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Post by chaosonline on Nov 20, 2007 17:08:28 GMT -5
Hmmm....the fork, your mouth...do you have any old fillings?
Maybe the hair has been somehow magnetized. That doesn't explain it's probing your skin or lesions unless those Morgellon's anomalies (critters, lesions etc.) are also similarly magnetized. I can remove a hair from my scalp and it seems to be attracted to me. If I lay it on any surface and place a finger nearby it slowly moves toward my finger. Maybe our increased electro-magnetic fields play a role in this phenomena.
Karen from Michigan
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Post by chaosonline on Nov 18, 2007 13:40:12 GMT -5
Well I guess none of us are replying to this because it is so horrendous. I can't get this thread out of my mind. It just makes me wonder about how many are out there that have no clue what they have or where to turn. The recent CDC "next spring" comment had me angry but after I read this I was fuming.
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Post by chaosonline on Nov 18, 2007 2:08:06 GMT -5
Roberta,
That is just the best news!!! How truly wonderful. I can't imagine that you have waited over 11 years for this. It must feel great to have proof for your shrink now. I know you have suffered to get to this point but Horray for you, you made it soooo far.
I have a dog but so is only 1 year old and shows no signs of this yet. I would bet my bottom dollar she has it but no signs so far.
Karen from Michigan
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Post by chaosonline on Nov 17, 2007 23:54:06 GMT -5
Ironic isn't it the only real clout we have is our 'Morgie Critters' and the DOP diagnosis!!! ;D Let's use it!!! Dr. Julie Louise Gerberding Director The Centers for Disease Control and Prevention Building 16, 1600 Clifton Road, NE, Room 5127 Atlanta, Georgia 30333
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Post by chaosonline on Nov 17, 2007 22:34:28 GMT -5
kmarie,
They wouldn't dare arrest anyone. It's perfectly legal to send them specimens. Remember this is not even a disease let alone a bio-hazard or contagious disease! In fact is isn't anything at all except suspected DOP!
The CDC would have to declare Morgellon's as being a contagion or at the very least a disease before it would be any kind of a violation to send them specimens. Especially specimens from people seeking help.....wanting info.....remember Morgie Critters don't exist per the CDC itself!!!!!
It's immaterial if you actually put anything in the envelope or not...just let them know you have the disease and have enclosed specimens. Invisible, nanoscale, not visible to the naked eye, airborne, who's to say what's in Morg-Mail?
Karen from Michigan
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Post by chaosonline on Nov 17, 2007 1:08:32 GMT -5
imblownaway,
You are so right, they have official snoops that read our boards but the truth is they won't have one moments worry because they won't believe we will actually do anything like this. They think we are too weak because we have never banded together to do much of anything but sign online petitions.
They believe we don't have it in us....but this time they are wrong and they'll find out exactly what we have in us!
I will start this Friday. On Monday I will begin to call and email the US post Office on many levels, on Friday November 23, 2007 I will mail the first of many letters to individuals at the the CDC.
I will vary my theme from Thank You's to Please Help Us to Happy Holidays, whatever strikes me at the moment. It will become a part of my routine. And as I mail each one I will think about my fellows here and on the other Morgellon's boards that have lost homes, had children removed from them, been forcibly institutionalized, emotionally and physically suffered and died or committed suicide. All this suffering has garnered only cursory statements and stall tactics. It's time folks...
My first letter is for you Karen Stern.
I hope you will all join with me in this ever so peaceful letter writing campaign. Let them see our resolve.
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Post by chaosonline on Nov 17, 2007 0:09:49 GMT -5
Yep yep,
That's it Art, a handshake, a good ol boy back pat while you thank them for their efforts then tell them you have DOP/Morgellon's. That's the spirit. I can just see the heady smile turning now. A sneeze, a cough and the blood drains from his face!!!!
I have a Morgie collection some 1800 strong that will go a long way. I'll need lots of stamps.
