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Post by glennb on Dec 11, 2009 19:47:30 GMT -5
I recently went to the emergency room because I wasn't feeling well and because of the breathing attacks I have been having. Found out my blood pressure was 215/120. I was checked into the hospital.
The doctors suspected I might have a blood clot in my lungs that was intermittently cutting off the blood supply to my lungs so among other tests they also did a cat scan of my chest area. They did not find a blood clot but they did find a suspicious mass that will be followed up by my primary care doctor. I didn't know about the mass in my chest but I have also developed a huge swelling about the size of a lemon where my left leg meets the groin area. Probably a lymph node? I think those with Lyme/Morgellons have so much crap in the blood from fibers, parasites, fungal infections, silicon, self replicating nano machines etc. that it is a wonder all of our lymph nodes don't blow up from the strain of having to deal with so much toxic debris.
I am anxiously awaiting my next doctors appointment and hopefully will find out what these lumps are.
Time to get my Rife Machine fixed.
What experiences have others on this board had with strange lumps or hugely swollen lymph nodes? Outcomes? Treatments?
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Post by Sidney on Dec 11, 2009 22:17:46 GMT -5
I've had no experience in those area, but I hope your primary care physician gets on top of this immediately, and I wish you the very best.
In the meantime we will all be thinking positive and healing thoughts for you.
So very sorry to hear this.
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Post by ctbarb on Dec 11, 2009 23:45:38 GMT -5
Dear GlennB,
So sorry about this new development, but don't let them stall you on this...it needs to be checked out thoroughly as soon as possible.
If you haven't read about my "Sleeping Giant" please check it out. There are now 5 of us experiencing this type of growth in our chests. None of us have a dx as yet, but Chaosonline was in the hospital with one of these growths...they still don't know what it is.
Mine is still active and producing it's nastiness on a weekly basis now. So, please do check it out and let us know what they find. Good luck and my prayers are certainly with you!
Best regards,
Barb
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Post by friskers on Dec 12, 2009 1:23:32 GMT -5
Sorry to hear this Glenn and hope your feeling better .Its always so hard to wait for results or diagnosis . I hope it comes soon and isnt anything too serious. When is your next dr appoinment? i hope your well enough and can still enjoy the holidays some
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Post by cyn on Dec 12, 2009 4:47:05 GMT -5
Hi Glenn,
I have a couple lemon sized swellings that are soft like they are filled with silicon/slime/fungi etc. But these are on either side of the base of the neck.
Most lymph nodes are swollen and feel like they are under pressure, but not as large as yours.
I do hope your physician refers you immediately to a surgeon who can remove the mass.
As CTBarb stated we are awaiting Karens news on her chest mass, hopefully this one will be removed also. Her surgeons actually had the mass in hand and figured it was something else. I am one of the five who have something clamping onto the heart, possibly the aorta.
I'm real surprised the Scan showed your mass. Isn't this the first time it has been seen on any test?
I feel this is the only way we will make progress with doctors. Once they start removing all these strange masses, they will no longer be able to say DOP.
My BP remains elevated although I take meds for it. This I think is due to the Morgs using our blood. There has to come a point where we have nothing but Morg replicated blood in us. Transfusions here we come.
Is your mass on the left side of your heart, where the oxygen rich blood is passed?
Please keep us up to date on your progress, and I do hope they can atleast keep you comfortable until answers are found.
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Post by mfromcanada on Dec 12, 2009 20:05:42 GMT -5
glennb, Sorry to hear about this futher worry. I have swellings behind both knees and around one knee easily the size of a lemon. Doctor just told me bakers cysts. I have lumpy armpits from time to time that itch like crazy. I think we have morgellons gel thickening our blood. I am going to get a kidney checked. Please keep us posted and I hope they find out what you have.
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Post by glennb on Dec 12, 2009 21:09:32 GMT -5
Oh my goodness! I had no idea others are also having chest masses! What are you symptoms? If I stand up and start walking too quickly it sets off a breathing attack, find myself gasping for air, like blood is not getting to my lungs. Usually have to lay down on the ground or else I risk fainting. I am very short of breath these days in general, even getting out of breath sometimes while getting dressed.
