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Post by JEFF on Aug 1, 2005 22:21:28 GMT -5
You guys really need to stop all the rambling about this and that here...Listen to a professional who has dedicated him ENTIRE life. To our condition...This book is increadable...This guy has learned so much...Here is just part of the index to give you a hint................clinical presentation...creepy-crawly sensations, skin lesions,skin ulcers, fibers within ulcers, lesions on internal chest wall, cat scan, mri.sexual transmission, ear infections, uv light, loss of hair, eye symptoms, pigmentation, severe manifestations,,,high fever, chills, sweats, cellulitus,red skin, severe pain, tracheal obstruction, sepsis, bacteremia, chronic nuerological pain, immunological weakness,,,confusion, fibers in blood vessels and brain, visual disturbances, blindness, loss of night vision, symtoms mimic alzheimers, cough, fibers in sputnum, lesions in chest, bronchitis and pheumonia,,,, oral incegestion, gall bladder fibers, fibers in stool, birds nest fibers in stool, urinary tract infections, fibers in urine, aching, pain artrhritis, stage 1, stage 2,,, stage 3,,,stage 4....insect crossing usual boundaries, insect vectors, collembola dynamics,,massive infestation, springtails, collembola in sinuses, black specks, fungi, white salt-like granules, fibers in hair follicales froducing hair which is not hair,,soft tender areas,contagious nature of disease, pets children, decontamination of household, treating dogs with septra, diatomaceous earth topical treatment, adverse reactions to sulpa drugs....15%.....this is just the summary the next is like a 75 page book explaining everthing,,,including a upcoming conference in august on the disease,,,and the CDC has initiated a review of the condition,,,,...he says he has been sending information to medical journals and peer review and pulications,,,and more doctors are coming on board everyday...you guys need to get nuspa to post this info...they dedicate 4 pages to collumbia should make them happy..they mention ok study....but goes on to say he is finding collumbia in people sininisus....cause there are being attracted to use by a cadavior smell...we are dying..
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Post by JEFF on Aug 1, 2005 22:23:39 GMT -5
we are dying but we can be saved..with treatment...his success ratio is very high...but he is concerened with emerging septra resistence...
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Post by frisk on Aug 1, 2005 22:51:44 GMT -5
Very interesting Jeff! Are your posts at NUSPA still getting deleted?? I suppose if I posted mine would get deleted also? Frisky Cat
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sondra
Full Member
infected since october 1999
Posts: 230
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Post by sondra on Aug 2, 2005 0:23:29 GMT -5
Hi Jeff, I have read your post for a long time--- since way back on NUSPA. And I have had the same symptoms as you right along... I was diagnosed with Lyme in march 2005 through IGENEX.. You were also diagnosed with Lyme,and I believe you did the Roceprin IV, then afterwards, I think you took diflucan or maybe it was another antifungal med..untill you went on the Dr.Swartz plan. My 3 questions to you are: ( You may not have an answer to all of them but give it your best shot..This is not an argument just pure interest and curiosity....) Thanks 1) Do you believe that you actually had lyme disease or do you think it was This S.maltophilia all along? 2) Do you know if anyone at Morgellons is supportive of DR.Swartz theory and treatment? I never see any of this mentioned on the Morgellons message board or through e-mail 3) Do you or does anyone know If Ginger Savely Houston, is aware of his findings and has tried this on her patients? I hope he is sending this to the many doctors and lyme doctors who are have patients with this.
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Post by anony annie on Aug 2, 2005 13:56:04 GMT -5
You guys really need to stop all the rambling about this and that here...Listen to a professional who has dedicated him ENTIRE life... well, he's done a lot of other work too. let's keep him in perspective, OK?
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sondra
Full Member
infected since october 1999
Posts: 230
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Post by sondra on Aug 2, 2005 20:10:47 GMT -5
Hi Hope,
Thank you for guiding me to the information.I have not looked at the Morgellons site for updated info..I was looking through the message board below....
I am still reeling on the Lyme medication..So, I tend to get confused, mentally lost and often very frustated...
You have also been one of those who has used the Swartz plan and say you are much better..I am happy to hear that..Did you have Lyme or just the Morgellons?
