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Post by Jane D on Jul 8, 2005 14:18:39 GMT -5
HI Gang - I've been here, just quiet. I can't find anymore than a slim paragraph on the Schwarz protocol on here. I need to get more iformation to take to my i.d. specialist. Can anyone direct me to more info? I've just come off two months of strong amoxicillin after four months of i.v. rocephin.(Lyme treatment) I still have red fibres coming out of my head, still have little mites and bigger bugs crawling all over my scalp, and still having hatchouts from my mouth (although they are less severe - touch wood - and less frequent). i.e. still parasityzed. Less black stuff coming out of skin, fewer "rocks" and "cyrstals". No lesions - never had any. My doc is intrigued by Morgellons and I suspect would be open to at least considering Schwarz' protocol for me. HE will not call a doc in the U.S. so please don't even suggest it - well, go ahead, but Canadian docs won't do it - I think they can't bill for it, or something. so if I can bring him something to read that would be most helpful. Thanks Jane D.
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Post by JEFF on Jul 9, 2005 13:43:30 GMT -5
triple dose septra ds.=6 pills a day...double dose avelox...even spacing throught the day but not on same swallow. eat raw greens....ive only done the septra and im doing great but from what i hear the combo works like a charm...Dont waste your time anymore with the rocefin...they are resistant to it now..Please contact a medical professional do seek their advice before taking any medication...But from what I hear this 10 day chemo..has like a 90% cure rate for morgellons..so im really shocked poeple wont listen..
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Post by Hope on Jul 10, 2005 2:01:49 GMT -5
Thanks for posting this Jeff. We actually agree on one thing. How have you been feeling? You have not posted that for a while. Have you had any relapses or has it been steady improvment? Are you still on the meds or have you stopped taking them? Please let us know. PEACE, Hope
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Post by JEFF on Jul 10, 2005 2:14:01 GMT -5
I actually was amazed I kinda hit this semi tolerable pace with no medication..seems the septra got the numbers so low my body was able to maintain...so ive been more off the septra than on. best advise is while your off to hit new foods from various plants and hit them hard..Like last week I discovered blueberries..Seems they cant adapt to new natural food chemicals they havent seen before..so I keep mixing it up..the past few days ive noticed some hints of the bacteria begining to win back some ground preparing for the next assult...so yesterday I went back on the septra...and It almost immediatly pounded them back into complete submission...I feel like im really really winning the war..I can spend more time than off of the septra..but all I need to do is go back on and shazamm..there number must only be 1/100 th of what they were at one time..but you must be aware this is a very deadly bacteria..and any amount is too much..im working full time..probably healthyier than 70 percent of the population for my age...surfing hiking..I almost feel there is no need for the boards anymore...there almost a waste of time as I get no good information anymore...except the snipits of swartz info I hear hear and there...eveery time I come back here I cant believe there are still poeple that dont get it...that are stuck in the past...still thinking they have worms, and mites and phartiod flys...I almost laugh thinking how at one time I was caught up in the whole thing...its not funny...but you guys seriously need help...what you have is real...very real..but it is not what you think it is..its not until year better that you can step back and really look at what really happend...both physically and mentally...this is a deadly infection cuased by the bacterium..s maltophilia.....not a doubt in the world.
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Post by lurking on Jul 10, 2005 5:38:57 GMT -5
There are ppl who do actually have worms and flies and insects with this disease. They exit the body in different areas and different ways. Some ppl have bigger manifestations than you did Jeff.
That is not a reason to say what you think THEY have. You can only speak from your experience and symptoms which is not everyones.
I know an insect from a fiber. A worm from a fiber, no guessing here.
But in your favor I would like to say, there is a bacteria here at work. And Septra does get the numbers of bacteria down. But for those ppl with parasite overload, that is entirely another matter.
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Post by jj on Jul 10, 2005 8:39:52 GMT -5
...Dont waste your time anymore with the rocefin...they are resistant to it now..Please contact a medical professional do seek their advice before taking any medication...But from what I hear this 10 day chemo..has like a 90% cure rate for morgellons..so im really shocked poeple wont listen.. Jeff, I need to ask you some things about your OVERALL treatment. You have been one of the lucky ones to be able to work with a good doctor (yours being a naturopath). ............... Could there be a chance that the IV treatments along with the antifungals and other things perscribed by your doc (antifungals, flagyl,etc) had some effect on certain aspects of your condition? Do you mind listing your doctors total protocal?................ Did your doctor suggest you discontinue your septra and take a little more here and there when ever you feel a relapse? ............... JJ, Still hangin
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Post by Jane D on Jul 10, 2005 10:21:46 GMT -5
I really appreciate all this. However, I guess I wasn't clear about what I was looking for....my i.d. doc will not accept chat info from a chat line as a rationale to put me on massive doses of Septra - he needs to see something Schwarz has written himself. That's what I was looking for.... Is there a paper or article or on-line protocol published by Schwarz that I can point him to? Jeff, I appreciate your sincere efforts to help but he will not accept just your opinion or experience, or anybody else's, unless you are a doctor. He needs medical info. Is there anything? Otherwise I am S.O.L. on this one! thanks Jane D. in Ontario.
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Post by Guest on Jul 10, 2005 13:38:18 GMT -5
Jeff has stated in many posts that he was using antifungals and that was part of his recovery. No mystery here, he's just trying to help people. maybe he does go a bit overboard but if Iwas getting well I probably would too just because I'd want everyone else to feel the same relief. Lets give him a break here and no, this is not Jeff writing this. I just think that by now, we all know how he feels and rehashing this to death gets us nowhere. If you don't wnt to try the protocol thats your right. I imagine he keeps posting it in order to reach the new people who read here every day but you dont have to read it or respond if you already know where he stands do you?
