Post by josej on May 6, 2008 22:28:21 GMT -5
Hello all,
Been keeping a low profile here at LB's... but have logged in plenty and kept up with everyone's posts. So, let me just say a big happy Florida shout-out to my friends, and a warm hello to all the new faces.
You might be interested in knowing that in our area there are about 45-50 people who have Morgellons. These are young, old, singles, marrieds, widowers, soccer-moms, and even a couple of healthcare providers. What do they all have in common? Everyone's sick, nobody's cured, nobody's happy about it.
For some reason (I guess due to all the publicity from the FOX station) we seem to be at the center of all these people. We're in daily communication with each other. Their emails and desperate phone calls just prove to me that the need is simply huge.
We've reached out. We've helped. To some we've given a little cash. Others, we've helped with meds. And we've done a lot to meet their overwhelming need for fellowship, friendship, and to have a sense of community.
So, KathyJ started thinking outside of the box. And now we're kinda thinking about organizing our efforts. We've already been doing the work. But now we're thinking about (praying about) forming a not-for-profit group. It might be called "the Florida Morgellons Foundation". Wouldn't it be great to have a place where everyone could meet? Where everyone could share their experiences? And wouldn't it be awesome to give a grant to a young researcher who would join the fight?
All we have now are dreams (and this little blog) mybugblog.squarespace.com But we hope to expand and morph it into a site that helps reach our local Morg community. God bless.
Been keeping a low profile here at LB's... but have logged in plenty and kept up with everyone's posts. So, let me just say a big happy Florida shout-out to my friends, and a warm hello to all the new faces.
You might be interested in knowing that in our area there are about 45-50 people who have Morgellons. These are young, old, singles, marrieds, widowers, soccer-moms, and even a couple of healthcare providers. What do they all have in common? Everyone's sick, nobody's cured, nobody's happy about it.
For some reason (I guess due to all the publicity from the FOX station) we seem to be at the center of all these people. We're in daily communication with each other. Their emails and desperate phone calls just prove to me that the need is simply huge.
We've reached out. We've helped. To some we've given a little cash. Others, we've helped with meds. And we've done a lot to meet their overwhelming need for fellowship, friendship, and to have a sense of community.
So, KathyJ started thinking outside of the box. And now we're kinda thinking about organizing our efforts. We've already been doing the work. But now we're thinking about (praying about) forming a not-for-profit group. It might be called "the Florida Morgellons Foundation". Wouldn't it be great to have a place where everyone could meet? Where everyone could share their experiences? And wouldn't it be awesome to give a grant to a young researcher who would join the fight?
All we have now are dreams (and this little blog) mybugblog.squarespace.com But we hope to expand and morph it into a site that helps reach our local Morg community. God bless.