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Post by susiebelle on May 30, 2005 2:04:32 GMT -5
Hi spec: from susiebelle I have been reading the board regularly for a few weeks. I can relate to many of the symptoms that you have experienced and I have probably traveled down a path very similar to yours in the search for some answers. I am now 50 and can remember battling fatigue and some kind of inflamtion on the cuticles of my fingers and toes since I was 10. I am now realizing how toxic my living environment has been. For the past 27 years I have lived in a house with a wet basement and I worked in an old General Electric manufacturing plant with alot of toxic chemicals and gases since I was 18. We always had at least 1 dog and over the years we had a parakeet, fish, squirrels, a cat, a rabbit, pigeons, and horses. Believe it or not I live in town, but my husband's heart is in the country and my two sons were typical boys.My husband got the horses in 1992 and my health has gone down hill ever since. The horses are kept six miles away but my husband and dog are there at least once a day to feed and water them. I suspected their might be a connection and contacted vets, the vet school at Univ. if Ill, and the State of Illinois Dept. of livestock and pasture management but didn't get any answers. So when I read your postings it was such a relief. I read that albendazole(zentel) was a good all round medication for most worms and that it also kills the adults. It is a prescriptioned medication but I found a website in asia that doesn't require a drs. script. I found it on froogle and it cost $1.82 for 2-200mg tablets. I got 20 doses for about $100.00. The shipping was about $50.00. I have taken 400mg for 3 days and can see some positive results but I don't really know what to expect. Have you read about this medication? If you have any info I would really appreciate it. The website is www.saveWORTH.com. and it took about two weeks to get it. If anyone thinks about trying this med please do research and follow all instructions. Well bye for now and keep up the good work. I could go on for ever but I will post more ideas and possible connections I have considered.
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Post by SpecueLatin on May 31, 2005 17:46:43 GMT -5
Good for you Suzy Q! www.fungusfocus.com/html/most_common_parasitic_drugs.htmthis is the best information on what medicine does what and how much to use. they also acknowledge the symbiotic relations between parasite, fungus and bacteria. Check many of the pages. they do have a store, but also offer information on the antihelminths and also veterinary (by brand name) for use on "pets" I have not used the albendazole. I used the ivermectin which is very cheap and can be used year round for about $10.00 a month if a script is written for it for use every 3 months. On the Morgellons board, I talked to night nurse lurk, and told her my history under Can you see it? thread. besides the onchocerca volvulus thread here on this board, there are two others on the Morgellons board. Also on the Morgellons board is a thread called "The Cowboy's Cure" which was posted by Bubba. There are things listed that may help you. I DO NOT HAVE THE COLORFUL FIBERS! I do have clear fibers visible on the microscopes. I have images posted on the photos link, if this helps you. I have two distinct type of lesions. One is circular, has a hard raised edge, and has the worm living in that circle. More will come up as each is removed. The other is about 1 and a half inches long and straight. This is I believe where the Anyclostome Brazilense, which is the cat dog hookworm which infects at the skin level and creates this sort of lesion. For this the D-worm (piperazine citrate) and Ivermectin seem to be working. Lately, i have used a product called D-Worm directly on the lesions. This was helping. Look for a bright pink label. This one is not sticky like some other carmel flavored ones. It is for cats and dogs internal worms. In us though they stay in the skin, the same stuff should kill it. it is piperazine citrate. DEC, which you will read about in the link at fungalfocus and elsewhere is also a deriative of piperazine. It's use has fallen out of favor because Ivermectin was more effective. Others have used the liquid Ivermectin that is used on cattle like a douse, on their owies and found them to shrink and heal. I did not want to add more Ivermectin, since I had gotten a script and taken it orally. Recently I have read Doxycycline, which as I am sure you know is prescribed for Lyme, will kill the adults of the Onchocerca. Take Ivermectin for the microfilaria and larva/eggs and Doxy for the adults. I think in one month's time you will find significant improvement. When estimating dosages... remember.. convert your weight in pounds, to kilograms, by dividing by 2.2 For example I weigh 170 lbs. divide by 2.2 and my weight is 77 kilograms. So, if I were to take 25mg/kg of some product.. I would take.. 25 multiply by 77 and get 1925 mg. that is close to 2000 mg. Everybody be careful and read all about these medicines and dosages if you are ordering out of the country. ONE Last note. I have these large things in the blood and they must be a fluke. Probably schistosoma mansoni, but even if not, still a blood fluke. Albendazole, and Ivermectin will not touch it. I am going to take praziquantel for this, but have not ordered yet. My plan is to take it at the highest dosage recommended for the sparganum mansoni.. I estimate the cost at $320.00. The course is for 3 days, this should do away with the flukes. I am using a mexican pharmacy that has a north of the border affiliate. They require your doctors name and phone number to comply with regulations. Watch... I don't have fibers because these little bas-turds are eating them before they emerge.. I will get rid of the little bas-turds and the fibers will show up Maybe not. Hope this will help you Suzy Q! and all others interested in this course of action. spec PS Food for thought: Why can they prescribe mebendazole, which causes birth defects f taken at the wrong time, in the USA, but not albendazole, which does not, but does the same function, only better???
