Hair is alive

[tonie]

Does anyone's hair seem like it's totally alive?

My hair I've watched it, either it's incredibly full of static elec, cause something's really strange. It just won't stay down, and it keeps trying to wrap into my face on it's own and it won't stop, even have two hair bands holding it back, and just a few hairs insist on trying to glue themselves to my face.

[guest]

yes my hair did that. Strands kept coming to my face on their own. I was way to spooky.

[Goldie]

tonie,
this has happened to me many times. hair will actually end up in my mouth. i know exactly what you mean.

[imblownaway]

yep me too. it creeped me out so bad that i gathered up my long hair and cut it short.

[iwmlb68]

Yes, I have discovered over time that my hair has been growing into my face. Doesn't it put a new perspective on where the fibres come from?! Keep hair clean and short. Thinking of you all. Keep Fighting.

[betsy]

Yes,
I have experienced hair that stands straight up and won't behave normally. This is an example of the tiny and subtle things we notice
about the disease but sound stupid or trivial when trying to explain.

However, the underlying scalp infestation (mine for 1 1/2 years ) is certainly not trivial. It is a problem that I can't seem to eradicate.
It gets better and then comes back.

Today, I had my hair cut. I can now have hair appointments without feeling I will infect the stylist. Well, that's the way it has been for the last 5 months or so. However, today, the stylist started wiping at her bare leg. She said something was on her leg. She thought one strand of her long hair might have caught on her skirt hem
and kept brushing against her leg. That's all she could figure out, because whe said "nothing was there" but she said it felt like a fiber or a hair--maybe even something like a ticle.
Then, a little later, while she was combing through my washed hair she said ouch and put her finger to her mouth. Think she used the word "cut". She got a "cut" while her hands were combing my hair. She left the station to attend to it and returned.

There wasn't much I could say at this point. I stayed quite and made appropriate comments. This makes me soulnd like a criminal.
The truth is I was very unprepared for this "bug attack" on the stylist. In the earlier stages, I had requested another stylist to wear gloves when she washed my hair. Don't remember how I
gracefully explained the reason. I thought I was past all of this
protect the world from infestation. Evidentally not so. My scalp seems to be a nursery for babies--an incubator for infestation. It gets better but then relapses into grit or sand grains on the
surface and folicle area.

I don't know of any medical professional that will look seriously for
microscopic scalp infestation. If they can't observe sores then we must be imaging things. Besides, how bad can a little dandruff be?
In other words, the way this disease manifests itself makes us look like hypochondriacs complaining over nothing.

The truth is--this "nothing" is very tiny--and possibly very dangerous.

[specuelatin]

Please continue. This is entered along with about a dozen other queries so far in the MasterThread ~ Symptom Querieslocated in the MasterThread ~ Directory #3 -Sufferers' Database

spec

[tonie]

Betsy,

I sure can understand what you're saying about the hair stylist, "makes you feel like a criminal" I had to laugh out of the "insanity" of this thing.

Yes, that tickling on my legs too, that she was experiencing. I too kept thinking I had a thread from my dress tickling my legs or a hair that kept tickling me on my arms and legs. I'd spray the heck out of my legs thinking something was crawling on them too. Then I realized, it's NOT on the outside.

I've found that using Ketoconazole cream mixed with water, and put into a spritzer bottle, then sprayed onto the scalp every few days stops the tickling on the scalp. When it starts tickling again, then it's spritz it time, and I'm good again for a few days, 3-4 max. There's also a shampoo, called Nizoral, I am going to order today and use as a body wash also. It contains 1% Ketoconazole, and no script is needed for it.

But as for the hairs on my head, I see lots are having the same experience, how the hair wants to go into my mouth, which I'm constantly having to wet my hair, cause it's like it's not going to stay back and it wants to lay on my face or go into my mouth then it will stop moving.

But I've sat for hours in total disbelief of how unreal this is, how the hair will literally come forward to lay itself on my face, almost like it's ALIVE and looking for a lesion to connect with.

[tonie]

A boo boo, for anyone wanting to get the Nizoral shampoo, I'd posted prior it's got 1% ketoconazole in it, but it's 2% ketoconazole.

I think I'm going to use it as a total body wash too and there's sites to order it without a script.

[Still Hangin In]

Don't know where you folks live but Nizoral shampoo is readily available at supermarket and pharmacies in NY I've been using it as a bodywash for about a month and a half now, It seems to be helping, has anti=fungal properties. Ask your drugstore to order some. If you can find it in quantity let us know about it. I haven't found qnything other than a four ounce bottle.

[tonie]

That's great, and it "seems" to be helping? Did you notice a reduction in itching or the crawling sensations when you used it all over?

[clv]

Several products helped me tremendously here: Selsum Blue, Selsum Salon Note these are both very drying but calm it down and at least once led to gummy things from my hair. Best product that I'm not advising anyone to use but that I used and found more moisture/better conditioning was a product for dogs (sorry ya'll) My dog has had allergies all his life and seems to have something similar to Morgellons or an unidentified allergy -- Zodiac brand by FleaTrol Protein Conditioning shampoo for "dogs, puppies, cats & kittens." Contains aloe, lanolin and oatmeal Active ingredients (S)Methoprene .1%, Pyrethrins .15%, Piperonl Butoxide 1.5%.
I used to use the Selsum everyday or every other but that was very harsh and drying. When I started using the zodiac - I used a very diluted amount because the bottle says only once every 7-10 for pets - and not for prolonged use. I went from daily for several weeks to once a week to as needed. thanks clv (the hair static, spiked, almost crawling into my mouth has been a symptom since the beginning for me. Cutting my hair helped lots and frequent trims too. I would caution against overzealous use of anti dandruff or other products in hindsight results may come over days or weeks and if you fry your hair/dry it out to address the static/wild head you aren't netting steps forward!)

[Catholic4Life as guest]

Betsy describes a stylist getting a cut which may have been a function of touching Betsy's hair. Anomalies having to do with flies, something worm-like, seemingly spontaneous bleeding, something grayish associated with hands and finger nails that does not wash off, something like super glue on skin, lesions of mucosa, ears, skin, small blood-filled membrane looking things with thin white worm-like emergents, much more are reported and nothing is done.

Betsy is worried with justification about the public health and does not want to infect others. I will guess that she has been to numerous infectious disease doctors who tell her she is free of infectious disease. Can the hair stylist and others with whom Betsy has contact say this?

There are examples of psychiatrists forcing dangerous psychiatric drugs when the individual concerned about public health risk continued to insist on observations reported by Betsy, Questionhair and others. In my case, after much indignation and atrocity and as I sat before him too sick to utter much at all, barely able to focus my eyes and see the man through blurred and double vision: I was threatened with long term confinement in a state mental hospital.

He gazed calmly and with absolute confidence asked me, "Could everyone be wrong and you be right?" At that point something tickled and bit in my ear and I took a tissue and asked him to please for the love of God get this blood and whatever else was in the tissue under a microscope. He increased my medication and withdrew my smoking privileges.