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Post by gigi22 on Aug 18, 2009 17:26:07 GMT -5
Thank you, Bannanny! I totally didn't know if I would see any effect whatsoever. There was a previous poster in another thread that said nothing significant happened, so I didn't have any expectations. Imagine my surprise when my skin reacted. I feel for all of you. It breaks my heart to hear the stories. I have been in very ill health since Feb of this year, and I'm still trying to get to the bottom of all of it. Although my symptoms did not start out as Morgellons, that's where I ended up.. and even before the M symptoms started, the medical community has been a real huge disappointment. I partially blame them for the mess I'm in. They left me with a systematic candida infection with all of the antibiotics they gave me... and even when I finally put two and two together and told the docs I believed I had a candida infection, they wouldn't believe me. I had candida so bad that I could not even drink 1 sip of lemon water without feeling a die-off reaction from yeast. How miserable. Thank goodness for the internet. All throughout my ordeal, I have been researching like crazy, and many of my searches led me to morgellons. The thought terrified me... but when I first saw those black specks appear.. I knew what I had... so I joined the forums out there and tried my best to start treating right away... (after a lot of crying of course...).. I was already seeing an ND for the yeast problem, and she is now helping me with M... but I need to find out if I have any other underlying problems (like lyme). I finally dragged myself back to my family doctor, and he gave me a referral to an osteopath. I can't get in until October! So, in the meantime, I'm sticking with treating the skin and the internals and the environment. I've been doing all of the right things (diet, supplements, detox, etc), and I have improved tremendously, but how does anyone get enough sleep??  This is what is killing me right now. The barley application now adds another hour an half + to my nighttime routine. ugh! I almost fell asleep in the bathtub last night ! I'll continue to use the barley and I will report back. |
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Post by bannanny on Aug 18, 2009 21:02:53 GMT -5
I'm so happy to hear you're improving... and I know, it sure takes alot out of ya! I sleep more than anything else anymore... sleep and type, that about sums up my morgiefied life! But if I didn't have these guys who knows where I'd be... 6 ft. under I imagine. They're my lifeline and I love every one of the dorks!
Don't go fallin asleep in the tub silly... these guys can swim thru anything anyway!
hugs ~~ bannanny
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jo
Junior Member
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Post by jo on Aug 19, 2009 17:59:56 GMT -5
MDR Member 'Plantain' wrote about green bananas containing chitinase which he was getting relief rubbing it on a lesion.
Green bananas are reported to be good for the colon and Nick just mentioned it could be good for digestive system.
Jo
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Post by fritolay66 on Aug 19, 2009 18:50:34 GMT -5
Nick, I have some questions if I may. In going to the Home brewery in my neighborhood, I found I did not have the necessary information in which to attain my goal of Barley. They had never heard of the GR-18 strain, and surmissed it was an experimental crop.  Anywho, I proceeded to ask for their lightest in color, un-roasted, unadulterated Barley they had. It was brought to my attention that most unprocessed Barley is only sold through organic suppliers such as ACME or perhaps whole foods. All Barley used in brewing has been kilned or malted, same thing I guess. But it is heat, and I thought the purpose of unprocessed (meaning heat) is so that the enzymes present in the Barley grain are not compromised or destroyed. I did see the statement in one of your posts concerning some strains of Barley having varying amounts of enzymes available, sooo am I then to equate that with the malting process associated with the different types? I acquired the Harrington type of Barley, and I did go ahead and choose to have it milled. Have I got the right stuff? Also, how long has it been since you have done this and are still dermatosymptomless....hehe, yes I know, not really a word. Additionally, your directions to use it weekly. Does this mean you are still doing this weekly and if not, how many weeks for your own resolution. What did you experience in those weeks? Lessoning, more redness, increases in rashes, or decreases, you know. Thank you for your assistance....Frito |
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Post by gigi22 on Aug 20, 2009 0:57:58 GMT -5
Hey Frito ...
I just wanted to let you know that the barley I got was a malted pale ale. It *did* seem to work... maybe if I had a more unprocessed form, it would be an even stronger reaction.
I feel like it is working... I just don't know how long this process will take. The last time I went to the brewery store, I got an organic pale ale, just to see how it compared.
Did you try your barley yet?
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Post by fritolay66 on Aug 20, 2009 8:10:53 GMT -5
Hi Gigi I am happy it seems to be working for you. The type I settled for was a very light, almost white colored, malted Harrington Barley. I have no lesions anymore, but I had some hypopigmented scarring that I was thinking may be complicated by fungal infection. One of my original diagnoses was tinea versicolor. I made a very small quantity last night and did not experience anything like, redness or stinging, except for a tiny spot on my left hand. Keep everyone posted as to how things transpire with your treatments, it will be helpful to all. I did a look see for some information since Nick had not gotten back here. It coincides with what they taught me at the home brewery store I went to. Malting is kilning, and as I suspected, different strains are kilned at varying temperatures and total kiln times. So, yes, the statement of varying degrees of available enzymes from differing strains of Barley would very much have something to do with their type and their associated kiln process. Kilning is malting.
