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Post by Sidney on Jan 28, 2008 13:22:52 GMT -5
Received links to several Morgellons related articles this morning, but this is the only one I've read thus far. I don't visit other boards and I know there are several out there. Don't know if this is a new Board or an old one, but someone there hit a jackpot at the casino and talks about starting yet another "Foundation" with his winnings. Seems a shame to use it that way when the money could be shared with researchers who've been operating on a shoestring and trying to help us. www.morgellons-disease-research.com/Morgellons-Message-Board/index.php?topic=3637.msg18941#msg18941tinyurl.com/yp64b4
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Post by friskers on Jan 28, 2008 13:32:38 GMT -5
Sid Thats the morgellons disease research board( its been around over a year) and Steve F who won some money and is the one who beleive this is a bryozoan parasite and would like to prove it. Same person in the other bryozoan thread. (Carla would you like to comment? ;D)
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Post by suebe on Jan 28, 2008 14:44:25 GMT -5
Kinda makes my blood boil, we have scientist willing to do the DNA, just need the funds.
Whats a new foundation new going to do? Has this become a race to be "the foundation" that finds the answer first. sad
He could state what he wants done with the funds and what ever researcher who took it would do the testing he wants, he will have to do that with his "Own Foundation" anyway.
well let the poor guy find out just how much work running a foundation is, hope he doesn't have a life at all because he soon won't. Mary is on the phone from dawn to dusk, she has no life other than the children and Morgellons research. No time to herself, dinners out, forget it, her whole life is Morgellons Research and finding answers for her kids and us.
It's great he won, glad to hear it's a Morgie that won it because this crap takes a toll on funds, we all know that.
My first thing would be to give to Dr. Wymore an Kalani (sp) for DNA. My second would be to help other Morgies with cut off notice's, rent, food, because I know so many can't even afford the epson salt for bath and a bit of relief.
I'm lucky that I kept getting a paycheck because if I didn't own the company I'd have fired my a&& three years ago, no way to work when full blown with this horror.
OK my rant is over I feel much better. I am very happy for this guy, really, I do hope he thinks through his plans.
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Post by Sidney on Jan 28, 2008 15:35:41 GMT -5
You are so right, Sue, and thanks. I had no idea who these people were and are.
Hope the "right" decision is made as to where to put the money and that it goes to a real researcher and not used to puff up an ego.
Many thanks.
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Post by teller on Jan 28, 2008 17:30:31 GMT -5
In his excitement, it sounds like Steve got everyone else there excited and developed second thoughts after he realized it, doesn't it? Thanks for the link Sidney. I read there a bit occassionally, but I hadn't seen this. I am thrilled for the guy. Maybe a tinge jealous too.
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carla
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Post by carla on Jan 28, 2008 20:32:41 GMT -5
Why would he donate to research that he believes is going down the wrong path? That would be throwing it away. Hi Friski !XXXXX
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Post by friskers on Jan 28, 2008 20:44:38 GMT -5
Hiya Carlas i do think Steve has the right to do wahtever he wants with his money after all its his money. But I personally think he should atleast take me and Carla out for an expensive dinner somewheres ;D
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carla
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Post by carla on Jan 28, 2008 20:57:12 GMT -5
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Post by bannanny on Jan 28, 2008 22:37:49 GMT -5
Can I go too friskers?
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Post by friskers on Jan 29, 2008 1:08:52 GMT -5
Of course you can come too !Im sure Steve wont mind taking out one more woman! Especially one as cute and nice as you are Bananners !
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Post by suebe on Jan 29, 2008 1:30:09 GMT -5
Carla maybe i'm a dodo bird but wouldn't DNA tell us what it is and if he's right then DNA would prove it?
If not I'm sorry, I thought all living things had DNA but really don't know for sure.
And yes Friski is right, it's his money and he can do whatever he wants.
I just wonder if we need another foundation and that feels like a pissing contest to me.
He could just pay anyone he wanted to test for what he thinks it is. Why should the guy give up his life if thats all he wants? right?
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Post by freyman on Jan 30, 2008 0:12:45 GMT -5
I'd like to comment here if I may. This was my post at MDR regarding this topic;
I got lucky last night and hit a progressive jackpot at the local indian casino and won a good chunk of money so I'm starting up my own foundation for my research of this disease. I need a name, any one got any good ideas?
