|
Post by DOCP on Jun 10, 2005 5:44:10 GMT -5
Feelings of little bugs flurry could always be justified in my mind somehow as nerve misfire. Even though I could have sworn I saw and actual ripple along with certain fleeting traveling sensations... I would deny it. Close my eyes and say... it's just my nerves, just the Lyme.
There is now something quite visible and undenyiably not my nerves... in my stomach. It moves, it swims, it twists and it is highly unatural. There is also an intermittant flutter near my heart but feels less like my heart and more life my left breast. I can feel it but not see it. My stomach I can see and I seriously want to die. Does anyoone have this? Do I have some freaky tapeworm on top of Lyme? Where is that Cliff Mickelson guy? He said something of stages and flukes. But that he may know what might help us. Both of my little boys have this but thankfully are steps behind me. I can't save them because I can barely save myself. I can barely take care of us anymore at all. MY 4 yr old wakes up with the scariest nightmares saying that spiderwebs are all over him, his eyes are open and he walks but he's still dreaming. He backs away from me and his brother screaming no mommy no. Like he's terrified of me. I try scooping him up and holding him tightly till he falls asleep or snaps out of it. He cries about sparkles on his knees and that the sparkles are burning his toes. I pray and pray till I don't know what else to say in my prayers. I beg of you... anyone out there that knows anything at all. I will pay you any amount of money you want. Thousands, hundreds of thousands, I don't care. I will get it to you immediately. Just show me what to do. Tell me who to call. Someone out there must know what is going on with us. I know there is. There has to be. Please please help me. Help us quickly. If you are another human being with a soul.
I don't know what else to do anymore but beg. I have lost complete composure and pride.
|
|
|
Post by pattiecakes on Jun 10, 2005 7:16:20 GMT -5
GOsh I wish I could help you I really wish I could but I wanted to at least give you HUGS!!! (( )) Lots of them and for your children as well.
Have you tried calling Dr. Schwartz?
forgive me if you have and I missed that. pc
|
|
|
Post by bb on Jun 10, 2005 8:53:31 GMT -5
I'm in tears now thinking how horrifying it would be to watch this take over my children. I would die for them, I love them so much more than my own life. Thankfully they are grown now and not living in this hell with me.
Start taking lots of social garlic for the tummy things. Talk to a knowledgeable person at a health store about internal cleansing for parasites. I know olive leaf is one that works real well, and grapeseed extract.
Many of us are on salt and vitamin C. I believe it helps especially with any bacteria in our system.
Sweetheart, go to the pharmacy and buy a ton of castor oil. Smear it all over the kids and yourself after every bath. And put epsom salt in their bath, but not enough to burn their eyes. Teach them to flush their eyes with cold water just in case.
When you have time. spend hours rubbing it all over yourselves and get them off one by one.
Get some colloidial silver to put in their ears, nose and eyes. It didn't burn mine, just felt strange.
Wash all bedding, including pillows, in HOT water, and dry hot. When washing pillows use delicate cycle.
Get rid of carpet and cloth furniture. Burning them would be best for the rest of the world.
If you live in Texas contact Ginger Savely at South Austin Family Practice Clinic. She is a Lyme Disease Specialist who is finding some 10% of her Lymies have Morgellons. If nothing else maybe she can refer you to another specialist in your area, but many of them do not believe either. But you and the kids need to be tested for Lyme, and with that diagnosis you can start treatment, which is supposed to make the Morgellons go away also.
Email me if you need to talk, also I have a ton more advice that you can find posted here and on the Morgellons board here.
beckybailey2892@hotmail.com
|
|
|
Post by Lisa on Jun 10, 2005 16:00:52 GMT -5
I'm so angry and upset after reading this. I'm shaking so bad I feel like I can literally explode. How can anyone sit by and let this continue? Where is their conscience?
DOCP, the desperation you are going through...I'm so sorry. I wish I could give you a big hug right now. I too experience, off and on, those physical symptoms (movement) you are talking about. It seems so unnatural when it happens and I just go numb and ignore it so I won't freak out. Although my son is older than yours (12), he has had nightmares. He senses that there is someone in the room, over his bed. He feels someone's hand or something touching the back of his neck. He had one where he woke up on an operating table and there were people in white coats that told him to go back to sleep...it was just an experiment.
I'm going to say a prayer for your boys. It breaks my heart to read of their experiences.