I have become very interested in knowing whether the people diagnosed with Lyme and who have been treated for it .. without success, feel that the Swartz medication protocol was the answer to both the Lyme and morgellons.... This question may not be clear ..I hope you or someone can understand what I am asking.... Thanks again....... Love Sondra
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Post by Hope on Aug 2, 2005 21:50:18 GMT -5
Dear Sondra, I think I understand your question so I will attempt to answer the best I can. I tested positive for Lyme and Babseosis with a Bowen test. My dilution rate was the lowest possible. 1/2 The test performed on my Son was positive as well but with no co-infections, his dilution rate was 1/64. Screwy I know but that’s how it went. At the time my Morgellons symptoms were raging but my Son was asymptomatic to the untrained eye. Some people here have often wondered if the Morgellons eats the Lyme or something. Don’t know for sure but it would definitely explain the oddness of our tests. He just got blood drawn for another test today and that one went to Igeneix so we will see what they have to say. I think I’ll know by Monday or Tuesday of next week. I never knew I had Lyme until I realized I had Morgellons. It was those symptoms that I really needed to treat first (for sanity purposes) and I figured the Lyme could wait. I’ve been doing extremely well with Schwartz’s magic potion and my Morgellons symptoms are about 87% better, and I had it bad! I haven’t taken the recommended dosages for several reasons, but have full intention of doing so when the mailman finally brings my new shipment. ;D I was only treated for my Lyme and co-infection for two months before I lost my LLMD and felt no different at all while on those meds. One strange symptom I did have was tons of "freckles" that scabbed up and came off of me, the Malarone did that. He had me on Biaxian and Malarone. The Biaxian never even cleared up the infection in my eyes either. I had to have my GP perscribe some antibotic drops for that. Since treating with Schwartz’s magic potion the Morgellons is subsiding and I can better understand what the Lyme is doing to me, I think. I have that bad too. I think that’s why my fatigue is so extreme ( but I am having more good days with that now) and I’ve got the aches and pains in my muscles and joints, etc…Seems like I have about one day a week that I actually feel normal as if I’m not sick at all. I can feel lumps and bumps in my body which I now believe to be the Lyme. I started physical therapy today and they want to put me in the whirlpool, do ultrasound on my back, and of course the wonderful deep tissue massage. My plan of attack is to dose up but good with the Septra and Cipro and work this Lyme or what ever it is out of my body by working hard physically, hence the PT. I’ll make this stuff come out of its hiding places and hope the drugs kill it when I do. I know that this is way more info than you asked for, sorry. Hope it helps you. How long have you been treating your Lyme? What have you used so far? Peace, Hope
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Post by JEFF on Aug 2, 2005 22:28:32 GMT -5
WOW ITS AMAZING YOU REMEMBER ALL THOSE DETAILS ABOUT ME, AND YOUR ACCURATE AND ON THE MONEY WITH MY SUMMARY...GOES TO SHOW THERE IS SOMEBODY WATCHING....JUST A GUESS BUT HERE GOES...I BELIEVE THIS NEW LYME S MALTOPHILIA,,IS AND NEVER WAS LYME...THERE ARE JUST SO DANG MANY OF THEM THAT SOMETHING IS SHOWING UP ON THE MORE SENSITIVE LYME TEST...BUT TO TELL THE TRUTH THIS IS JUST MY GUESS...THIS THING RECOVERS AND COMES BACK WAY TO FAST TO BE LYME..LYME FROM WHAT I KNOW REPLICATES FAIRLY SLOWLY...AND THIS THING IS LIKE A HIGH SPEED WILDFIRE..THIS ORGANISIM CAN GO FROM 1 TO 100,000,000 IN A DAY..FOR THEM IT LIKE 100 GENERATIONS..THEY