rules against putting the name on here.
I want to thank the rest of you who wrote, it helped a lot to here from you and now I know my symptoms are not unique. I'll try to find that book because I can't imagine a bug that looks like a pumpkin seed. I just don't know how much longer I can hang on, I feel sick so much of the time. I only wish I would have known about morgellons before and I could have saved some things but my experience with doctors hasn't been good. I feel little hope that this will be cured in time for me. Jenny
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