|
Post by itchin4answers on Jun 19, 2011 18:25:27 GMT -5
Hello Ladies,
I wanted to start this thread as I feel a lot of us have a great deal in common with the "down below at the front" - vagina.
I recall my first episode of vaginal thrush at age 7yrs - this continued on and on into my teens. When I married my first husband at 19yrs I was constantly getting episodes of thrush, more than twice a year. I would always get vaginal thrush after a course of antibiotics & when I met & married my second husband my thrush became worse. My second husband obviously had something in his semen that didn't agree with me. Back in those days one needed a prescription for Canestan which was the cream of choice to treat vaginal thrush - these days you can buy it over the counter. I have tried the tablet which is $30 & supposed to knock thrush on the head immediately - doesn't with me.
I first developed herpes simplex of the lips when I was 17yrs after being on an air craft. I was plagued with them for years, they were enormous & ever so painful. I was seeing a doctor who was experimentally injecting my butt with penicillin every 3 months to reduce the size & recurrence of the cold sores. That didn't work so he decided to do it every month!
In 1998 I developed genital herpes - I had met a man after my second marriage had broken up. I wasn't aware at the time that he was a psychopath! I was drugged with Rohypnol & raped by himself & a group of his friends. How I became aware that I was drugged was that I actually "came too" during this insidious act. Unfortunately this abusive man stayed in my life for 4 years & this ritual abuse continued many times.
When I visited my GP she confirmed genital herpes, she said I was extremely lucky as I had only one little spot on the outside (being on the labia) - nothing internal - thankfully. For approx. 3 years I had to stay a maintenance low dose of anti-virals as I kept getting this one little lump coming up. The prodromal symptoms were terrible - back ache, fatigue & an overwhelming feeling of not feeling right. Over time this lump moved from my labia to the top of my butt crack. My sister (who is an RN) examined this lump at the top of my butt crack & really wasn't sure what it was, though her initial thought was herpes. I saw a doctor at a Melbourne Hospital that I was working for at the time. He explained to me that the herpes virus travels through the nervous system. He said that it had moved from my labia to my butt crack. Since the year 2000 I haven't had an outbreak & ceased the maintenance dose of low dose anti-virals.
When Morgellons symptoms took a hold on me in 2003-2004 I had tried many alternative therapies, one being lymphatic drainage. I had a book on how to perform lymphatic drainage on ones self. I will never forget the event as long as I live. I was trying to clear the lymph glands in my face & neck, much to my horror I saw these black things move under my skin - run down my chest, through my breasts & right down to my vagina. They felt & looked like black thorns sticking out. The pain in my breasts was bad enough, but the worst & most tormenting was the thorns in my labia & most of the outer of my vagina. My vagina felt like it was full of broken pieces of glass, then blue fuzz appeared - I was in a right mess. The only person I could talk to about this was my mum. Of course she didn't know what to say as she had never heard of anything so bizarre.
No doubt, like others I would spend hours up hours in the bath in the hope of the thorns & blue fuzz coming out of my breasts & vagina. Seemed the more I tried to get rid of them the more this thing would fight back at me, resulting in big welts appearing.
In 2005-2006 when I was being treated for Rickettsia spotted fever group I had the worse vaginal symptoms I had ever known. I was on antipsychotics & antidepressants at the time, I was like a Zombie. I couldn't understand why my labia was sticking together, I must have been so infested with candida. My boundaries were so loose that I took images & gave them to my doctor!!! he didn't seem to bother & told me of some stuff to take (which I can't remember the name of). Once I ceased the antibiotics my vagina seemed to return to normal. The black thorns did go, the blue fuzz was still there. Though my breasts would hurt so bad & what looked like black pieces of rock would come out of my nipples.
