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Post by Tara on Aug 15, 2005 4:02:15 GMT -5
Please can anyone tell me if they have had any of these symptoms. Extream heart pain? I thought that I was having a heart attack but could not get to the phone to call 911 I don't know if that was a good thing I would of hated to tell them that I was having my heart eaten by invisible bugs.I have had sharp like needle pains off and on for a week or so but this was down right wrong. My back hurts now for a week hurts more then it used to it feels as if it is become hard like a brick and makes hard cracking sound when I bend anyol way and it hurts more. Also back bone upper area I used to be able to bend forward just fine now everytime I do it pops really bad not just any ol pop a pop that feels and sounds as it was empty ( if that makes any kind of since to anyone). Just the other day I had a friend of mine adjust my back as they always do for me and they got freaked out because even the sound of my back popping did not sound right as well. Does anyone have a tender spot with the feeling of something hard on the top their head as well as does your scalp feel as if has started to change in shape? Mine feels as if it was collapsing in the middle going up and down. how about you're neck? I thought that I had a simple muscle knott in the back of my neck untill I realized it was not going away and if I touched it the wrong way it felt like someone was putting liquid electricity into my neck bone, now its huge you can see it instead of trying to feel for it. Last but not least does any have issues with their head shaking ( short little shake but fast)sometimes not noticed by you but someone else, if so is it all the time or off and on like mine.
Please if you could please let me know if any of these has happened to you? or if you know someone that has or had this what has become of them do they still have these or did they go away? I feel like I am being eaten alive from the inside and there is noting I can do except to live each day as if it was the last one( if I had the strength)
Thank's you all
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Post by justice on Aug 15, 2005 14:32:53 GMT -5
Hi Tara, I get the heart pains off and on, each time I have to wonder if this is the last. Not meaning to sound dramatic- just stating the facts. I have intense back pain, lower and upper. In the middle I have the sensation that they are grouping there. It is an odd feeling that is both numb and tingling/ buzzing/vibrating. Anyone have this symptom? I have the big rock hard node on the left hand side at the base of my skull. I believe I read somewhere on the nematamorph nematode that it is the eggsac and they are living off our cerebral and spinal fluid. To add to this thought, I recently received a Homemade concoction from a new aquaintence (He suffers from extreme eccema (sp?). He got the recipe from a friend- you boil some chinese root with some other items. I believe camphor and some anise seed. He puts this in a Eucerin cream base. Strangely enough, this stuff also flouresces under black light. It doesn't exactly smell so great, but mind you, i am not complaining. It helped to work out the scary stuff. My mom is visiting and she so very kindly offered to get my back as it is hard to reach. I gloved her up and she went to town. She started exclaiming, "oh My God", "there are black fibers pouring out of your spine, all along your spine!" I told her if she was too freaked out to cease. She was so very calm and replied she wanted them out as bad as I do . After she showered (post back rub expulsion), I walked by her and she questioned me as to whether or not I had done another "treatment" by myself (I hadn't) because the fibers were still coming out of my spine. Hope this helps to alleviate your fears and isolation. I am so sorry anyone of us has to deal with this nightmare. It has turned my world upside down to say the very least. I guess what I hate most about it (and I do mean hate, despite the strength of the word) is how serious I've become. I need to laugh any chance I get. This furrowed brow of mine is going to stick. Yikes!!!!!!!! Justice
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Post by bb on Aug 15, 2005 16:00:32 GMT -5
I did have heart pains.
Take COQ-10 to make your heart stronger. Works wonders for me.
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Post by jodyann52 on Aug 15, 2005 16:08:04 GMT -5
tara, i have hurt so bad befor, it hurt to breath.under my breast, in my spleen and pancreas up into my arm.. and shoulder,and colon i think this stuff moves if i dosent like what you do at that time.i have a big lump on top of my gallblader. or where i had gallbladder surgery that was one of the first places i hurt.i know the pain.my scalp will not heal. it is not as bad as it was but it just will not heal.
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Post by TonyM on Aug 15, 2005 17:58:02 GMT -5
Tara, Yeah, i have had what feels like "close calls" a few times since this all started with me. The last one was sooooo scary. As for my neck and back, i mostly notice that when my upper back and neck hurt they are all there, or alot of in one giant spot. Like they're in my the bones, eating them away.
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Post by skytroll on Aug 15, 2005 18:26:27 GMT -5
Hello,
I agree with you on these posts. I have had pain in lung at back, in spine and in upper neck.
If you can find a way to get to a therapist, a therapist will massage out and away from the area where the fibers are or if you can get someone to do this for you.
Use some arthritic rub and pull away from the area, like you are spreading it out and use a heating pad on area. This will help but it seems to move it somewhere else.
