linda
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Post by linda on Jul 6, 2005 12:26:25 GMT -5
Can any of you confirmed Lymies describe for me what neuro lyme symptoms feel like? I continue to have strange sensations now in my head (it's "all in my head" indeed), and I wonder if that might be what I am experiencing. Also, besides feeling dizzy and tired, I find I'm having spasms at night when I sleep; they wake me up. Weird.
Thanks, Linda
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Post by jodyann52 on Jul 6, 2005 15:55:19 GMT -5
linda i think that is what my husband is going through.his head and eye is bad.i have to go to eye dr. tomorrow i have real bad pain and blered vision hurts so bad. what next...
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Post by KoJo on Jul 6, 2005 15:58:01 GMT -5
When you say spasms, could you be referring to vibrations? Does your body or head vibrate, kinda like an electric razor in your body, or are you describing muscle twitches?
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linda
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Post by linda on Jul 6, 2005 16:15:51 GMT -5
Hmmmm, vibrations no, although some of what I feel can be termed that. What happens at night is more of a whole body jerking, somewhat like the beginning of a seizure.
Linda
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Post by Lisa on Jul 6, 2005 16:17:13 GMT -5
With the neuro part of it, some get the shakes, numbness and various other things affecting the nervous system. I don't know if your spasms are like mine, but I get what feels like an electrical shock when I'm in a deep sleep. My whole body does this violent jerk. I hate it and it scares the h*** out of me. My heart then beats so fast, it's hard to go back to sleep. You might find more info in one of these links www.wildernetwork.orgwww.autoimmunityresearch.org/lyme-disease/as a side note...kinda funny My husband has walked in several times while I was sleeping to find my arm sticking straight up in the air. I've woken up to it too. The first time, he tried to push my arm back down, but he said I resisted. Weird huh?
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Post by Lisa on Jul 6, 2005 16:20:40 GMT -5
Kojo, I get those vibrations on the bottom of my feet. It's either one or the other...never both feet at the same time. I also feel a fluttering/vibration feeling in the back or sides of my head too.
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Post by jodyann52 on Jul 6, 2005 18:24:39 GMT -5
my eye was jerking real bad.and now my eyes r hurting.i don't understand...please someone help us.we know u r reading our board....
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Post by KoJo on Jul 6, 2005 18:57:50 GMT -5
I've been diagnosed with neuroborreliosis. I had the vibrations, in the trunk of my body, every night as I was drifting off to sleep. One sufferer, an author, describes them as dolby digital reverberations. They are horrible. Eventually, mine slowed down to the point where they felt more like internal tremors. No tremor was visable...like in Parkinson's Disease. Are your jerks visable?
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linda
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Post by linda on Jul 6, 2005 20:30:49 GMT -5
My feelings sound like what Lisa describes. It is like a 9. earthquake. Yes, it would be visible. I have the vibrations in my feet always. I don't know if that is part of this thing or just normal living.
Linda
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Post by ebgbgms on Jul 6, 2005 23:46:46 GMT -5
I have had the jerking,siezure type happing during sleep, and it does scare the crap out of u. But, I have also been dx w/ dystonia. It usually affects one side. Left foot curls under, hand cramp like writers cramp all the time. spasms in back constantly. Untill I knew I had LD I was getting steriod shots (the max allowed by law) monthly in my back and also started botox injections right before LD dx. I have stopped the steriods, and havent seen many results from botox, except they hurt like heck. Im not ready to give those up yet. I believe now that I have had LD since a very young age, so it is chronic. Heat and ice help. Doing jobs in intervals then back to ice or heat (20min) of course back rubs. I believe I have been misdiagnosed, because I have felt better since I started meds. (doxy) and nystatin. I hope u start feeling better and can get some help. love to u, ebgb
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Post by Hope on Jul 7, 2005 3:22:35 GMT -5
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Post by SpecueLatin on Jul 8, 2005 2:30:34 GMT -5
I have seen that link Hope, thanks for reposting it.
I keep forgetting to find it and read it, there is so much information and so much is helpful.
I see Aricept is a psychotropic that can help with the brain fog and retrieval of information. This is the first I had seen that notation, though I had read through much of this before. I am going to look into that.
Sure does explain a lot!
Also. there is Jarish Herxheimer reaction notations, explaining in part some suicidal tendencies can flare as a person is in a stage of antibiotic treatment and is caused they think by the inflammation.
There sure is a lot on the whole site but the list of the many symptoms your link takes us to is a great place to start explaining this disease to someone. I have trouble recalling the symptoms.. Spec
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linda
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Post by linda on Jul 8, 2005 12:25:33 GMT -5
Hi all,
I had a hard time following info on the link, but I did get that it said Lyme sufferers often get depressed upon starting an antibiotic regimen, they believe, due to a herx of neuro-swelling. I think this has been what is happening to me when I take MSM. Small doses of MSM have a profound effect on my brain; I feel funny. A little aspirin (which is also sulfur-based) helps though. I know that some people are sulfur sensitive. Perhaps they believe they are sensitive because they are killing stuff every time they take it. Dr. Feingold found that adhd/add children were sensitive to sulfites in food, etc. When he took them out of the kids' diets, their behavior improved. But, even after months of taking them off the sulfites, their attention span did not improve. In other words, the sulfites made them hyper, but were not the mechanism behind the attention difficulties. Perhaps the kids are infected with something that causes them to have attention problems, but when they take or eat sulfur containing items, they suffer small herxheimers reactions that cause them to act hyper. They act hyper because their bodies are dealing with the toxins released by dead bacteria/fungi/parasites. That's my theory anyways.
Linda
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Post by adapted on Jul 9, 2005 13:28:49 GMT -5
I don't know if this can be of any assistance, in trying to assess whether a seizure is occurring, but anyway: my.webmd.com/content/article/87/99668.htmI. Generalized seizures, includes six types: 1.) The generalized tonic-clonic convulsion, also called the "grand-mal" seizure 2.) Absence seizures cause a short loss of consciousness (just a few seconds) with few or no symptoms 3.) Myoclonic seizures consist of sporadic jerks, usually on both sides of the body 4.) Clonic seizures are repetitive, rhythmic jerks that involve both sides of the body 5.) Tonic seizures are characterized by stiffening of the muscles 6.) Atonic seizures consist of a sudden and general loss of muscle tone, particularly in the arms and legs, which often results in a fall. II. Partial Seizures (also called local or focal) includes three types: 1.) Simple partial seizures are further subdivided into four categories according to the nature of their symptoms: motor, autonomic, sensory or psychological. 2.) Complex partial seizures, by definition, include impairment of awareness. 3.) The third kind of partial seizure is one that begins as a focal seizure and evolves into a generalized convulsive ("grand-mal") seizure.
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