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Post by Admin on Oct 29, 2005 9:33:28 GMT -5
As indicated in our Welcome/Rules & Regulations message, we must reiterate how important it is to honor the privacy of our Lyme and Morgellons doctors. This is a standard rule on other message boards similar to ours and there are very good reasons for this.
Our disease situation is different from others and we must continue to protect the very doctors who are fighting to save us. The debate over chronic Lyme will continue and so will the treatment options. This must remain a decision that we make with our doctor but in doing so, we also must ensure that the doctor stays anonymous if he or she desires.
And when it comes to research, common sense tells us that no scientist would want their theories and research information splattered all over the internet when the study isn't even completed yet. If they do want the exposure, it's up to them to release it as they see fit.
If you receive personal info from or about one of our medical experts, please be careful not to share it on the board unless you know this person has agreed to this. Information that can be found on other websites is okay but when it comes to other personal info, we must use our heads and not expose it to the world.
We hope that you will understand just why this is necessary and so very important. It is a big step in getting the answers we want in the shortest amount of time.
Thank you all for your cooperation!
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Post by Admin on Aug 23, 2006 16:07:07 GMT -5
Update
We must reiterate just how very important the privacy issue is regarding any personal communication you may have with doctors, scientists, research associates, or even private parties and/or friends of yours. If they have not given their permission for you to share any of this correspondence you have from them, please honor their privacy and do not post it on the board.
Thank you for keeping others in mind whenever you post here, we appreciate it very much.
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Post by Patti on Aug 27, 2006 12:28:25 GMT -5
Just a clarification on the recent addition to this thread... We were not targeting any specific person here at LB, just reminding everyone how important the privacy issue is where your correspondence with others is concerned. We have seen many personal emails and messages shared with the world on other sites recently and just don't think this is a respectful course to take. Everyone here has been very good about not doing such things but we like to put out reminders from time to time for the new folks. Thanks so much!
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