In 2006 I visited a women's health specialist - one of the best in Melbourne. She knew I had suffered irritable bowel syndrome for years & decided to check my abdomen. During the consultation whilst she was feeling my abdomen I said to her that my breasts were ever so painful - she replied by saying "why is that?" - well I had no idea. I was still getting over just ceasing IV antibiotics & stopping all psychiatric medication, so I didn't know who the heck I was! Little did this "woman's health specialist" know that whilst she was pocking & prodding my abdomen to check my irritable bowel symptoms, she was actually feeling my uterus. There was in a baby in there & I was almost 23 weeks pregnant!!!
The blue fuzz & long fibers plagued my vaginal area during my pregnancy & afterwards. In March this year whilst soaking in the bath & shaving (as I like to shave the lot) I feel that's my way of keeping this whole thing "down there" under control - I had some white wire like fibers come out at the top of my labia on the left hand side - OMG they really hurt - but I had to get them out!! Couple of days later the area was still inflamed & hurt. All I could think of was maybe I was starting with a hepatic lesion - so I visited my GP I said I believed I had an outbreak of herpes. He prescribed me some anti-virals. A few days later I had to go back to the GP for something completely different, but I was dying to mention this lesion thing on my labia as I was in so much pain. My groin ached, I had nausea, I couldn't touch my groin region without hitting the roof & I couldn't stand up straight to walk. I had to bite the bullet & drop my pants & show my GP (who is a man!). I didn't feel too embarrassed as the lump was huge & he could quite easily see without having too delve so to speak. He immediately said "that is NOT a hepatic lesion, that is a blocked sweat gland". He prescribed a course of antibiotics & said if that doesn't help I'm going to have to send you to a specialist who deals with that sort of thing. Thankfully after 2 days on the antibiotics the lump burst after taking a shower, it was pus filled, totally yukky. However I felt so much relief once the pus was out. The lump took a long time to go down, however that area & the rest of my vagina is still plagued with morgs.
My sex life has now become somewhat of a memory - with the knowing of morgs down there I just don't feel sexy anymore.
itchin.
|
|
|
Post by itchin4answers on Jun 20, 2011 0:07:49 GMT -5
Hi Itchin, it's about time somebody came forth to talk about our vaginal health, it's good to see that you're so forthright and frank about what is going on. From what little bit of information I have gathered, I am thinking that most of us are having some sort of issues 'down there' and are just reluctant to make it public or talk about it, which is a shame because I believe that a part of the design of this terrible monster is about attacking our reproductive capabilities and/or sexual enjoyment. This disease is about a whole lot more than we let be known out here. We are under body attack in every way and our vaginal health is being totally ignored as an issue as part of this disease. (And, we have reason to believe that some of the men might also be experiencing problems?) It's late here and I have lots to share with you later... bless your heart for being so brave as to bring this up. It's ok kammy, I was comfortable to bring it up, I found it cathartic to share & I hope by my being comfortable will help others. Though this thread is titled "Girls Club" men are not excluded from joining in. I would like to encourage men to talk openly about their "down below" issues & other stuff. It's devastating - we have all been robbed, male & female of something natural - making love, feeling loved, giving love, intimacy, passion...& all those beautiful things that make us who we are - human beings. itchin
|
|
|
Post by elizabeth67 on Jun 20, 2011 6:28:51 GMT -5
Itchin, thank you for starting this thread . I had a lot of nasty things going on down there to. The fibers where in my urine and in my blood when i was menstruating. The blood that came out was abnormal. Big lumps, like i had given birth.It had an awfull odor, my urine too. My menstruation lasted for 10 days and did something with my spine. Could not walk the first two days because it was so painful. This is back to normal but there still are some small lumps in the blood. There where also tiny black fibers in it. By the time my menstruation ended, it was itching and pricking, like there where splinters, or indeed thorns in and on it. Also in and around the anus. I felt down on my knees a couple of times. A painfull nightmare. My bladder is reacting when I am menstruating. Like there is an infection going on. When my menstruation is over, my bladder turns back to normal again. Sex?? What is that, can't remember
|
|
|
Post by ibzahp on Jun 20, 2011 9:57:44 GMT -5
I had a terrible time w/morgellons fibers that were growing vaginally.Thick long fibers too, I couldn't get any help from poor peoples health clinic. If someone wants to talk w/me about this please pm me. It was really scarey, awful experience. Also had strange sores that were extremly itchy,morgs lesions i guess. Still have small fiber in that area.
