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Post by mfromcanada on Jun 29, 2008 19:17:44 GMT -5
Ladies, the skin on my labia is weird. First off the flaps have thinned out. Secondly, they are always sticking to the sides and I have to keep adjusting myself. I have been wanting to post about this for awhile but it is just too hard to explain.
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Post by cheetah on Jun 29, 2008 20:59:12 GMT -5
I have not experienced that symptom. I have no idea what is happening... but I will say this... I am never surprised as to what I hear that others have to experience. I guess I just figure that it goes along with this nightmare. That does not make it ok. It just keeps on with more symptoms which is whew over whelming and I cannot possibly pretend to understand what you are going through with this symptom. I want to help but I do not know how.. I have no answers. I am so sorry that you have to go through any of this. I wished I had some words of wisdom. Everything in our bodies seem to change. Almost everyday I notice something....well, not right. Mfromcanada, please know that I care about what is happening to you. It can be so terrifying at times. Not knowing is the worst but that's just me. I am so sorry so sorry because I have no clue and do not know how to address this. I care. Love and Light
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Post by godog on Jun 29, 2008 21:05:20 GMT -5
Well, that's in the area of my worst misery. That's where I do the flour and water paste thing and it pulls out tons of morgie stuff. I don't know why I have had the good luck to have my worst symptoms in that area. The paste thing works for me. Such a difficult area to self-treat and so humiliating to show to docs, also. That area got so packed with whatever the heck that stuff is, that I had absolutely NO sensation down there. Now that I have been pasting for 2 years, sensation there is almost normal. (Yay!) Anyway, good luck with that.
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Post by lilsissy on Jun 30, 2008 12:31:22 GMT -5
I had an I.U.D. actin like organisms, wow www.ncbi.nlm.nih.gov/pubmed/18475332 Review: 0 Click to change filter selection through MyNCBI. 1: Infect Dis Obstet Gynecol. 1993;1(3):130-3. Links Management of intrauterine device-associated actinomycosis.Chatwani A, Amin-Hanjani S. Department of Obstetrics Gynecology, and Reproductive Sciences Temple University School of Medicine Philadelphia PA USA. Objective: To assess various methods of management of actinomyces-like organisms associated with intrauterine devices.Methods: A retrospective chart review of 173 patients with intrauterine device-associated actinomyces- like organisms detected on Pap smear was performed. The patients were managed by IUD removal with or without antibiotic therapy, antibiotic therapy alone, or no treatment at all.Results: The success rate as reflected in negative follow-up smear was 100% for IUD removal combined with antibiotics, 97.4% for IUD removal alone, and 36.8% for antibiotics therapy alone.Conclusions: The best way to manage intrauterine device-associated actinomyces-like organisms is removal of the device with or without antibiotics. lilsissy
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Post by flutterby on Jun 30, 2008 14:29:10 GMT -5
To all my girlfriends,
My labia has also changed. Yes, less sensitive. While in the shower, many larvae seem to pop up to grab a drink. I have larvae living just about every part of my body, the appear and show their little white forms. Yes, my labia is riddled with the beasts and during my shower, my breast nipples begin to crack the tissue, to watch the larvae pop up in my nips, both breast nipples contain larvae. and during my shower, the water appearing reveals the larvae. Both of my hands, palms, fingers and top of my hands seem as though they were in water as though I was soaking in the tub or shower both of my hands, fingers appear to be waterloged. This happens in minutes and out of the shower, my cracked fingers and hands remain wrinkled. I have had these symptoms for about 2 years, with no end in sight. My labia is still an issue, with larvae. It's a very disturbing, as well as, my other symptoms of life under my skin. I am into my 6th year, and frankly, do not plan to celebrate this year. I know the feeling, frightening, alone and depressed. All we can do is wait for some sort of miracle. God Bless, my friends, Love, Flutterby I
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Post by specuelatin on Jun 30, 2008 16:11:52 GMT -5
HI m, You can try water-soluable K-Y jelly - applied externally three times a day - and see if this helps the symptoms be more tolerable. Of course you can buy a generic. LOve, spec
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Post by bannanny on Jun 30, 2008 17:06:09 GMT -5
Is that you spec, in your avatar? You're so pretty! Miss you around here. How ya been doing on the marshal protocol?
