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Post by jodyann52 on Aug 18, 2005 16:13:06 GMT -5
suelauer..it seems like it could be what i have..where im from it is the appalachian region is well known for it, but i have not lived there for 40yrs. you r in the same region. i just need to get the test.thank u so much for the info......
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Post by ToSueLauer on Aug 19, 2005 8:27:51 GMT -5
To Sue Lauer,
Did you and your family have the typical black flecks and sand-like granules that most Morgellon's sufferers have along with your infestation? I have recently been thinking that this has got to be a worm of some sort, by the way it acts. It seems like divine intervention that I read your post...Thank you for sharing this information. guest
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Post by bb on Aug 19, 2005 18:55:47 GMT -5
I WANT TO GET THIS TEST. THANKS FOR THE INFO. I have studied this parasite. There really are so many things that this could be that it makes no sense at all that no one is even trying to determine what so many people suffer from.
Melaluca is a great company, with great products, but you have to spend something like $80 a month.
Melaluca is tea tree oil undiluted. So it would be cheaper just to add tea tree oil to your shampoo.
I'm using ammonia in the laundry, and swear it is the best thing I've tried for getting them out of our clothes and bedding. I wash two pillows at a time so they are completely submerged, and add plenty ammonia to pillows, but not much at all to other laundry. Be careful to not inhale ammonia, and don't mix it with other cleaners.
When I mopped the floors with ammonia I swear they hopped onto my legs to get away from it, then I got in a salt bath and got them off of me.
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Post by jodyann52 on Aug 19, 2005 23:18:12 GMT -5
if these strongyloides r in the dirt outside how can we get rid of it?i do think it is in the dirt here where i live.i can sweep the floor all day and there r those tiny black things.but why r they there is it from all the animals?u name it i have it i have bear,deer,rabbits,birds,oppsums,ratcoons,squerrels.fox,mice,darpins,groundhogs,snakes,bugs of all kinds.these r all the things i have seen in my yard in the last two months..................i just dont where to start.and i do love animals.i just wish i could enjoy them...
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Post by sue on Aug 20, 2005 14:14:30 GMT -5
I am not trying to sell you a product. I have never sold any to anyone, but was registered automatically as a salesperson when I joined to buy the products. I won't gain a thing from it if you go to the doctor and you test positive. I don't even know if any of the measures that I take in my home are helping medically. I know that they make me and my family feel less itchy. If you are leary about the Melaleuca products (which i was for six months) you might obtain similar results by adding tea tree oil to the rinse water of your laundry. I did that for a while when we thought we had scabies. Straight tea tree oil is very expensive, though.
The symptoms are very similar to scabies--unexplained rashes, track-like marks, feels like things are crawling all over your body--especially on your face-upper lip area and also around your eyes. I have never had the lesions with fibers, though. I have found many cocoon like things with black fibers and what appears to be a nematode inside (could this be the rhabitiform larva molting to filariform larva?), although these are usually on the floor or in the sheets, not on me. I have not seen black specks, but truthfully with three boys and one girl, specks could be here and I may not see them.
I am often groggy from spending most of my time doing laundry. I bought a washer with a sanitary cycle that superheats the water to 168 degrees that kills everything. I wash any clothing after it has been on anyone's body once (even if briefly). I also wash all the sheets, mattress pads and blankets almost daily. The mattress pads and pillows are all encased in plastic.
I don't know why this avenue has not been explored by doctors, but after being told by three dermatologists (the last of whom graduated from Harvard and practices at PennDirector of Clinical Studies) that i needed psychological help I started to do some research on my own. Theoretically, people do not acquire this organism in my geographic. Most doctors here have never treated a case of this, and when they have, it was not something that lived in people's houses. The doctors are still skeptical that it could live in textiles, but we are not stepping in fecal material on my floors, nor are the other three families that it has spread to accustomed to toileting on their floors. I hope that this blood test helps, unfortunately, that will not be the end of the story. After all of us testing positive, we were given six courses of ivermectin and although it is MUCH BETTER and almost gone, it is still with us. Since all of the doctores i have seen have little to no experience with this, i am still researching.
