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Post by ebgbgms on Jul 6, 2005 23:31:37 GMT -5
Nameless, Please listen to our friends! U have to be strong! U have to get Mad! U have to remember what everyone say's (stages) which some last longer, like Ant said. We will all get this together and get answers, or more help to find answers. Look how far Mary and friends have come already! There is an answer and there is a choice, please reconsider.............for all of us. We all are in pain, depressed and sad to see our children, family and friends getting this. We need your story, we need your support and each of us can't hardly bare the thought of loosing a good friend. Keep in touch w/ us please, I'm begging. All my love and God is listening, he is! EBGBGMS Do u like Tom Petty? Kick-butt song isn't it. Ant, he's something else! reply soon k?
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Post by adapted on Jul 7, 2005 0:34:29 GMT -5
Taratula, is this you?
Talk to me, if you're still around
behavingmeself@yahoo.com
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Post by Hope on Jul 7, 2005 0:47:01 GMT -5
Adapted, you took the words right out of me brain again.
Nameless, You know I need you, we all need each other. Hang on tight and let this pass because it will and I promise you this. I'm here for you.
Peace, Hope
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Post by special guest star on Jul 7, 2005 3:27:55 GMT -5
Nameless, I find it hard not to agree with you. When it came back this last time, I almost burst into tears. I really thought I had beaten it. And now, it's like nothing changed. I hate it.
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Post by SpecueLatin on Jul 7, 2005 5:33:17 GMT -5
Hello You! It's spec.
"Nameless" for today maybe, but never heartless. This is such a disheartening disease, we are so worn out and even more so for all the trying. Yet you carry on. You are courageous, strong, resourceful, and kind. Others follow you.
You are a power-hitter for this team, and the posts here tell you, over and over, how much you are needed.
Right now though, you are weary of it all and you need rest. Someone here above, asks in her post to you that you let the others take it on. You rest, and let them do it. Sleep, nourish your mind with good food, lots of juice, replenish your earthly body, don't worry yourself if there is progress against this disease or not...
Escape into a land of rest. When you awaken, check your messages, drink some juice, and then, go back to bed. See what helps you to sleep, it is a big priority for you right now. when my skin feels edgy, I use Claritin. Some use Seroquel. Calcium and vitamin B5 (panthenol). I know people who use valerian.
You will be back to your valiant and brillant self, when you have recooperated and you will be ready to lead the team again, but right now just let the members of this board cherish you, for your very existence.
Love, Spec
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Post by c on Jul 7, 2005 6:23:34 GMT -5
Please know that this will pass. A relapse can be an awful smack in the face, but you can smack back! Eat your raw garlic cloves, cut out the sugars, swig apple cider vinegar like it was a shot of jiegermeister, take pomegranate pills with your meals. Do what works for you. Wipe down at least the essentials in the house with windex. I swear it works. Start today. Try it tomorrow. Give it a few days, it will begin to kick in. Good times are ahead of you. You CAN ride out the bad.
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Post by Patti on Jul 7, 2005 8:49:24 GMT -5
Dear "Nameless",
I hope that the day that has passed, along with all of the wonderful support from those here, has helped you to perhaps see more clearly and change your mind.....or at least have second thoughts.
As Metta stated, fighting and getting better is the best revenge. I think that each of us has had times when we felt we couldn't fight any longer but that's when everyone else picks up the slack and continues for us. That's when you step back for awile and regroup, you take a break from the fight as much as is possible and just concentrate on yourself. This feeling will pass if you will give it time, as I believe it's part of the disease and it rips at our souls just as the Devil would.
I know that you know we all love you and need you, but I also know that sometimes that just doesn't seem to be enough when we're feeling beaten down. But you cannot let this defeat you, nor can you leave your family and others who depend on you. You must be stronger than the disease and make up your mind to not let it force you to quit the fight. We will win this fight and we need you here right along side of us to do it.
Please contact any of us here to talk whenever you need to....I have found that to be very helpful in defeating those feelings of hopelessness when they come around. Talking with somebody one on one can really help to lift your spirits and bring you out of the dark place that this disease often takes us to. Please talk to someone....anyone....just take that step and give us a chance to offer a helping hand and give you some much-needed comfort. Please take our hands and let us pull you back...we need you.
