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Post by bessie on May 20, 2008 17:04:42 GMT -5
I called NIH this morning and told the man I spoke to about Morgellons, and that I would like to participate. Of course, he had never heard of it, but had a computer in front of him and looked it up. Well, he definitely took notice!! He was in complete agreement that this is something they SHOULD be looking into. I've had my hopes raised in the past only to fall again, but I think the more people who attempt to be involved in this program, the better it will be - if only to sensitize these researchers' awareness of this mess. The phone number/contact info is in the Administrator's post. You DO have to have a doctor who has worked with you and has some belief that there is something wrong with you (other than DOP). I am soooo blessed to have the doctor that I have here in FL... Bessie
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Post by gradysghostii on May 20, 2008 21:43:58 GMT -5
Meanwhile, he covers the mouth-piece and says "We've got a live one here, send the wagon" ....
Ha ha, Just kidding Bessie, good for you, maybe it will truly lead to something.
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Post by godsgrace on May 20, 2008 23:34:23 GMT -5
Bessie, I hope it all pans out.
I, myself have no sense of false hope when it comes to NIH, CDC or any of them!!
When I was diagnosed with CFS, I called one of the leading foundations in the country. I spoke with a woman who told me she was the president of the foundation. I told her she needed to go on TV...go to Congress ect...
she told me she had already done Oprah and people all over the world from these foundations had been "banging on the govt's door" for 30 years and noone would answer...let alone, let them in.
They know about the mycoplasma as they contracted Merck Pharma to create it.
Every person in North America is sick to one degree or another.
It is no mistake Morgellon's is no mistake either....just their next move.
Hope I didn't burst your bubble, just giving it to you from my perspective.
The whole CDC/KP thing is a hoax!!
KP is a piece of crap company...like Merck...
CDC has known about this since 02...and prolly before then!
Can't wait to see what kind of cockamaime story they will create for this one!!
One girl's opinion
Many Blessings
godsgrace
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Post by Sidney on May 21, 2008 0:26:06 GMT -5
CDC has been receiving reports of our skin disease since the early nineties, and possibly before then.
Many of us sent "specimens" and described what was happening to our bodies in the nineties. We begged them for help and they blew us off as delusional crackpots.
Deborah Altschuler, NPA, paid a personal visit to Dr. Tom Navin in November 1995 to warn the CDC of what the NPA saw as an epidemic among the population. At that time the NPA had only received eleven reports from people describing identical symptoms who had no contact with one another.
They just didn't want to be bothered with us.
By 2002 or thereabouts, many of us were writing to Mary Shepherd at the CDC begging for help. Some of the people were so angry they were sending emails to Mary Shepherd that were hostile to put it mildly.
Still, they did nothing.
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Post by Jill on May 21, 2008 9:23:49 GMT -5
Speaking of Oprah, Godsgrace, her position on CFS and related illness- to include thyroid-- it's all in your head: tinyurl.com/5t6rba That's why she gets the big bucks-
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Post by godsgrace on May 21, 2008 10:02:10 GMT -5
It's all connected... like a huge web... Hope Oprah doesn't contract CFS or the Morg's.... So many are brainwashed or paid. the name of the game. godsgrace
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Post by godsgrace on May 21, 2008 10:05:27 GMT -5
Oh, wait... after reading the article it is plain to see Oprah already has mycoplasma infection as it is also responsible for Hashimoto's thyroiditis....and severe weight gain/loss.
She is already sick.
Hope the $ helps her!
godsgrace
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Post by violet on May 22, 2008 16:26:34 GMT -5
I also phoned NIH a couple of days ago and registered with them.
The more of us that call in, the better!
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Post by bessie on May 22, 2008 16:39:49 GMT -5
I believe that you guys are right - that it will go nowhere. But I look for tiny pebbles in this white water stream that I am trying to cross, and if I can find one to help me get to the next day, I step on it. Otherwise I would just lay in bed and stop breathing. I got another call today from them. The woman I spoke to never heard of it either, but was very interested. I think the "people" behind this are only at the highest levels, and the folks we deal with are in the dark. I feel just spreading the word whenever I can is SOMETHING rather than nothing. Interesting that the last 4 medical people I've dealt with knew something about it - had a patient, a colleague had a nurse in his office, a nurse had seen red & blue fibers in a urine sample a few years ago and asked me if that was it... I think the more "public" this becomes, the less "they" will be able to continue to deny/hide it. Then again, maybe this is just a pebble. Bessie
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Post by greeneyes on May 22, 2008 17:12:44 GMT -5
I agree Bessie, if we reach the other people the ones in the dark and inform and educate on this subject--the more understanding we will have--the less fear and understanding is what we need.
greeneyes
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Post by skytroll on May 23, 2008 23:41:52 GMT -5
Lets go straight to the top.
Director is Dr. Elias Zerhouni
on c-span today.
Caller ask about the undiagnosed diseases program,
said they will look for functions on a molecular basis.
He said they look at over 6,000 diseases, 600 are known, the rest not known.
So, we will be included in a very large group.
Seems he knows very little about Aspartame.........just like Morgellons.........
Much money spent on bioterror agents.
Much more on predictive medicine, if your genes say you will get a disease.
Where is NIH in relation to Environment.
Toxic molds..............exposed to a lot of that............
NIEHS, national institute of envrionmental institute,
allergies, or immune responses.
Chemical hypersensitivity.
Alternative medicines: Control diet, weight control, regular exercise organic foods,
guy takes no medicine............
overweight adolescence. Over 60 percent of population is obese.
Vitamins, longevity,
Seem to relate all disease to genes.............big error..............
Look at protein structures, how atoms arranged, Find proteins in membranes, are signalling proteins, have discovered membrane protein, the first structure receptor,
Seems they now want to know the undiagnosed diseases, so can test new atom structures.
mmmmmmmmmmm
skytroll
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