|
|
|
Post by ibzahp on Jun 20, 2011 10:02:03 GMT -5
I know some of us have herpes virus 6 hpv 6. i do.
|
|
|
Post by jeany on Jun 20, 2011 14:19:48 GMT -5
'I was seeing a doctor who was experimentally injecting my butt with penicillin every 3 months to reduce the size & recurrence of the cold sores. That didn't work so he decided to do it every month' huh?...no wonder! you had frequent yeast infections itchin. And yes, ....treating a viral infection with antibiotics?..
|
|
|
Post by jeany on Jun 20, 2011 14:28:51 GMT -5
I had a terrible time w/morgellons fibers that were growing vaginally.Thick long fibers too, I couldn't get any help from poor peoples health clinic. If someone wants to talk w/me about this please pm me. It was really scarey, awful experience. Also had strange sores that were extremly itchy,morgs lesions i guess. Still have small fiber in that area. Sorry Inez you're having these problems too. Seems many female morgies have genital issues which is why I think it's a good thing to talk about it although I can imagine that some might feel reluctant to post publicly on here and prefer a more private way through pm's. Thank you Itchin for opening this thread.
|
|
|
Post by itchin4answers on Jun 20, 2011 16:34:42 GMT -5
I just noticed this part of your statement, Itchin: "I was seeing a doctor who was experimentally injecting my butt with penicillin every 3 months to reduce the size & recurrence of the cold sores. That didn't work so he decided to do it every month!" Why would a doctor think that antibiotics would help a viral situation? It's like for a period of time in America the doctors were handing us antibiotics, like candy, for everything... what would be the logic behind that - to make us antibiotic immune? to alter our immune systems? to make them weaker? Now, it's quite the opposite, you have to beg for an antibiotic... because, it seems that some of us are becoming antibiotic immune. I just have to shake my head... Not a word of a lie kammy, I was 19yrs. I have a real beef with this doctor who did this to me. After my first psych. admission in 2005 the psychiatrists phoned this doctor asking if he could take on my "case" - he said "no". Then this doctor went to the trouble to phone my mum saying "you see you don't understand, I can't treat your daughter it is too complicated & I can't help her..." This doctor is still in our lives...he was my late Grandad's treating doctor & is still treating my Grandma (who is now in a Nursing Home). I was so angry with this doctor in 2008 because of his continual prescribing of antibiotics to my Gran...he was turning her into a pill popping freak, she panicked when she ran out of them. My Gran has congestive cardiac failure. Anyway, I phoned Gran's doctor expressing my concern of his over prescribing of antibiotics, & also said I was extremely upset that he was continually ordering my parents around ie. sending them to the chemist for repeat prescriptions of antibiotics. My parents have their own issues, my dad cancer/type II diabetes, my mum her bladder problems, they are retired, but this doctor wasn't giving them much of a retirement! During that conversation I couldn't help myself, I said to him "by the way have you educated yourself yet on Morgellons?"....oh my...he flew at me like a madman down the phone yelling "I'm NOT interested!!!" Since my Gran has been in a Nursing home she has been struggling, which is only natural, she is grieving. Sadly, my Gran doesn't think the way we do & doesn't see herself as old. My family & the Nursing home all felt she was exhibiting signs of depression & could maybe benefit from an anti-depressant. As my sister said "at Gran's age it isn't going to do her any harm". Please don't get me wrong, I LOVE my Gran to pieces, but she is an incredibly difficult person, very hard to categorize! Her doctor has had her on antibiotics for going on 5 years now & do you know my Gran has never once in her life had a dose of vaginal thrush!!...how weird & lucky is that. My Gran would have to be the most cared for "lab rat" in this country...she isn't an Australian Citizen & doesn't even have a tax file number. Though this doctor is ever so interested in her? Last year he insisted on her having 2 blood transfusions because her hemoglobin was low & she was tired. Low hemoglobin IS part