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Post by morgellonsmoe1 on Aug 11, 2007 10:33:17 GMT -5
Hi Gang: I live alone and do not have money for cabs or a car . I have watched every TV show made by everyone , my home is spotless and its sometimes getting to 114 degrees outside.I only have three outfits . I am just plain lonely .. anyone else ? or what do you do? I am simply not able to work due to Multiple sclerosis and Morgellons symptoms. Any suggestions? Thanks
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Post by toni on Aug 11, 2007 11:29:43 GMT -5
Morgellonsmoe1,
By your outside temps, you sound like you live by me, do you? I'm in Vegas, if so lets meet!
And tonight, tomorrow and Monday between the am hours of 1-5 am is a 100 meteors per hour show (meteor shower) in the night skies! I'm totally looking forwards to this event tonight.
I'm sorry you're feeling lonely. I know there's others who would enjoy talking with you on the phone, and that might help too, maybe exchanging numbers might help you both, because it's fun and enjoyable talking with those who share and can relate to all this.
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sisi
Full Member
Posts: 122
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Post by sisi on Aug 11, 2007 12:58:35 GMT -5
I read, mostly about natural healing, and watch the programs on educational tv. You can order books on line, and have them delivered to your door.
I am presently enjoying a Healing Drum kit that came with a frame drum (like a tambourine), 2 CDs, and a book--"drumming for wellness and creative expression." It was alot less on Amazon.com on line than in the stores.
Music can be very uplifting, and that can be purchased or downloaded on line.
Also movement programs are on CD for people with limited movement--modified tai chi or chi gong for example.
Develop some skill--get really good at something you like to do--sing? cook? draw? write?make jewelery? stained glass? you will have a starting point to go on line, find a message board in that area, and share tips about something you're and passionate about; and cultivate on-line friendships.
Your community probably has a volunteer program for visitors, and possibly discounted transportation---make some phone calls to find out.
You might consider getting a pet--a fish, bird, kitty to bring love and good energy to your home.
The way I go about enriching my life, despite the sickness, is to have a brainstorming session with my self. You may want to do this after you have read your replies on this message board: make a list on paper of the suggestions that have value to you, and then make another list of the order you want to do things.
Hope this helps.
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Post by morgellonsmoe1 on Aug 11, 2007 14:47:55 GMT -5
thanks for sharing so far . I am in SC not where you are .Please anyone keep posting the compasion Lifts a heavy heart .
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Post by Patti on Aug 11, 2007 15:36:52 GMT -5
I like what everyone has said so far.....music is a great mood lifter and also just sitting outside, being "you" can often do wonders for your mood. Watch the birds, listen to their singing and enjoy all the beauty we've been given through nature alone. I understand that having special hobbies and interests don't help much if you're too sick to participate. I love anything crafty and working with my hands but don't have the energy to do these things right now. Instead, I watch shows about it and that somehow gives me inspiration for when my days will get better. You could also find out about other lonely people through your Church or Social Services department, then maybe call someone different every day, just to see how they are doing. It will lift their spirits and knowing that you've helped someone else often benefits you even more than it does them. Some of these shut-ins might even have MS like you and it would give you something in common to talk about as well. I think that through Social Services, there are also programs where people come to visit you and help with any chores you are unable to do. Even if you don't need that kind of help, the visits by these volunteers will give you something to look forward to. Something else you could start as a morning or nighttime ritual is journal writing. It really does help to write down all that you are feeling inside, good or bad. Just be sure to include several things each day that you are grateful for......this is one of the most comforting things a person can do to lift their spirits. Remember that we are always here when you need support or someone to talk to. And above all else, keep the hope and faith that this too shall pass, because it will.
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Post by hannah on Aug 11, 2007 15:44:05 GMT -5
This site, some of the members and Morgellons.org were my saviours last year when I was so unwell. I don't know where I would have been without the online contact - including you folk across the ocean. Morgellonsmoe1 you've taken a big step in the right direction telling people about your loneliness. I think it is about to get a whole lot better because you've got friends here already.
I hope you see the meteors tonight.
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Post by bugsy on Aug 11, 2007 18:04:45 GMT -5
I run naked down our residential neighborhood street in suburbia screaming "I've got Morgellons Diseaaaaaaaaaaaaaaaaaease, I've got Morgeeeeeeeeeellons Diseeeeeeeeeese."
Then..
Very soon...
I'm no longer alone......
Then I have plenty of company of some of the very finest folks all dressed in police and ambulance uniforms...........
~Bugsy
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Post by hannah on Aug 11, 2007 18:32:55 GMT -5
Yip, sometimes feel like that myself, bugsy.
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Post by Carrie♥ on Aug 11, 2007 18:54:29 GMT -5
And tonight, tomorrow and Monday between the am hours of 1-5 am is a 100 meteors per hour show (meteor shower) in the night skies! I'm totally looking forwards to this event tonight. Me, us too...Thanks Tonisue...we'll have our tea tree oil on and lawn chairs ready to watch the show tonight! That sounds great...thanks for the tip. Well not lawn chairs really...we'll have some sheets spread out on the trampoline ready to watch the show ;)thanks again...sounds super cool !!!
