jlk
Full Member
Posts: 146
|
Post by jlk on Mar 21, 2008 19:22:31 GMT -5
Hello Everyone, I am new to the board but I have to share my news with you. I have had this disease often being referred to as Morgellons for many years. I do not need to go into all the exciting details as you are all familiar with the way it transforms a normal life into a disease ridden nightmare. I have an older website which I must update now but where you can view photos of how I looked in the past 4 years: judithnd.com
I have done many alternative treatment regimens on myself and some worked fairly well for awhile. Since I am a naturopath I figured I could get to the bottom of this disease - well I won a few of the battles - but I certainly was unable to win the war.
I read most of the articles published by Dr. W. John Martin and I have felt he was correct in his theories. When I learned that he had a clinical trial developed I e-mailed him and he called me back and said he felt 99% certain it would cure morgellons, in addition to herpes and shingles. So, I made my appointment and drove from WI to AR and was treated for four days. I shocked them with my horrid looking lesions all over my body. But they worked hard on helping me and I was better even in the initial first 24 hrs. This is a totally safe energy based treatment using red dye and special UV lights - you take no harmful or questionable drugs whatsoever. This treatment disrupts the energy pathway of the virus and it dies. All I felt during treatment was tingling of my tongue and lips and that was very slight. This is a new type of energy medicine and it will be the new types of medical treatment available in the 21st century. This treatment is in the final stages of FDA approval and may be going mainstream as early as the end of 2008. This is a BIG win for all of us in my opinion. It has certainly given me hope again.
Now it is 9 days since I my first day of treatment, a good majority of my lesions have dried up. Some of the really deep ones continue to emit whatever this crap is. My face is lesion free for the first time in many years. My spine was painful and full of lesions - pain is gone and a couple deep lesions are nearly healed. Small ones are gone. My tendons in feet were really painful one foot was beginning to drop and catch on stairs and that has all stopped. I had painful swellings all over my body - they have disappeared. My eyes were a mess - I have a lot of matter coming out still. My scalp was a mess and I continue to have a release of whatever this is from the scalp - no new lesions anywhere. I have been improving each day. I would encourange anyone who has herpes, shingles, Chronic Fatigue, Lyme and Morgellons to get down there for this clinical trial. I am SO glad I did. I will continue to update you on my progress. I am very encouraged that this is the answer.
Blessings to you all - Judy
|
|
|
Post by art on Mar 21, 2008 20:11:51 GMT -5
Thanks for the hope, Judy. I pray you contnue to heal and overcome this plague. Thank you for the encouraging post! bless you too art
|
|
|
Post by felixwillford on Mar 22, 2008 10:30:20 GMT -5
Jlk,
you mentioned your feet catc hing on the stairs................ tendons................ I am experience that tight feeling.
And this helped that!
Did you have neuoropathy?
I have that too in both feet lower legs.
Thank you for posting.
|
|
|
Post by zabrubon on Mar 22, 2008 14:18:17 GMT -5
Judy, what a blessing for you to have those lesions drying up on you. Praise God and the people who are helping you. Is this expensive, or did you do it volunteer? I am very intersted in this and hope you will continue to keep us posted. Blessings, Chicagobonnie
|
|
jlk
Full Member
Posts: 146
|
Post by jlk on Mar 22, 2008 19:53:09 GMT -5
To all Regarding Feet and Tendons: This disease has many symptoms and one of them is a palsy condition of feet (and sometimes of face). I had a tendonitis of feet and up back of calf and it was very painful. My right foot was beginning to catch toe on stairs if I was not really careful. It was just in the initial stages but I nearly fell twice. It was gone within 48 hours of the first treatment.
The clinical trial is an FDA approved trial and this treatment may be going into mainstream medicine by the end of this year. The phone number at the clinic in Fort Smith ARK is 479-478-1088. I paid to participate and I was given no less than 8 hours of hands on care - I feel it was a BARGAIN as I have spent tens of thousands of dollars in conventional medical care and gotten nothing except called delusional. Go - do this - and let us know your results. I am getting better as each day passes. Judy
|
|
|
Post by prevenge on Mar 23, 2008 2:44:46 GMT -5
i may be driving cross country. how much was the total $ cost, jlk?