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Post by JLR on Jul 10, 2005 13:54:10 GMT -5
I finally got to see my doctor, after printing out all the info at the Morgellons site as well as Dr. Schwartz website; she prescribed the Septra at a lower dose since I don't have any lesions along with with some Atarax. Of course my insurance made me buy the non brand name so hopefully it will work just as well. I'm curious, Jeff... Did you have to do a thorough cleaning of your home? Wipe down walls, etc.?
I have been cleaning since day one, but now that I'm on the drugs maybe it will finally work. "crosses fingers"
JLR
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Post by jj on Jul 10, 2005 18:39:29 GMT -5
Jeff has stated in many posts that he was using antifungals and that was part of his recovery. No mystery here, he's just trying to help people. maybe he does go a bit overboard but if Iwas getting well I probably would too just because I'd want everyone else to feel the same relief. Lets give him a break here and no, this is not Jeff writing this. I just think that by now, we all know how he feels and rehashing this to death gets us nowhere. If you don't wnt to try the protocol thats your right. I imagine he keeps posting it in order to reach the new people who read here every day but you dont have to read it or respond if you already know where he stands do you? I guess this post is in response to me since I am the only one in this thread that brought up antifungals. I am unaware of any posts here in reference to the possible fungal aspects of his condition. I was asking very valid questions that could be useful to all, especially new people (and me as well). ............... Be defensive if you feel the need and I will continue to read and reply as I wish, thankyou very much! ...............Still hangin, JJ
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Post by been around on Jul 10, 2005 19:05:58 GMT -5
I really appreciate all this. However, I guess I wasn't clear about what I was looking for....my i.d. doc will not accept chat info from a chat line as a rationale to put me on massive doses of Septra - he needs to see something Schwarz has written himself. That's what I was looking for.... Is there a paper or article or on-line protocol published by Schwarz that I can point him to? Jeff, I appreciate your sincere efforts to help but he will not accept just your opinion or experience, or anybody else's, unless you are a doctor. He needs medical info. Is there anything? Otherwise I am S.O.L. on this one! thanks Jane D. in Ontario. There is no information regarding the "protocol" on his web site, and he does not discuss it via email (I've tried asking). He has written a book, but who knows what's in it. I do not care to purchase it, to find out. Maybe someone else has. Some people simply have their doctor consult, via phone, with Schwartz. That should address the issue, regarding his recommendations for treatment. Last I heard, he charges for that, but I can not affirm that firsthand. His contact information, and CV, are posted on his web site. Good luck.
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Post by JEFF on Jul 10, 2005 23:07:42 GMT -5
yes I would say the diflucan and the rocefin had a positive effect on my recovery..It is just that the septra blew them all away...they eventually lost their effectivness...I think the antifunguls have a indirect postive effect...drying out...as this is a water bacteria...kinda fungus like i guess..no my ND doctor does not endorse dropping septra at random...but he wrote me on hell of a prescription double dose for 3 months...Im using my common sense...last time I stopped using the septra is cuase I got a virus that wouldnt go away..until I stopped the septra...got rid of the virus now back on the septra...i think it was suppressing my ability to fight the virus...also using comon sense when I go off the septra i load up on the naturals..and for gods sake dont eat sugur or a lot of carbs..you killing yourself if you do..
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Post by jodyann52 on Jul 10, 2005 23:57:30 GMT -5
jeff what foods do u eat.i need to eat better but i don't have much money to buy the food i need.i'm diabetic.i do eat beans.veggies from the garden.i don't like meat.so do u eat much meat or fast food.i think my diet had alot to do with this for me.
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Post by WhoKnew on Jul 11, 2005 15:11:14 GMT -5
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Post by Orion*** on Jul 12, 2005 2:14:04 GMT -5
Yes, I definately believe it is a bacteria, always have so it only makes sense that an efective anibiotic is in order--eems jeff found it.The biggest and foremost problem is getting your Dr. to go along with it. It would seem that Jeffs DR. should take the roll if MD informant and indorse the protocal in a manner that we all could carry it to our provider---otherwise it is nothing more than a big secret and will not help us one bit. This whole BUGGABOO is so illogical that it is hard to believe that treatment is SOO hard to come by. I will say this , If I don't get some help that works soon my A-- is grass. Dumb-dumb-dumb. & Depressing. It does no good to read and post here if you don't have access to what works. All of the self help posts that I read seem to be an exercise in futility...I really don't want to poison myself and make matters worse by using a concoction out of a chemistry set.Or black flag 40. One major concern is for one to support the immune system at every turn...a good diet is a start. less meat--more raw vegies, any kind, Knock off all simple carbs...eat coconut oil--at least 3 tabsp. a day---flax and fish oils. supliments should be heavy on the mineral side as the disease depletes the body of these. Mainly calcium and magnesium. Sulpher bearing vegies are especially good for you. And if all else fails try a little Skoal, long cut mint. LOL Jeff:::: don't do away--keep right on harping on the septra--I'll loan you my bull horn if need be, and thanks friend,
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Post by guest also on Jul 12, 2005 7:59:57 GMT -5
to JJ: I'm sorry, that message was not directed at you tho it looks like it now. I was answering another message by someone else that is now gone. It wasn't a very nice message but I still shouldn't have said anything. I apoligize but this bickering just gets on my nerves. If people are getting better on the Septra then I don't understand the problem some have with others trying this, it is better than sitting back doing noothing. Maybe we all don't have the same thing but so far it seems the Septra is the only thing that has been working. Sorry for the misunderstanding J.J. and for the tone of my message even tho it wasn't meant for you. Cheers, Lorianne
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