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Post by friskers on Aug 16, 2007 16:19:27 GMT -5
I know having morgellons really sucks on most levels but if we continue to learn from it we can move foward in our lives and be better people for it. In the beginning for me I didnt see any benefits whatsoever ....just misery but now that Im so much better i can think more clearly and see how many positive changes in my life came about because of having this. Heres some of the positives for me. I got my very first computer and researching morgellons found all of you wonderful people! I had to learn a new way to make money and now have a business that i enjoy. Ive become much closer to my parents, even though they never really beleived what was happening to me they knew i was suffering and were there for me. Im a much more compassionate person now that I have gone through so much. I can finally sleep now with the meds my derm gave me for" DOP" -------- i hope you all have found at least something positive through this all, as it does seem like just a nightmare at times we have to endure.
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Post by toni on Aug 16, 2007 17:54:47 GMT -5
Friskers, there's that pretty picture! You're right Friski, lots of positive eye opening self changes have definately come from all this. And I sure agree, so many new friends, wonderful, supportive, warm people that I want to know forever! And as for the "home life" I've learned I've got a huband that definately sticks though the "THICKEST of thick" times, which I am grateful for too, never really realized that to the degree life's shown me with Morgellons. Learned alot about critters that I thought only God knew exisited, hahaha and heck even new skin treatments! And how precious life REALLY is, not that I didn't know it, but I REALLY know it now. And I know every breath I take outside this house will never be taken for granted again. I've also learned what it's truly like to have a bond with others in a fight for life mission. And I've learned, that if I EVER hear anything that sounds too bizarre to be true....well, I'll sure be the last to say it's not.
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Post by morgellonsmoe on Aug 16, 2007 18:03:39 GMT -5
I have learned what trust is and what crazy is not. I have learned just because you hasve a white coat , compasion was not on the medical tests but ego is. I have learned compasion deeper than I ever knew. I have learned what its like to have nothing but find it when you have a last hope that this is it ... I pray for those businesses and doctors cause you really have to be intelegent in order to comprehend this.. So We look like the intellegent ones today .
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Post by mfromcanada on Aug 16, 2007 18:32:25 GMT -5
Absolutely nothing at all is positive about this. No more brain washing please.
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Post by hannah on Aug 16, 2007 18:34:06 GMT -5
Friski, This is a great question and I quite often ponder on how different life is now - a whole set of new worries and a whole set of new friends. I value my old and close friends a lot more and I also am amazed at all the help I have received from my new friends on the forum. I am in awe of their fortitude, their intelligence, their humour, their openess and their kindness. I have a whole new way of looking at doctors - some are not worthy of respect and some are our saviours. I have discovered that there are silver linings to even the darkest of clouds - For example it is now possible to forget about really major things that I have been worrying about because my memory is so bad. I have found out the meaning of faith, hope and trust and I know that you can get through even the worse times. I just know that we have to hang on until an answer can be found - and I know that by pulling together we can do that.
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Post by belikewater on Aug 16, 2007 19:34:35 GMT -5
Mind-expanding. Mind blowing. Reality is bigger than drugs. Textbooks are only a basic beginning. Glad that I am not alone in this, and that braver souls than I, have gone before. Sorry that others have to suffer this. No more ego about the perfect, clear English complexion I have. Not! Determined to out live the f**kers! Think it's rather cool to be a werewolf
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Post by liz on Aug 16, 2007 20:46:04 GMT -5
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Post by liz on Aug 16, 2007 21:08:35 GMT -5
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Post by friskers on Aug 16, 2007 22:12:18 GMT -5
Thanks for sharing all guys! And Liz those videos gave me goosebumps...so true we all hurt and we are all beautiful Mfromcanada.........Im so sorry your in that state of mind because i was in that same place for a long time and its a very dark place and I will say a prayer for you that things get better for you. I dont think its brainwashing to see the what good has come of something bad. its definetly a great coping tool and helps one to grow spiritually . I admit its very hard to do!! and I am much more fortunate than alot of others here who are so sick they cannot work. I hope more people share because it can really help us all to try and have a different outlook and give hope to those who have none
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Post by Carrie♥ on Aug 16, 2007 23:56:26 GMT -5
Friski...that' isn't the picture that I wanted to see you to post ? Where's Bob ;D? I got positives...I share and enjoy them daily. For the non-believers...I'd NEVER give my Morgellons back ;D! I miss my life, the way it was. I was so in my prime, damn fine and enjoying my life but life is change. I'll never get it back, it's just getting used to this new chapter, so why regret and be miserable? The good times are gone but there are painfully good times amongst me and I enjoy, love and welcome them all, even if those bastards tell me this is gonna kill me...I'd never give it back. They live in blindness...we are very aware.