of the aging process. As mum said, since her last blood transfusion Gran has been so revved up, she is driving us all to despair!!! With all my mixed emotions, love for my parents, love for my Gran & not to mention medical fraud I had to write to this doctor as I felt I was the only person in our family that could do it. I've considered whether I am breaching any form of privacy, but I doubt it. The doctor received the letter a couple of weeks ago & also the Nursing home got a copy...nothing has changed, in fact the doctor is ordering MORE tests & MORE antibiotics!! Of note, my Gran is her OWN medical power of attorney... Anyway, here's the letter (personal information deleted). Dear Dr XXX, Re: XXXXX XXXX I am writing to you with regards to my Grandmother – Mrs XXXXX XXXXX. I have recently learnt that a decision was made by yourself NOT to prescribe antidepressants to my Grandmother. Apparently you phoned my mother (Mrs XXXX XXXXXXXX) saying “Mrs XXXX is very delicate, susceptible to infection and the antidepressants would numb her brain”. I once recall you telling me something of a similar nature back in 2008 when I phoned you raising my concerns about your over prescribing of antibiotics to my Gran. As far as I am aware, the staff at XXXXX XXXXX Nursing Home were also of the opinion that an antidepressant could be beneficial to my Grandmother. I believe the Nursing Home were going to seek the second opinion of another doctor, but unfortunately my Grandmother complained & was crying for you. Sadly, my Grandmother is of the unshakeable belief that “doctors” are “God” namely yourself & she only tells YOU what you want to hear. From what I can gather, YOU only tell her what YOU want her to hear. I am aware you have been my Grandmother's doctor for quite some years now. I am not a doctor myself so I can only base what I am about to say on my own observations. I cared for my Grandmother last year for over 6 months, 4 days a week. I watched her slowly deteriorate, it was horrible to witness. Though you Dr XXX kept telling her what she wanted to hear & vice versa. You Dr XXX do not know anything about my Grandmother, and for that matter you do not know anything about my family. All you have done throughout caring for my Grandmother is “order” my mother & father to go to the chemist to get pills for her, phone an ambulance if she isn't well etc etc. I can not urge to you enough to please reconsider prescribing an antidepressant to my Grandmother. The anguish & anxiety that you & my Grandmother are causing my parents yet AGAIN is unforgivable. My Grandmother is 95yrs of age, she has been kept alive by you because YOU insisted on prescribing synthetic drugs to keep her alive. Now my poor Gran wonders what her purpose is in life, thinks she is going to go home & I know for a fact that YOU have said in the past that my Gran shouldn't be in “one of those places”. What a terrible view you have on the elderly, dementia & Nursing Homes. One more thing; PLEASE don't go repeating this to my Gran, like you did in 2008 after I had called you & PLEASE do NOT phone my mother, she is under enough stress as it is. I do believe when you became a doctor you took the Hippocratic Oath – swearing to practice medicine ethically, I suggest you start doing that & stop being a hypocrite. Sincerely
|
|
|
Post by morghunter on Jun 20, 2011 17:09:08 GMT -5
I'm afraid morgellons spares no one, man or beast. The crease where the leg joins the torso is a moist area and fibers can be found here by the thousands. The only ointment that has provided me any relief is clotrimazole cream. The itching is intense. This is not intended to be medical advice but just a reference to what has helped me in the past along with L-lysine. Something has changed for me lately because after being lesion free for years, am now breaking out all over. A big hug for my sisters.....morghunter.
|
|
|
Post by itchin4answers on Jun 20, 2011 17:32:01 GMT -5
Another reason I think herpes is involved is that my lesions are 'herpes-like', this disease they don't know the cause of - called pustular psoriasis - it has blisters... but, this is like a herpes that doesn't go into remission after a few days, it's more of a permanent type. I occasionally get blister like things on my face, they feel like & appear to resemble a hepatic lesion.