Anyone know how to get names of different people there so the letters actually get sent from the mail room to different people?
I'm (lightly) gluing my glitter in the snow on their holiday cards!!! Or birthday cards...take a deep breath and blow out your candle (literally).
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Post by chaosonline on Nov 16, 2007 23:58:32 GMT -5
lilsissy,
I like the idea of giving the postal employees a heads up but then they handle our outgoing Morgie mail everyday. Maybe a few letters along an informational line.
It's blatantly obvious that the CDC could care less about the possible contagious aspect of this. Thats why I say put it in their laps.
I don't think the statement that the CDC says 'the contents of this envelope has been recently deemed to be not Contagious' is totally correct. The CDC, collectively, doesn't have the clout, intellect, or common sense to say much of anything.
No I say, don't warn the suckers, just initial info to the post office and let the post office lean on the CDC. After all it is just delusional material. Nothing to take note of, nothing to write home about and certainly nothing to get the CDC moving.
Well I bet you they move real fast after they start opening tons of Morgie infested mail!!!!! Oh yeah, out of their chairs, out of their offices and out of their minds!!!! They'll be screaming to their higher ups to do something and then if the CDC tells us we have to stop.....that would have to be in writing...a press release...that will be more telling to the news media than all of our efforts and researchers combined could accomplish!
So far the CDC has had all of the oars, I say let's have a few of those oars for our boat. I bet they'll toss them right over to us while they are registering on the board.
LETS DO IT!!!!
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Post by chaosonline on Nov 16, 2007 20:16:18 GMT -5
Don't get mad...... So according to recent news clips the CDC is going to start investigating this thing in the spring!!!!!! Oh how nice!!! I think we should supply them with plenty of specimens to START their investigation! I propose mass mailing of something we have plenty of 'MORGIES'.....LIVE MORGIES....DEAD MORGIES....FIBERS....SCABS.....INSECTS.....NANOS.....CHEMTRAIL DEBRIS...ANYTHING AND EVERYTHING THAT HAS TO DO WITH MORGELLON'S ON, IN, OR AROUND OUR BODIES!!!! For the cost of a few stamps we could start a fire under their rear ends. Mail them to the CDC, the NIH, Kaiser Permanente and your state and local health departments. Try to get names of department heads and send them to individuals. Be sure to always include a real nice letter explaining just what the little things are that are littering the inside of the envelope. They aren't the least bit worried about us or what is happening to us so they must believe they have nothing to fear. If we are so DOP and not the least bit infectious what do we have to fear? What do they have to fear? NOTHING so lets get started or they'll let us wait till hell freezes over. Look folks this stall tactic is over with me. We are standing by patiently as our fellow board members are dying. What about our families, our children and grandchildren. Do these stalling SOBs give a damn? Quite obviously not! We will be heard, we have waited long enough. Please post names and addresses of possible recipients here..........GET EVEN!!! Centers for Disease Control and Prevention, 1600 Clifton Rd, Atlanta, GA 30333, U.S.A. Sample letter: Dear CDC Department Head, I am writing to you today to ask you if there is any new information on Morgellon's Disease aka DOP. I think I might have a pretty bad case and have enclosed a few specimens just in case you can help me out here. I have read that I am probably just delusional and am wondering what the heck these little things could be if I am not really sick. If you can't help me could you kindly forward these critters to whomever might have a clue? I was hesitant to mail this stuff but judging by the pace this thing is being investigated I feel sure it is not contagious or the CDC would have a handle on it by now. P.S. Just in case you have a need for it you can find help and tips on coping with DOP/Morgellon's at: lymebusters.proboards39.com/index.cgi?board=rashLooking Forward To Hearing From You, Karen from Michigan
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Post by chaosonline on Nov 17, 2007 22:49:31 GMT -5
You know Niels I have been getting Google Lyme & Morgellons alerts and Bay area emails about this for a long time. I tried to jump in and help you but could not understand the wikipedia posting methods. I was completely out of my league and was totally overwhelmed.