It does seem to me like they eat cartilage. One ear has been eaten up on ridge just before going into ear and I have clicking in that ear. It is so bizarre.
I have had them on cartilage inside nostrils too, on bridge of nose. Where there is soft cartilage. So they are bone eaters, flesh eaters, hair eaters, nerve eaters, and probably capillary eaters.
So what insect eats all this?
Skytroll
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Post by jodyann52 on Aug 15, 2005 19:35:15 GMT -5
same here inside my nose hole all the way through.when i eat or drink i have a hard time.cant breath good.how many have it this bad in nose?
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Post by TonyM on Aug 15, 2005 19:49:40 GMT -5
Jody,
I have it REAL bad in the nose. I get pains from the inside on both sides and reAlly do think they harboring in there. It's the 1st place they go when they get pretty bad as in attacks. Any idea's on whether or not you might have internal lesions, because i am sure I have them way inside my nasal passages. It also feels like the pain area inside there keeps getting bigger as well. ALSO - since my last lesion is a scar now, like the other one...I think they have pretty much moved-in there for keeps, and the headaches, my God do they hurt!!!
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Post by wolfe1 on Aug 15, 2005 20:07:03 GMT -5
jodyann, ihave had nose problems alot. Only on one side where I once had a nose piercing. once my nose was so infested that it felt soft like thecartillege was sofening. the inside was mushy. this was before i knew to use liquid ivermectin to rub inside. I've kept them under control. but if I went out in the heat to my car my nose would start itching unbearably. Sometimes I would see black specks on my upper lip. It is so horrifying. I know people could see them. still cracks open in my nose and gets really sore but never as bad as in early onset when i hadn't found my lifeline of you all. wolfe 1
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Post by Newby on Aug 15, 2005 20:08:28 GMT -5
Ditto, I am usually awakened from my 2 hour per night, if that much. sleep. I can feel them entering my nose and I get up and wash with listerine, then pour medicated powder all over my face. It helps, they don't like medicated powder. I also have the gnawing going on in my upper spine. Once again, Listerine or substitute rubbed on in circles, gets the buggers out. You must make sure that as you feel them you remove them or they will re enter your body. As for the heart pain, sometimes, but for me it is lung congestion. Sometimes I wonder if I will drown in my sleep. Just recently I started using a vegetable rinse in my mouth and swallowing some (yeccchhhhh), and found that it broke those bad boys down. Also, lime juice, real lime juice, makes the invisible entities for lack of a medical term, makes them very visible and easy to remove. I wonder,
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Post by wolfe1 on Aug 15, 2005 20:17:43 GMT -5
tonym, I know what you mean about the headaches. I really believe it has to do with the morg. I never had headaches before. The two really bad places on my neck have been around for a year. If I had found you all during my early stages I would not have the deep ones. I can manage new stuff but the old burrowed ones leaving tracks and muscle pain really frighten me. I have such headaches and neck aches I feel they are invading my brain. with lots of friction rubbing and ivermectin topically I have gotten some deep/larger ones out but it seems there is a new beginning close to where the old one was always surfaces. wolfe1
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Post by Spec on Aug 15, 2005 21:42:27 GMT -5
Hello Tara,
I have had a lot of lower back pain, sometimes can tell it is my kidneys, sometimes not.
I won't go into too much detail, and this might sound mild, but since our activity level has fallen, some little pelvic tilts may help. Look on line for a refresher on the exact way to do them, first a contraction that is focused on a point several inches below the navel, then the tilt, relax. Don't overdo it, just enough to help relieve the terminal back contraction that is going on.
In the spring I took a Feldenkrais class at the community college. My instructor has told me that other Lyme patients had used the course, new manner of movement, successfully.
There is a website for Feldenkrais on-line, it may use the term "Guild".
I do have some heart difficulties, but this has gotten better. i think it is from taking the praziquantel, but then again, I need to think about that some more.
spec
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Post by Tara on Aug 15, 2005 22:08:55 GMT -5
Hey I want to thank you all for responding. I thought for a few I was alone with these symptoms. I have found that for headaches I take relpax pretty expensive stuff I take two a day and well 6 pills cost 130.00 Thank God for insurance. Last night while picking my husband up from work they were all over me itching me like crazy. I told my husband to look at my shoulder and he could not see anything I slaped my shoulder and ripped off this flat disck like thing with a black dot in the middle My husband jumped when he heard the crunchy sound (like super glue being picked off) as I ripped the little bastard off. Has anyone had the crunchy sound? Oh also I found that putting medical tape on my eyebrows and tearing it off the opposit of the way the hair grows will remove some of the crap, some looked like part of my eyebrows but I don't think they were because when I looked at how many were on the tape I thought I took out my whole eye brow but when I looked up it was perfect none looked missing and the bugs jumping off onto my face stoped for some time.
