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Post by toni on Aug 17, 2007 12:16:44 GMT -5
Friskers,
I think it's a great thread, no matter how you worded it. It makes us stop and think and most importantly I think is reflect...DEEPLY, and realize the positives even in this catastrophic nightmare we're actually living, even though we all understand how life crippling and devastating in every facet this truly is, we are surviving and making it through and we're still standing!
And that sure counts for alot! And we ARE winning! And if this doesn't build even stronger character into our beings, nothing will.
I know too, none of wanted this, of course not, as with anything devastating in life, but I think it's made me realize too, that it's (what and how) we handle and deal with it is the "knowledge about ourselves that's now being deeply learned and understood within".
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Post by kiki on Aug 17, 2007 12:42:46 GMT -5
That my faith and will are stronger than my fear...that I still have choices--sure I have moments of hopelessness that literally paralyzes me...BUT even though this abomination has taken what only another morgie can understand,and I know darn well this has the power to kill... I can choose not to let it make me bitter.
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Post by lydski on Aug 17, 2007 13:34:28 GMT -5
I've learned...........how to minimize wrinkles (thanks toni)
I've learned..........who my real friends are (not including my friends from here)
I've learned..........that no other person will ever love me like my mother did (does). I lost her right before I started having symptons and that I also lost my best-friend.
I've learned..........words I didn't even know existed of diseases I'd never heard of details about insects, lice etc.. (coulda lived w/o this knowledge) how to use a microscope
I've learned..........the great benefits of herbs.
I've learned..........NOT TO SWEAT THE SMALL STUFF!!!!!
I've learned.......... self discipline
oh well I 'll stop here.
Oh I forgot 1 more... ABOUT BOB ;D
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Post by janedough on Aug 17, 2007 17:32:07 GMT -5
Belikewater,
Let me rephrase that: I wish I never met You. But, I wish I met everyone else here on a forum for let's see. . . Okay, travel or maybe some cooking thread or perhaps fun things to do with your kids. I am assuming you don't have a three year old with this fun disease. Maybe you don't have a 7 year old with it either, do you have a ten year old with it? I am pi ssed that I have it. And you know what? NOT one effing thing is good about watching your own little kids suffer with it either.
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Post by Carrie♥ on Aug 17, 2007 18:20:23 GMT -5
Yes Janedough, but we know they have a disease!!! I'm just sayin' at least you are trying to find out their disease and not calling it just a disability! It is devastating to watch this monster destroy our loved ones lives but I am so grateful that I know it's something. That I don't have to look to psych meds and just anti-inflammatory or immune modulating meds to find some relief, that the real relief is getting to the bottom of it. I'm not happy with it either but really...it could be worse. I talk to people a lot that are so sickly, dying and HAVE NO IDEA WHY! They don't even look, they listen to the words of society and just die while taking the symptom relievers...see...there is some good even to our nasty ass disease. I wish I'd have met you on a kids activity site too...sorry we're here. Sorry your babies are sick as mine .
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Post by liz on Aug 17, 2007 21:08:00 GMT -5
Yeah friskers....we learned about BOB...or how to get a better Bob....but friskers...please do me a favor...quit always worrying about offending someone....quit always worrying about changing your words....anyone who knows you know you are kind and good to the core... .....and if they don't like your words..then I tell those people ...don't read them....I know you are just trying to find some light in the darkness of this situatuion.....people turn horrible situations into positive outcomes all the time so don't you let anyone tell you you are trying to brainwash them...don't change your thread topic,,,just be Frisker and be happy with that..we are....there is plenty of gloom and doom threads to read from the people who didn't appreciate your intent...and for the ones who did..ROCK ON .... www.youtube.com/watch?v=_WUpN8WNbgE
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Post by friskers on Aug 17, 2007 23:02:10 GMT -5
Thankyou so much for sharing your thoughts everyone! Its opened up my mind to even More of lifes lessons to be learned! ive learned too that love and laughter can be the greatest healers. ;D That words can either harm or heal someone and try to choose them carefully. And not to take things too personal. Carrie and a cd gift taught me that! And ive learned there are many ways to have fun without a man and there are so many new exciting Bobs out there I will never be bored or feel old! ;D I l;ove u guys
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Post by Carrie♥ on Aug 17, 2007 23:29:02 GMT -5
Friski...I'm so glad you loved, listened and learned from that CD too! You're a beautiful soul and I love you too !
