monika
Junior Member
Posts: 78
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Post by monika on Sept 3, 2005 13:12:48 GMT -5
Well troop....in our fight to be Heard,Cured, and Not thought of as Absurd, I contribute ..... It may not be the CDC , but I think I may have found a Sympathetic ear for us to shout into....check it out you guys and let me know what You think about them..... www.rarediseases.org/info/about.htmlRD I'm thinking they would be willing to give our cause a beneficial push in the right direction and , from the looks of it, their organization has some pull as far as being able to fund research to find out what the Hell is going on with us, and then go to bat for us as far as our condition being acknowledged as a REAL (albeit unbelieveabllly strange) Disease/Infection....
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Post by bb on Sept 3, 2005 13:21:58 GMT -5
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monika
Junior Member
Posts: 78
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Post by monika on Sept 3, 2005 15:50:35 GMT -5
I am so glad I stumbled upon this site...You should see who they have on their medical committee, docs from Mayo Clinic, Stanford, Dr's specializing in Medical Science and research , can you believe it?Actual Doctors....from some of the best universities....open-minded to the fact that , new diseases and parasites do happen now and then. (..especially when your government likes to tinker around with bact. genomes and insects nano and biotech....) and all of them are willing to do some research so they can learn how to heal those suffering....that many Doctors, and they are all in the same place? ?!!! whoa !! I did nt think such a thing existed anymore...much less all in the same place... ;D
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