Love & Hugs, Patti
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Post by victoreah on Jul 7, 2005 22:56:44 GMT -5
Nameless - PLEASE do not give up! Two months ago I had the same despondency and hopelessness that you feel now. I really did. I may not have voiced it, but I felt it. Part of what saved me is that I HAD to go back to work - I had NO choice. My disability was denied and I HAD to have some money coming in. A co-worker saw my struggle during that first week when I went back. I could hardly make it through each day. My boss had agreed I could work as little or as much as I could handle. They were very understanding. But by the end of the first week I was ready to throw in the towel. I was in so much pain (joint), still itching like crazy with severe chronic fatigue. I was so depressed and ready to give up. THEN the coworker I spoke of told me about glyconutrients. I figured what did I have to lose at that point, called her and she had some over at my house that very night. I began that night and took a triple dose immediately. Another triple dose before bed, Sat. morning a triple dose, Sat. night, Sun. morning and by Sunday afternoon I felt as if I had come OUT of a cocoon. Could the glyconutrients help you? Possibly Will they? ?? I don't know! All I can tell you is that they are worth a try. All I can tell you is that I feel like I have been given my life back! The joint pain and chronic fatigue are GONE! I pray you will consider taking the stuff! All I know is, I am glad I did. PLEASE hang in there and help get this condition recognized, please! We DO need more people like you to help.
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Post by jodyann52 on Jul 8, 2005 9:36:33 GMT -5
nameless...please don't hurt yourself.god loves you and so do i. i have had two weeks of hell.but i'm hanging in there.god want put more on us then we can stand.i'm having double vision in my.eyes.my eyes hurt real bad, so when i hurt i think of my brothers and sisters here.we all know what u r going through.this is a little prayer for u and all ..lord i'm just a little person beside you... you know my pain.. such pain, is it all in vain?i live in hope that you send someone with a microscope...someone with your eyes.to look in our souls.and see the good we all have,that we r not crazy people that we r just every day people.help us go day to day.so please i beg of u don't hurt yourself....
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Post by sarahbione on Jul 8, 2005 10:05:53 GMT -5
www.stopasuicide.comACT: ACKNOWLEDGE, CARE AND GET TREATMENT Your friend may have told you that he or she is considering suicide, or you may have recognized the signs and symptoms on your own. Either way, it is important that you take these warning signs seriously, and tell your friend that you care about him or her, and that you are concerned. Because suicide is so often linked with mental illness, your friend may not be able to get the help he or she needs without you.Here’s how to ACT to help a friend, co-worker or loved one that you are concerned about. 1. Acknowledge Do take it seriously. 70% of all people who commit suicide give some warning of their intentions to a friend or family member. Do be willing to listen. Even if professional help is needed, your loved one will be more willing to seek help if you have listened to him or her. 2. Care Do voice your concern. Take the initiative to ask what is troubling your loved one, and attempt to overcome any reluctance on their part to talk about it. Let the person know you care and understand. Reassure them that they are not alone. Explain that even if it seems hard to believe right now, suicidal feelings – although powerful – are only temporary, and that the usual cause (depression) can be treated. Ask if the person has a specific plan. Ask if a suicide plan exists, and if so, how far has he or she gone in carrying it out? (Please note: asking about suicide does not cause a person to think about – or commit – suicide. This is a myth!) 3. Treatment Do get professional help immediately. If the person seems willing to accept treatment, do one of the following… Call 1-800-SUICIDE (1-800-784-2433) to find resources in your area. Bring him or her to a local emergency room or community mental health center. Your friend will be more likely to seek help if you accompany him or her. Contact his or her primary care physician or mental health provider. If the person seems unwilling to accept treatment... Call 1-800-273-TALK (1-800-273-8255) or a local emergency room for advice. And if all else fails... call 9-1-1.
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Post by Nameless on Jul 9, 2005 0:03:27 GMT -5
Ok Ill give it six more months if I can hold out. I had a full relapse like my beginning symptoms and you guys had me balling like a damned baby!