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Post by SpecueLatin on Jun 1, 2005 19:49:47 GMT -5
Okay that was just a lark... The word biltricide and pharmaland should bring up the vrdrug.com website.. biltricide, a name for praziquantel Bayer is the brand maker.. I can only find it available in canada, but need presciption. Pharmaland is a prescription drug manufacturer out of canada and it makes biltricide, called opticide. And the cost is not $350.00 for 30 tabs.. more like $120.00 And that other place was going to be offering a substitute made who-knows-where for $350!!! Be careful don't get gouged. vrdrugs says who the manufacturer is of the item you are purchasing. They offer albendazole also. Probably Stromectol too. tried your link suzy, would not open for me. Spec
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Post by susiebelle on Jun 1, 2005 21:54:59 GMT -5
spec I guess my brain fog took over. The website is worthsave not saveworth. Oh well what can I say? I looked at the pictures of cat scratch fever on another thread and my son had an abcess on his neck exactly like the photos when he was 8 months old. He is now 23 so it was a long time ago but I think it might have a connection. the dr. said it was catscratch but he had no contact with a cat. It finally got so big he had emergency surgery I never did know what the exact cause of the abcess. The reason I think there is a possible connection is that my first major episode of chronic fatigue started when I was pregnant with him. At the time dr told me it was normal to be tired during pregnantcy. Then I went through it again when he was 3 months. Of course they said that it was normal and that I was just overwhelmed and not getting enough sleep. I knew something else was going on but couldn't convince anyone. Over the years the fatigue has haunted me and of course because I grew up in a disfunctional home I was diagnosed with depression. I could not get them to understand that the fatigue was the cause of the depression not a result. I have been on every antidepressant on the market with very little success. I did have some temporary relief when I took MAO inhibitors, but they caused me to gain alot of weight and the second time I took them for a year and that is when my skin problems got out of control. I have been off of the meds for 5 years now, but the skin problems have not improved. Do you have any experience or info with these medications? have to go for now but have more weird illnesses that my son has suffered.
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Post by SpecueLatin on Jun 2, 2005 15:01:29 GMT -5
Hello Susiebelle,
That is a cute name. What state are you from?
Nice to hear from you today. guess the board is going to be shut off for a little while for an upgrade..
yep, in some ways these are parallel lives.
moved in this house 1980. two sons, oldest is to be 26, younger is 24.
oldest intellectually inclined.. youngest athletic and boisterous
I'll check your new website. I for one have given up speeling all the words of meds and diseases correctly on this board, so don't feel bad. I figure Google will fix up that spelling for anyone interested in research.
I started getting these major brain gliches around 1995-6.
Prozac helped the first time, but so did that very cute psychiatric intern...
oh well.. he is a neuroscience fellow at UCLA these days.
None of the others ever worked worth squat. I did start having real changes though with this product called "Spilanthes Usnea Compound" you can get it on-line at herbpro made by herbpharm
It has 5 antiparasitic/antifungal components.
Clears up my head quite a bit, made my thyroid start to function again in just 3 days. Made me have to quit the antidepressants about the same time. Made my fingernails begin to grow in 2 weeks time, they were on hiatus for a year, no growth at all. Now they are strong 8 months later for the first time in my life. Give it a whirl!
Here is a tip to keep the damn bugs from going back to a bite or lesion and laying eggs or doing whatnot to it... Put camphor spirits, you can buy it at the grocery near the first aid and such.
Old fashioned, wish I had known about it sooner.
Have you been tested for Lyme yet?
Read the threads "Let's talk Salt and Vitamin C" (skim what you are not interested in.. it is a long thread) and the current one Salt/C I think it is called.
I use the tablets. Pure NaCl No extra microminerals like in sea salt etc. I don't know about the content of the Kristal salt Charley was talking about. It is probably cheaper than the tablets. It is interesting on the current thread her explanation about the Osmotic Shock..
I love it almost as much as I love the explanation about what happens to the dang monsters when the Praziquantel hits em. Some kind of killer spasm..
peace.. to us, anyway.