CAN BE KILLED JUST AS FAST...NOT LYME...IM ALSO STARTING TO THINK THERE IS SOMETHING WRONG AT MORGELLENS NOT TO ATTACK ANYBODY...BUT THE INFO ON THE WEB SITE IS 6 MONTHS OLD..SWARTZ BOOK WAS PRINTED LAST WEEK..I THINK PRIDE IS POSSIBLY INVOLVED WITH THE MORGELLONS DOCTORS...CAUSE THEY WORKED FOR YEARS AND THIS GUY COMES ALONG AND TAKES OVER.....DOCTORS HAVE A HARD TIME WITH THEIR PRIDE SO THEY MAY NEVER ADMIT HE IS RIGHT. AND SINCE THE POEPLE AT THE TOP OF MORGELLONS ARE CLOSE WITH THESE DOCTORS THEY ARE LISTING TO THE OLD SCHOOL MORGELLONS LYME DOCTORS...I THINK THERE IMPRESSED WITH THE WHOLE ALTERNITIVE NATURE OF THE LLMD"s BUT WHAT IF ALL OF THESE CASES OF SO CALLED STEALTH LYME ARE REALLY A NEW HIGHLY PATHOGENIC STRAIN OF S MALTOPHILA...IM STARTING TO THINK AND SWARTZ AGREES...THIS COULD BE A BIO WEAPON...AS FOR GINGER SAVELY...I HAVE NOT A CLUE Hi Jeff, I have read your post for a long time--- since way back on NUSPA. And I have had the same symptoms as you right along... I was diagnosed with Lyme in march 2005 through IGENEX.. You were also diagnosed with Lyme,and I believe you did the Roceprin IV, then afterwards, I think you took diflucan or maybe it was another antifungal med..untill you went on the Dr.Swartz plan. My 3 questions to you are: ( You may not have an answer to all of them but give it your best shot..This is not an argument just pure interest and curiosity....) Thanks 1) Do you believe that you actually had lyme disease or do you think it was This S.maltophilia all along? 2) Do you know if anyone at Morgellons is supportive of DR.Swartz theory and treatment? I never see any of this mentioned on the Morgellons message board or through e-mail 3) Do you or does anyone know If Ginger Savely Houston, is aware of his findings and has tried this on her patients? I hope he is sending this to the many doctors and lyme doctors who are have patients with this.
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Post by To CLUELESS on Aug 2, 2005 23:06:31 GMT -5
...AS FOR GINGER SAVELY...I HAVE NOT A CLUE AS FOR MORGELLONS, YOU OBVIOUSLY DON'T HAVE A CLUE EITHER!
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sondra
Full Member
infected since october 1999
Posts: 230
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Post by sondra on Aug 2, 2005 23:23:21 GMT -5
.Posted by To CLUELESS .AS FOR GINGER SAVELY...I HAVE NOT A CLUE AS FOR MORGELLONS, YOU OBVIOUSLY DON'T HAVE A CLUE EITHER! ----------------------------------------------------------------------Just to keep things straight..I am not the author of the statement "As for Ginger Savely..I have not a clue." I asked Jeff if he knew whether or not she was using the septra protocol on her patients..He responded "I have not a clue' to that question. No one here is putting her down in any way, she has worked very hard to help many people with this disease. I am sorry you misunderstood the conversation... Love Sondra
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sondra
Full Member
infected since october 1999
Posts: 230
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Post by sondra on Aug 2, 2005 23:46:28 GMT -5
Jeff and Hope... Thank You for answering my questions.... I have been wondering why people with morgellons who have tested positive for Lyme do not ever seem to get well from the Lyme or the skin... I just feel it is something for the Lyme doctors to look into at some point.... I think it is important..Whether something else is showing up in the tests or the morgellons is complicating the healing of the Lyme....we just don't know.
I do wish that every doctor involved in this would set aside any pride and look at all possibilities.. (I have no facts that is what they are doing ) , because if it were not for looking at things and making mistakes and learning more ..... nothing would ever be solved .