|
|
|
Post by itchin4answers on Jun 20, 2011 17:38:09 GMT -5
I'm afraid morgellons spares no one, man or beast. The crease where the leg joins the torso is a moist area and fibers can be found here by the thousands. The only ointment that has provided me any relief is clotrimazole cream. The itching is intense. This is not intended to be medical advice but just a reference to what has helped me in the past along with L-lysine. Something has changed for me lately because after being lesion free for years, am now breaking out all over. A big hug for my sisters.....morghunter. Bless you morghunter for sharing & I am so sorry to hear you are breaking out. I too take L-lysine, I can still get the occasional cold sore, depends on how much stress I am under. I don't get itching in the groin, though I do get itchy in my pubic region when I'm menstruating - I think it's the pantie pads that could be doing this I occasionally get a feeling of something "biting" me down there too. Big hug to you - itchin
|
|
|
Post by Lynn on Jun 20, 2011 20:43:10 GMT -5
Hi Itchen
You are very sweet to go to bat like that for your grandma. I would like to share my experience which might give you moment to pause. I only know 2 people who are doing okay on their depression drugs. I know tons who are having a heck of a time. It seems like the Dr.s are handing out depression and stress drugs like candy and seems like everyone around me is on this or that. Makes me rather suspicious.
Okay heres my story and hopefully if they do get your grandmother on some medicines you will be able to look out for things that might indicate the med is working or not working for her. Give you something to compare it too.
I was born crippled. The first hip surgery was experimental. I think I was the 28 person in the whole world to have the type of surgery that I had. My right hip was half way out of the hip socket and was corrected by wharing a body cast for 2 solid years. They changed it out every 2 months for growth. I got out of my body cast at age 3.
Before putting me in a body cast the hospital would tie me down to the bed. Only letting me up for diaper changes and meals. I had to have weight on my ankles through some ropes and pulleys with the heavier weight on my left leg. This brought the hip down 2 inchs away from my spine in 4 months time and then they could safely break the leg and pull it down and reconstruct me a hip socket. I had no hip socket for the left hip.
When my hip condition was dicovered by a best friend of my Nana they found my left hip rest right by my spine. It made it past my internal organs. I am extremely lucky it did not hit the spine and paralize me for life. They put me in the hospital the very next day after the condition was discovered. Well being tied up is equal to being thrown in a locked closet. It gave me some serious problems. Along with this I had a father who did not allow you to be weak in any form.
I became scared of Cameras, Blue glass, enclosed rooms, Too much white, Small cast saws and the sound they make. I had a repeated nightmare for 13 years. I would wake up screaming. The Doctors put me on Valums at age 5. 25 mg. twice a day. By age 11 I was valume depressed and had become obsessive compulsive. Thats also the years when my weight slowly started to climb.
In my Menopause years everything got mightly worse. I was put on different antidepressents. Did okay on low dose of Paxil, but the secound year started to hear voices. I knew it was the medicine and not me. I had to wean myself off of the Paxil twice to avoid the withdrawels. One day I sat crying wondering what to do to help myself and was channel surfing and saw a women speaking before a Senate or something and it was about the miss use of all thes type medicines. She talked about all the school shooting and how those kids were on this or that type of depression medicine when they went berzerk and went on a killing spree. I could understand that because before I weaned myself my doc. put me on Welbutrim XL with the Paxil and it made me go angry and destructive. When the Dr. tried to double the Welbutrim I knew they had no clue as what to do and decided to try something else and after watching the report or speach by the women at the Seanate or where ever she was in the government speaking. I went herbal. Got everything nearly controled and once I started detoxing it all completely went away. After all my life having to deal with all that I get a complete cured by eating better and detoxing. My triger foods are soda and Chocolate. So I limit when I can have them. Soda maybe twice a year. Chocolate a little more often. But those are my biggy triger foods and really watch dog them.
So for me it really was bad when ever taking any sort of depression meds and for most folks around me it is simular. I only know 2 people who are doing okay on their meds.