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Post by art on Aug 18, 2007 3:12:51 GMT -5
Janedough, I am am soo sorry for you & your kids having to go through this Nightmare Plague. No one , especially kids should have to go through this dehumanizing horror. I rather have the Cancer I had at 16 then this.
The only good thing that has happened for me from this , is i found religion & Jesus. As I was on my way to a dermatologists office with shotguns & pistols . My goal was to make CNN. At the time, bitterness turned to hatred, hope turned to rage. So when i was saved, so were alot of others in a different kind of way. I know the utter hopelessness,the infinite sadness, the abandonment from the health care profession.
What I learned for the most part, 1 Doctor is a noun, not nessecarily a verb. 2 Compassion and Integrity doesn't come with a degree. 3 The devil works in many fields and is alive and well and hungry for souls.. 4 Some of the best people i never met are on this site.
I pray every day for God to take this plague away from everyone here. Peace , Love & Superior Firepower !!
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Post by prevenge on Aug 18, 2007 3:20:31 GMT -5
tought me that gators[/b] swim in the frikin PACIFIC![/b]
half a frikin continent AWAY[/b] DAMNIT!
GRRRRRRRRRRRRR!
-M
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Post by liz on Aug 18, 2007 3:58:49 GMT -5
Art you are so very kind and I know it took a lot for you to share that....You have always been so very supportive and kind to me and I knew right away you were meant to be here with us~
Don't mind prevenge...his comment was not making light of yours..he is just restless..~ Prevenge go to bed~
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Post by art on Aug 18, 2007 6:54:26 GMT -5
thank you Liz .....and no offense taken Prevenge hope I didn't incriminate myself tooo much..........oh well, too late
Ooops...the suns comin' up......time to go..... back to the crypt....heheheh
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Post by toni on Aug 18, 2007 7:49:49 GMT -5
Art,
I sure too was touched by your comments. And the warmth of your soul, ALWAYS shines through. And your 1-4, oh yes, how right you are!
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Post by belikewater on Aug 18, 2007 18:35:40 GMT -5
janedough, I am glad I can be a focus of your rage. Yes, I have no kids, my choice, not to bring more suffering into the world. I am sorry they have to go through his.
jane, are you a Capricorn?
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Post by janedough on Aug 18, 2007 18:51:25 GMT -5
Why, No, I am not. But my very ill 7 year old is. Do you know how hard it is to raise a capricorn with morgellons?
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Post by janedough on Aug 18, 2007 18:58:39 GMT -5
Oh, yes and I see your point about if you brought kids into the world, they for sure would suffer.
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Post by Carrie♥ on Aug 18, 2007 18:59:42 GMT -5
I do Janedough, Arianna is a Capricorn too. She's almost thirteen...Morgellons made itself known to us when she was eight. She's got a long list of "auto immune" bs dx. She'd have bloody noses with blood clots that would make you go ugh if it were from your menstrual!?! She's not as sick as my son but raising her with Morgellons hasn't gotten no easier with her age...only worse I'm sorry to say.
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Post by janedough on Aug 18, 2007 19:20:21 GMT -5
Dear Friski, I thought that this thread was not a bad idea. I really can think of some good things that morgellons has taught me, and I am sorry that this thread has taken a wrong turn. Some days are more positive than others, but this week for me has been tough. My three year old was in the E.R. last sunday.
I really do see your intention and I hope you can forgive my anger.
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Post by reasonable on Aug 18, 2007 19:23:31 GMT -5
The good thing I learned from this experience is that we can survive this and move on and that we are very resilient
I also learned that my mind depends on my body to function properly, while all the other tenants, the flora and fauna that inhabit my body despite me, affect the functioning of my mind, rob me of energy and destroy my life
I have nothing left and the good thing about it is that I am free
Thanks friski for bringing this up. The bottom line for me of this experience is rediscovering that I am not my body and learning anew that I am not my mind -- either. But then, what is me?
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Post by liz on Aug 18, 2007 19:25:38 GMT -5
Janedough...ofcourse we can forgive your anger......there are some people that are just nasty and bitter all the time with or without morgellons.....we know you are not one of those..or atleast I sure do~We all know the difference...you know what I mean jellybean~ ;Dl
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