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Post by Sue on Aug 20, 2005 14:21:37 GMT -5
Also, if the strongyloides is in the dirt where you live ALWAYS WEAR SHOES AND SOCKs (this may not prevent reinfection completely, but should help a great deal. The places in the world where this is endemic, along with being warmer climates are also places where people customarily go barefooted. Hopefully you live somewhere where there is a hard freeze in the winter, since I don't think these things could survive that . I don't know if pesticides in your lawn would help. Maybe there are products (even natural) that are antinematodal.
I forgot to mention that "Bag Balm" in a green tin at CVS all over your body before bed also seems to help. You need to wear PJ's though as it is greasy (it is petroleum jelly with sulphur in it). I used this back when we thought we had scabies.
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cb
Full Member
Posts: 145
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Post by cb on Aug 20, 2005 14:40:50 GMT -5
you can get silica and siver togather at innerlight biolight liguidlighting i think that why i feel so much beter becouse all the med i am on candy
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Post by bb on Aug 20, 2005 19:49:43 GMT -5
I read somewhere that some kind of parasites, I think one that infects snails, can live in the soil for seven years, no known chemical will kill them.
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Post by alisson on Aug 21, 2005 11:09:37 GMT -5
Dear sue, I have been visiting this website since December last year, but I never made reply or remark to any topics here. I am just a silent obeserver, reading and hoping to get cure from here. In the past, I've been reading from the other forum and got my advices from Penny and Taratula.
I am so interested to have the blood test that you shared with us, as I now have my insects living in my blood. I want to know what it is in my blood that mites and colembolas thrive on.
I am a 50 year old Asian woman, from Philippines, and I have this disease for a year now. Like all other sufferers, I have been through a lot of of sufferings already: Emergency Room, Doctors, Dermatologogists, Entomologists, Laboratory tests, Psychiatrists, DOP issue, itching, crawling, biting, stinging, skin color darkening, specially my face; eye sight problem since this infection. No lesion though, skin intact except for red postules on my back, breast and thighs ; Heres the chronological order what have come out of my skin: mites (back and breast), scabies mites (thigh and abdomen), salt-like crystals,(all over my body (particularly under my feet), black specks, white granules all over, worms( lower lip and right thigh), white mites again ( all over now, including the head), cotton, fibers (all over), eyelash-like creatures( from my nipples and above the ribs)collembola( arms legs, neck), flies( legs), black ants( upper thighs), bettle ( arms and legs), . I even have green moss from my arms and two small balls of mercury from my palms, droplets of water coming from my palms and ankles. Skin debri that multiply in seconds, spider web-like threads mostly on my fingers. Now my persistent insects are the mites in my scalp and collembola in my veins.
I was wondering then why I got so many collembolas on my skin where my veins can be seen and not so much on skin that I cant see the vein.. Legs, arms,especially the large vein in my neck, the carotid. My neck, from my shoulder bone ,now looks like a small tree trunk, so many protruding veins, like a squarish neck of a person who tries to lift or push a heavy weight I can get so many eggs rubbing the veins of my neck. It was only lately that I realized that my mites and collembola are not just skin deep, but in my blood stream, My leg veins now looks deep bluish green bulging as if wanting to burst. It normally takes me 6 to 8 hours rubbing to get out the mites eggs and football looking black things in one leg alone, but just temporary. In the morning when I wake up, my legs again heavy with bulging veins full of my insects.
I just want to get these insects out of my system. I hope your input here will help me find my cure. I am tired of taking so many medicines, supplements and herbals, yet the infection contiunues..I dont want to think that poison is the best cure.....
Best of health to you.
Alisson
T
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Post by Angel on Aug 21, 2005 19:53:06 GMT -5
Mix up 2 T of sulfur and Johnson's lavender baby oil
the sulfur you get from the pharmacist, OTC, no prescrip. necessary
it is yellow and price is $7
put this all over you and leave it on for 4 hours
then get in the shower, and rub all the salt grains--eggs--off of your skin then shower I did this for 6 days straight and it got rid of them and the itchies
I think the itchies are bugs that get on us to eat the larvae.
This is how I got rid of them.
Then after and during that treatment, fill your tub with very hot water, get in so you can get use to the heat. Gradually.