Hopefully this will help you when and if you do get the medicine needed for your Grandma.
In Light Lynn
|
|
|
Post by itchin4answers on Jun 20, 2011 21:55:17 GMT -5
Hi Itchen You are very sweet to go to bat like that for your grandma. I would like to share my experience which might give you moment to pause. I only know 2 people who are doing okay on their depression drugs. I know tons who are having a heck of a time. It seems like the Dr.s are handing out depression and stress drugs like candy and seems like everyone around me is on this or that. Makes me rather suspicious. Okay heres my story and hopefully if they do get your grandmother on some medicines you will be able to look out for things that might indicate the med is working or not working for her. Give you something to compare it too. I was born crippled. The first hip surgery was experimental. I think I was the 28 person in the whole world to have the type of surgery that I had. My right hip was half way out of the hip socket and was corrected by wharing a body cast for 2 solid years. They changed it out every 2 months for growth. I got out of my body cast at age 3. Before putting me in a body cast the hospital would tie me down to the bed. Only letting me up for diaper changes and meals. I had to have weight on my ankles through some ropes and pulleys with the heavier weight on my left leg. This brought the hip down 2 inchs away from my spine in 4 months time and then they could safely break the leg and pull it down and reconstruct me a hip socket. I had no hip socket for the left hip. When my hip condition was dicovered by a best friend of my Nana they found my left hip rest right by my spine. It made it past my internal organs. I am extremely lucky it did not hit the spine and paralize me for life. They put me in the hospital the very next day after the condition was discovered. Well being tied up is equal to being thrown in a locked closet. It gave me some serious problems. Along with this I had a father who did not allow you to be weak in any form. I became scared of Cameras, Blue glass, enclosed rooms, Too much white, Small cast saws and the sound they make. I had a repeated nightmare for 13 years. I would wake up screaming. The Doctors put me on Valums at age 5. 25 mg. twice a day. By age 11 I was valume depressed and had become obsessive compulsive. Thats also the years when my weight slowly started to climb. In my Menopause years everything got mightly worse. I was put on different antidepressents. Did okay on low dose of Paxil, but the secound year started to hear voices. I knew it was the medicine and not me. I had to wean myself off of the Paxil twice to avoid the withdrawels. One day I sat crying wondering what to do to help myself and was channel surfing and saw a women speaking before a Senate or something and it was about the miss use of all thes type medicines. She talked about all the school shooting and how those kids were on this or that type of depression medicine when they went berzerk and went on a killing spree. I could understand that because before I weaned myself my doc. put me on Welbutrim XL with the Paxil and it made me go angry and destructive. When the Dr. tried to double the Welbutrim I knew they had no clue as what to do and decided to try something else and after watching the report or speach by the women at the Seanate or where ever she was in the government speaking. I went herbal. Got everything nearly controled and once I started detoxing it all completely went away. After all my life having to deal with all that I get a complete cured by eating better and detoxing. My triger foods are soda and Chocolate. So I limit when I can have them. Soda maybe twice a year. Chocolate a little more often. But those are my biggy triger foods and really watch dog them. So for me it really was bad when ever taking any sort of depression meds and for most folks around me it is simular. I only know 2 people who are doing okay on their meds. Hopefully this will help you when and if you do get the medicine needed for your Grandma. In Light Lynn Dear Lynn, After reading your story I don't feel I'm in a position to ever complain again, you are a very strong woman & I'm so sorry for all the pain you have gone through. As for my Grandma - I know those anti-depressants are poison. I think maybe the purpose of my letter was more to try to get at the doctor without actually murdering him. My Gran is not the same person she once was, she has changed - could be all the medication she is on. I think maybe a little bit of dementia is creeping in, but then again that is to be expected when one is institutionalized. Grandma is extremely well cared for at the Nursing Home, no complaints there, in fact the staff go out of their way for her, which is nice, but that's my Gran - she's been lucky her entire life. Thanks for the advice Lynn, I really appreciate it. Lots a love - itchin
|
|
|
Post by ibzahp on Jun 20, 2011 22:11:48 GMT -5
itchin I am writing regarding your Gran. She sounds like a really intense lady. Feel like she is assertive and well she doesn't sound delicate. My question would be does she want to take an antidepressant. Of course the nursing home would want her on one. I was a counselor for nursing home patients for a spell. And they do like to keep people sedated. But at 95 I think the doctor should respect her wishes. It sounds like she is a pretty sharp 95 yr old. I am not pro anti depressants but not completly anti either. I took one for a couple years. At the time it was helpful. Now I don't. Seen them help some and hurt others. I guess the main thing I think about them is they are no miracle drug or happy pill.And they can have a lot of "side "effects. I think we would be better off if we could make more of these decisions ourselves as opposed to always having to rely on the almighty doctors.