Spec
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Post by SUZYBELLE on Jun 12, 2005 3:48:55 GMT -5
Hi Spec: I notied you were online a couple of hours ago so I quess you are having a late nite too. My name is the nickname my dad called me. My middle name is Sue. I had a bottle of the USNEA but I spilled it the first day. The instructins wern't very clear. Could you tell how much and how often to take it? I think the zentel is working but I am supposed to take the second round of it next week. It said to take 400mg 2 times a day and repeat again in 2 weeks. The medication came from asia and it recdommended to repeat 2-3 times a year. I know that the threadworm is alot more common over there but I think it would be a good idea to take it on a regular basis. I figured it up to cost about $100.00 for a year. $50.00 for the med and $50.00 for shipping. I was at the farm supply store and found some ointment in the livestock section that kis really good. It is called 3-Way Wound Treatment by Faram Co. Their address is in Phoenix AZ. and the website is www.farnamhorse.com. It is supposed fto prevent infection, relieve pain, and provides a barrier from insects and germs. It has emu and tea tree oil. Also clove, echinacea, thyme, cornmint, and menthol. It says not intended for humans, but actually I don't feel much like a human anymore so who cares. My friend at work is having the same experiences as me. One dermatologist gave her a prescription and when she went to get it filled the pharmacyst started laughing and told her to go to farm suppply because the ointment was used on hog wounds. We had a good laugh over it. She was also referred to psychiatrist when they couldn't find a diagnosis. We both ended up on disability for depression befor we were 50. We always knew that we weren't the ones that were crazy. I have also used iodine ointment and ichthammol oinment for livestock. It is so much cheaper. I also get a gallon jug of the gentle iodine and put a cup of it in my bath water and it really helps when I have open sores that are oozing. I can get a gallon of the iodine for the price of 8oz of betadine. I was wondering if you remember an unusual soreness in the top of your thighs anytime since the onset of this illness. I have had it and my husband and oldest son have been complaining of it. If I dare make a suggestion to them they just tell me I am imagining things. My younger son is finishing grad school and is moving home until he decides what he is going to do next year. I love having him here but I worry about him getting infected. Let me know if you come up with anything new. SUSIEBELLE
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Post by SpecueLatin on Jun 14, 2005 0:06:46 GMT -5
So now I know the story of SusieBelle. My father, in contrast, called me Squeaky-Deaky!! (my voice) But that is before I can remember, and a few decibels ago.
What sort of job do you do? Your friend should keep that script in a safe deposit box so she can use it as evidence in a lawsuit. You two laughed, but that is like publicly humiliating someone!
Farnam products, that is who makes the "dec" for cat worming called D-worm.. that I use on my lesions, in lieu of dousing with ivermectin.. Didn't know it was made here in Phoenix. I think that is the site I found the onchocerca pics of thread or neckworms on horses..on as well.. not sure about that though. Good idea to get some of what you mentioned and keep the bugs off. I have read some of these bugoff type stuff that are herbal will only last 10 minutes!
Menthol crystal sachets are suppose to help and crystals can be ordered online. Use used dryer sheets to wrap. jwf posts about this solution.
I have found these little gizmos at walgreens, 3 for $10, mom sent them to me. They are battery operated and drive ants and small bugs crazy. Flies could care less. made by sunbeam.
I know on one of these sites, albendazole is used steadily for a month. I am not sure why they are telling you such a short time. I did not know it would kill the adults. That is good information.
Nematodes are round. Much of what i have is nothing like a nematode, they are also segmented regularly. Mine are strange creatures when round. Also have flat.. I guess flatworms. I try praziquantel when it gets here.. sent recently to me by vrdrug.com from Thailand. The product is made in Canada. by pharmaland. They have great info about the drugs on that site! click the more info and it will tell you about safety studies that have been done.. and you can learn that you probably won't overdose when you read how much they have used in those studies! I will be taking 1000mg or 1gram, for 3 days in a row. I will divide the dose and take 333mg 3 times in a day, 4 to 6 hours apart.
I dread the sparganum mansoni. It lives in the intestine and surfaces to the skin. It can be caught from eating fish. I dread that I eat steamed fake crab meat and have found a worm in that stuff one time. The standard on fish is low, in fact I wonder if there is anything they moniter in fish sales. I am now vegetarian.
Susie, you describe oozing sores. I do not have that. or fibers. do you have fibers? Check out pattiecakes messages. She and her son are both diagnosed with bartonella/lyme. I don't think she had any objects or fibers either.
She had the oozing sores. She directed me to a picture, I think it was number 7, at the emedicine website, that resembled her lesions. I think the page is cat scratch..
If you don't see it, post me back and I will find it for you.
Tired now. Talk again soon.