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Post by jodyann52 on Aug 15, 2005 23:02:10 GMT -5
ok here goes the hair thing again im 53yrs old and yes i have gone through the change of life at 49.... but this hair is all over my face, it is light in color, not stiff some of it is long.i think if i could get rid of this hair on my face it would clear up.do any others have it.i have shaved it befor it is still soft.the hair is a big part of this.it is on men also.it just dont look right. im sure we have talked about it befor i forget so fast.
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Post by Newby on Aug 15, 2005 23:16:06 GMT -5
Moderator, My apologies, Morgellons fog. I know there is no excuse. I am used to not being listened to. Sincerely, Newby
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Post by sparkyside2 on Aug 15, 2005 23:53:38 GMT -5
i think if i could get rid of this hair on my face it would clear up.do any others have it.i have shaved it befor it is still soft.the hair is a big part of this. Just a thought - but instead of shaving maybe try having it removed at a spa/beauty salon. I forget what the process is called but you might have seen it on TV. They put some kind of goop on you and yank a cloth. Please understand I'm trying to be sincere and not unsympathetic. Another thought is to use a dry microfiber cloth to rub your face. I trashed all the cotton towels in my house and switched to microfiber. One of the things I read was that a DRY microfiber towel is used at spas to ex-foliate the face and remove hair. I have not tried this or I do not know anyone that has but you might do further research before trying.
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Post by Tara on Aug 16, 2005 1:10:20 GMT -5
Waxing....... I have tried it. It seems to work sometimes and some of the other times well I think that I can still see them unless they are coming back that fast but over all it does some temp solution to the white hair thing. I noticed when I wax my eyebrows it relieves them from the jumpping white things. I use surgi wax you can find it at any walgreens or wal-mart it's easy to use and you just microwave it for about a min and your ready to kill and rip the bastards right off
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Post by TonyM on Aug 16, 2005 10:25:41 GMT -5
Wolfe1,
Yeah, I wonder about the brain thing....it's like how far in the sysem are they really. Man, this morning, I was awakened at 4:30am by the critters. Crawling and biting like nuts. I put Gold Bond medicated lotion, then rubbing alcohol, and then aloe vera gel from the concentrate I have. The messed up part was that they came back after like a minute.
Yeah, I would try the ivermectin, but not sure if my liver would be able to handle it....it can be sensative sometimes, kinda scary. Going to wait until I get a Doc 1st. After I find out who the people are in San Diego that are seeing a Doctor. I swear I read it here somewhere, arg!! HAHAHA - I am tryin as much as these critters are...Time to Pray....Ohh, can I post a prayer - Prayer to St. Joseph. EMAIL me so I don't have to dig for the answer, as lately...brains been quite foggy, I have my moments though were I can remember alot. "You ain't takin me aliivvveee!!!" - HAHAHAHA!!!
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Post by Scotty on Aug 16, 2005 13:56:23 GMT -5
I've had the heart pain that was so bad I thought I was going out. The sad thing was I WANTED to, just to be rid of these DEMONS. I didn't dare go to the emergency room, for fear that they would think I was just trying to get pain meds, which I'm having to go through all over again. The back pain is so bad I can't even crawl without taking 90 mg of Methadone (the latest of many opioids) a day.
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Post by bannanny on Aug 18, 2005 4:10:31 GMT -5
Hi guys,
I have the same identical feeling in my mid to upper back as you do justice. Exactly as you described it. It seems to start with the vibration just as soon as other areas become active. I've also had those needle like pains around my heart Tara, and the feeling that my brain is being pulled out of my skull if I get a good hold on one of these beasty boys and try to yank it out. Not a good feeling at all. And jodyann....I'm 51 and I have the same tiny "hairs" growing around my jaw line and cheek bones. They seem to be pretty transparent so they aren't that noticeable really, unless you hold a magnifying glass up to your face, and when I pull one out, I get that same electrical sting as I do with all the others. I'm getting to where I don't even want to look at any of this anymore. It's just becoming so frightening........to all of us, I know. I'm feeling more and more that we're in much more physical danger than we'd like to think we are. I've been reading lately more and more about it living off all of the fluids, etc. that our bodies need in order to function properly, and it makes me wonder how long this thing will take before it finally devours everything we're made of and leaves our bodies depleted of it's lifelines? I don't want to sound as serious or dramatic as I sound either, but my posts lately seem to always end now with....I'm scared....because the way I'm feeling physically and mentally, I can't help it...I am.
I care about all of you and love you very much .......stay strong ~~ bannanny
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