Post by liz on Aug 1, 2007 18:11:31 GMT -5
I have now agreed to do again...(yes...I have flip flopped on whether I wanted to go on air) .If MW wants to look so be it....I have just changed my name to Liz as they have outed me and I really don't care who reads what anymore...This is not a game and I will never go into their website again....and they have the right to view and disagree and there is just nothing this website or any website can do about it...
.I am going to focus on the positive and what I can do to help us ...and will not spend one more second trying to defend the fact this disease is real...I have asked the news team I am working with plain and simple do you believe the sufferers and if you don't that is fine but I will not do the story!.. Of Aug 1st (today) I am committed concentrating on what I can do present a good story that is non repetitive..
...I have decided when I do the news piece not to comment on one single theory at this point (no offense to anyone or to your hard work and research) that includes fluke theory, nano theory, chem trail theory, bugs being made in skin theory, Gmo theory , mold theory, outer space theory, germ ware fare theory, conspiracy theory, because quite frankly I just do not know yet and I do not think at this point anyone really knows for absolute sure.
.I.have experienced a combination of these symptoms....some seem man made...some seem like parasites...some seem like there is a cotton connection...some seem like insects are incolved...yadee yadee yadee.. I am keeping an open mind and not going close off my mind as it could be one of these , or a combo of these, co infections from one or all of these things.
...If I go on air....I will not put the news team in the middle of any website disagreements...I will not slam any one certain group nor will I promote any one certain scientist or group...I will however bring up the fact a lot of people are testing positive for Lyme that also have Morgellons...but not all ...because... so far I have not heard the broadcasts mention Lyme enough ...... I will also try to derail the fact this is just a skin disease (in my opinion) as I feel my entire body and many organs have been affected by this and I think terms like unexplained dermopathy make a very serious illness sound like a bad case of zits......I will be armed with the right tests results and so will T and will point out the fact of how similar they are ....example both positive for Lyme...both positive for Epstein Barr virus and both positive for toxiplamso....anemia and cardiac risk evaluation...and many many more...very like tests results and what are the chances of that?.. ...T is considering going on air...If it is done right..,.the bottom line is we just don't know yet so I am not going to pretend to know! .
...I might pose the question to the medical community...is it customary for a derm doc...on a one time visit ...with no prior med records presented and no tests ordered..it it common for a derm doc to diagnose a serious illness like delusions and put someone on a very hard phych drug(zyprexa) without consulting or even referring to a phych doc
..they may also willing to add satellite interviews from other parts of the country.. but I will not participate for anyone to go on a rant about how they are absolutely sure they know what has caused this ilness...and other researchers are wrong........If they add experts to the news story it will be ones they have chosen not ones I have promoted..And I will make that clear
...Quite frankly ....I would like to get several of the experts to simply all agree on one thing and that is that this is real and serious and spreading fast and there is no cure as of yet...I think that would make for a good news piece what do you guys think? I do not want to blow this for anyone! I also want the news team to seem serious when they present the story and not make comments like this sounds like the x-files or twilight zone and chuckle and say they are stating to itch...I know they mean well but that could be bothersome for someone who has lost a loved one to this illness!
I want to do a good job for everyone and may say that I want to view the edited version before it airs...I may have off the record lunch with the reporter to plan how we want to present this and questions i will and will not answer...
At the end of the piece we should provide links to all legitimate websites..people can choose for their selves where they are most comfortable...I hate the fact when you google MW comes up first...poor souls or family members end up in there without knowing the harm and the fact this is a website dedicated to bringing is down...and calling us crazy...I want to give out all places that can be accessed for support ...if there is a problem of who gets listed first we will pull names from hat....lets just move MW down as far as possible...I have got some legal advice on what I can and cannot say...
I have secured a great doc...recommended by the Lyme disease association to talk to the news team and speak of Mass cases of Lyme out break and she has told me point blank she believes in morgellons and a possible connection...she also may bring up that fact that this may be getting spread by other vectors not just Ticks..she may or may not go on camera...but she has agreed to talk to the news team..she has never spoken before...she is smart and very well spoken...