A malting is a process in which the Barley is germinated and then the process is halted by kilning. They do this because at a certain point, the germination of the Barley results in the enzymes produced by this process to be used at a faster rate. They don't want this to occur, because it is the enzyme reactions in brewing the beer in which give it its color and taste.
So with this information, then one would want pure grain and not malted. (But may not, because pure grain does not have the modified gene, and may not produce the enzymes needed?) I am going to work with it again in a few days when I have time.Nick, I also found that most Barley is GMO. And part of the genetic manipulation is the addition of a gene from Trichoderma in which assists the Barley from resisting root fungus. I have also found the same thing for rice and corn in which they have added this as well. So organic wouldn't be the way to go, because the unadulterated grain would then not possess the ability to make chitinase? Thanks and have a good day. Frito |
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jo
Junior Member
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Post by jo on Aug 20, 2009 11:52:08 GMT -5
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Post by gigi22 on Aug 20, 2009 11:55:43 GMT -5
Frito ... Nick is unable to post here any longer, but he can answer your questions here: www.morgellons-disease-research.com/Morgellons-Message-Board/morgellons-treatment/5561-chitin-right-treatment-successful-read-3.htmlI will continue to update with how my treatments go. I have candida, so I had already been fighting that before my M symptoms came to play. All of the things I was doing internally for candida (like diet, detox, and supplements) helped with M.. Most of my internal symptoms are gone and am left with the skin issues. I am not able to go back to a regular diet yet because of the candida, but I have been adding back some foods successfully. |
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Post by toni on Aug 20, 2009 12:10:28 GMT -5
Jo...how funny (same same with the bananas). I've squished/squashed/mashed/whipped (bananas) too, all parts of them (from skin and insides of skin and banana) to yellow to green bananas). They do pose alot of internal benefits, so after all my trials months ago with them, I think I'm sticking with eating them only. |
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Post by gigi22 on Aug 20, 2009 12:21:19 GMT -5
Frito -
Interesting point about the GMO thing and chitinase. I will eventually try the organic blend and report back, but for now, will stick to what is working....
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Post by fritolay66 on Aug 21, 2009 7:08:36 GMT -5
Gigi..... Hold on, I had originally intended to do the experiment as per his directions. I did not do the recipe as he suggested, a blender would wake up the entire complex here. I am only around at odd hours, especially from thursday to sunday. I have a story without an ending. I told you I had tried it and did not experience the things he described. I went ahead and did several applications over the last twenty four with the same batch. Undeniably, there is something happening. I had one of my scars peel off and the pores of my face are incredibly smaller. I had white "milia" type bumps around the edges of my eyes. I applied it and left it for the night, and woke up with my eyes glued shut. In scrubbing mildy, those white bumps are now gone. I was thinking that perhaps I didn't go through the stinging because I have been treating fungus so hard for so long. I just "felt" I was never attaining the final resolution I was seeking. The picture of Ruth's face in her avatar. That is what mine looked like at one time but add horrible lesions. To get from that point to where I was last week took me two years. Anywho, I just wanted to let you or anyone else know, that even though I hadn't experienced what you both described, it may not mean it isn't doing something for me. We shall see. Will update on sunday, I will be working my tail off this weekend again. Frito |
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jo
Junior Member
Posts: 94
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Post by jo on Aug 21, 2009 7:43:59 GMT -5
For me it feels like glue that's drawing out moisture.
No allergic reaction, but slight kidney ache and no itching. It's drying up my lesions, which is good. When I put clothes back on, the dried mixture catches on the cloth, giving pin prick sensations.
Jo xxx
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Post by gigi22 on Aug 21, 2009 9:49:02 GMT -5
Frito - How great!!!! As time goes on, the stinging has died way down. In fact, I don't think I feel it anymore... just sometimes somewhat of a deep itch. Did my 6th treatment last night. I try to rub in the barley hard on the first application, then apply a larger amount to dry on the skin. There are still quite a number of red areas - I am realizing my face and neck are also infected. I think my problem is that my hands are/were severely infected, and I have a habit of resting my face and neck on my hands.. big mistake! I'm trying to be more careful and am even wearing latex gloves to bed after applying some lotion to my hands. I try to use minimal water.. I use just enough to barely cover the barley when I am soaking, and sometimes have to add a teensy bit more because the barely will soak it up. If I use minimal water, its harder to squeeze the water out of it, but the paste will be much thicker and easier to apply... I made it too watery a few nights ago and it would not stick well to the skin. I am fighting this hard! Keep the updates coming |
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Post by toni on Aug 21, 2009 10:16:37 GMT -5
Just a thought as I understand the potential benefits of this too (the barley). Just thinkin outloud again.  If you mixed a tad of topical glycerin with the (barley paste) you could actually keep it packed onto a lesion without the barley turning to a solid (concrete) like texture when it dries. That way, possibly the barley paste won't have to be removed for awhile, because the glycerin can keep it hydrated without it drying out. |
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Post by imblownaway on Aug 21, 2009 15:26:02 GMT -5
I am going to keep trying it. The concentration really makes a difference. Excatly what its doin Im not sure but it sure itches.  most products i put on don't make me itch like this. |
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Post by fritolay66 on Aug 23, 2009 10:53:06 GMT -5
Hi Gigi and IBA!!!
