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Post by bessie on Jun 10, 2008 14:24:29 GMT -5
Is anyone else emailing the CDC to try to push the study and urge some disclosure?
Here's what I just sent. It probably won't do one thing, except to help me feel less helpless:
PLEASE – the many thousands of us who are suffering beyond description need to know what is going on with the research. We also need to know why you are not consulting with the scientists who have done extensive research on this condition for years. Many, many thousands have been spent to obtain these verifiable findings. Why would a government agency NOT avail themselves of this research??? It makes no sense whatsoever, and is spawning the perception that many hold that the CDC does not WANY to know the truth – or worse – that you already DO know and are planning a disinformation outcome of this study. In the name of God, PLEASE contact Dr. Wymore, Dr. Staninger, and the Morgellons Research Foundation. They have much more information than the paltry $350,000 allotted to this epidemic could ever replicate. PLEASE PLEASE PLEASE – act responsibly and give this the attention it most surely deserves. Don’t wait until it is so out of control that there is no turning back. Thank you, Bessie Glavas
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Post by toni on Jun 10, 2008 19:15:56 GMT -5
Bessie, what a great letter you wrote. Thank you!
And yep, I constantly write them, and keep writing them.
Weekly or every day, send them that letter. It helps too with frustration, cause so far they've not replied back to me, but.....we can never give up, someone somewhere DOES hear us.
And we can't be heard at all if we're quiet. So you keep on keeping on! Great job!!!
And thank you DEARLY for sending that, because it is our letters that have gotten us this far!
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Post by bessie on Jun 11, 2008 13:01:59 GMT -5
Toni - When you DO get a response from the CDC, this is what it will say: "Thank you for your inquiry regarding the unexplained dermopathy (skin condition) which some refer to as “Morgellons.” To learn more about CDC's activities related to this condition and answers to frequently asked questions, you should visit www.cdc.gov/unexplaineddermopathy. This web site is regularly updated as new information becomes available. Because CDC has no clinical facilities to evaluate or treat patients, we urge persons who believe they are suffering from this condition or who have distressing symptoms to seek evaluation and medical care from their local health care providers." Makes my blood boil. Bessie
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