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Post by ebgbgms on Sept 28, 2007 23:15:58 GMT -5
Hello Everyone, Patti? I dont know if you can help, let me know if U can. Problem....Charlie is gettng worse and worse, at eight he has a hard tiime writeing and joint pain, most of all OCD and going slightly backwards in school. Alot of problems I just can not talk about right now. He has medicaid, we have been working with a pediatricin, but he is not lyme literate, just took some advise from another LLMD that can not treat children. Is there an updated list for LLMD's for children that possibly take medicare in Missouri, we are desperate. All help appreciated, Glenda and family......thats just us 'cause there is no family support!
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Post by lilsissy on Sept 28, 2007 23:33:37 GMT -5
Have you had him checked for lead posioning all the things you mentioned are symptons of that? lilsissy
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Post by ebgbgms on Sept 29, 2007 10:09:28 GMT -5
Lilsissy, TY for replying. No he hasn't been tested for that. But he has been pos. on the Igenix for Lyme. We are in desperate search for a ped. LLMD. He has already done 1yr and some months on the antibiotics he can take at this age. He got Lyme in vitro. I do want at least one of us to get checked for hunters disease I believe thats it, get from mice? We lived on a farm in 2005 and Charlie and I experienced the most terrible pain and I really thought I was going to die. What ever it was, morgs., Lyme or what I will never forget the days it broke through are brain barrier. Glenda
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Post by Patti on Sept 29, 2007 10:23:31 GMT -5
Glenda I am so sorry to hear about your Charlie......it's so sad to see the younger ones struggle with something they don't even understand (not to mention how it must be affecting you). Have you been in touch with the Missouri support group? I don't think very many LLMDs take Medicare but at this juncture, that's a totally moot point.....you need help regardless. Let me do some checking and I'll contact you ASAP.....hang in there!
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Post by abbienormal on Sept 30, 2007 15:41:19 GMT -5
Glenda, I am very sorry that your son is suffering so much and I hope that Patti can get you that information. I think the virus you are speaking of is the Hanta virus which you get from rodents: tinyurl.com/2us89kI hope that you find a doctor pronto! Abbie
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Post by ebgbgms on Oct 1, 2007 8:56:40 GMT -5
Thank You all so much! I am sorry I'm not on here more often ,I just can''t type anymore. I'll be back though. With all my love, Glenda and family
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Post by ebgbgms on Oct 2, 2007 9:03:19 GMT -5
We found someone!!!!!!!!!!!!!!! I think he will get in at a reasonable time frame too. Cost 400.00 for 3hrs I have been having panic attacts thinking of that, the herxing, will I agree or like them. A silly Mom I guess, but today I hhave put it in the lords hands. Off subject.......I was at a small get together the other day and after I left this very pretty and smart woman said whats Lyme disease? Go figure. More awareness
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Post by lilsissy on Oct 2, 2007 10:24:25 GMT -5
Your letters inspire me to keep at it . I am praying for your son . lilsissy
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Post by Patti on Oct 2, 2007 10:32:36 GMT -5
Glenda I am so happy to hear this and I pray this doctor will be the one who can help little Charlie, once and for all. I know the expense is daunting but for three hours of their time, I suppose it's actually a bargain. My doc here in the "middle of nowhere" charges $75 for ten minutes so after doing the math, what the Lyme docs charge is not so out of line (plus you also get so much more bang for your buck, as they check EVERYTHING). Just the fact that they understand us is enough for me.
Keep us posted and know you are in our prayers.
Hugs, Patti
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Post by ebgbgms on Oct 3, 2007 9:31:35 GMT -5
Thank You all again! Lilsissy I am sorry I haven't gotten back to you. I will though. Would love to get to know U better, I miss everyone so much here. I have been a member since the old day's. We had another blessing, someone is loaning us the money for the visit. Charlie will be scared, but again in the lords hands. Love U all, special shout outs to Carrie, browncircles, godog, and Patti ebgbgms Glenda
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