|
|
|
Post by Lynn on Jun 21, 2011 1:40:26 GMT -5
Hi Itchen I think all I went through is very okay. It did make me a really strong person and I learned late in life to except that and embrace it with all the odditys that go with it. Now I have great fun and great laughs at the whole thing we call life. Like them chasing me back and forth in the crib to try and tie me back down after I ate. I did get to stay in a big room with other toddlers and a t.v. with toons on alot of the time. ;D When I go for my third operation in my elder years I am going to make them chase me around the bed. LOL. By the way we all have bragging and complaining rights. Does not matter what; we tend to our bodies needs and we needs to vent so vent away. I am all ears and full of life events and by that maybe give a hand or two from time to time. In Light Lynn
|
|
|
Post by itchin4answers on Jun 21, 2011 4:20:33 GMT -5
itchin I am writing regarding your Gran. She sounds like a really intense lady. Feel like she is assertive and well she doesn't sound delicate. My question would be does she want to take an antidepressant. Of course the nursing home would want her on one. I was a counselor for nursing home patients for a spell. And they do like to keep people sedated. But at 95 I think the doctor should respect her wishes. It sounds like she is a pretty sharp 95 yr old. I am not pro anti depressants but not completly anti either. I took one for a couple years. At the time it was helpful. Now I don't. Seen them help some and hurt others. I guess the main thing I think about them is they are no miracle drug or happy pill.And they can have a lot of "side "effects. I think we would be better off if we could make more of these decisions ourselves as opposed to always having to rely on the almighty doctors. Hi ibzahp, thanks for your concern. Yes Gran is rather sharp, though without putting her down, she is like a child in a way, has been her entire life - the world revolves around her & no one else. I don't believe she understands what an antidepressant is, however she tells us that some days her mood is ok, other days she cries & wonders why she is living. The whole situation is sad. The truth is, her doctor lies to her, blows sunshine, so how else is my poor Gran meant to react? My parents were very supportive of the letter I wrote, my dad laughed about the letter!! as this doctor has caused him so much grief over his mother-in-law. We've spoken antidepressants before on this board & there are mixed feelings about the drug. They do work for some people, though my belief is, antidepressants should perhaps be short term & closely monitored by a doctor. My family were of the opinion that an antidepressant would be beneficial to Gran since she doesn't seem to have side effects to drugs - namely antibiotics. Since Gran is her own medical power of attorney we can not enforce these drugs. We were disappointed however that the idea of a second opinion from another doctor never happened. As the saying goes - "if in doubt do naught". Thanks for your support. Lots of love - itchin
|
|
|
Post by kammy on Jun 21, 2011 5:04:14 GMT -5
I'm afraid morgellons spares no one, man or beast. The crease where the leg joins the torso is a moist area and fibers can be found here by the thousands. The only ointment that has provided me any relief is clotrimazole cream. The itching is intense. This is not intended to be medical advice but just a reference to what has helped me in the past along with L-lysine. Something has changed for me lately because after being lesion free for years, am now breaking out all over. A big hug for my sisters.....morghunter. It's good to hear from the men. 'Lostintime' is re-registering and coming out to tell us his story and what all he's found from the male perspective, that's great. He said he felt like we were all over the place when he came out before and it was hard to get the conversation moving in this direction. His information is quite controversial, as you can imagine, and he felt a lack of support. Of course, we've been looking all over the place for what could possibly be the vectors and many have talked about the sexual transmission aspect as one possibility, which we have never discounted but never had the courage to openly discuss it in such a frank manner, thank you, Itchin' for that. en.wikipedia.org/wiki/ClotrimazoleThis is over-the-counter, that's good: "It is commonly available as an over-the-counter substance in various dosage forms, such as a cream, and also (especially in the case of ear infection) as a combination medicine." ** See, I told you the bladder was connected to the ear !!! lol
|
|
|
Post by kammy on Jun 21, 2011 5:09:43 GMT -5
I've heard several people mention sebum build-up 'down there'. We know the fibers are somehow attacking our hair roots, and of course, this sebum build-up is happening on our scalps. I've heard some say that they are having pockets of sebum or boils with sebum (wax-like) stuff in it, come up 'down there', has anyone had an issue with this and what did you find to help?