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Post by Carrie♥ on Aug 17, 2007 1:05:55 GMT -5
Ahh...Friski...you're crazy! Yep that's the one! You better NOT delete it! Give my Pie just a minute...I called her and told her to hurry her butt up over here! You're so silly...I love it! Ooh Kelly...I told you Friski is damn sexy! Friski...you better be careful...Kelly'll be comin' to a town near you soon !
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Post by friskers on Aug 17, 2007 1:18:43 GMT -5
Hhhhhhhhheheheehehe ;D
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Post by Carrie♥ on Aug 17, 2007 1:22:41 GMT -5
I told you Kelly...she was gonna do it and she did! Ha ha Friski! I knew you'd do it...I told her butt to run and see it. I don't know if she got to see it though. You should have left it for the am crowd to see...yeah right...you'd have been in trouble!
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Post by bannanny on Aug 17, 2007 2:47:20 GMT -5
So get it back up here friskers....... that'll be a positive!
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Post by janedough on Aug 17, 2007 7:18:25 GMT -5
I have positively learned not to trust anyone in the whole government. I have positively learned that I am living a life of hell and that my children will. I have positively learned that this is being covered up. I have positively learned that this sucks. Oh, and I like you guys and appreciate all of you but I positively wish I never met you.
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Post by beckybailey on Aug 17, 2007 9:12:57 GMT -5
I now know my husband meant it when he vowed "in sickness or in health". We now know that we have lyme disease, due only to the fact that I came down with Morgellons. I suppose we would have just suffered with it for many years not knowing. For whatever reason, I don't get fever blisters, etc. like I have in the past. When I do get one, it isn't as bad as in the past. I strongly believe that all the therapies I am doing are making me healthier than had I not gotten this. I am ridding my body of parasites of many types. This has to affect my health in the long run, maybe even prevent cancer! I am much less vain about my once gorgeous skin, because it is now marked up with scars..... I guess that's a good thing.
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Post by belikewater on Aug 17, 2007 9:46:08 GMT -5
janedough, We are your worst nightmare.... Whew!! Now that you have survived that, it's upward all the way
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Post by belikewater on Aug 17, 2007 9:48:27 GMT -5
Becky, Fur shur. If brave Morgies hadn't gone before and posted their raging DOP experiences online, I may have never found I had the Lyme Disease, until it turned me into a hopeless case.
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Post by friskers on Aug 17, 2007 10:05:30 GMT -5
Ok i changed the title of this thread because I think it may have angered some of you and that wasnt my intent at all! But i can relate! So what have you learned from having this.?.......... may be worded a little better Lifes lessons can be very difficult and painful but we still can learn and grow from our bad experiences.
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Post by Patti on Aug 17, 2007 12:15:09 GMT -5
Ok i changed the title of this thread because I think it may have angered some of you and that wasnt my intent at all! But i can relate! So what have you learned from having this.?.......... may be worded a little better Lifes lessons can be very difficult and painful but we still can learn and grow from our bad experiences. You said it all right there, Friski. And we all know that you couldn't anger anyone.....people are just angry at this disease and how it's robbed them of so much. I can't add much more here than what everyone else has already said, but I do know it's opened my eyes up to so many things I was never even aware of pre-Morgellons. I've learned there is nothing a person is incapable of doing as long as the motive is strong enough. That can work both for and against us, but we are so lucky to have been blessed with such a wonderful group of caring, dedicated, and diligent people here. I am in awe everyday at how unselfishly you all give of yourselves, and we are so grateful for every one of you.
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