I appreciate the offers of help and advice and encouragement. I have been taking excellent care of myself by the way, just my spirit is worn and raw. And when I talk to God I am going to ask him point blank, "Whats the "big picture"? Because he is all I was depending on, and I just cant see any damned lessons learned here except "How to suffer 101". MY DAMNED NAME ISNT JOB. I dont wish to be him and didnt sign on to follow in any Marters footsteps. As for God not putting more on us than we can bare? Bullshit.
You are talking to a used to be saved and sanctified and filled christian with faith like a rock, and then came this.
Let him ask me" do you doubt me"? I'll say yes. And when he starts saying I carried you, Im gonna say when. Then he gonna start talking about that footprints poop and I'm gonna say, that wasnt you, that was the folks at lymebusters.
Yes I know any of you would probably help me in any way, I just feel beyond any help mostly. I'm tired of this consuming my life hr after hr, day after day,month after month. I can't conjure up a fart if I wanted to.
Maybe I was reaching out to you all, and yes you did make it better. Ill be slugging along as usual.
One thing to Sarah...No offence but I dont need any more "professional poop heads" to talk to about a condition they dont have knowledge of. And for your information, doctors are a dead subject.
You know what will put this thought out of my mind?? Simply this, to be well again and have my life back. See miss Sarah, you go about your day normally and normally is without Morgellons. Id rather have cancer or aids. At least that has a name and treatment. I'd rather have one leg and one eye. I'd rather have two asses attached to my forhead. I'm sure you get the point.
Actually Im kinda laughing at my own jokes right now, its not really funny, makes me feel like I'm losing my mind for real, acting like a mad person.
I got tired of getting angry too, it doesnt help your spirit any. Revenge is getting well you say, It may be, but I dont give a rats ass about the whys and who's and wherefores of this disease anymore and Im sick of thinking about it and talking about it and reading and reasearching and trying over and over and over and hurting and aching and failing and putting up a front and not having a damned life, and spending all my money, my life savings, and losing just about all I have and most friends and most family and most of damned everything.
Just tired you know
Tired of being tired and hating myself for not having enough balls left to tell this disease to kiss my ass.
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Post by Lisa on Jul 9, 2005 0:17:18 GMT -5
Thank you. Thank you. Thank you. I hated not knowing where you were at today.
It is my mission for the next 6 months to try and get something, anything, anyone, to help our plight. I want there to be some hope for us.
Wheeewwww. I can breath a sigh of relief now. You messed me up man.
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linda
New Member
Posts: 0
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Post by linda on Jul 9, 2005 0:17:51 GMT -5
Kisses to you Nameless.
Linda
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Post by ANTHILL on Jul 9, 2005 1:35:45 GMT -5
I'd rather have two asses attached to my forhead. TOO! big time Glad your still with us
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Post by Hope on Jul 9, 2005 4:06:39 GMT -5
Darling Ant, The only your going to have attached to your forehead belongs to me and I only have one so watch it! Nameless, Glad you’re a little bit better now. Hang in there. I’m also glad you addressed Miss Sarah’s post because I was very concerned about that. I’m sure it was done with the best intentions but, OMG! All I could say to myself is, I hope they don’t do that. I’d much rather be dead than ask any of those people to help, they are a big part of the problem! Oh well, she’ll learn. Peace, Hope
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Post by debbie on Jul 9, 2005 5:24:42 GMT -5
Dear Nameless
So Glad your still with us ..... Life can not be miserable forever, your good day or days are still to come. So you have to stick around to see them. Maybe it will be something like meeting some one new, who renews a spark in you, maybe it will be someone in the medical field with a sincere interest in finding your problem.... In the meantime, do the best for your body, eat well, supplements & salves (read everyones idea's, something may work to give you releif) and remember we are here for you........ Only live for one day at a time, tomorrow could always turn out to be something pleasant... and you don't want to miss that..... Stay strong
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Post by adapted on Jul 9, 2005 6:40:38 GMT -5
Praise The Lord! I love you, Nameless!!! Now Nameless, let me tell you something. I know we have all had this scourge affect us in similar ways, and yet, in different ways, as well. I was one that it nearly wiped out, through starvation, back in 2002. I told a large portion of the hell I experienced, back when I found this forum in February. After listening to radio's Coast-To-Coast talkshow, I'd heard, for the first time, that I hadn't been alone.
