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Post by bugsy on Aug 1, 2007 9:30:43 GMT -5
Hello again, Here is a no-brainer question which I'm sure has been asked before but I'm going to ask it again: "Do your lesions get better while taking anti-parisiticals?" They seem to have a drying/healing effect on mine. Just curious if I'm alone in this result. Specifically roundworm type meds? Thanks in advance, ~Bugsy
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Post by toni on Aug 1, 2007 10:08:48 GMT -5
Yes, most definately.
For instance, I took Stromectol every single day, without fail for almost 5 months straight, and I mean I never missed one day.
My lesion break out was about "seriously" 50-100 every 2 weeks with by the clock consistency.
When I took the Stromectol for those 5 months....my lesion breakout every 2 weeks was then about 5-10 new ones only.
Then I stopped taking the Stromectol. Heck I thought I had a real handle on it, that they were dying off, since the lesion count was down to nothing in comparrison to the 100 I'd get before the med.
3 days after I stopped (after almost 5 months of taking stromectol) I broke out in a ZILLION BRAND NEW lesions.
I could have screamed, well..I did. After all those days, almost 150 days straight of Stromectol...it all came back with a vengence, just because I stopped that med.
I think I only killed of "the babies". I think whatever part of this is the mother...it's not affected and is alive and well.
I also believe from the consistency, that this "bug" in us, lays eggs that hatch every 2 weeks. And it seems the moon cycle is the cycle it's on. This is like a devil's dream.
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Post by bugsy on Aug 1, 2007 11:09:14 GMT -5
Holy doo doo, 50-100...wow. Poor kid ((((((((toni)))))))) I think you are right with the baby theory. We need to stop this chit NOW....it needs to go away. I had a few of those eyelash things come right out of my facial MOLE and my eye socket. I pulled them out all of the way out of the mole now it looks like one of those craters....plus flesh eating bacteria looking....argh. Now THAT'S attractive.
I've been on my new stuff and now the nasal aspect is "EMPTYING" out. Dried up black dots, and dried stuff. It must be packed into our sinuses as well!!!!! Thanks for mentioning the necessity for taking anti-oxidants...sometimes I forget and it is VERY important especially while killing off parasites.
~Bugsy
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Post by toni on Aug 1, 2007 11:43:59 GMT -5
Bugsy,
Thank you. And I can't even tell you how I "don't" know how I'm still sane. I think I am anyways, hahaha ;D
Something else that's really weird, or seemingly to hold water - maybe...which I am wondering about this.
It "seems" that those of us that have the "cutaneous" version of this nightmare - are basically doing fine, health wise.
And the people that have this "less cutaneously" are having internal health issues.
Does that seem to be to anyone else??
And Bugsy, that's horrible what happened, I'm sorry. I know it sure does seem like flesh eating...but I think it's the "gunk" these lay their eggs in...or Agro mixed in.
And Kmarie, What kind of Febendazole? I've not tried that. And it works better for you than the Stromectol?
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Post by toni on Aug 1, 2007 12:24:02 GMT -5
Are you taking milk thistle as faithfully as can be?
That's what saved my liver, a year on heavy duty meds, and my liver tests came back always perfect...which that's ONLY because of the Milk Thistle doing it's job.
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Post by Niels on Aug 1, 2007 15:23:05 GMT -5
oxybendazole!!
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Post by hannah on Aug 1, 2007 17:03:06 GMT -5
Bugsy, Thank you. And I can't even tell you how I "don't" know how I'm still sane. I think I am anyways, hahaha ;D Something else that's really weird, or seemingly to hold water - maybe...which I am wondering about this. It "seems" that those of us that have the "cutaneous" version of this nightmare - are basically doing fine, health wise. And the people that have this "less cutaneously" are having internal health issues. Does that seem to be to anyone else?? Hi toni, Some thoughts regarding your theory: I have cutaneous problems, although, not a lot of lesions. Except I had the major foot problem with lots of deep cuts like craters - healed up very recently since my lyme doc prescribed DiproSalic(betamethasone and your favourite salicyclic acid). I am doing pretty well in some respects but last year I was just awful. Terrible fatigue, brain fog, no appetite, burning skin, back pains and so on and so on. I don't have any of these problems anymore but my memory is shocking and my communication is affected as I can't find the right word for the most ordinary things. I still get a bit tired but my energy levels are greatly improved and so is my strength. When I first started back at work I had to wait till someone came along as I could not push open the big main door to the building. Even about six months ago I could not lift my grandson from the floor into his buggy now I can take him to the park and lift him into the swings and push him and play with him for hours. I sometimes wonder if the reason I felt so ill was due to toxicity because of die off when I started treatment? The other reason i think I have improved is because I have tried to focus on building up my immune system. I believe I have achrodermatitis chronicus atrophicans (ACA)- a late lyme condition. I think this is more common in people with European type lyme. Although, some people have suggested that ACA is Morgellons> I hope you can get back to the few lesions state. love hannah
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Post by bugsy on Aug 1, 2007 18:26:16 GMT -5
Hmmm...thanks guys/gals. Niels I may look into this oxybendazole. Will keep that ace up my sleeve after trying the Poria Cocos for a long time......and if that doesn't work long termI will try the Mushroom which Skytroll posted on my other thread for nematacides...This ain't over til the fat lady sings....and I wanna hear her "singing" soon....
