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Post by overandover on Dec 4, 2007 20:27:57 GMT -5
Looks like the MRI of Joshua's septum. Wonder what they are used for? I see my neuro. doc. on the 21st. Going to ask?
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Post by overandover on Dec 4, 2007 20:19:05 GMT -5
You did the right thing sweetie. I've had folks try and hand me a baby and I just say no I can't. I really don't feel as infective as I did my first full-blown year. I would open the door and say I'm so sorry I can't let you in. I go with Ali, just follow your heart regarding this because you are caring it would break your heart to pass this to anyone. You did good. Love, Sue
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Post by overandover on Dec 4, 2007 20:05:50 GMT -5
I used to soak my fingers in clorox and it cleared up all the paper cut like lesions on my fingers.
I don't think it killed the fibers but it did make them come up to surface and out.
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Post by overandover on Dec 4, 2007 20:03:53 GMT -5
Liz it really took me back when you talked about the mice because we had mich in here when we purchased our house in 2003. It took over a year to kill them all off. I hate to kill anything but i'll do in a mouse anyday of the week. My vet swears we will get to the answer for Morgellons through mice. She thinks it's a new plaque carried by mice.
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Post by overandover on Dec 3, 2007 21:13:10 GMT -5
P.S. Your letter was great and I hope it's a burning memory in the reporters mind untill they force this out in the public, wide open like it should be.
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Post by overandover on Dec 3, 2007 21:11:06 GMT -5
Anne, I think of you so often and I'm sure this is pure hell for you. I'm and always will be so hurt that you lost Tom. It's so hard for the normal folks out there (normal for now anyway) to understand you didn't lose a huband but lost also the most important person in this world who knew what your going through and knew the pure pain of watching this horror rob your children of the "normal" life they deserve.
I'm so sorry Anne. I'm so sorry that our own country has turned there back on us and so sorry and sick that your little girl has to know at such a young age that the CDC lies.
And I know there is really nothing anyone can say to help. Come and in and vent, vent and then vent somemore if it helps. I understand how you feel as a mom, I do, but please you must know deep down in your heart that your children could never have a better mom than you. Because you are to them what Tom was to you. You know first hand what they are going through and you are their biggest supporter.
My love and hopes for you and the children, Sue
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Post by overandover on Dec 8, 2007 16:34:35 GMT -5
Prevenge I'm glad your having it done safely, I wish I had.
Josh and I both had a strange dental history, well mine was somewhat my own fault. Young and stupid.
I was 18 when i had my oldest daughter and got a bad calcium def. They had to pull all my molers and when I got my wisdom teeth they were capped. All of my back teeth had those big silver caps.
In 2004 my dental check up showed every tooth in my mouth was decayed. But if you looked at my teeth, they were fine, not a hole to be found, it was all inside. i saw the x-ray. My dentist gave me a price to fix it and i said nope i'll get them all pulled, I could buy 2 new cars at that cost.
I ask the surgeon about removing the mercury because I'd seen something on TV about it being bad, he said they have not proved that. So I did get them all pulled.
Carrie I hate my dentures, hate them. the surgeon begged me to keep the few that he felt could be saved. But I was head strong and said get them out. Now i can only wear the top detures. I have many lesions on my bottom gums that just never heal and it's pure pain to put the bottoms in.
I had my teeth removed in July 04. They put me on antibiotics 10 days prior to surgery because i have mitro-valve prolapse. Then for another 10 days after surgery. I called the surgeon and begged to stay on the antibiotics because for the first time in ten years I didn't have a dry tongue. He said it had nothing to do with the meds and told me NO.
July 04 all teeth removed Oct. 04 full blown Morgellons Is there a connection here, who knows?
And my Josh also at the same time, every tooth in his mouth had a fracture. They couldn't tell us why. But maybe from radiation therapy? Because he was so young and looks important, my son was real cutie pie, he wanted the root canals and had started getting one a week until his cancer came back. When Josh died every tooth in his mouth, even the ones that had the root canals were almost gone. His teeth had gotten like chalk. i cleaned his teeth and mouth in the am and at night, his mouth always full of fibers.
I have wondered about the connection to Morgellons.
Prevenge again I'm glad your going to find a doc. that knows how to do it.
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Suebe
Dec 4, 2007 20:48:19 GMT -5
Post by overandover on Dec 4, 2007 20:48:19 GMT -5
Thanks so much ladies, you are all beautiful. But my Josh would say OK ladies get-r-done and move on to some laughter. Thats just who he was. Carrie girl I know he & me hurt you to the core and i understand because of your little guy. But I've got to tell you that you remember him the best.
My son, thinking he's in that bed, right after brain surgery and i find his butt going up and down the road like a crazy bat out of h*ll on that go-cart.
That was Josh, full of life, fun, my silly Bob Marley loving kid. And I know he wants to be remembered for who he was.
And Roberta hon please be open to Pitt's. My daughter has 3 dogs, all the same color.