Put three drops of oregano oil in the tub, along with epsom salts---this is sulfur I also use Caress liquid body jel because my skin gets dry from all this I also put the Johnson's lavender oil in as this is part of my cure and they don't like it It helps you to purge the larvae off and out of your skin.
While you are soaking, wet your hair and put some shampoo in your hand and lather it up and put three drops of oregano oil in it and plop it on your head and leave it there. For 15 min, I don't need to use Selsun Blue anymore....now I can save $10 After about one or two minutes your scalp will feel itchie as the bugs start going nutts and just scratch your scalp a little each time it does.
So after soaking for 15 min, hair and body, get out of the tub after washing all of it off of your head.
Let the water from the tub dry on your skin....that way the sulfur will stay on you.
This is what I did and it worked. Maybe it will work for you
sedonia7@msn.com
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Post by Suspicious on Aug 21, 2005 22:08:38 GMT -5
I am not trying to sell you a product. I have never sold any to anyone, but was registered automatically as a salesperson when I joined to buy the products. I won't gain a thing from it if you go to the doctor and you test positive. I don't even know if any of the measures that I take in my home are helping medically. I know that they make me and my family feel less itchy. If you are leary about the Melaleuca products (which i was for six months) you might obtain similar results by adding tea tree oil to the rinse water of your laundry. I did that for a while when we thought we had scabies. Straight tea tree oil is very expensive, though. I don't think you have our disease. I am even more convinced that this is probably an organism that's present in most people. If it's not, then I would NOT be surprised either if it's like collembolla who are present when people have bad yeast infections. That doesn't mean that if this thing is present, then it's the source of all our problems. People agree that this goes further than just a simple organism. If that were the case we would already know. Even if it is somehting that comes and lives on us while we're giving off that smell or whatever it is, that doesn't mean that getting a test and testing positive is going to help. Everyone, I'm shocked at you for all jumping on this bandwagon all of a sudden! Do you really think testing positive for this is going to help you? And if so why?
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Post by Also Suspicious on Aug 21, 2005 22:37:19 GMT -5
I'm curious and also suspicious as to why you would discourage others from getting the Strongyloides IgG test.
Would you care to state your reasons?
Why wouldn't a positive test result be helpful? At least Strongyloides Stercoralis or one of the other Strongyloides species is an accepted diagnosis and understood by the medical doctors.
True, most doctors would then refer one to an infectious diseases doctor, but I find your response truly negative and very strange.
Maybe Strongyloides doesn't fit your own diagnostic conclusions?
Beats me.
Please explain.
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guest
New Member
Posts: 0
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Post by guest on Aug 22, 2005 6:50:17 GMT -5
Dear Sue Lauer,
Thank you for your posts. I am glad you are not being deterred by those who express skepticism and mistrust of your motives. For me, I am grateful for a confirming word. More and more and more I have been thinking that this acts like some kind of worm. You are the second person I have now "met" who has a worm diagnosis for this. The other person did have black specks and grains. He got rid of it by focusing on building his immune system. Thank you so much, and also what has worked for you in getting it out of your home. I also found the cocoon things you speak of around me.
Please keep us posted on your progress. Sincerely, guest
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Post by jodyann52 on Aug 22, 2005 13:33:40 GMT -5
thank you SUELAUER.....
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Post by bb on Aug 24, 2005 16:05:33 GMT -5
I was remembering a newspaper article about a woman who almost died, even though nine doctors examined her. Then a young doctor remembered something in his studies about parasites, and did a sputem test and was able to diagnosis her with strongyloides.
Anthill, do you remember where that link is?
Apparently, there is a blood test and a sputem test for strongyloides!
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ant sneaking around
Guest
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Post by ant sneaking around on Aug 24, 2005 17:43:42 GMT -5
Hi ' BB are you talking about that lady over in Salt lick City Utah The vary same one that when I tried to get an appointment with the doctor They said that they weren't taking any more patients because the doctor was on a golfing vacation Who the hell do they think they are GOD"
You don't know how hard or maybe you do" for me to swallow my pride and get my gumption up to decide to go see this quack after all the disappointment's and I was turned down cold ---alone again naturally"
If thats the one you mean I'll see if I can find the link
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