Post by adill on Dec 3, 2007 20:42:04 GMT -5
Just thought I would share a letter that i sent to a certain reporter over a month ago. Needless to say, I never did hear back from this FOX reporter in Jacksonville though.
Dear CXXXXXX,
A few weeks ago I got a phone call fromXXXXX XXXX (She did the ABC Primetime live with us) and as we compared our latest life issues. I am in amazement that we are still in this horrid nightmare. We are both more alone and sick than ever. Even after our attempts to call public attention to our illness we are still alone in fight.
The truth is I don’t think anyone really wants to know exactly what this is because that would make things to
easy. We have not even had one offer of help- just insults and denial. I am at the point physically that I am having trouble walking- neuropathy is bad in hands and shoulders, and all I can do is the minimum to keep my family afloat. We are going under quickly- I am not only loosing all dignity but the house and car will soon be gone too. I am trying to sell my house but cant even get any one to come look?
Maggie came home from school the other day and said "We are talking about the CDC in two different classes and all I can think of that it is a bunch of lies". It hit me that we are taught from a young age that the CDC will swoop in and save the day - no wonder that no one believes us- those text books must be right!
Why are they letting all these people suffer and taking their time? Why do they make public statements and
never follow thru? What do you think it would take to make them acknowledge the problem? I still believe this is a parasite not an infestation- I have thousands of these come off the top of my head - this is so humiliating that I am beyond able to find help- I wont defend myself for suffering when someone else should be held responsible. Hanna is now experiencing headaches and low grade fevers and the thought of going thru expensive testing and finding nothing is more than a mother can handle (we lost our health insurance)
I could go on and on but I really don’t have the energy anymore- any suggestions on which way I should turn? The one thing I always felt secure about was being a good parent- now I question my ability and I hate doing this alone!! Tom was one of the few who supported and believed in what I knew to be true. I lost my dad this summer too- with a ALS diagnosis and sores that appeared on his head the week before he died.
sincerely,
Anne
Dear CXXXXXX,
A few weeks ago I got a phone call fromXXXXX XXXX (She did the ABC Primetime live with us) and as we compared our latest life issues. I am in amazement that we are still in this horrid nightmare. We are both more alone and sick than ever. Even after our attempts to call public attention to our illness we are still alone in fight.
The truth is I don’t think anyone really wants to know exactly what this is because that would make things to
easy. We have not even had one offer of help- just insults and denial. I am at the point physically that I am having trouble walking- neuropathy is bad in hands and shoulders, and all I can do is the minimum to keep my family afloat. We are going under quickly- I am not only loosing all dignity but the house and car will soon be gone too. I am trying to sell my house but cant even get any one to come look?
Maggie came home from school the other day and said "We are talking about the CDC in two different classes and all I can think of that it is a bunch of lies". It hit me that we are taught from a young age that the CDC will swoop in and save the day - no wonder that no one believes us- those text books must be right!
Why are they letting all these people suffer and taking their time? Why do they make public statements and
never follow thru? What do you think it would take to make them acknowledge the problem? I still believe this is a parasite not an infestation- I have thousands of these come off the top of my head - this is so humiliating that I am beyond able to find help- I wont defend myself for suffering when someone else should be held responsible. Hanna is now experiencing headaches and low grade fevers and the thought of going thru expensive testing and finding nothing is more than a mother can handle (we lost our health insurance)
I could go on and on but I really don’t have the energy anymore- any suggestions on which way I should turn? The one thing I always felt secure about was being a good parent- now I question my ability and I hate doing this alone!! Tom was one of the few who supported and believed in what I knew to be true. I lost my dad this summer too- with a ALS diagnosis and sores that appeared on his head the week before he died.
sincerely,
Anne