I know you have been putting up a ferocious battle for all of us and I want you to know that I can just imagine the long hard hours of work you are putting into this and well...THANK YOU SO MUCH!!! I did manage to vote! Karen from Michigan
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Post by chaosonline on Nov 16, 2007 18:53:29 GMT -5
Hi llm9180 and welcome,
In the fall of 2004 I was bitten by a tick. It was in my left ear and no one believed I had something in my ear. I had dozens of people look into my ear; family , friends and doctors, and they all said they couldn't see anything. I could feel it though. Then about 3 weeks later after a shower and Qtip swipe, there it was on the end of the Qtip! A few weeks later I came down with a serious case of Bells Palsy that lasted for 5+ months.
Now I know I have Lyme and Morgellons and both of my ears have been a source of problems for me. I suffered a painful rupture of my left ear about 2 months ago, within just a few hours of starting a new antibiotic! Both ears feel like something is still moving around in them and drive me crazy. I have tried peroxide but even at half strength I think it dries out my eardrum and exacerbates the itching.
The things that have helped me the most is definitely Doxycycline (can't walk without it) and bleach baths. I do occasionally submerge my head in the bleach bath but again I'm sure it dries out the ear canal. I am just starting an antibiotic eardrop today so I'll let you know about that. I have tried many different things and a heating pad directly on the ear is one. It does do something because I hear odd chipping noises and have pain when I use it.
The spirochete of Lyme Disease hates the heat and will make you miserable if you heat up your body. It flourishes in cooler temperatures. Sometimes when I'm in a fighting mood I put heating pads on the bottom of my feet, my ears and my knees until I am herxing so bad I can''t stand it anymore.
Karen from Michigan
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Post by chaosonline on Nov 17, 2007 22:50:51 GMT -5
I'm all for that grady.
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Post by chaosonline on Nov 17, 2007 19:08:52 GMT -5
The truth is what we believe as individuals is immaterial. The science behind our beliefs is what counts and is sorely lacking with Morgellon's. There is no excuse for this after the length of time the first alerts went out. The amount of research done to date is so limited it is what drives us to conspiracy theories.
Yes, this is probably not highly contagious all of the time....but what if....are you willing to take that chance with your loved ones?
We can agree, disagree, beat our heads against a wall but it appears no hard answers are headed our way anytime soon.
Yes classyKaren support meetings sounds like a good idea but as you an see many, even us Morgies, would be apprehensive of a room full of us. Where would we meet, in a classroom at a local elementary school?
This is a very different situation than AA or OA, think along the lines of a support group for lepers and even they probably wouldn't be afraid to congregate with one another!
When I first became aware that I had Morgellon's I wouldn't have ever thought anyone would go the suicide route but I have shared a lot with others here that haven't been as fortunate as I. Some losing their homes, their marriages, their children being removed from them, forced institutionalizations and on and on. No suicide is not an answer but these awful things won't stop until answers are forthcoming.
Karen from Michigan
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Post by chaosonline on Nov 16, 2007 16:44:09 GMT -5
You GO toni,
Please start a new thread with when you get your new pictures so we don't miss them!!!!!
Karen from Michigan
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Post by chaosonline on Nov 12, 2007 22:51:24 GMT -5
When I first read that the bite of a tick opens that blood-brain barrier for a full 10 days I started to look for anything that could open, not just cross, the blood-brain barrier so the antibiotics could do their thing in there. In desperation I even considered subjecting myself to another tick bite then cramming myself with Doxy, Flagyl and vitamin C.
I still wonder why no one seems to be researching tick saliva for this purpose. The ability of the ticks saliva to open the blood-brain barrier is probably a plum island enhancement!
Anyhow, my sister (known here as lilsissy) said I should tell everyone to start the antibiotics for at least 48 hours prior to trying this so that you begin to clear any infections from your system prior to opening the blood brain barrier. I would also think twice about using anti-parasite meds during this period.