Spec, I mean "squeak"
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Post by spiderlegs on Jun 15, 2005 11:23:22 GMT -5
After learning that moxidectin is going to be approved for human consumption, I found out that it is sold over the counter at feed stores. This was how we first got ivermectin (which hasn't been successful for us because the adult worms seem to be able to keep reproducing). If it kills the adults, we feel like it might be the miracle we've hoped for, though we've learned to temper our enthusiasm.
It is administered in the same method and ratio of 2% of your weight that ivermectin is. We are going to try it initially at .5% ( or a quarter of the ratio dose they recommend for horses).
Albendazole Wormer is sold in 5 litre containers outside of the US and Canada for any of you living abroad.
I'm not usually one to suggest taking animal drugs for what ails you, but this is an extremely unique health crisis with severe psychiatric results, so I feel like time is crucial when I hear of something which might work. We're picking some up today.
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Post by SpecueLatin on Jun 15, 2005 15:02:16 GMT -5
Spiderlegs:
I agree, time is of the essence, I worry that some hesitate out of fear that this animal medicine could harm them more than this disease.
For anyone who is worried about the side effects and safety issues of various drugs... At vrdrug.com you can click a link "for more information", wow! Was I amazed at the huge amounts of praziquantel that were used in studies with no ill effects. For some time, I was afraid to get to trying it because of a lack of knowledge, support, or a doctor who would know what to do. I wish I would have gotten up my nerve a whole lot sooner. I know I am way worse off for time lost>>>> These infections progress.
I am glad you are all sharing, I had seen a small white worm, less than an inch, out of a nodule on my arm near my elbow, one of the first nodule formations 4 years ago. I didn't know who to ask or where to get help.
I wish I would have had this resource to get some direction. Instead I was alone, and for everyone else's sake, and because everyone judges, I had to pretend all of this was not bothering me!!
spec
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Post by Info on Jun 15, 2005 20:03:00 GMT -5
After learning that moxidectin is going to be approved for human consumption, I found out that it is sold over the counter at feed stores. This was how we first got ivermectin (which hasn't been successful for us because the adult worms seem to be able to keep reproducing). If it kills the adults, we feel like it might be the miracle we've hoped for, though we've learned to temper our enthusiasm. It is administered in the same method and ratio of 2% of your weight that ivermectin is. We are going to try it initially at .5% ( or a quarter of the ratio dose they recommend for horses). I took a dose...lets just say stuff is pouring out of me. At the other board someone posted that this lasts in your system about 84 days so it should only done once every three months. According to what I posted it said 20 days. This is my first dose and its not easy by any means but I think its gonna work! You can read the post by Suze who has used it over at nuspa under the topic moxdectin. good luck
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Post by SpecueLatin on Jun 15, 2005 22:30:13 GMT -5
very very interesting. I'm happy for your dramatic results!
Info ( and others), I have a question, do you have:
a. lumps which stay put when you move the skin back an d forth, as in, when you rub a finger over it. b. nodules in the skin or on the skin which move with the skin, c. migration under the skin, d. FIBERS??
Please post how you came to an amount that you decided to take. If it is based on weight, can you post an example. I do not understand 2% or .5% as in, percent of what? per mg?
or show us a link that explains it.
Thank you.
Spec
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Post by sspiderlegss on Jun 16, 2005 16:39:01 GMT -5
At the other board someone posted that this lasts in your system about 84 days so it should only done once every three months. Actually, that's not entirely accurate. The 84 days is how long it will control eggs from hatching in the manure horses leave in the fields. Your 20 day waiting period is more accuate. We will be waiting for 2 weeks before taking it again. But yes, we have had good results in the last 24 hours. I still can feel some activity under my skin, but the fibers I'm combing from my hair are all lifeless, as are the ones I find on my skin. I am extremely, though apprehensively, optimistic. But let me caution everyone: unless you are certain you are being infested by a nematode, PLEASE DO NOT USE THIS PRODUCT. Many of us have different symptoms--for example, my wife and I don't have any lesions to speak of--so to us this because it worked for someone else would be folly. My wife and I have done obsessively exhaustive research, referencing and cross-referencing just about every single known parasite infestation before determining, with the help from our doctor, that we in fact had a nematode infestation. And since we have gone through more than one complete cycle, that means adult worms are present which can't be killed by ivermectin. In fact, you should not use ivermectin anymore in you have had your condition longer than 2 months--it only kills the larva and not full grown worms which make the larva. You are damaging your liver by doing so, and also destroying your immune system.
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Post by sppiderleggs on Jun 16, 2005 16:40:06 GMT -5
SpecueLatin, please see the moxidectin thread under Morgellons.
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