PLEASE SOMEBODY!!!! ANYONE WHO KNOWS WHAT THIS IS OR WHERE IT CAME FROM.....HELP US, HELP THESE SWEET, INNOCENT CHILDREN!!!!!!!!! BE A HERO.
|
|
|
Post by Mmeme on Jun 10, 2005 17:43:18 GMT -5
Get some sleep, read and do all you can naturally and environmentally to assist yourself. There isn't anything quick to this disease that I've found. Hold on,,,don't give up,,,your kids need you. Love them and yourself at this point bathe alot and breath deeply alot. Try the salt and Vit C, easy for kids. Stay in touch on the page, so you'll know you're not alone
|
|
|
Post by skytroll on Jun 10, 2005 23:57:04 GMT -5
DOCP,
I feel so bad for you. My heart goes out to you all. Let your children know that there are many out here trying to find an answer to this problem. Lotion sometimes helps after bath. Gold Bond Powder can help the sparklies. I have used that before and it can be rubbed on itchy areas.
Do you live near swamp areas where there might be mold spores, or fungal spores or toxic algae. I am wondering about this. I found a website, plus it was reported on in the Great Lakes areas. This stuff can cause dermatological problems.
The stuff is called cylindrospermopsis. If you type it in on your browser, you will find a few websites at universities studying this. Michigan State has a person studying this in the Great Lakes. The report we got in our paper said that it was found around Fla. where there is a lot of morgellons and in Australia. We have a water resoursce institute here and I plan to ask them to test some water near where I live. Do you have one near you?
I tried to send the websites to Mary at Morgellons, but some encrypted thing came on. I wonder if there is something to this. I will again try to send to Mary.
There are many varieties of this. We are surrounded by water, ponds etc. and lots of swampy areas.
Please register at morgellons.org. They will send you info as soon as they get new discoveries and or doctors to see.
Take care and use the advice on the board here. Many people have lots of years of this and have found soothing ways to help heal.
God Bless you dear one and your dear children.
skytroll
|
|
greg
New Member
Posts: 0
|
Post by greg on Jun 11, 2005 2:17:11 GMT -5
Dear DOCP,
I used to get the twitches in my stomach, and hundreds of them also throughout the body. I can help you if you like, and I also have infected children, greg_vigil@yahoo.com (619) 322-7818
|
|
|
Post by Lisa on Jun 11, 2005 18:20:29 GMT -5
|
|
|
Post by bb on Jun 11, 2005 19:09:23 GMT -5
Hey All Mommys,
read my post on oil of oregano.
|
|
|
Post by ebgbgms on Jun 13, 2005 1:39:01 GMT -5
Dear docp, Im right where u r now. The rolling and movement has been in my uterus, stomsch and most of all my back. some could say spasms, but its not. also, not well tonight so bare whith me, but my son, 6, yoday says the same things to me exactly the same. i feel like he sees the (demon) thats inside me and wants to stay away even though he needs me. i get as close as i can as safe as i can when he is allittle better. im with u, praying, at my husbands side on my knees on the floor while he sleeps terrifies and praying. also angry and always say this will pass, i have another member on the board i depend on for support. my son is too close behind me, one tiny step. i frikin hate it and like u im worried as hell. i have a dr but he wont take medicad for my son i am working on all this and doing the things others mentioned. i need u to know that my friend and i can help u as much as poss. i am going to try greg and see what he knows. please stay in touch message me or email and i will give u my # also mary is working on a project w/ mothers who have morgellions and the affects it has on children plEASE EMAIL HER IF U FEEL UP TO IT. my mail ebgbglenda@ yahoo.com this is not easy and we have to share and work togther with this wildness that is taking over soooooooooooooo many people. how long will it take for them yo get in tune w/ thier bods and regester here for help? please email so i can call u. all my love to u and the boys, my son is being so strong but starting to panic. i see what is happing to you and them. im sorry 4 us all. be strong moms r very good at this
|
|
|
Post by DOCP on Jun 13, 2005 16:30:21 GMT -5
Quckly (because I ran to library to check on these replies this weekend and because I am now at my own pc but being bumped off - long story), I wanted to say thank you for all of your responses. "Thank you" is an understatement. And saying "it helps a lot" sounds trite. But anyone that is going through this understands the power of empathizing. The power of love and kindness, caring and support. How it can make you or break you as your sanity, hope, and will to fight... slips away. Aside from moral support I also mean very useful/helpful more tangible things were said. Will come back soon to explain. Thanks, Alex