-M
|
|
jlk
Full Member
Posts: 146
|
Post by jlk on Mar 26, 2008 9:01:54 GMT -5
Hello To Everyone - Today has been two weeks since the first day of the clinical trial treatment that I participated in in Fort Smith Arkansas. I am still very encouraged by the continued improvements that I am experiencing. Here is what I am noticing now: 1. I am sleeping better - feeling much more rested in the morning. 2. I am very fair skinned and I have had a brown tone under the skin that has been very noticeable on face, back of hands and forearms. This is fadding and in some places coming up and out of the sores. Whatever this disease is it has an amber gel that moves through the body and I believe it makes this thin layer in or just under the dermis. I think that this is what itches so much. I also am of the opinion that there is more than one aspect to the disease in that people appear to have different conditions (illnesses) develop. I believe that this treatment kills the virus but the virus can develop into many other disease processes including having a secondary skin infestation - in my case I believe it is fungal in nature. I had used may anti-fungals which helped a great deal but even though the fungals helped the lesions it did not kill the underlying cause - the virus. I am very hopeful that this treatment is now killing the virus. 3. My eyes have had a cluster of the white little balls growing on the corneas for about the last two years. The cluster continues to shrink and my eyes continue to emit matter mostly at night. I am using Gentamicin eye drops daily to help fight whatever might be going on as well. 4. For as long as I can remember anymore I have had the lower edge of my chin itch like crazy and have dark thick whisker like hairs form - which would have a thick diseased lower shaft and root. All the itching has ceased - not only where it was so bad in chin but all over body. The whisker like hair has lessened to one on each side this week. Before the treatment I would get at least 3-6 new ones weekly. I will be pulling these out with twizzers and I am hoping none will regrow this week. 5. This disease has been in my nasal cavaties and sinuses for a long, long time and that is why I could never get my eyes cleaned up because the sinuses and eyes are internally connected. This week each morning I have had large thick mucus plugs expel from high up in the upper sinuses. I can breath better and I believe once I get the sinuses cleared up the eyes will also heal. I have a ways to go on this area. 6. The minor lesions I had on my skin are all healed up. There were some very deep painful ones and some of them continue to ooze whatever this crap is. They are improving and do not itch but it might be a good thing that they allow this matter to be expelled from within. Desitin Diaper Onitment with 40% zinc oxide really helps heal lesions when applied before bed. 7. I have had edema due to inflammation all over my body and this continues to lessen. 8. My scalp has had deep nasty sores for at least the past 5 years. These are nearly all gone. I have had to fight along the hairline where it appears to have been very deeply imbedded and still have a couple small lesions there. Stuff just keeps working its way to the surface. The scalp pores have been diseased for a long, long time and now debris continues to work its way to the surface and it gets shampooed away. This debris is no longer itchy and is no longer forming the deep nasty lesions - it is just coming out of the pores - which is a good thing. My hair looks much healthier too - perhaps because I am not destroying it by itching and because the roots are getting healthy again too. But it does look much better than 2 weeks ago. 9. My overall skin feels much more flexible and soft. It was so stiff and rough it is beginning to get back to normal feel and tone. I have forgotten what that feels like but I welcome it back! 10. Nails and cuticles, like hair, are beginning to look normal again. They have to grow out but the new growth on toes and fingernails looks way better than the diseased old nails. 11. I have been shedding fibers for a long, long time. Some of the fibers are in the skin and others form on top of the skin - instantly when the right soaps or oils are used. I hope I can get to the state of health where I my cells are no longer producing these fibers but I am not there yet. I am trying to determine if there are less of them and that is hard to do. All I can say for certain is that they are still forming from my eyes, mouth, face and unhealed sores. I sweat material that turns into fibers. One thing I have noticed is that the odor that this disease emits has gone away or diminished to the point where I hardly notice it anymore. After a bath or shower I would have that nasty odor within an hour or so. This is gone. I feel clean and stay fresh all day now - that too is a really great feeling. Since I live in WI heat has not been around for a few months but upon its return I hope I will not have that awful smell of this disease. For those of you who are familiar with fungal smells in animals it smells like mange. I used to treat dogs with mange and I will never forget how they smelled... it was awful to know I had also developed that same odor. It will be a welcome relief not to have that awful condition anymore.
Because my body is still really battling this condition I remain fatigued. I plan to do some detox and see if I can help get all that debris moving out. The restful nights sleep will help with this continued fatigue too so I am trying my best to get lots of rest. Spring coming back in WI will get me out and walking, sunshine and fresh air daily will help in all areas too.
I am still very glad I participated in this clinical trial. I would encourage all people with Morgellons, herpes, shingles, chronic fatigue, fibromyalgia... all those diseases the docs cannot figure out to get this light therapy treatment. Dr. W. John Martin (virologist and pathologist) believes it all originates from a virus and I now think he is right on in his theories.