Thanks again.
~Bugsy
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Post by browncircles on Aug 1, 2007 20:08:56 GMT -5
Yes, I think the mebendazole helped more than the ivermectin. Those are the only two I've tried so far.
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Post by suebe on Aug 1, 2007 20:37:21 GMT -5
KMarie, It's not paper cuts honey, it's them.
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Post by suebe on Aug 1, 2007 20:39:02 GMT -5
Bugsy yes ivermectin helped me much with lesions. I don't take it now and only 1 or 2 new lesions in months.
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Post by Carrie♥ on Aug 2, 2007 8:08:06 GMT -5
I'm with Neils...oral Oxybendazole had great skin results.
Milk of Magnesium topically healed my lesions prolly better than anything. By lesions I mean the open, oozing, ulcerated below sea level ones.
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josej
Full Member
Posts: 140
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Post by josej on Aug 2, 2007 9:14:59 GMT -5
Hmmmm... what works? Isn't that THE QUESTION !! For us (especially KJ) her lesions get worse when the weather gets hotter and more humid. We live in South Florida which is basically a sub-tropical swamp so summers are the worst. Actually we only have two seasons here. Summer and Not-Summer. It only cools off from December thru' March. The rest of the year is hot. This may sound good to you northern Yankees, but it's gross if you have morgie skin. The one thing that consistently helps is ivermectin, which we faithfully take as per Dr Toni's orders. But, it's not the final cure. We're all waiting on that one, aren't we?
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Post by toni on Aug 2, 2007 10:22:16 GMT -5
Thank goodness it's helping. And I know, Ivermectin sure isn't the final cure...we've not gotten there, but we can get "some" relief. I too want to check out the Oxybendazole.
How much does one take? Thanks for help on this, I've never tried it either. And I suppose topically it can be used too?
I know KJ has mixed up some topical pastes with anti-parasiticals in it, and what I tried was topically applying "yesterday" a mebendazole tablet and a Stromectol tablet dissolved, added some glycerin so it wouldn't dry out on my face, and wore that all day!
I was able to pluck out the weirdest YET looking things at the end of the day when I washed it off.
They remind me of plastic. Like a long triangle shaped point...actually like a long pointed arrow. Those are stuck in the skin like a thorn! And hard to pluck out, so I took a super fine needle, one of the hub's insulin needles...and I took a nail buffer, and sort of ran it over the top of the needle to create a "barbed" end...and was then able to hook onto this long white plastic looking arrow shaped thin that was down inside a lesion. I've got a couple of these now. Weirdest things I've seen yet.
Carrie, wanna see? I'll send it. It's too weird. Just like hard plastic, yet very tiny and sharply triangulated but loooong ends, just like a triangle, but a triangle has equal sides, and these "new" things (the sides are equal length, yet the bottom is shorter) not sure what that "shape" is called. Does that make sense? Longer sides and not the same length bottom, shorter on the bottom.
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Post by sammy on Aug 2, 2007 11:33:07 GMT -5
Tonie, if it's the thorn tube thing your getting out, then that's good. These will be everywhere after all the other stuff and to me are the worst thing with this illness. Almost nothing effects them at all. You will think you are getting better, but it left these. The webbing and fuzz hair comes from these. I've found them everywhere this stuff is. They go deeper and deeper into skin. Sort of deaden the area also. It's a very bad part of this. Am working on these now. If your paste works, I'll try it. Thanks for such great info. Good head on ya Tonie.
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Post by toni on Aug 2, 2007 12:40:32 GMT -5
Hannah,
I'm so glad you're doing better, thank GOD. And I feel the same way, about our immunes being built back up, that's the key.
It's like "whatever" this is...really slams down the immune, which that thought on that path could make me really come up with some theories...and why CDC is and has been so quiet, and the DOP label started up to begin with...that too looks like a deliberate move to buy time and try and figure out the how's of this from our government etc.
I know many feel that "the worst part/phase" they go through feel it's bascially from herxing, but I don't feel that way, meaning I don't think that's the reason for how this seems to go into a "max level" stage, then seems to taper down a bit.
This seems to me more like well...say a fever for an example, or any infection. You know how initially it comes on...then reaches it's limit, maxes out? Then tapers down or levels off?
That is how this seems to me. Because we all seem to be following the same path. Like it has a definate symptoms and they actually seem to follow a pattern, then depending on how much of a "dose" of this each one of us has gotten, is what damages seem to occur.
Not that the meds really had anything to do with it. It seems more of a "course" it runs all by itself with or without meds to me.
