Been around a while
Guest
|
Post by Been around a while on Aug 21, 2005 16:27:38 GMT -5
Have read many posts by people who've had the skin disease you call Morgellons, or Elliot's Disease or USP, and some have had it as long as twenty years or more.
I've never read or heard of anyone dying of the skin disease itself. To say "Morgellons" or whatever it is called is a killer disease is wrong and misleading. Perhaps it's an attempt to push book sales and treatment protocol.
Show me the evidence please. Anyone out there know of one death that can be totally attributed to this disease?
Now, Lyme-----that's a whole different matter. People in wheelchairs, bedridden, unable to work, that I do believe as I knowabout it first hand.
I'm really sick of misleading statements and scare tactics.
Some citations, abstracts, whatever evidence can be provided, but be willing to provide documentation before attempting to scare people into submission.
|
|
|
Post by adapted on Aug 21, 2005 17:01:27 GMT -5
ME TOO.
|
|
|
Post by Sue on Aug 21, 2005 17:58:13 GMT -5
I'm new to this form, was going to keep my mouth shut, very hard for me to do . I spoke to Dr.S after I'd done the many weeks of Septa & Avelox and my doctor talked to him before I started this treatment, that did by the way make me feel much better but it's no cure. I've found many things that make it better, all from the good folks that have this horror. No one has found a cure as no one knows what it is. Yea OK S. Malt may be involved but I don't think that bacteria makes the morgellons. Whatever this stuff is, it comes along with many differerent bacteria's, fugus and creatures. The main culprit as I see it is the fibers, black specks, crawling, stinging feelings seem to me to be the main unknown disease and it seems to weaken us making our systems very open to other things. But who knows? Not me, not us and not the very kind Dr. S. who can't even get CDC to talk to him. Come on Jeff this man is so world known and yet CDC won't talk to or meet with him, don't you wonder? I did order his book as I hoped to learn something new about this horror. As I read through this "office made" little booklet I saw us, yep US. It's as if the things we've discovered on our own was copied word for word by the good doctor. I was very disapointed by this. I spell really bad as some of us do, no harm there. But when you buy a book for 24.95 it should have been proof read and have a publisher, right? I talked to Dr. S a month before his started selling this. He faxed his notes he had about this disease to me because my son has brain cancer along with this horror and he wanted me to have what he'd learned to date to take to my son's doctor. It was the very same info he put in his little booklet. When I'd talked to him on the phone I told him I'd coughed up a fully formed Springtail last year. He said he'd never heared of anyone having that insect but had indeed heard that people have insects growing, breeding, living on us, humans. Well a few mins. later he faxes his notes that have a whole paragraph about people with this disease finding Collembola on their bodies. Come on the very first day I looked up Springtails I found the proper name was Collembola, did he miss that, no because he never looked it up or studied it. He wrote about Collembola because he heard it from us and thats as much as he knows, what we know and WE ALL KNOW WE NEED RESEARCH TO FIND OUT WHAT THIS CRAP IS. So before I shut my big mouth I'll say this. He's a kind man that believes us and I give him my thumbs up for that. Most doctors today (as we all know) are real fast to call us DOP if it means finding out what we have will take more that the 10 mins. they have set aside for us. They know something's very wrong with us but are all to scared to dig in and figure this out. Insurance and malpractis (sp) insurance play a big part in how we are treated by these doctors. Ask one to hold a fiber for a min. and you'll see how damn scared they are. I know we will find the answers someday but it will come from us and our research, we'll put it together, have the answers and some doctor will rush in and take the credit. I'm feeling brain fogged today and I hope this post is not a mixed up mess. Thank you all for being here, God bless us all. Dr.S. told a dear friend of mine that he will be listing answers on his site as to what we need to do to get this out of our homes. I just can't wait to see "whats a comin" yep more of our findings in print. Really look back and you'll see that Cliff M. came up with the Sulfa will kill it before Dr. S. and yes Sulfa will kill it but, won't stop it. Mine came back with a rage when I stopped taking it. We can't stay on that drug forever, something else has to be found and it will be, so lets get busy folks. Love and good health.......................................Sue
|
|
|
Post by Dear Sue on Aug 21, 2005 19:00:44 GMT -5
Thank you for coming forward and saying it like it is.
God bless you and your son and every person who suffers this horrible affliction.
God, please grant usl the wisdom to continue to seek answers, the courage to face each morning and make it through our daily chores with faith and hope, and the desire to live our lives as best we can and to be kind to our fellow man regardless.
Thank God for each of you.
|
|