With all the major afflictions I have had there was not one single medical doctor who took me seriously or helped. I was scorned and even laughed at and told I created the sores by picking at my skin. They never even looked or listened to me even when I took in the photos. I have had to fight this on my own since the early 90's. The conventional medical system is totally clueless and if you are waiting around for conventional medical system to heal you - you will have a long, long wait. This treatment is an energy based treatment - the frequencies kill the virus. Drugs do not kill viruses - but frequencies do! This will be the way we treat many diseases of the 21st century!
Blessings to you all and may you find your way back to good health. Judy
Phone number for clinic where treatment is given: 479-478-1088
|
|
|
Post by gradysghost on Mar 26, 2008 11:02:12 GMT -5
Why can't you tell us what the treatment is? or did you? I do not believe it viral at all, it's bacteria, and this will be proven soon. And many things do kill viruses, including silver, oxygen, and many other things.
|
|
|
Post by beckybailey on Mar 26, 2008 12:00:08 GMT -5
I just got off the phone with Jessica at Dr. Martin's office. She said it was fine to share with you what they charge. It is $600 and they need you there for four days. It is ultra-violet light used with a medical dye that kills viruses in your body. But they are also beginning to treat lyme disease with this technique.
I am very excited about jlk's progress, and I have an appointment soon!
|
|
|
Post by Orion*** on Mar 26, 2008 20:37:55 GMT -5
Boy Oh Boy did this hit home... It falls right in line with every thing--I mean every thing that I have been experiancing,,, the infected scalp---ugly black whiskers on the chin and mustache--golf club hairs--that ugly oder that I can't shagg off--a smell that defyes discription. not like but as bad as being pi-ss-ed on by a skunk--you can't get rid of it. feet & legs don't work right---ugly black hair like thingys in the nose-- Is it both fungal and viral in nature? My observations says so. This post was a REAL eye opener. It cooberated my experiance exactly... I urge others to seriously take heed. God Bless pl like you that take the time to inform... 600 $ is a drop in the bucket for a cure.. O***
|
|
|
Post by Orion*** on Mar 26, 2008 20:48:53 GMT -5
Which brings me down to the swelling of ankles feet--( congestive heart failure???). The drs. keep wanting to treat me for the symptoms and not address what I consider the cause. Do any of you good ppl have any thoughts to share on this? It amazies me how many ppl I see that for some reason are suffering the same things, Too many ppl on oxygen therapy.. I'm getting so weak that I can barely walk. Food has lost it's taste-- I'm hungry but most food does not appeal any more--Even my favorite foods. O***
|
|
|
Post by bannanny on Mar 26, 2008 21:16:40 GMT -5
Orion....... GO TO ARKANSAS, please. You sound as if you can get the help you need from this. I can't afford it, or I would go too. I think you're at a heightened stage, it sounds like you are, so please, just do it and get taken care of now!
Thank you so much Judy for letting us know about Dr. Martins trial. I saw the good doctor three yrs. ago and I'd love to see him again, but like I said, I just can't afford it right now. Do you know if he's planning on taking his trial to other areas anytime soon? Thanks again and I'll pray for you to continue to heal.
love ~~ bannanny
|
|
|
Post by gradysghost on Mar 26, 2008 21:20:45 GMT -5
Orion, if you want to get your heart in better shape do the Opaline Oxy, but check with your Doctor, my heart problems are now gone, Jo's on finding1cure's are being alleviated too. It has a very good effect on the heart.
|
|
jlk
Full Member
Posts: 146
|
Post by jlk on Mar 26, 2008 22:26:56 GMT -5
To all who are interested in participation in clinical trial - Dr. Martin makes himself readily available his e-mail was posted by him on another thread - it is s3support@mail.com just e-mail him. He lives in CA and I am certain he could make arrangements for CA people to get treatments there in LA at Dr. McKee's office just ask him. There is another FL based clinic being run by Dr. Jon Stoneburner another physician who has been working on this for over 30 years and I know they are also giving these treatments in his FL clinic. You may not have to go to Arkansas if you live on the west coast. Call them up and ask or e-mail Dr. Martin. I do not know how they do all the treatments but I do know that FL and ArK are both available for certain. And because John lives in CA I am assuming he could make arrangements to get it done there too.