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Post by glennb on Dec 12, 2009 21:10:38 GMT -5
CTbarb, when you mention that yours is active and still producing it's nastiness what do you mean?
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Post by mfromcanada on Dec 13, 2009 0:37:43 GMT -5
glennb, when I tried the nutrasilver, I noticed a huge improvement in my breathing.
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Post by kammy on Dec 15, 2009 9:31:30 GMT -5
Glenn, I'm sorry you're having these problems. Yes, please keep us posted as there are several of us with chest/lung pain.
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Post by ctbarb on Dec 15, 2009 20:11:49 GMT -5
GlennB,
When the 'Sleeping Giant' is active it produces these black balls, that look like large Calamata olives...in my stool. Read my thread about the Calamata Olive-like organisms...it will explain it in detail.
This mass inside of me, does not show on any imaging test. Nothing, but they can feel it, see it, it sticks up about 1/2" from my body and is about 6-8 inches long. Right now, it is in a relaxed state, not moving, and you can't tell it's there...it's moved down a bit to just under the bottom end of the liver area. Yes, it can and does change location! But it seems to stay on the right side, or pops out between my breasts.
Let me know if you have other questions after reading the earlier thread.
Try to relax, I know this is difficult for us, but when I get excited, so does 'it'! So I try to keep as calm as possible...and that's a real problem....
Best,
Barb
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Post by massena on Dec 15, 2009 20:43:21 GMT -5
Hi Glenn,
My dad had morgellens and his last year was pretty stressful with the death of my sister and his wife .He caught a cold and it wouldn't go away so the doctors put him on antiboties. That didn't seen to work but the whole time he was having a hard time breathing. They flew him to a larger hospital only to find out he had cancer. His mass was on the outside of his left lung and it was growing . That made it hard for him to take in a good breath because the mass was blocking his lung from expanding. Anyway he refused treatment and passed away about a month later. I know this isn't much help but I think you must take care of your problem ASAP. I'm so sorry this is happening to you and I hope you get the right help . You will be in my prayers. massena
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Post by 22122agin on Dec 17, 2009 21:58:34 GMT -5
If it is a lymph node, well maybe the Rife would help. Also I have thick blood and I remembered you had those symtoms too from early posts I had with you years ago. I am on heparin injections, a low amount once a day and it keeps the blood flowing and not getting jammed up or anything. If I slack off, their is weight gain and shortness of breath, some edema. I got my frequency generator fixed by sending it off to the manufacturer. Don't know what brand Rife you have but they sent me a new one rather than fix mine. Also some new ones out there. Maybe get in touch with Dr. Loyd. Best to you. (forgot to say I also use Nattokinase and lumbokinase- really important to keep the blood flowing and not to get clots) 22122
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Post by glennb on Dec 18, 2009 3:46:56 GMT -5
My doctor called today to let me know the mass is sitting above a lung and behind a bone. Difficult to get to. She said it is 3 centimeters. It needs to be larger before they would take it out. I go back for a cat scan in three months. She had more immediate concern for the lump that is where my leg meets my groin. She wants a biopsy on that asap and I will be making an appointment with a surgeon tomorrow.
I asked her if she had ever had a morgellons patient before and she said no. I still have an active area on my back. She looked at it and much to her credit when she called today she mentioned that she had researched morgellons online and thought my back lesion looked just like the morg things she had seen online.
I like this new doctor. She is open minded and very smart. It was refreshing to have a doc tor who didn't doubt what I told her concerning my skin problems and parasites, etc.
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Post by mfromcanada on Dec 18, 2009 12:04:28 GMT -5
glennb, sounds like she is a great doctor. I hope the lump gets removed soon and is benign.
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Post by glennb on Dec 18, 2009 22:31:39 GMT -5
ctbarb,
If that thing is moving around and can be seen protruding under the skin why don't the doctors take it out? That thing sounds like it is so big it could bite into an aorta or take a chunk out of your lungs or bore into your liver. (I'm sure you have already considered this) but why don't they take the damn thing out?