Like the beginning, we had a similar experiences, then the fog, then that sort of wears off, then everything else seemed to follow suit. And if we got a "big" dose of whatever this is....it seems to create more internal problems, and if they're severe we're then left with that. I know I probably sound off the wall...but there's lots about this that follows a course, and yes, critters seem to be very attracted to us more so when we're in the midst of the course where it's at it's worst or at the onset. And heck re-exposure to "whatever" might be causing this too might be a huge factor...and the problem is there, we don't know exactly what that is...so we might be getting a handle on this, then eat or touch something that brings it all back again.
Lymernick, Thanks! And yep, getting ready to go mix and plaster my face with it for day 2. I want to try this for 5 days, and see if it really helps topically. I also ingested 3 Stomectols and 1 Mebendazole yesterday, never had mixed the two...but what the heck at this point. I'm making sure though, the Milk Thistle supplements are on hand, 4 a day has worked perfectly for a year which my liver tests came back excellent...so I trust those to "undo" whatever I may do ;D
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Post by Carrie♥ on Aug 2, 2007 12:44:58 GMT -5
I see those triangles too. I think they're fluke stages you know me so I don't need to tell ya that ;)I know, I know. Tonisue...send 'em. You never have to ask !
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Post by sammy on Aug 2, 2007 14:03:23 GMT -5
Wow Tonie, I had to go a few post up on the meds that you used, I haven't ever tried any of those. When you said after you stopped them you got a huge break out. Maybe because of the mothers. Yes, that true. I did huge rounds of anti's to kill the mothers one by one. It took along time. Then it was the fake skin ones and the thorn ones. The webbing it does to your eyes and all the way through your hair also. I thought my hair was doing well to and growing, it grows all so slow. After the bio film, well then there is the webbing all through your hair. So my hair that look so good and thick, wasn't even mine. It was hell to get out and lucky for me am not bald from it. I took mega hair vitamins to make it strong. But a lot came out with that little tangled thing living on it. It was all through my hair. My hair also moved on it's own. To my mouth also. They are in your lips. Many of them. Although no one likes to hear it, there inside your lips under a bio film also. Anyway, that's all. Keep up the great work.
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Post by hannah on Aug 2, 2007 17:17:11 GMT -5
Hannah, I'm so glad you're doing better, thank GOD. And I feel the same way, about our immunes being built back up, that's the key. It's like "whatever" this is...really slams down the immune, which that thought on that path could make me really come up with some theories...and why CDC is and has been so quiet, and the DOP label started up to begin with...that too looks like a deliberate move to buy time and try and figure out the how's of this from our government etc. I know many feel that "the worst part/phase" they go through feel it's bascially from herxing, but I don't feel that way, meaning I don't think that's the reason for how this seems to go into a "max level" stage, then seems to taper down a bit. This seems to me more like well...say a fever for an example, or any infection. You know how initially it comes on...then reaches it's limit, maxes out? Then tapers down or levels off? That is how this seems to me. Because we all seem to be following the same path. Like it has a definate symptoms and they actually seem to follow a pattern, then depending on how much of a "dose" of this each one of us has gotten, is what damages seem to occur. Not that the meds really had anything to do with it. It seems more of a "course" it runs all by itself with or without meds to me. Like the beginning, we had a similar experiences, then the fog, then that sort of wears off, then everything else seemed to follow suit. And if we got a "big" dose of whatever this is....it seems to create more internal problems, and if they're severe we're then left with that. I know I probably sound off the wall...but there's lots about this that follows a course, and yes, critters seem to be very attracted to us more so when we're in the midst of the course where it's at it's worst or at the onset. And heck re-exposure to "whatever" might be causing this too might be a huge factor...and the problem is there, we don't know exactly what that is...so we might be getting a handle on this, then eat or touch something that brings it all back again. toni, you know more about this than I do and you could be absolutely right about it running its course like a fever. It makes me feel reassured that I am over the worse and maybe I should be less cautious about dosing myself because i have always been so scared of experiencing the worse again due to what I thought was herxing. Thanks for reminding me about the Milk Thistle. My memory doesn't get any better. I'm going to check out the oxybendazole (is that how you spell it?) love hannah
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Post by betsy on Aug 3, 2007 0:24:51 GMT -5
KMarie, It's not paper cuts honey, it's them. This statement affected me, Dr. Sue. It was like having the doctor confirm that you have experienced chicken pox. In earlier stages I was getting these spontaneous cuts on my hands, just like paper cuts. I was pretty sure it was related somehow but no one mentioned these paper cut things much. Thanks, Dr. Sue. I chuckled at your wording "it's not paper cuts, honey, IT'S THEM." It's like you were talking to me , too. I GUESSED that was "THEM", but to have you say it made a DIFFERENCE (even if it is 1 1/2 to 2 yrs after the fact.) All of us have experienced how silly we could feel taking paper cut things to show the doctor. The confirmation of someone who has had the identical experience is powerful. Thank, Sue. What helped my "paper cuts": Peroxide 3% in spray bottle with half water really helped along with polysporin and vitamin D capsules opened up and squeezed onto the lesions.
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