Well mfromcanada, I've noticed that you and I always have alot of the same symptoms. For me, the identical thing happens with my fingers pruning up and it only takes a minute. It's not like it should be. You know, like you usually have to be in water for quite some time for that to happen. My skin also indents real easily and doesn't pop back up....... like in dehydration. But I drink fluids constantly cuz I'm always so thirsty. I down bottles of V8, apple juice and water all day long....... and I add willard water to the bottles when I buy them so I'm sure to get it into me internally.
Now for the labia deal. For about a year and a half now, the right side of mine has actually pulled in towards the middle. Almost like it's been sutured in or something. It's very strange. I get alot of movement there too and sometimes I get the glass shard feeling down there. It can get pretty painful at times.
For about a year I shaved down south, but it got to be such a pain in the a*s that I just stopped doing it. I'm thinking about it again tho cuz it did feel alot better. I've used vaseline, but I heard it wasn't good because of the petroleum, so I stopped. I'll try the k-y spec....... I just try to keep as clean as I can using wipes and such all the time.
Talkin water soluble, morgs is not. Did you know that? That's why alot of what you can barely see in the shower just floats back up into the air or whatever cuz it isn't water soluble. Showers aren't what they used to be for me either. It's not something I even look forward to anymore and it just makes me sick. They're almost painful at times, ya know?
Anyhoo, sorry I can't tell you what will help, maybe we'll learn more from your post tho and I thank you for starting this thread girl!
love ~~ bannanny
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Post by godog on Jun 30, 2008 17:43:14 GMT -5
Flutterby, what do these larvae look like? Do they move? Have you tried the pasting?
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Post by toni on Jun 30, 2008 17:51:34 GMT -5
Oh, this is just awful. I don't have these symptoms, but I look at "your symptoms" as things to come. And I know there's many recommendations, and I'm sure they're all helpful, and you know me (the milk and plain yogurt) person here...well, it's worth a try right? Just mix equal amounts of both...or a tad more yogurt to make it thicker. I know "on my scalp" I apply that "smooth cream" plain yogurt mixed with milk, and it physically sucked out particles from my scalp I didn't even know were there. All I do is pack it on, and let it dry...that's it. I have cleaned up my entire body using that. Just one nasty lesion that is never ending stuff. But, I get the stuff out with the yogurt and milk, and ground cumin mixed in too. The 'things' hate ground cumin and I've mixed that with the milk and yogurt too. It's not pretty but it works really well. I'm sure praying it does what's needed to help you "get the critters" out. The other thing is "if you can" get your hormones checked. See if your estrogen levels are correct, or where they need to be. Estrogen (which by many's symptoms) is seeming to be getting depleted. Whether or not (Morgellons utilizes estrogen) in our body ..who knows for sure, but "from the symptoms, it looks like it. Lack of needed estrogen in the body, will or can do that too...along with Morgellons, but the estrogen part, can be resolved. Lack of estrogen will cause all kinds of added problems, hair thinning or loss, etc. But it's a very individual decision to take or not also. Here's an article which might be helpful too. www.healthinaging.org/agingintheknow/chapters_ch_trial.asp?ch=49#menopauseOne more thing...taking Vit C and EFA's daily are very important when a woman turns 50, and if we smoke cigs we deplete these more even under normal circumstances without morgellons.
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Post by cyn on Jun 30, 2008 19:48:57 GMT -5
Hi Marcia,
I went through that a long time ago. To keep them from sticking I used Eco-Vie mixed with distilled water, and sprayed it on after drying from a shower. Then air dry. So, obviously you don't want too much on there.
That stage happens prior to fungus being in there. So that part is good. For a time, I thought they were trying to glue together the sides, making a nicer parasite home.
When the fungus gets down there, it gets fat, just like the rest of me. But the fungus isn't as painful, there are no stings or big lumps anymore.
I don't shave. I use a trimmer called Magic Touch. It leaves just a short stub so there is no itching or rash or anything.
Do both suggestions and you will feel much cooler and cleaner.
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Post by grsue on Jul 1, 2008 0:17:42 GMT -5
What worked for me was to soak in vinegar water, and to use vinegar douches-often, twice a day or so. Refill and make your own. Castor oil rubbed in could help. It's crappy miserable isn't it?