A Rottie, a Pitt Bull and a Chauwawa (oh did i ever mess that word up)
The three of them play and have the best time. Her Pitt Bull is the sweetest dog I've ever met. I don't think it has a mean bone in it's body. Some people make Pitts mean and they should burn in h#ll for it because it use to be known as the #1 best family pet back in the day.
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Suebe
Dec 3, 2007 21:22:38 GMT -5
Post by overandover on Dec 3, 2007 21:22:38 GMT -5
Thank you so much Roberta. Talking to you was wonderful, you are a truely kind, loving person. Thank you also Kmarie, your right this time of year is so hard. I miss him so much.
Thank you both for remember him, so many don't mention his name anymore, Tom told me it's because no one wants me to hurt and bring up a memory. That hurts to my core that anyone, my family could think that for one moment he's not in my heart. Remembering every single crack in his smile warms my heart, memories are all we have of him.
Thank you. Love, Sue
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Post by overandover on Dec 5, 2007 14:54:59 GMT -5
Toni that was great and they do move. I get my kicks from getting the fibers out or off me, holding one end tight in my tweezers while I tip the other end in water. They get so mad and go crazy just like snake movement, then I burn them up. I know this much sound crazy but it makes me feel like I'm winning the war.
OK OK I know for every million in my body I might get to off one, but hey it's one less. And it feels so good.
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Post by overandover on Dec 4, 2007 20:53:02 GMT -5
Thats right Kmarie. I'd love to send them a note with several cases of Ammonia.
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Post by overandover on Dec 4, 2007 20:24:09 GMT -5
The reporter for the Post told me that CDC said they only have 45,000. for the Morgellons research. Thats about enough to get them all at the round table for 1/2 day and figure out "how to make us once and forever DOP."
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Post by overandover on Dec 3, 2007 21:25:18 GMT -5
If thats not a black speck then i have a 22" waste. This is what's making the man crazy.
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Post by overandover on Dec 2, 2007 12:05:56 GMT -5
I am trying to post a file with pictures for my mom Sue, can anyone help me?
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Post by overandover on Dec 5, 2007 15:32:50 GMT -5
Oh most important thing for you, for everyone.
Get A MRI and update it yearly. I don't care what you have to do to get one, just please get it.
Love, Sue
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Post by overandover on Dec 5, 2007 15:30:09 GMT -5
Prevenge, Yes I had the brain surgery in 1990 or 91, my brain just had a fart. They put two clips in my brain to fix it. And I see neuro. doc every two months. I also have a history of two strokes from blood clots. I sometimes say that Morgellons are folks that are dead and don't know it. Not a very funny joke i know, Dr. Swartz said that to me on the phone two years ago. He called us the walking dead. He was a very kind man and we were talking about the smell we put off at times when he said that. OK back to what we were talking about. I think the berry anysurems were from the Morgellons, I do, because I've had 4 children, natural childbirth. They told me that a person is born with a weakness in the wall of an artery/vein and over many years the berry blows up bigger and bigger and finnally ruptures. They said they were very surprised that it didn't rupture durning childbirth as many do. I think it all related to Morgellons nest up there just like my son's so called cancer that the labs couldn't agree on. I would love to be able to get a MRI now, but can't because I have the clips. I can only get cat scans. Shoot now I've forgot your questions. OK the cost of surgery was 150,000. plus all the doctors bills, that was just the hospital bill. Back then we didn't have a pot to p@ss in or a place to put it. My husband filled out papers in hospital and all cost were covered by the state. We didn't have our own home then, rented, all we owned was our 4 children and hospital wouldn't take-em for payment
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Post by overandover on Dec 4, 2007 21:14:35 GMT -5
Prevenge you have to get a up dated MRI. I had stange feelings in the center of my brain for years. Like there was a balloon blowing up in there, bad pressure headaches and it felt sickly like I'd been in a very smooky bar (hard to find the right words) I had two berry anyuresums (sp) one bleed and I was stuck in ICU for a month after surgery. I'm a smoker and I was mad as crap.
Get youself a up dated MRI, brain surgery was not bad at all, much much easier than Morgellons. But being in the hospital without my smokes was pure h%ll. But still not as bad as one day of Morgellons.
Now I do have the crunchy sound in the back of my head at base of brain. Doc. told me it's nothing to worry about. I see a neurologist every two months because of stroke history and he said the crunching sound was arthritis (sp).
Chas that chirpping sound drives me crazy, only hear it when I'm at the computer. I thought it was the computer. Heck maybe it's me.
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Post by overandover on Dec 2, 2007 10:24:02 GMT -5
Thank you Kelly. It was a very good article. You did Karen proud, love Sue
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Post by overandover on Dec 3, 2007 12:29:44 GMT -5
I did to Moe. Would be nice if others filled out the form. Folks this may be a chance to be heard. Love to all, Sue
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Post by overandover on Dec 2, 2007 17:01:16 GMT -5
OK I filled out the form, will let you know when and if I hear from someone. Love, Sue
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