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Post by JEFF on Jun 17, 2005 18:11:15 GMT -5
THOUGHT IT WORTH REPOSTING THAT RANDY FROM NUSPA FINALLY RECEIVED PROPER MEDICAL CARE FOR THIS CONDITION...AND HERE IS THE BASIC STORY...AN UNKNOWN CONDITION CALLED SARCIODIS...DEPLETS SOMETHING IN THE IMMUNE SYSTEM CALL I THING CYCLONEOTS THIS IS TOTALLY MISPELLED SOMEBODY HELP ME HERE IM GOING OFF MEMORY..WELL THESE CYCO THINGS ARE RESPONSIBLE FOR CONTROLLING BACTERIAL INFECTIONS IN THE HUMAN BODY...SO THERE GONE...RIGHT, NOW YOU GET THE PICTURE..BACTERIA GROW OUT OF CONTROL....ESPECALLY WHEN OUR LITTLE FREIND COMES ALONG...S MALTOPHILIA...THE FIBER PRODUCING BUG...I FOR ONE WAS DX IN 1987 WITH SARCIODIS...AND IT TOOK 16 YEARS BEFORE I RAN ACCROSS A STRONG ENOUGH BUG T0 DO THIS...S MALTOPHILIA...WE KNOW THIS CAUSE IT PRODUCES FIBERS..AND YOUR PROBABLY HERE CAUSE YOU HAVE FIBERS RIGHT? I HAVENT TOTALLY BOUGHT OFF ON THE SARCIODIS THING CAUSE SOME DOCTORS THINK SARCIODIS ITSELF IS CAUSED FROM A BACTERIA...EVERY THING KEEPS POINTING BACK TO OUR LITTLE FREIND...POSSIBLY BIO ENGENEERED..S MALTOPHILIA...YOU ARE BEING INFECTED FROM WATER SOURCES.;..
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Post by convinced on Jun 17, 2005 19:33:56 GMT -5
Is there a way to contact you? I would like to talk or email, just not in public message board.
Thank you!
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Post by special guest star on Jun 18, 2005 4:23:35 GMT -5
I would disagree that we all have S MALTOPHILIA. There are lots of symptoms I've seen described which I don't have. Then there are some whose symptoms are mine deadon. But it's naive to think we all suffer from the same exact thing. Some people think it's a worm, some think it's a springtail, some a bacillus, some think it's from exposure to toxic chemicals. Who knows?
Good for that guy that he's being treated, though. I've lost faith in MDs.
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Post by cautious on Jun 18, 2005 8:29:05 GMT -5
THOUGHT IT WORTH REPOSTING THAT RANDY FROM NUSPA FINALLY RECEIVED PROPER MEDICAL CARE FOR THIS CONDITION. Randy from NUSPA has posted she's been diagnosed or cured several times. She's now in her usual process of beating the crap out of anyone that disagrees with her. She also just posted that the fibers have been PROVEN to be metal and that this information came MRF. She posted a site she says she got from Mary that supposedly have pictures of these fibers. Randy had also put this link on a public web site months ago, but had never mentioned it elsewhere. www.marl.iastate.edu/What_is_itSomeone confronted her about this and she got it in her head that poster was Mary L. She then proceeded to accuse Mary of withholding valuable information, instructing her not to share it, called Mary a liar, accused her of CHILD ABUSE, and then finally just went off and told who she thought was Mary to go scr*w herself. She also posted that Mary was supporting Schwartz's theory, now. I didn't put all of this in here to "Randy bash". I put it in here to illustrate that I would not consider the information Randy posts as reliable. She has some attention "issues" that seem to cause her to post all sorts of stuff, much of which is abusive or can not be verified. I wouldn't put too much stock in what she is saying about this. She might have it, she might not. But she's been caught fabricating information, before, so I guess time will tell.
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Agree with Cautious
Guest
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Post by Agree with Cautious on Jun 18, 2005 8:54:45 GMT -5
There are others of us with Morgellons who also have been diagnosed with Sarcoidosis and I think what we need to do is find the common denominator. Many have also been diagnosed with MS and ALS but went on to have the Borrelia infection instead. The symptoms are just too common and interconnected to know for sure. There has to be an underlying cause, and our different bodies and lifestyles is what keeps some of our symptoms a little different from each other.
I am sure the admins here would agree that the less said about the other board the better. From what I know, there is no conflict with them and nobody wants to start one. We all know that Mary has our best interests at heart so we shouldn't listen to what others "not in the know" are saying. Kerri and Patty have stated over and over that they did not open this board to diss the other one nor have they ever done so, so I think that we should leave that subject alone and continue to research our own problems in our own ways. I agree with Cautious totally.
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Post by ANTHILL on Jun 18, 2005 10:17:21 GMT -5
I'll drink to that !!! [/size]
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Post by JEFF on Jun 18, 2005 10:27:44 GMT -5
one thing ive learned in life is that if a person has a opinion and during the opionion giving phase he or she can make themselves sound as intellegent as possible by using big words and proper puntucaton...then most poeple will be convinced they are intellegent...politicians have learned this long ago,and poeple start thinking there smart! well I can spell or punctuate properly but im loaded with common sense..hence my right leaning stance..this is a common sense issue that goes beyond if somebody has made mistakes in the past or not...(ie randy)..yes it is unfourtunate things that have been said,,but does this discredit this person for life...where does the forgivness come in? I have listened to posts for years and painted a common sense connect the dots philosphy....one thing for shure..most of the poeple ive talked to here have the same thing..and when some start getting diagnosed we should not let our hatred of the doctors in the past..or things that person has done wrong in the past get in our way of common sense. hence dr swartz....i saw when he came about poeple anger towards the medical community all dump squarly on his head..You just assumed he was like all the rest..your hatred has blinded you...there not all bad..many have just been lead astray..they are poeple just like you and me....they can be reasoned with just like poeple using the right technices..my conclusion is any body with fibers emitting from their skin..has the condition we refer to weather that be s maltophilia..with lyme..or sarciodis with maltophilia...or cancer with maltophilia. or any number of maltophilia combinations..and its not like there is this simple blood test to find out what it is..it is a very complicated emerging medical problem and when poeple get diagnosed we should stand up and take notice,
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Post by ANTHILL on Jun 18, 2005 10:39:44 GMT -5
I'll drink to that too !!! [/size]
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Post by Me on Jun 18, 2005 13:08:58 GMT -5
That highly secret "What is it" web site, was highlighted on one of the very first Morgellons news segments. Pictures were shown from it on KTVU #1.
The site was emailed to all Morgellons registrants a few years ago. It is old hat.
Big secret.
Hostility and paranoia are hard to deal with rationally. No point in even trying.
BTW, metals shown are insignifigant, background levels.
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mlc
New Member
Posts: 15
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Post by mlc on Jun 21, 2005 17:41:51 GMT -5
RIGHT ON JEFF i couldn't have said better. you hit it right on the nose.....
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