Hi John..
Thanks so much for saying that. I read your posts as well and have for a long time..
Im glad to hear you are improving too..!! Maybe it will give the others hope that even tho this is a long haul.. there IS light at the end of the tunnel..
Yes.. the fatigue...still a big problem for me too.. Its actually worse since I started PT!.. I think maybe my body is in shock..lol..
On that Mon, Wed and Fri that I work out.. I keep that wild energy high for about an hour or so after I get home.. then I crash and burn..lol..
Its kind of discouraging still..
Like.. my body is only able to have 30% of energy time each day and if I use that up working out.. the rest of those days are useless and all I can do is sleep..are you finding that too?
I am hoping here that maybe I just need to get used to it.. Ive been doing this a month now tho, and its not getting much better yet..
I am an impatient bugger I know..lol.
Just glad I am able to walk better and I do feel physically and mentally better working out.. I suppose the fatigue is something we just have to deal with eh??.
Im also still having big problems with spasms in my upper back..first symptoms to come and the last to go I suspect..so right now I am kind of just working around them..
Maybe now with summer coming and the weather being warmer here that will ease up for me.. altho we seem to be getting hammered with rain!
Glad to also hear you are able to help your doggie..Pekingese.. such an adorable breed...
You really should post pictures of them if you can... lots of animal lovers here!.
The hair loss is something I notice in people as well.. so strange..
I know for awhile my own hair was literally coming out in clumps each day.. I have thick hair so it never got to the point where many would notice except people who knew me well and saw me everyday..its slowed down some.. but we still go thru tons of Draino as I clog the tub drain..lol..
Not sure if thats only the Lyme in my case or the fact that my thyroid and whole damn endocrine system has been hit too?..
Very surprised that the vet said that to you... a little disturbed too..
Here... the vets know more about Lyme than the MDs...What kind of vet would tell you that dogs dont get Lyme Disease? There is actually a vaccine for dogs so they dont get it.. altho I am leary of that ever since the human Lyme vaccine and that fiasco..
Very strange.. my vet here knew so much about Lyme Disease that she literally made my cats sterile!..lol..Sterile like totally disease free! Even from normal things that cats might carry...
I told her the lyme had hit my immune system hard so she had the cats on so much... shots of all kinds..like she would do for an AIDS patient she told me.. and so I wouldnt pick up any other strange coinfections... I was impressed with her...
But then angrier yet that the vet knew more than my own local Drs.. They ARE improving around here tho I am seeing..so much in the media regarding Lyme I suppose they didnt have a choice.. and so many sick people too!!
PA is a huge Lyme State and honestly even the last 6 months I am so surprised at so many people contacting me here locally with Lyme..
But it shows at least Drs are running tests now... so thats a huge step from 3 years ago where they were all saying there was no Lyme here.....
Course.. my ranting and raving all over town probably pushed that too!..lol..
Maybe fiesty is good sometimes..... altho mostly I think Im just angry and mean about what all happened..lol..
Just very glad we didnt buy that wheelchair.. was depressing even looking at them and I just kept putting that off..I think back then I figured to buy a wheelchair would be to accept this and let it happen and altho I didnt think I would get better.. I refused to accept this at all..So yes.. it is very exciting isnt it??
My family Dr is blown away and it just feels good to hear him this way...I keep just telling him I woud beat this.. and yet in the back of my mind I had doubts myself...but he just cant believe this at all...and honestly...I keep wondering if its just another dream...lol..
Like.. maybe I will wake up in bed and unable to get out without help again...
My Lyme Dr of course is thrilled as well.. but ya know.. she never had doubts...She really is amazing..
Honestly the most intelligent person Ive ever met and damn.. but she is NEVER wrong...lol..
Plus she teaches me too..she had the faith in me all along and I know I owe her my life.. Dont really know how to ever repay something like that ya know?..
I still get a bit emotional..in every way.. I get the rage that comes on fast and strong..not so much the depression lately.. but choked up over things...I cry easy over sappy movies or even happy or sad posts I read..
I suppose its not horrible to have that.. the rage.. I do worry about tho...lol..
At times I have wondered, geez..maybe it isnt the Lyme...LOL.. like maybe Im just rotten to the core and mean!..lol..
But its only when I am provoked..
I get upset about this issue.. I take it personally and I guess we all do...
But even other little things I notice I am very outspoken and aggessive about how I act now in this recovery stage....Maybe we all just got bolder because of this?..
Again.. not always a bad thing as maybe in my pre sick days I could have used some more moxy..now I cant seem to stop it tho!..lol..
Strange, this disease eh?..
Maybe the working out will help me release some of that anger I have in a better way.. (I hope..lol).
If not.. well.. I suppose I will just go on being this different type person...
Do you have it too John? The rage I mean...
Seems not everyone has it and Im curious...
(Now is where some wisearse will jump in and tell you I was always mean.lol)
But the rage is what I mean...Lyme Rage...
You always seem so calm like you dont have it....
Im really glad you are getting better too...it proves that this really doesnt last forever and we CAN get better....I wont expect the cure... just as close as I can get to the cure..lol..until they can find a cure that is...
Damn John.. I really WANT the cure!..lol..
I suppose to everything there is a reason tho.. maybe its best I dont have the cure yet with this rage eh?..lol..
But ya know.. I still have the fantasies of when I do get the cure.. and I picture myself back in shape and fighting....so maybe its best for now...
Whats another few years anyway ya know?..
Just need to focus on the day today and Im going to try for 2 miles over this next month...
Seems I am never satisfied...I am like this hungry beast that wants more after every achievment!...
Eh... its motivation I suppose...
Gotta be a good thing cuz it pushed me this far...
We will get there... I have a feeling it wont be much longer........
Much love
Kerry