Anyway,,,,,, I have taken the Doxy and Bactrim..for about four months now and I am improving as far as going numb..But my neurological twitching and tremors and head buzzing,drooling and talking like scooby doo is very hard on me...I knew it wouldn't stop the Morgellons ..but it has slowed down a lot of the secondary infections with the skin...... Thanks again to you Jeff and Hope..keep up the good work....Love Sondra
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Post by frisk on Aug 3, 2005 20:00:53 GMT -5
Jeff, I tried to post about the book and whoever was moderating at Nuspa wouldnt let it post. Some strong censorship there! I feel your frustration! Maybe someone else could try. Such a darn shame that some people are denied important information. Good thing we have Lymebusters Frisky Cat
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Post by to friski on Aug 3, 2005 23:52:31 GMT -5
sick stuff...not letting a simple informational post that may save somebodys life at least be heard....If there is a death...from stage 4 morgellons as swartz calls it in his book....the blood will be on their hands..here is the characteritics of stage 4 according to swartz.......STAGE IV...EXTENSION OF INFECTION LOCALLY AND AT A DISTANCE, CHILLS AND FEVER, FIBERS FOUND IN URINE WITH URINARY TRACK INFECTION,,,PRESENCE OF LESIONS INTERNALLY AFFECTING ORGANS,,,EG GALL BLADDER COATED WITH FIBERS, FIBERS CLOGGING ARTERIES, MAY PRODUCE HEART ATTACK OR STROKE...SEVERE INFECTION NOTED WITH POSSIBLILITIES OF EYE INFECTION AND BLINDNESS, MENINGITIS, PERICARDITIS, PYELONEPHRITIS, LARGE FIBER PRODUCTION INTERNALLY AND EXTERNALLY,,,HE ALSO MENTIONED UPON DEATH HE HAS EXAMED THE CORPSE AND FOUND FIBERS IN THE BRAIN...NUSPA IS MESSING WITH FIRE AND RISKING LIVES...THIS IS SERIOUS....IM SERIOUS. YOU NEED TO PAY THE STUPID 25 BUCKS AND GET THE BOOK
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Post by Guest on Aug 4, 2005 8:42:11 GMT -5
It would be one thing if they didn't allow information on ANY outside articles, books, studies, etc. but we all know that is not the case. Even if you do not agree with someone's theory, they still have every right to it and I believe it should be shared in order to reach others who also believe the same. The ones who disagree can just ignore it. You're right it's good that we have lymebusters. At least they let us give our theories even if the mods don't necessarily agree with us.
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Post by friskers on Aug 4, 2005 11:33:23 GMT -5
I just bought the book today. Cant wait till it arrives :-*Frisky Cat
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Post by TonyM on Aug 4, 2005 21:16:03 GMT -5
To ALL (Including LymeBusters) WOW!!! I truly cannot believe the fact that NUSPA is being like that!!! Whats their problem, sheeesh...it's gotta be a pride issue. Just like the fact that this woman I spoke to from the NPA asked me to literally do nothing about my condition. The first thing I thought of was "what the hell, I have hep c And asthma, why would I do nothing, are you crazy in the head!!!". These people need to start coming together and stop playing the "I'm rite" game. And whats with the different names for the same conditions??? NPA calls it Collumbola, LymeBusters guys calling it Morgellons Disease, am I confused here, or is this really the case - please correct me if I'm wrong here - and I'm not blasting the NPA or Lymebusters, don't misunderstand me, please. Are they 2 different diseases, or the same with two different names? ?
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Post by Patti on Aug 5, 2005 9:26:59 GMT -5
Tony, I don't have time to visit the other site (barely feel like reading this one some days) so I don't know what their current stand is.
I know that they thought what we call Morgellons was caused by Collembola, or Springtails......and it's true that many of us might have these things in us. But we feel this is just one of the many symptoms of Morgellons, that something else has to be wrong in order to attract arthropods in the first place. It's just not normal for insects to want to infect humans. We also feel there is a Lyme-like connection, since so many of us seem to have both diseases.
Now we have no qualms with the other site and from day one have believed that everyone has a right to their own opinion about this health issue. But we also believe that everyone has a right to ALL of the information, as long as it's posted tactfully and not in an in-your-face or offensive manner. This is the only way one can make a rational decision about their own health, based on all of the facts. We all are different and suffer in different ways, so the more we know, the better we can utilize the information to help ourselves.
Lymebusters has always "agreed to disagree" with the other site, since the common goal must be to find answers, and everyone's opinion counts.....we know that they feel the same way.
Happy Friday everyone!
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Post by Mouse on Aug 5, 2005 11:06:28 GMT -5
To ALL (Including LymeBusters) NPA calls it Collumbola Does anyone know a single entomologist who supports that a collembola, with no biting mouthparts that is not carnivorous and eats plants, could possibly live in skin? May Benenbaum sure doesn't, and she is the leading entomologist in the US.
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Post by noname on Aug 5, 2005 11:31:38 GMT -5
Where does one get this book?
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Post by Researcher on Aug 5, 2005 18:45:45 GMT -5
First of all it is spelled Collembola. And Yes -- there are growing numbers of entomologists who understand it isn't about mouthparts, it's about chemicals they use to break down organic matter. Have a nice day.
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