I would like to pay tribute to Travis (from western Washington) who lost his life to this illness if it is OK with his mother or even have her come on with me..we must not forget the people who did not survive this and how they could not get treatment! if anyone can put me in touch with Travis's Mom please pm me...
:
.I am going to focus on the positive and what I can do to help us ...and will not spend one more second trying to defend the fact this disease is real...I have asked the news team I am working with plain and simple do you believe the sufferers and if you don't that is fine but I will not do the story!.. Of Aug 1st (today) I am committed concentrating on what I can do present a good story that is non repetitive..
...I have decided when I do the news piece not to comment on one single theory at this point (no offense to anyone or to your hard work and research) that includes fluke theory, nano theory, chem trail theory, bugs being made in skin theory, Gmo theory , mold theory, outer space theory, germ ware fare theory, conspiracy theory, because quite frankly I just do not know yet and I do not think at this point anyone really knows for absolute sure.
.I.have experienced a combination of these symptoms....some seem man made...some seem like parasites...some seem like there is a cotton connection...some seem like insects are incolved...yadee yadee yadee.. I am keeping an open mind and not going close off my mind as it could be one of these , or a combo of these, co infections from one or all of these things.
...If I go on air....I will not put the news team in the middle of any website disagreements...I will not slam any one certain group nor will I promote any one certain scientist or group...I will however bring up the fact a lot of people are testing positive for Lyme that also have Morgellons...but not all ...because... so far I have not heard the broadcasts mention Lyme enough ...... I will also try to derail the fact this is just a skin disease (in my opinion) as I feel my entire body and many organs have been affected by this and I think terms like unexplained dermopathy make a very serious illness sound like a bad case of zits......I will be armed with the right tests results and so will T and will point out the fact of how similar they are ....example both positive for Lyme...both positive for Epstein Barr virus and both positive for toxiplamso....anemia and cardiac risk evaluation...and many many more...very like tests results and what are the chances of that?.. ...T is considering going on air...If it is done right..,.the bottom line is we just don't know yet so I am not going to pretend to know! .
...I might pose the question to the medical community...is it customary for a derm doc...on a one time visit ...with no prior med records presented and no tests ordered..it it common for a derm doc to diagnose a serious illness like delusions and put someone on a very hard phych drug(zyprexa) without consulting or even referring to a phych doc
..they may also willing to add satellite interviews from other parts of the country.. but I will not participate for anyone to go on a rant about how they are absolutely sure they know what has caused this ilness...and other researchers are wrong........If they add experts to the news story it will be ones they have chosen not ones I have promoted..And I will make that clear
...Quite frankly ....I would like to get several of the experts to simply all agree on one thing and that is that this is real and serious and spreading fast and there is no cure as of yet...I think that would make for a good news piece what do you guys think? I do not want to blow this for anyone! I also want the news team to seem serious when they present the story and not make comments like this sounds like the x-files or twilight zone and chuckle and say they are stating to itch...I know they mean well but that could be bothersome for someone who has lost a loved one to this illness!
I want to do a good job for everyone and may say that I want to view the edited version before it airs...I may have off the record lunch with the reporter to plan how we want to present this and questions i will and will not answer...
At the end of the piece we should provide links to all legitimate websites..people can choose for their selves where they are most comfortable...I hate the fact when you google MW comes up first...poor souls or family members end up in there without knowing the harm and the fact this is a website dedicated to bringing is down...and calling us crazy...I want to give out all places that can be accessed for support ...if there is a problem of who gets listed first we will pull names from hat....lets just move MW down as far as possible...I have got some legal advice on what I can and cannot say...
I have secured a great doc...recommended by the Lyme disease association to talk to the news team and speak of Mass cases of Lyme out break and she has told me point blank she believes in morgellons and a possible connection...she also may bring up that fact that this may be getting spread by other vectors not just Ticks..she may or may not go on camera...but she has agreed to talk to the news team..she has never spoken before...she is smart and very well spoken...
I would like to pay tribute to Travis (from western Washington) who lost his life to this illness if it is OK with his mother or even have her come on with me..we must not forget the people who did not survive this and how they could not get treatment! if anyone can put me in touch with Travis's Mom please pm me...
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