I had a hard & heavy onslaught of overlapping symptoms. To skip past it all & cut to the chase, I couldn't eat due to the heavy infestation. Besides what happened being so vile & disgusting, even if I'd had the stomach to withstand it, and I somehow could've kept eating, I did not want to keep reinfesting myself by attempting to. My two-month long seige was hell itself paying me a visit.
Reaching the threshold between life & death, and I'm NOT being melodramatic here, I HAD to make a serious decision. I had wasted & withered away to that point, and I'd had not one single human to help me. I'd had the thought, when it was apparent what was happening to me, that it was an easier thing to just allow it to happen. That was when I turned to The Almighty like I have never turned to Him before. I'm here today because He empowered me and gave me the wisdom & knowledge to find the tools to recover. I had gone in vicious, neverending, maddeningly circles trying to figure out what this hellacious thing was, that was doing all that it was. Where did it get me personally? Not a damn place. This evil scourge kept me so hellbent on preoccupation with it, that it got worse and worse every minute of every hour, of every day, of every week, for two months.
Like I said in the beginning of this post, I'd had it hard & heavy, with lots of overlapping stages of a variety of manifestations of hell. My top layer of skin sloughed off and left me a bloody mess. Before that, live bugs painfully hatched out of my arms & legs. There was a lot more, as well, that happened to me back then.
Listen to me now, and believe me, Nameless...I do not know where it supposedly says in The Bible that God does not allow us to have more than we can bear. I will, however, give you MY TAKE on what that means, based not just on the experience I'd had with Morgellons, but on a lifetime of hardships I've endured. He DOES allow us to have more than we can bear. That, I believe, is His way of making us realize how utterly helpless we are without Him, forcing us to have to place every part, of whatever our burdens & afflictions are, in His hands. I HAD TO in 2002.
As a result, I was well in under two weeks. I have a few, very minor symptoms that appear from time to time, and when they do, speaking for myself, because I understand my OWN situation with this and what causes it to occur, it ONLY happens when I allow myself to become rundown. I'm not saying this applies to everyone, although I wish that I could.
It has to be fought with a seriousness unlike any other, and I am praying for you, as well as for all those afflicted, that you will surrender all of your own efforts to get over this illness to God, so that you can hear His direction to assist you in restoring your health, the same as He did for me, in my desperate hour.
If I could survive, anyone can. Don't question God! For us to have the key, we have to "surrender it all" unto Him. That isn't real easy to come by, unless, sometimes, we're FORCED into it.
I would not dare steer anyone wrong over this principle.
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Post by jj on Jul 9, 2005 9:01:04 GMT -5
Am so glad to see you here. I waited to post to your later post. I quietly thought of you and what you were going through and in my heart felt you would be back. Just remember you are not alone but with others here who have been in the same dark place and continue on stronger, helping and just being there for each other in what ever capacity we can. Hugs JJ
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Post by ME on Jul 9, 2005 12:29:54 GMT -5
Hi Nameless,
It is me, me.
I hear what you say and feel what you feel. We are in this hell together and need each other. Please stick with us. Be stubborn with me!! Love, Me
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Post by to nameless on Jul 9, 2005 13:10:43 GMT -5
SORRY YOUR STUPID IF YOU DO THIS WITHOUT DOING THE FULL SWARTZ PROTOCOL...COMPLETE IT..IM SORRY I HAVE NO SYMPOTHEY FOR YOU..IF YOU WASTE SUCH A VALUABLE THINGS SUCH AS LIFE..ON SUCH A STUPID DIESEASE..ITS NOT AIDS..IF YOU DO IT YOU ARE DEVALUEING THE GIFT OF LIFE..LIFE IS A MIRICALE IN ITSELF YOU HAVE NO RIGHT TO TAKE WHAT GOD HAS BLESSED US WITH..BUGS OR NO BUGS..ESPECAILLY WHEN THERE IS A CURE. I wanted to take the time out to thank you all for helping me. But Im tired now and losing this battle. Tired of being fritened and alone and bugs and not getting anywhere. I was doing well then relape after relapse has consumed me. I am planning to end it all and very soon. Its too much for me now, Id rather end this misery than endure it another moment. Keep fighting those of you strong enough...I just cant anymore.
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