Notice that the Barrier is only open for about one-half hour so it only makes sense to take the Mannitol (or your sugar of choice) when your antibiotic is at it's peak. I take the Doxy 100 mg - 2X per day so if I take the mannitol twice that would give me an hour of brain meds each day.
Notice that the above patent states that this sugar blood brain opener can be used for brain damage; stroke; spinal cord injury; autism; hair growth; Alzheimer Disease; Huntington's Disease; muscular dystrophy ; Lou Gehrig's disease; cerebral palsy; incontinence; heart muscle disorders; lung cancers; poor memory; stress, headache; stuttering; treatment of pain; hypertension; cardiac arrhythmias; Parkinson's Disease ; pre-menstrual syndrome (PMS) etc. But no mention of Lyme Disease. I wonder why since it is an obvious possible Lyme treatment.
It has always seemed odd to me that since the Lyme and Morgellon's I experience nausea just thinking about sweets. I even quite coca cola which I was totally addicted to. I only crave protein. Go figure....I am even more surprised that I haven't lost any weight at all due to this! Now I can only drink bottled water and sometimes a squeeze of lemon.
Prevenge, what you posted about Aspertame has peaked my interest. I have to read more about it.
Karen from Michigan
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Post by chaosonline on Nov 11, 2007 15:41:13 GMT -5
Caution, I'm not in the medical field and this is given only as information for those of you that suffer from headaches, brain fog, etc.. Anyone with diabetes would probably not benefit from the following info. Chronic/late stage Lyme Disease involving the brain can't be successfully treated unless the blood-brain barrier is opened to allow medication such as doxycycline to pass through the blood-brain barrier thus effectively killing the brain embedded spirochetes. Here is important information on how we can accomplish this using safe natural substances such as sugars like Mannitol. METHOD FOR OPENING THE BLOOD-BRAIN BARRIER tinyurl.com/26jxq4 METHOD FOR OPENING THE BLOOD-BRAIN BARRIER www.wipo.int/pctdb/en/wo.jsp?wo=2002003848 Mannitol : www.aonevitamins.com/powdered_vitamins_powdered_vitamins_mannitol.htmKaren from Michigan
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Post by chaosonline on Nov 11, 2007 15:29:38 GMT -5
kmarie,
WOW, unbelievable. What an awful creature. I know that many of our morgies continue to grow even after being immersed in rubbing alcohol for months because I have actually witnessed this for myself. But this creature is particularly unsettling. Those spikes have to cause pain. I hope this creature can be studied by a competent researcher.
Great job Sidney and kmarie.
Karen from Michigan
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Post by chaosonline on Nov 11, 2007 15:47:22 GMT -5
Happy Happy Birthday Josej. Is that double chocolate cake I smell? Yum...Yum...Yum!!! Hurry up and make your wish. Karen from Michigan
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Post by chaosonline on Nov 12, 2007 22:58:40 GMT -5
Oh, just about anywhere. It is released naturally by your body just prior to your falling asleep. The lack of it is probably part of the reason we have insomnia. That and the fact that Lyme spirochetes become active at about 11 PM and continue to crank up the party until about 5AM!
Your local pharmacy probably has it. I know CVS and Walgreen's does. If you watch you can get 2 for 1 sales about 2 times every year.
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Post by chaosonline on Nov 12, 2007 21:47:08 GMT -5
Just to mention Melatonin.
I read somewhere that in Lyme Disease Melatonin is totally depleted within days of the tick bite. It seems the spirochetes just love the stuff! Three weeks ago I started taking it and have taken it every night religiously. I am amazed at my energy levels. I noticed an improvement in about 7 days or so. I am back to preparing meals and have actually been able to drive my granddaughter to school since last Monday.
Now if the pain in my knees would go away I could accomplish much more with this newfound energy.
Karen from Michigan
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