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Post by praying4usall on Aug 20, 2007 2:28:11 GMT -5
I'm new to all of this, but have read up on just about every theory, and have listened to Dr. Hildigard & read the post from Denmark, which are what I think is going to get us help faster than the CDC...unless they actually listen to those who have been researching this already!
I live on the border of South Tacoma, and would really appreciate some human company! If there are even just a few of us, we could get together, and form a support group.
I'm missing my Grandkids, and my own kids. They don't want to come near me...and the phone doesn't ring much anymore! I wouldn't want to give them anything, so I understand, but it hurts so much!
I'm a very social outgoing person, and would like to meet others who need support as well. So far, the people I've met on the Net & talked with on the phone have been some pretty wonderful people! But they live in Canada, California, and Colorado!
Please let me know if you are interested, or if you know of anyone near here, please tell them about this message? Thanks! God Bless you! Celia in Tacoma Wa.
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Post by ANTHILL on Aug 20, 2007 10:07:57 GMT -5
I'm new to all of this, but have read up on just about every theory, and have listened to Dr. Hildigard & read the post from Denmark, which are what I think is going to get us help faster than the CDC...unless they actually listen to those who have been researching this already! I live on the border of South Tacoma, and would really appreciate some human company! If there are even just a few of us, we could get together, and form a support group. I'm missing my Grandkids, and my own kids. They don't want to come near me...and the phone doesn't ring much anymore! I wouldn't want to give them anything, so I understand, but it hurts so much! I'm a very social outgoing person, and would like to meet others who need support as well. So far, the people I've met on the Net & talked with on the phone have been some pretty wonderful people! But they live in Canada, California, and Colorado! Please let me know if you are interested, or if you know of anyone near here, please tell them about this message? Thanks! God Bless you! Celia in Tacoma Wa. Hi Celia Carrie and me live in portland about 144 mi – about 2 hours 20 mins from you maybe we ought to start up a Great Pacific North West Chapter thingy magoggle support group I have met a few others and it's the best thing I ever did since having this disease to be able to talk to someone that knows exactly what you are talking about and does not think you are crazy is the best Then there is the bounce ideas off of each other factor that has been vary helpful in my case Being alone is not as fun as being with people I think we should find each other and have one on one two three human interaction See ya in the funny papers
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Post by praying4usall on Jan 24, 2008 20:59:10 GMT -5
Still not another person from Washington State on here? I'm not quite so 'new' to this anymore!
Found out I have family with it too...saddest is two very young Grandchildren have signs.
Son in law in Spokane has it & perhaps his Wife, my oldest Daughter...which if not will I'm sure. I think she has it now anyway.
One of my Daughters ( I have 3 & 1 Son) told me she has had fibers come out of what she thought was a spider bite when she was about 17, and that it STILL DOES...she only told me that just around Thanksgiving. I already knew she had it, because I've picked up her moving 'hair' that fell from her head! She is now going on 33 years old!
My 92 yr old Dad in a Nursing home probably has it...sores all the time and itching. I asked the Nursing Home RN about them, was told it is just some kind of fungal infection that goes away when they put antifungal cream on it, and re-appears when they quit...I first noticed him having sores he itched a couple of years ago at the first Nursing Home after his first stroke.
Anyway, does anyone know of a Dr. in the Tacoma Seattle area who BELIEVES this is a real Condition??? I want to have something lined up for my Grandchildren if they get sicker than they already have in a way that a Dr. might be able to help them.
Thanks....
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Post by ibzahp on Jan 19, 2009 19:56:28 GMT -5
;D I am in Olympia , my name is Inez. Celia you can PM me with detailsif you like!
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Post by felixwillford on Feb 22, 2009 15:11:53 GMT -5
I am in Yakima.
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