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Post by Jenny2 on Aug 22, 2005 16:28:11 GMT -5
Hi,
I wrote this once but didn't see it on the board, so forgive me if I am posting twice, but I'm kind of scared to see this Neurologist and wondered if anyone else saw one for our symptoms, such as head buzzing, dizziness, confusion. Could you tell me what you think he will do? What tests could he perform and how long do they take. Thanks, Jenny
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Post by jwf on Aug 22, 2005 17:29:18 GMT -5
Hi Jenny2, I don't know your background, but one of the first things to do when doctors cannot find an organic cause for confusion, dizziness, loss of short-term memory, etc., is to rule out Lyme disease. A 'large' number of Morgellon folks are Lyme positive. And now the Lyme testing by Bowen has been confirmed with the Bradford microscope. In other words if their test indicates you have Lyme, then you have Lyme, the fastest spreading infectious disease in America. The information below is from a trusted forward thinking group of scientists and professionals who know about Lyme disease.
What Psychiatrists Should Know about Lyme Disease
International Lyme and Associated Disease Society
A professional medical and research organization www.ilads.org PO Box 341461 Bethesda, Maryland 20827–1461 e-mail: lymedocs@aol.com structured clinical interview to assess seronegative patients. See www.mentalhealthandillness.com
What to Do? Screen patients for Lyme symptoms, especially those with complicated or atypical presentations. Be suspicious of Lyme if a patient mentions cognitive changes, extreme fatigue, weight changes, headaches, fibromyalgia, a history of “mono,” “spider bites,” multiple sclerosis, explosive rages or sudden mood swings. To elicit data about cognitive problems ask broad questions such as, “How do you think your brain is functioning?” or “How many things can you handle at one time?”
Consider Lyme disease in children with behavioral changes, fatigue, school phobias, academic problems, learning disabilities, headaches, sore throats, GI complaints and/or migrating pains. In teens, Lyme disease may be complicated by drug abuse. The Lyme spirochete is slow growing and can be difficult to treat, so be sure the patient is treated with appropriate antibiotics for at least two to four weeks beyond symptom resolution.
Most individuals with Lyme disease respond to antibiotics, but the treatment course is highly patientspecific.
ILADS has published evidence-based guidelines for the diagnosis and treatment of Lyme and associated tick-borne diseases (Expert Rev Anti- Infect Ther 2004;2(Suppl):S1-S13). For more information, visit the ILADS website at www.ilads.org. Some of the common symptoms of late-stage (tertiary) Lyme disease and other tick-borne coinfections: • Profound fatigue • Chills, sweats and skin flushes • Night sweats • Migrating arthralgias • Muscle pains/twitching • Sleep disturbances • Severe headaches • Shifting neurologic pains • Tremors, shakiness • Numbness, tingling sensations, pain often shifting and unusual in type • Cranial nerve disturbance (Facial numbness, pain, tingling, paralysis, optic neuritis, trouble swallowing, distortion of smell or taste) See Category below.
The more severe neurological symptoms or disorders associated with late-stage Lyme disease: • Progressive dementias • Seizure disorders • Strokes • ALS-like syndrome (similar to Lou Gehrig’s Disease) • Guillain-Barre-like syndrome • Multiple sclerosis-like syndrome • Parkinson’s disease-like syndrome • Other extrapyramidal disorders • Visual disturbances or loss Checklist of common cognitive impairments in Lyme disease (from Marian Rissenberg, Ph.D., clinical neuropsychologist)
Losses in fields of attention/executive functions such as inability to maintain divided or sustained attention, auditory and mental tracking and scanning, and memory retrieval can affect: • Memory functions (lost items, missed appointments, retold stories) • Language functions (halting speech, disrupted participation in conversation) • Visual/Spatial Processing (Inability to find things, tendency to get lost, disorganization, difficulty reading, especially for enjoyment) • Abstract reasoning (Poor problem-solving/ decision-making) • Slowed processing speed (Familiar tasks take longer, can’t follow conversations well). Most or all of these impairments, if caused by neuroborreliosis, may improve with proper antibiotics combined with other appropriate symptomatic treatments.
Edited by Drs. Virginia T. Sherr and Debra J. Solomon, Psychiatrists
Blue Skies..................John
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Post by Will on Aug 24, 2005 5:57:41 GMT -5
so it looks like you'll need to take material referencing a number of possibilities as jwf points out.
my personal experience with neurologist was less than stellar. i ended up doing my own research into brain supplimentation and at the time i had to outline the books writing them out sentence by sentence since i couldn't remember what i was reading past 2 sentences. i found out EFA's were very important for my brain. and in the right combo. and so is controlling inflamation in me brain.
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Post by bb on Aug 24, 2005 8:56:37 GMT -5
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Post by skytroll on Aug 24, 2005 9:56:32 GMT -5
They will insist you have Alzheimers, a wastebasket full of Lyme, brain destroying worms. etc. They will in the end eat our brains. Do not let the fog control you.
We are doing the research, people, and we know more then they do. Does this mean they are ignorant, covering things up, hurting us, killing us? Does this mean we will settle for this bs.....NONOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO Keep on keeping on. These things are slowly coming to the main media. We have to keep being persistent, and we need to unite as many have said here.
If Cindy Sheehan can garner such support across this nation, then, we certainly have a cause here. IT IS OUR VERY LIVES< We are fighting a battle, just as much as our heroes are in Iraq. When will we be protected? Homeland security is meant for who? We are being treated less than the animals. The CDC, NIH EPA DOE DOD DARPA USAF Chemtrail providers of such material, govt. sponsored academia, labs are responsible. There is money here somewhere. Someone is making millions, billions, trillions. Academia is getting all kinds of funding. The NIH is working with Max-Planck in Germany, funding research on genomes, genes etc. They never stopped their reign of terror, it is in a different form. A medical form. Where did all the educated people in Germany go during the war? They came here, and now are reaping their benefits.
I am not saying Germany or any other institute in other countries are responsible. I am saying our government is responsible for this breakdown in recognizing and treating diseases that are killing us. If we can find a way to out this, then let's do it.
We, the people must speak, be heard, Before it is too late for humanity itself, we need to hit the airwaves somehow.
Civil disobedience folks.......................We shall have a sit in......I remember those days.
We shall overcome.............MLK..............great man...........He never gave up...........
Skytroll
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Post by Jenny2 on Aug 24, 2005 15:44:05 GMT -5
Thank everyone for the help. Skytroll, maybe we missed the boat with camping out where the president is vacationing.
No, BB I have never been tested for lyme, the doctors I have seen have all said I was just crazy and no one has touched me to do anything. I'm afraid this neuologist might be a waste of time, I've already been told by one doctor I have early dementia. This psychiatrist I'm seeing now said I didn't. It goes on and on.
I am wondering about the fungus connection I read above. I never used to be a person who liked sugar, but since I've had this disease I crave it all the time as well as carbs. I think this disease may be trying to make me keep feeding it. I hope she comes back with the candida turned fungus website, it makes sense.
I wonder if this disease can cause magnetism. I went to the mall the other day and bought a red shirt. A little while later I put some cream on my hands and as usual looked to see if anything was on my hands and all these red fibers came out. I did it again later and got the rest of them. Is it possible we are magnatized somehow because I didn't have anything red on and I never have seen all red fibers before or since. Jenny
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Post by bb on Aug 24, 2005 15:55:38 GMT -5
I agree this appointment could be a waste of time. Better yet, see a Lyme Disease Specialist. I'd bet they would know more about Morgellons also.
I have found many red fibers, especially at first. For quite some time I hated the color red.
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