|
|
|
Post by skytroll on Jun 13, 2005 18:06:26 GMT -5
DOCP and others on this thread, Sarah Bione sent back my samples and a message. She found no mites, worms, bugs, anthropods (dead or alive). No bacteria was seen. She found pieces of skin, scabs, blood, and hair in pieces of skin. It is the hair part that keeps me going. Fungi, algae blooms, maybe the cylindrospermopsis. They are very concerned here about mycocytis and cylindrospermopsis. However, there are other forms of the cyanobacteria that causes dermatological conditions. I will get the names of those. See what you all say. However, I see this as a process, we can rule out bugs, possibly worms, some bacterias, what is left? Virus, algae blooms in water areas, fungi. Microbes all of them, heh? Hey, www.carnicom.com talks about testing water from rain and soil from the chemtrails. Read what has been said under LAB TERMINATES. It is a bit troubling that this stuff is in the chemtrails, because, believe me people, these chemtrails are real. Look outside, when the sky is covered with them. Just check it out, let me know what you think. I will not give up. These d....m things are real. And they are damaging us and our children. Okay, now we are down to viruses, algae, fungi, don't you think? I will check with sources here, because out of one side of their mouths they are saying how dangerous this cylindrospermopsis is and have to close beaches, and, yet the local health department is sitting on their arses. Time to do some investigative conversations. Bione was really nice about testing the samples and said at end of letter..."I wish you the best in seeking aid for your situation with Morgellon's and if anything changes or if you receive any news about your condition I would be interested in knowing, because we understand that you are more than a file on record here but a person and we are interested in your welfare."....... We need to check with the lady from North Carolina, Michigan State and local water resource people. Let's go for it people. It could be this oocytes, microcytes, or cylind......stuff. Viruses? that is a whole other situation, and I do not know where to begin with that. TB is on the rise. Cutaneous TB is similar to what we have. Will check into that. Skytroll
|
|
|
Post by ebgbgms on Jun 13, 2005 23:51:16 GMT -5
hi skytroll, im listening and will have to have more time to read back then i want to catch up w/ u again k?
|
|
|
Post by spiderlegs on Jun 15, 2005 11:06:56 GMT -5
I think I'm feeling them in my chest and sometimes it feels like they are in my lungs. I see glimpses of a flying insect too usually at about the stage I currently am at now during the Herx.
|
|
|
Post by adapted on Jun 20, 2005 1:52:15 GMT -5
May God bless, and keep every single one of you, and your loved ones, in His loving care. Try to turn it all over to Him, as I have, and adapt to it, if there is no other way. He can strengthen you and make a way. He already has.
|
|
|
Post by JohnLIB on Jun 20, 2005 6:31:15 GMT -5
DOCP and others on this thread, Sarah Bione sent back my samples and a message. She found no mites, worms, bugs, anthropods (dead or alive). No bacteria was seen. She found pieces of skin, scabs, blood, and hair in pieces of skin. Skytroll Ms. Bione "saw no bacteria" in the samples she tested which included hair and skin. That is quite disturbing. Bacteria are everywhere, especially on the skin and hair. The only places one would not expect to find bacteria are in the tissues and blood of a nn diseased organism, autoclaved material, and the gut of a newborn before it swallows for the first time. Not being able to see, culture and indentify known organisms such as the normal bacterial flora makes me wonder how someone can can see, culture and identify supposedly unknown or at least thought to be unrelated organisms. Those structures listed as present sound like an examination report which leads to a DOP diagnosis. Lesser is Better John
|
|
|
Post by JLR on Jun 20, 2005 10:30:19 GMT -5
First of all take a deep breath and be strong, you will have to be the main support for your childrens sake. Second, try to reduce all sugar intake from your childrens diet and your own... this seems to help in reducing the fluttering and stinging sensations. I'm not sure how easy it would be to get kids to eat garlic but it seems to have been a big help with myself. Maybe try cooking with garlic more often? Being that children love candy, I would think the feelings would be greatly enhanced by this. Also read through the supplement board portion for some great tips, but most of all avoid any type of drastic toxic self prescribed applications which I belive only make things worse.
Be strong, get rest and breathe... try yoga or meditation to calm yourself.
|
|