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Post by mfromcanada on Jul 1, 2008 0:38:03 GMT -5
Thanks all, It is nice to know I am not the only one with this symptom. I do have very low estrogen as I am passed menopause. I have been bathing with a quarter cup of borax and it seems to help. Regarding the pulling to one side though, mine pulls to the right. I was wondering if the pulling might have something to do with our lymph glands down there getting clogged up with Morgellons fibers...
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Post by liatris on Jul 1, 2008 3:51:41 GMT -5
DON'T DOUCHE !!!! Sorry, grsue - but I learned the hard way. I pushed a vaginal infection up into my pelvis that way. Many years of horrible pelvic infection. You are lucky if it has not happened to you. It is very risky and is known to happen often, in general.
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Post by justhanginin on Jul 1, 2008 7:29:22 GMT -5
Flutterby, Maybe not on inner labia, but just about everyplace else coat the area with Vick's Vaporub and it will kill any insect-type thing you are harboring. . borax in bath kills the fungus off as it surfaces. It works, I have seen it on myself. Coat area, leave it on and the camphor and petroleum will work their magic.
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Post by godog on Jul 1, 2008 9:03:22 GMT -5
There was a point in this pasting business that when I would paste there, it seemed to try to swarm together or weave the 2 sides together to keep me out. I know that seems crazy, but that's what it was doing. It knew I was out to get it and it would try to defend itself. WEIRD!!!! So reading about you other girls' experiences helps me to realize that hey, that IS what it was doing. This stuff reminds me of an ant colony or a bee colony and when the hive is threatened, they all defend it. Like a wasp nest or something. Gad, how'd we get so lucky?!!!
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Post by toni on Jul 1, 2008 9:14:39 GMT -5
Godog,
I sure know what you mean (not by down there) but my hair on my head WILL defend itself too...as weird as that one sounds, it's true.
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Post by laylo on Jul 1, 2008 9:17:42 GMT -5
I myself have not notice any change in the skin. but I have always complained about feeling something moving. will last year I had bladder surgery with a little reconstruction work. I'm still having problems with my bladder which I believe has to do with me having morgellons. I still feel the movements but not as bad as before. what has help me a great deal is using a lint brush after a shower and I dry off. a bunch of these little hairs get on the brush they are like ingrown hairs but when you see them with the scope its them. I believe these are the ones causing the movements. and I wear a pantie liner so that they get on the liner and not my panties. I believe my biggest help has been that I do not have that spider web on my skin anymore and all that comes out of the skin doesn't stay on which cause the itch.
sorry I couldn't help you, my biggest help has been learning to live with them.
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Post by bessie on Jul 1, 2008 9:24:13 GMT -5
Toni,& godog - I'll bet just about everyone here has at least one experience that is SO weird we don't even usually share it with each other for fear of being considered delusional!!! I've spoken to many people who have said this to me - and I have had a couple myself. It's kind of too bad, because so much of the agony of this is the isolation, and when that extends to our life lines, there is no where else to go. But then when we DO take a chance to talk about it, others who have been spared the more horrific & bizarre experiences sometimes jump on it and say we are hurting the cause because people visiting these sites will say - "Those people are insane" (as though they weren't already thinking that). I don't know the answer to that,, except maybe having a thread that is closed to only member log-ins. Stifling the most awful stuff somehow just doesn't feel right. Bessie
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Post by godog on Jul 1, 2008 9:25:18 GMT -5
Glad to hear that,not glad you have it, but you know what I mean. If it wasn't for this dialoge here at this site, I would've been seriously questioning my own sanity. Not that I don't do that either, once in awhile. You know, next time I go to the doc, I'm going to tell him a bunch of the crazy stuff. At least we can do that now, tell the crazy stuff. Not too long ago, this was the stuff you would never tell a doc. Is anyone else out there telling their docs the crazy stuff. Toni, have you ever told your doc that your hair tries to defend itself, and what did he say?
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Post by godog on Jul 1, 2008 9:30:27 GMT -5
Well, you know, way back they burnt that one guy at the stake for saying the world isn't flat, it is round.
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