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Post by glennb on Dec 18, 2009 22:32:48 GMT -5
How big do you think it is? This is one of the things I worry about is just how big can these things that we have inside of us get?
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Post by ctbarb on Dec 19, 2009 23:22:43 GMT -5
Dear Glenn, So sorry you are having these issues, but removal of that growth in your groin sounds like a good idea, especially if it is close to the femoral artery. My growth or whatever it is, was measured one night with a tape measure...of course we don't know if it was full length or not, because of the twisting nature of it, but it was 8" long and about 2-3" wide, with deep twisting rivulets...much like a rope, a large piece of rope, but that's the closest thing I can think of to describe it. You can actually feel the little nodules along the surface (or cysts/tumors if you will) and there are many. Sometimes there are very sharp pointed objects (much like the fin of a fish) that stick up and you can feel them and see the points against the skin. It is moving right now and getting ready for an attack of the black balls! There is considerable movement, alot of noise and grumbling, and I can feel movement of something falling through the intestines and hear them as they make their way toward the bottom! Very strange sounding, but everyone else can hear them too! It's not something only I can hear, or feel, two other people here right now, have clearly heard it, and felt the movement in my abdomen! Glenn, the sad thing is about removing it, is that they can't see it to remove it! I had the open lung biopsy to see if they could even get a sample of whatever it is, and nothing showed. Just Interstitial Lung Disease. But, the ultra sonographers and my PCP all felt it and saw it through the skin! They are baffled as to why it won't show up on the scans and various image techniques. As in Karen's case, they actually saw hers inside of her before they closed her back up following the gallbladder surgery. However, from what I understand, when they did the CTScan and MRI, nothing showed! Now they KNOW it's there...they SAW it...and yet it disappeared? NO! It's there alright, and covered with tumors and cysts, if the tissue is normal tissue, it should show up bright and clear, but what if it isn't "normal" tissue? Does that make it NOT able to be seen? Is there some sort of covering that is reflecting the imagery? Is there a coating that makes it 'invisible' in these instances? Very confounding. But, for Karen, thankfully they actually viewed it inside of her...and the ultrasound with contrast for the needle biopsy enabled them to see it. From what I understand about this, it can attack any organ in the body, or tissue, like in my case. But there are 3-4 other females with this same type of growth, in the same area. Is it just the breast area for females, and the groin area for males? This would be interesting to ascertain. Finding out also if there are hormones involved would be good to know too...along with everything else they can find out about it. Ask them to do a thorough pathology of the growth and report back to you. This could be an important finding, as with Karen's...removal of her pancreas. My prayers and thoughts are with you both and everyone else who is suffering from these issues...especially at this time of year when we are supposed to be enjoying our families and friends during the holidays. Like most of us, we tend to protect our family and friends in case of contagiousness, and we don't even know if we are! Those in the "know" certainly do know if we are or aren't, and are letting us continue to live without our families, because WE have a conscience, and THEY DON'T!!! God Bless You All, and may you celebrate the holidays in the very best way that you can. Love, Barb
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Post by bannanny on Dec 21, 2009 18:17:03 GMT -5
Oh why oh why is this happening to all of us? I'm so sorry glennb... I'm praying for you as that's all I know to do right now. I'm praying that your doctor is also guided by the hand of God... at least she sounds compassionate and caring. That's a very important thing and has so much to do with our healing.
As far as this mess being invisible... I know for a fact that at times (with some of it) it takes one specific angle and it being hit with the proper beam of sunlight in order to bring it into view. I've seen it happen and then just disappear completely when I shifted the angle or light that was hitting it... it can also be just like a chameleon too.
God bless you glennb... and let us know of any information or diagnosis they might give you ok?
hugs ~~ bannanny
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Post by glennb on Dec 21, 2009 23:04:31 GMT -5
ctbarb,
I think that if they can palpate the thing and feel it they should darn well take it out cause obviously something is there that should not be there and could be very dangerous to leave in the body. Can you insist that it be removed?
You could try to kill it with Hulda Clarkes Coq10 therapy for parasites. This treatment is not known to have harmful effects of any kind. Google it or as I remember it involves taking 5,000 mg of Coq10.
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