Notice the my research part, my primary intent here is of a selfish nature in the respect that the idea originated as means of tax relief, but that aside, the promotion of my research is certainly not. Anyone can start a foundation with no more than $5000 and 15% expendatures a year, and if so desired, little work involved. So I saw a way to receive some tax relief and promote my research, and I emphasize "my", at the same time.
My intent was never to start a foundation along the same lines as the MRF, nor to compete with it. My intent, second to tax relief, was to promote what I believe is the cause of this disease and that since no one in a professional capacity is researching this angle I thought that working under the umbrella of a non-profit foundation would allow me to solicite for charitable services, such as DNA testing, to be performed.
I have dedicated a great deal of my free time researching the cause of this disease in the past year or more and have never once considered profiting from it. Sure if and when it is found that I am correct about the origin of this disease it would be nice to be recognized for it but fame is not my goal either, my goal is and has always been to identify the organism responsible for morgellons so that my 13 year old daughter will not have to suffer from it the way the rest of us have. She has and always will be my driving force.
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Post by suebe on Jan 30, 2008 1:35:56 GMT -5
Freyman I want to apologies for running my mouth about something thats really none of my business.
Yes thinking of a tax relief is very smart at this time because I'm sure good Old Uncle Sam will have his hand out, so go for any relief you can sweetie because they aren't pushing any worthwhile amount of our tax monies to researching the horror we live.
And I do understand that if someone works their heart out with a theory, they don't want others taking credit, I really got that.
My concern was and is if Liz said she read it via Cliff then she did. Many have thought one thing and changed their minds when reading something that sounds more possible, right.
I feel really rotten that you felt you had to come in and explain this. I am sorry and I'm sorry if Carla got upset. Please understand I love my Liz like Carla loves you so I got my feathers in a up roar when Carla came in and ask her to change the name of her post.
Liz was not pushing that this was Cliff's finding, she's just saying hey I think this may be it. So to ask her to change her post name was rude because like I said if Liz said she read it via Cliff then she did........period.
I myself remember reading this theory on a board over a year ago, remember thinking wow this could be the answer, also remember the person with the theory saying "hey I'll stop posting this theory if no one wants to hear more info. on it' or something like that, can't remember word for word but do remember the person felt their info. about it was not well received.
I know it wasn't Cliff, who knows maybe it was you, maybe a third person.
I understand wanting credit for hard work, I do. But I just want the answer, thats all and sometimes it feels like a pissing contest.
I do wish everyone could work together and share the info. they find. That would be nice, guess I gotta get in the real world, huh.
And most of all I do with all my heart understand the need to find answers for your child.
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Post by freyman on Jan 31, 2008 0:52:08 GMT -5
Not a problem Suebe, it's all good. I make a lot of noise, some love me, many hate me, either way that gets me attention, which gives my theory attention, which is exposure, and because of that exposure the theory may pick up a believer here and there, and then there are more and more of us who uncover more and more evidence until one day we'll be too powerful to ignore, and then the truth will be known.
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Post by cozmikanjel on Jan 31, 2008 10:45:41 GMT -5
freyman.... could you please give me a rundown of your theory...compare/contrast w a protozoan. Perhaps some supportive points please. thanks! Can I convince you to consider Isospora belli a strong possibility? Have you visited my blog? or gone through my photobucket album? nice to meet you freyman and i wish you the best. and friski doll...dont you forget about me sincerely, angela
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Post by friskers on Jan 31, 2008 11:20:29 GMT -5
and friski doll...dont you forget about me sincerely, angela Anj i could never forget about You ! (I thinkall us ladies need a night out! )
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carla
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Post by carla on Feb 3, 2008 13:59:46 GMT -5
Suebe, I m really sorry for any upset l caused you .I should have explained myself better.Your reaction was the same as mine would have been.I didn't mean to be rude but it did look that way. carla xx Hi Again Friski
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Post by friskers on Feb 4, 2008 12:05:51 GMT -5
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Post by suebe on Feb 5, 2008 2:42:54 GMT -5
Yes kiss and make up more fun for sure. We can always count on our Frisky for the most fullfilling answers. I just love you Friski, you really remind me of my younger, warmer days and my hubby loves when I read your post, he he Carla you never ever have to say sorry to me, we are all looking for the same thing. No Friski not that, not yet, but soon I hope, lol & love ya's
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