Or, has anyone noticed the texture of their hair changing 'down there'?
|
|
|
Post by lostintime on Jun 21, 2011 6:10:10 GMT -5
Well girls, your not alone in this. I have discovered men have this issue just as much as the gals. I have been off this site for awhile but wanted to share with you my findings. Itchin4answers, Please read my story at: www.morgellonsinsect.comI would hope you find some comfort in knowing that your not crazy and I understand your suffering completely. Feel free to share this information provided with doctors you are dealing with. I spend long hours educating doctors on this subject. I have long since stopped trying to get treatment from doctors but hope to spread the word of truth about this horrible disease. Yes thats right, a parasitic disease. If you approach doctors with a parasitic disease they tend to understand better and at least are willing to look at information you provide. If people want to continue to talk about chem trails and nano foolishness or genetics doctors are only going to turn their backs on us. Medical doctors are not scientist. Thy read lab reports and treat accordingly. If and when we all can get doctors on board with morgellons being a parasitic disease we might make progress. Progress that could shed light on other speculations and theories. Itchin, look up Bartholin's gland. The woman I was with constantly was having problems in this area. Damn doctors kept telling her it was normal. Well it is not normal and can be painful as well. Women have issues with labia, vulva, glands in the vaginal area because there is a problem. Men have testicular pain, prostate and groin pain to the point the whole pelvis area hurts. Yes I too have vision, neuro, cognitive, joint pain along with burning in the legs and spine. Much of the symptoms are from toxins secreted by the parasite. The pupa material itself is very caustic to the human body creating lesions in the body as well as out. The MRI'S I have had show this but are most likely explained away as cyst. I had a very good radiologist using three sets of MRI's, see this little critters and put in reports that they are growing in size and multiplying in numbers. I also would like to point out that I have been in touch with 4 men around the country suffering from this who also have microscopes. I was not surprised when each of them discovered blue, red, clear and black fibers in semen samples. We all experience something crawling around in our bodies. Try to except the fact that we are suffering from a parasitic disease. AN INTERNAL PARASITE! Let the spinners and profiters know your not interested in products, treatments or far out theories. Keep focused and decide which side of this issue you want to be on. Keep your head up, if it lives it can be killed, and will be. Thank you for your story itchin4answers. Read each page on my web site and judge for yourself. Good luck and keep demanding answers with truth behind it.
|
|
|
Post by kammy on Jun 21, 2011 8:52:49 GMT -5
Hi Lost, so glad to see you back. I went out to watch your movies again and this is a different movie than you had out before. You and I have a similar photograph that I got from a Morgie's arm lesion. These 'critters' are not just in the semen. I asked you if seeing this caterpillar-looking critter was on an ongoing basis? Are these other men also seeing a 'critter' or just fibers in their semen? Did you have a movie in which you had something that looks like this, more crab-like? i54.tinypic.com/fs8jo.jpg
|
|