The swelling I have had in body is primarily due to all the inflammation. I do not have heart disease but I do have some high blood pressure. My feet and ankles have gotten very swollen at times and then other times they are normal. Not having the energy to exercise does not help this condition much either. In time I think all these issues will resolve once the virus is gone and my body has had time to regenerate.
What people do not understand is that this disease affects many organs and it affects people differently. Some of us have more of the skin lesions, others have more mental issues, I understand that some have heart problems. I have had difficulty swallowing with severe GERD and my entire esophagus was all inflamed - I know it was due to this disease. Fungus can reside in the esophagus. I am improving but I have been taking a prescription drug for the acid reflux so I did not report the results due to clinical trial treatment as I don't know if the drugs or the treatment is helping the esophagus heal. But it is improving too.
I hope everyone who is really sick can somehow find a way to get a treatment. You may or may not keep it in check with various remedies - I tried them all - nothing worked like this energy treatment did. Conventional medical doctors are clueless and it will take them years to figure this out - if ever. I have lost all faith in them, they are causing most of us harm.
|
|
|
Post by robertalouise26 on Mar 26, 2008 23:02:18 GMT -5
Dear jlk that is an excellent post and most understanding., WHICH WE DONT GET MUCH OF THESE DAYS. i am sooo sick I can hardly eat there is definetly something wrong with my esophagus and with the acid reflux everything just comes up. I had an operation for a prolapsed bowel last year and it hasn't worked and I get a a great deal of pain. I see the specialist/surgeon on the 2nd April as well I still get the itches. Thank you so much for your post. Very best wishes. Roberta.
|
|
|
Post by bannanny on Mar 27, 2008 0:52:22 GMT -5
GREAT Judy! I'll definitely e-mail Dr. John. That's where I had met him a few years ago....... at Dr. McGee's (it's McGee or MaGee) ofc. in Hollywood just off Barham Blvd. That's really great to know, thank you so much. I'll see as many doctors as I can as long as they've researched this mess! I just want it gone, like all of us do.
Just one more thing I wanna ask you Judy. Did this consist of just the 4 day treatment and that's it, you go home and it's a done deal....... or were you sent home with things to take on top of having the treatments to keep it in check (so to speak) as well?
love ~~ bannanny
|
|
|
Post by beckybailey on Mar 27, 2008 9:46:11 GMT -5
From what I understand, this is a CLINICAL TRIAL, so you have no idea if you are actually receiving the medical dye with the light therapy, or a placebo. However, if you don't have improvement in your health you can go back within one year, receive the treatment again and not have to pay again (except travel, meals and missing work). The second go-round, you will absolutely receive the medical dye.
|
|
jlk
Full Member
Posts: 146
|
Post by jlk on Mar 27, 2008 12:15:05 GMT -5
I do not believe that they are running a placebo here but I will be asking Sheila or John to find out. Who told you that? Dr. Martin is trying to prove to the FDA how effective this energy treatment is on various types of illnesses which he has said for years are the result of a virus. If there is a placebo I was not advised of that. I had several UV lights on me each day and I could feel the energy it tingled in my lips and on tongue. When this stuff dies it turns a blue/black and under my skin and nails I had lots of blue/black areas. Under the UV light my eyes looked like a racoon with hugh black circles around them. I was told I can go back for additional treatments for up to one year in the event that the first one does not heal me. I was not given additional products to use at home.
|
|
|
Post by beckybailey on Mar 27, 2008 14:45:03 GMT -5
At Dr. Martin's website www.s3support.com/mnews.cfm#, I clicked on the 9th link: "Symptomatic Relief of Herpetic Skin Lesions Utilizing an Energy Based Approach to Healing", in the article I saw the below comment and assumed that was how they are doing the clinical trials that we are being asked to participate in, but I don't know: "The food coloring was similarly dispensed to yield a solution of comparable red color. The patients were not informed at the time of treatment whether neutral red or food coloring was being applied." I sure will be asking before we go, but we would participate anyway.
|
|
|
Post by abbienormal on Mar 28, 2008 4:02:18 GMT -5
Judy,
Thank you so much for sharing your experiences with this board. I am happy to hear that you have found great relief from Dr. Martin's therapy and I hope that it cures you.
Did Dr. Martin say that the virus is contagious, specifically, does he think that Morgellons is contagious?
I had another question but of course I forgot it, so I may be back again if and when I remember it.
Bless you for sharing, Abbie
P.S. My husband and I met you at the CDC rally. You should get an award based on the mileage you have put on your car! You are driven, literally! YOU GO GIRL!
|
|