Post by TonyM on Aug 30, 2005 14:18:01 GMT -5
Ok, the first part is meant for the Support Groups Board, but what the heck - people might see it better this way - sorry Patti ;D ;D
Yeah, Morgi Picnic's...Rallys...Walks...Conventions where Docs that have been contacted could visit others' with the same disease can be heard, that's IF we can get them to congrigate where we want to invite them to. That's it!!!!! - OMG - mental breakthrough!!! Is that possible ---> We rent a hall somewhere where we could have an invitational for Docs of all sorts that all willing to listen can come to see for themselves. Good Idea to mass learning? I think so, so lets see if we can accomplish this. If it works in an area that has alot of people with this, it has to work on some level, to even get them interested - we'd send them an Invitation Only Morgellon's Disease Event Notice. Ohhh, and should we start a Monthly Newsletter? Just an idea, as I do know money is tight for alot of people.
Ok, I think I need to post this idea as a New Thread (which I did already) - and I certainly hope Everyone, or as close to it as possible, would be willing to try these ideas.
I did state not that long ago that I had met this Natural Path Doc that seemed interested, but when I called him a day later, he said he wanted me to come in and have PH testing on me and then monitor my acidity levels for my body. Then he also wanted to put me on an anti-parasitic med called Parasittin (sp?) for a while. Apperently he has dealt with people who have parasites before, and then actually called another Doc to send him to this site, EVEN though he himself pretty much openly refused to even go to this site or the morgellons.com site as well. I said "how can you try and prescribe me medicine without really knowing what we're dealing with here??", and his reply was "Because I don't need to look at the site, and I told you I spoke the Doctor I deal with all the time!". I was leery, so I didn't go back as of yet. I don't even have a job to pay for the meds in the first place, hahaha. I still haven't located this drug on the net, and any pharmacy I've called has told me they either don't have it on file, or don't know what it is so they don't sell it. That's wierd huh? I thought so too. Anyone else ever heard of Parasittin, again, my spelling might a letter off as I can't locate the piece of paper I wrote it down on. Now, one woman I did speak to, Linda, works at a nearby Sav-On-Drugs - and when I was calling around trying to find out this medicine, she stated she never heard of this med before now, and I told what the doc said it was and about Morgellons Disease. She replied "Wow, the last week or so quite a few people keep coming asking for help with these rashes and open sores they had on thier arms and legs!!". I was flabbergasted to say the least. So I asked her if I could come by the store to put up flyers for people to see, because I'm trying to get a support group together, you know. She said that the manager might not, but I could come in and talk to him about it. I am going to too. Never hurts to try rite!!!!
Yeah, Morgi Picnic's...Rallys...Walks...Conventions where Docs that have been contacted could visit others' with the same disease can be heard, that's IF we can get them to congrigate where we want to invite them to. That's it!!!!! - OMG - mental breakthrough!!! Is that possible ---> We rent a hall somewhere where we could have an invitational for Docs of all sorts that all willing to listen can come to see for themselves. Good Idea to mass learning? I think so, so lets see if we can accomplish this. If it works in an area that has alot of people with this, it has to work on some level, to even get them interested - we'd send them an Invitation Only Morgellon's Disease Event Notice. Ohhh, and should we start a Monthly Newsletter? Just an idea, as I do know money is tight for alot of people.
Ok, I think I need to post this idea as a New Thread (which I did already) - and I certainly hope Everyone, or as close to it as possible, would be willing to try these ideas.
I did state not that long ago that I had met this Natural Path Doc that seemed interested, but when I called him a day later, he said he wanted me to come in and have PH testing on me and then monitor my acidity levels for my body. Then he also wanted to put me on an anti-parasitic med called Parasittin (sp?) for a while. Apperently he has dealt with people who have parasites before, and then actually called another Doc to send him to this site, EVEN though he himself pretty much openly refused to even go to this site or the morgellons.com site as well. I said "how can you try and prescribe me medicine without really knowing what we're dealing with here??", and his reply was "Because I don't need to look at the site, and I told you I spoke the Doctor I deal with all the time!". I was leery, so I didn't go back as of yet. I don't even have a job to pay for the meds in the first place, hahaha. I still haven't located this drug on the net, and any pharmacy I've called has told me they either don't have it on file, or don't know what it is so they don't sell it. That's wierd huh? I thought so too. Anyone else ever heard of Parasittin, again, my spelling might a letter off as I can't locate the piece of paper I wrote it down on. Now, one woman I did speak to, Linda, works at a nearby Sav-On-Drugs - and when I was calling around trying to find out this medicine, she stated she never heard of this med before now, and I told what the doc said it was and about Morgellons Disease. She replied "Wow, the last week or so quite a few people keep coming asking for help with these rashes and open sores they had on thier arms and legs!!". I was flabbergasted to say the least. So I asked her if I could come by the store to put up flyers for people to see, because I'm trying to get a support group together, you know. She said that the manager might not, but I could come in and talk to him about it. I am going to too. Never hurts to try rite!!!!