Thank you for the message jo, I was a member at one time, so I still have to see if I am active or not in order to converse with him on my questions. I was going to try to today sometime.
Toni, that was a good suggestion, but Gigi and IBA, I have been doing the mix differently in a couple of ways, and am thus far not unpleased by the results I am also seeing.
From what I understand, in warmth, the germination process will continue. Similar to our grass lawns we are all familiar with. The lawn grows with moisture and warmth. The germination process is important in producing the enzymes that we are seeking. So when I add water, it is warm water and I let my Barley sit for an hour. I learned from the home brewery that you can speed up the germination process this way. I don't have four hours in which to babysit this process or to come back to when the time is right.
Then I do the blender and strain and squeeze through the cheesecloth thing. I am left with cloudy water, and in the cheesecloth, a paste in which separates from the Barley and that you can peel out of the creases. I take this paste and put it back into the cloudy water. Then I refrigerate it to stop the enzymatic process. You will inevitably get a few grains of barley, and I use some of them as a scrub/exfoliation type of thing, but you can further strain it down for a creamier watery type of paste.
It is this watery paste that I have been using, and as long as you allow it to dry, (a couple of minutes), then you will have a film over your skin. I wanted watery, because my skin absorbs water, and my thoughts were to use it as a sort of delivery vehicle in order to penetrate the skin rather than put something on top of it. Once the skin absorbs the water, I am left with a paste on my skin. I call this masking. And I sleep in this mask.
Storing this watery paste in the refrigerator. When I seem to apply this to my skin, the warmth of the skin should then initiate the enzymes. The refrigerator storage would then retard the enzymes from reacting, and thus breaking down. Same principal as with some of the probiotics we buy. I keep the stray Barley particles in it to get all the enzymatic action out of it that I can.
I had one area on my hand that got angry for about a day and although the area is still red, I wouldn't know it was there anymore. I also had my nose do some weird peeling. My nose, an area in which I don't seem to have a problem with. The pores on it are definitely shrinking, and I am pleased with its appearance.
What is going on with your threes experiences? Anything similar?
Frito
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Post by toni on Aug 23, 2009 11:31:03 GMT -5
Frito, Frito said: The lawn grows with moisture and warmth. The germination process is important in producing the enzymes that we are seeking.I understand and can appreciate however you're doing the barley. But just to help you out, ( Glycerin ) does have a chemical "reaction of slight heat/warmth when it's applied topically too". Maybe the "warmth hydrating factor can be accomplished"? So ((( and this is ONLY just me thinking outloud to try and help))) but "between the hydrated barley and warmth that the glycerin will create...who knows? I think you'll like it.  |
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Post by ruth on Aug 23, 2009 13:01:38 GMT -5
i have barley soaking now.
i'll do some with the glycerin and some without.
i pray all this pseudo skin just sloughs off!
i will omit my face for now as it is very infected
i'll do my arms and legs just in case it gets ugly.
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Post by fritolay66 on Aug 23, 2009 13:09:09 GMT -5
Oh Toni, I so like you, and yes, at your heavy hinting I will surely try it! Thank you for helping. Your help is always welcome as far as I am concerned.  Ruth, I am so excited to see what happens for you. I was thinking the same way as you, I would try other places before my face since it was so fungally a problem. Your avatar skin picture looks like my skin. I am very interested in what you experience if you don't mind. Gigi, IBA, and jo, I just posted at the links you gave me, so I will check back later tonight. Frito |
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Post by ruth on Aug 23, 2009 17:09:19 GMT -5
i got the wrong barley. it is pearl barley.
sitting here with the full body mask on.........
i decided to look up what pearl barley is.
it is the bran and hull removed.
even at that, i had the chills for the first hour
i've had the paste on. i had to crank up the
bathroom heat, then went out to mow the lawn
to try to get warm.
i had lots of clear fibers out with lots of crawling.
as it dries my skin looks like an alligator
i couldn't find a beer making store (yellow pages).
i'll try the healthfood store for unprocessed barley
tomorrow. sure is messy!
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This is what is killing me right now. The barley application now adds another hour an half + to my nighttime routine. ugh! I almost fell asleep in the bathtub last night ! 
Anywho, I proceeded to ask for their lightest in color, un-roasted, unadulterated Barley they had. It was brought to my attention that most unprocessed Barley is only sold through organic suppliers such as ACME or perhaps whole foods. All Barley used in brewing has been kilned or malted, same thing I guess. But it is heat, and I thought the purpose of unprocessed (meaning heat) is so that the enzymes present in the Barley grain are not compromised or destroyed. I did see the statement in one of your posts concerning some strains of Barley having varying amounts of enzymes available, sooo am I then to equate that with the malting process associated with the different types?