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Post by Patti on Aug 11, 2007 19:32:05 GMT -5
I run naked down our residential neighborhood street in suburbia screaming "I've got Morgellons Diseaaaaaaaaaaaaaaaaaease, I've got Morgeeeeeeeeeellons Diseeeeeeeeeese." Lol Bugsy, sort of reminds me of what I just saw on the news: DENVER – The Archdiocese of Denver released a statement regarding a 53-year-old priest who was caught jogging naked at night on a high school running track. The Reverend Robert Whipkey told Frederick Police officers he had been running naked at a high school track and did not think anyone would be around at that time of day. Police say Whipkey faces an indecent exposure charge........continued: www.9news.com/rss/article.aspx?storyid=75195What gets me is if there is a conviction, he will have to register as a sex offender? I realize what he did wasn't the brightest idea he's probably had, but that's a long way from being a sex offender. Sometimes these laws just don't make any sense at all. Sorry for the second degree of separation in this thread, but guess it's one way to beat the lonelies.
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Post by morgellonsmoe1 on Aug 11, 2007 19:59:53 GMT -5
LOL If I took my clothes off , I would be arrested for assalt with a DEAD weapon. ( Ill look for falling stars Lots of good ideas you all making me get out of me here . (huggs)
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Post by ed on Aug 11, 2007 20:08:58 GMT -5
"The Archdiocese of Denver released a statement regarding a 53-year-old priest who was caught jogging naked at night on a high school running track."
ah.......what's so unusual about that? .Ed
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Post by lilsissy on Aug 11, 2007 20:35:22 GMT -5
Loneliness is terrible. Been there before and I'm sure I'll be there again. Times like that seem to be all encompassing . Times like that I try to remember my most pleasant childhood memories. I try to remember someone somewhere has it worse than me . Sometimes I hug myself . Sometimes I become angry at God and or myself and others then other times I accept it and hold my palms up to him and feel him heal me. Please Jesus send a friend to comfort us. lil'sissy
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Post by prevenge on Aug 11, 2007 21:07:53 GMT -5
I run naked down our residential neighborhood street in suburbia screaming "I've got Morgellons Diseaaaaaaaaaaaaaaaaaease, I've got Morgeeeeeeeeeellons Diseeeeeeeeeese." Then.. Very soon... I'm no longer alone...... Then I have plenty of company of some of the very finest folks all dressed in police and ambulance uniforms........... ~Bugsy Don't forget the Black Budge Boys in Hazmat suits. they're always fun at parties. hate to be one of them and have a bad case of gas. unless.. you're into that sort of thing. ME? what do i do? I circumvent the experience of lonliness by actually experiencing self-love and know that I'm my own best friend. This isn't in some kooky multi-personality sense of the idea. I literally mean, having a relationship with myself and finding nurturing solace in the love that I can give to myself. sound too new-agey for ya? too bad. it's the best thing you can do.. no matter your preconceived notinos about it. i also have a billion hobbies .. visual arts.. sound.. music.. reading.. that i feel that there is not enough time in the day for. but i can still maintain a relatively normal and healthy social life... because my symptoms have not gotten to the point where i cannot work..yet..knocks on weed. i mean wood. but i know what you mean as far as facing that idea of loneliness when being ostracized by the medical community and friends/family/acquaintances, not having the slightest ability to relate to what you're going through. -M
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Post by gertie on Aug 11, 2007 21:09:45 GMT -5
Patti is right; when things aren't looking so good, it is much easier to go sit in the shade somewhere outdoors. I don't know why, but things always look up. Sights, sounds get our minds off it for a brief moment's rest.
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Post by robertalouise26 on Aug 11, 2007 21:19:26 GMT -5
Dear Prevenge apart from the pain and the itches and other discomforts bought on by this disease the lonliness of it is quite horrendous you just cann;t talk to anyone about it. That is why this board is sooo WONDERFUL. Just to know that you are not alone with this wretched thing helps alot. Best wishes. Roberta.
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Post by robertalouise26 on Aug 11, 2007 21:29:15 GMT -5
Dear morgellonsmoe1 I too get very very lonely. I am on a pension and cannot afford bus fares etc. I do go to op shop and buy cheap clothing. Have you thought of getting a puppy or kitten they make wonderful companions. I don't watch much TV but listen to radio tallk back which can be very interesting.. You can always email me at robbie@xtra.co.nz and we can chat. Plus you always have this board to come too and there are many many people who will listen to you and give you help and advice. Very best wishes. Roberta.
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Post by glennb on Aug 11, 2007 21:38:55 GMT -5
I love to read, I have online research that I am very interested in and only wish I had more time for, message and chat boards are great for being able to communicate with people even when you don't feel like going out, get re-acquainted with relatives via long distance or mail (I think computers can now be used to talk for free, or chat on AIM, network.
If you are up to it maybe you could do some occasional volunteer work for a group interested in making the world a better place. Environmental groups, Save the Rain Forest, working for renewable resources, there are so many worthy causes.
Find something you feel passionate about. Even if you can only manage volunteering occasionally you will meet new people...maybe someone you really click with, could be your new best friend is out there somewhere just waiting to be discovered.
Who knows.
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Post by valerie on Aug 11, 2007 22:11:28 GMT -5
This disease is lonely...I learned a long time ago to keep this hush hush--after several failed attempts at reaching out to docs for help.....I learned that asking for help could lead to a padded cell in a nut house....so I shut up lol and learned to lean on the Lord for my help!!!I cant think of any other disease that alienates a person like this one.....reach out to the people on this board--they r really compassionate people who know what u are going through
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Post by liz on Aug 11, 2007 23:49:08 GMT -5
Bob?
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