toreup
Junior Member
Posts: 76
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Post by toreup on Jun 22, 2005 17:14:20 GMT -5
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Post by special guest star on Jun 23, 2005 22:21:16 GMT -5
I've seen little balls of fluff with a black, mite-like object in its center in the bathwater after I've taken a bath before. Similarly to this: Posted by Greemah
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Post by SpecueLatin on Jun 24, 2005 3:30:35 GMT -5
Hello Susan
I have read on this board that someone healed by taking neem capsules,I think they said 6 months. Neem oil products are available in shampoo and soap as well.
For powdery mildew, neem oil which is sold at some home improvement centers is said to be very effective on roses that have this disease.
I thought it had merit, but it was too damn late for my roses! I will never have roses again after this mess. Two of about 30 bushes survived and i stay far away.
Sporothrix schenkii also is a fungus that roses can imbed into your skin and then enters the lymph glands. It will burst up through the skin at each lymph node from the furthest points out up the arm or leg until finally can go out when the lymph is dumped at the end of the trail. This is what we thought I had and I treated with sporanox, very very expensive. $600+ per month, no generic.
It will be a yeast when it is within the body, due to the higher temperature. It is a mold when it is on the plant. The deep puncture wounds from the thorns help innoculate it into our systems.
Spec
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Post by SpecueLatin on Jun 24, 2005 3:32:49 GMT -5
Hello Greema,
Hope you are feeling better and stronger all the time.
I see your post contains my Toro-toro, the legless blood-red bull.
Spec
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linda
New Member
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Post by linda on Jun 24, 2005 11:10:13 GMT -5
Hi Sue and Spec,
Sue, I called that doc you spoke of. Did you test positive for any of his tests? He sounds far more promising than any other doctor I've approached with this disease, nonetheless, he said he had never heard of Morgellons. He believes (as do I) that all autoimmune disorders have a bacterial origin. He said that it was the endotoxins that mess with my (and my kids) head. Makes sense to me. If my son was a little older, I would have been convinced he was on drugs due to the strange way he looked (ashen) and acted (insane) at times.
Sue, what have you told him about your physical symptoms? I discussed my blue fibery legs. It seemed as if he hadn't heard about this before, but he at least took me seriously. (I was trying to determine if he was going to be another DOP.) If I change my insurance to a PPO in January, I should be able to get most of the cost covered. I don't know about you guys but costs do matter. If I lose my house, disrupt the lives of my children, put more pressure on my marriage, all because of the costs of treatment, then I will feel better physically, perhaps, but possibly more suicidal.
Sorry I strayed off topic. Yes, I know that the fibers are fungal, but, wow, how do they do this. I'm not a rose. I've been having the tingly sensations in my head lately. It's scary. I have become very light sensitive, and dizzy often. The itch has moved inward. No fibers or sand right now, just cognitive problems.
Take Care, Linda
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Post by susiebelle on Jun 24, 2005 13:12:39 GMT -5
Hello everyone: I found this info very interesting, when my severe symptoms started I found the little black items in the middle of every fuzz ball on the blanket I was using. Also I found a growth of something very similar to powderdy mildew on the bottom of the glass on my makeup table in my bedroom. The same growth was on the evergreen tree outside my bedroom window and I ran an exaust fan every night because my bedroom is upstairs and the central air was not adequate. Also many birds nested in this tree. It became impossible to breath through my nose. In my research I found that regular old baking soda is as affective as Clorox to kill mold and fungus, especially the waterborn species, and baking soda does not have the toxic effects. I had a chest xray and breathing tests and the results were all normal. One of my blood tests showed high level of carbondioxide, and I was told to quit smoking which I had done 25 years earlier so there had to be another reason for the carbondioxide. The nurse at work said my lesions looked like sporotricosis, but biopsy was negative, and ER doctor said it might be actinomycosis, but biopsy was negative for both. Spec: How did you get your diagnosis and hat did you take to get rid of it? I read that potassium iodide works and it is available at health stores,but I don't know the correct and safe dosage. I had been doing alot of yard work and I have a roses, phylox, and a lilac bush. I also used bags of wood chips for landscaping, and my husband brought hay and horse manure from the farm so I was exposed to so many contaminants and maybe not one but the combination of them is what attacked my immunity system. Does anyone know of a way to protect themselves while cleaning? I try wearing clothing, headcovers, and masks, but I get over heated within minutes. Any info or suggestions would be greatly appreciated. susiebelle
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Post by SpecueLatin on Jun 25, 2005 3:53:16 GMT -5
Hi Linda,
what things are you taking? maybe some of our remedies are giving you the light-headedness as the toxin are being removed from your system.
I just started using Solaray Kidney Cleanse, because I am getting my poor ailing kidneys ready for a 3 day trip to praziquantel land which just arrived from vrdrug.com for 120 dollars.
Lo and behold! The kidney cleanse is also helping unload some of the skin crap. Should have done this sooner. The kidney is part of the excretory track. guess what? So is the skin.
I also tried Becky's treatment for gall bladder that was recommended by a chiropracter.. first a tablespoon of olive oil then a glass of lemonade (real lemon.. I use minute maid from the store). this also helped to make some of the stuff leave the skin when the target was the gall bladder. some like middleeastern food which contain of course these ingredients along with others tasty herbs.
Some of you might want to see how helping the gall bladder or kidney helps the skin. I didnot find this positive result when using the liver cleanses..
Susiebelle, the doctor I used agreed with me that my creeping eruption.. much of it in rows of lumps that were open sores, looked like sporotrichosis.. so it was by the eyeball that I got the diagnosis.
sporanox is what is used to treat it, It cost more that 600+ a month. I cannot say it was helping... I may however have some of it. Who knows? you must use it long term before it may or maynot get better. It may be wiser to go with some of the herbals and cleanses, etc. Your dollar will go further.
And if it is a bug.. you would be neglecting to poison it by spending so much poisoning fungus!
Some here have used a candida cleanse called Rainbow Light with great success.
emedicine probably has some spiffy pictures of sporotrichosis for your comparison.
Have you all checked out the remarks from special guest star under the Bush link? Damned if they won't condemn the entire population with that! This is sure to cause some turkeys in Washington some big future upsets... what do you say?
Spec
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linda
New Member
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Post by linda on Jun 26, 2005 23:15:58 GMT -5
Hi Spec,
Yes, part of my dizzy feelings may be a sort of herx. This time, it would have to be to MSM as that is the only new thing I've tried lately. A heavy dose of cloves in some Castor oil (applied to the skin) had the same effect. It seems to slow my blood pressure way down (not good because mine is already low). I've had dizzy spells far longer than I've been doing the herbs though. Some of the worst ones made me feel as if I were intoxicated--didn't feel right driving. I do believe this thing is releasing toxins into my blood, and the same with my kids on their bad days. I can only hope that the toxins are a sign that "the organism" is dying. My husband isn't doing great either. He gets a sort of chronic fatigue problem. Ironically, the adrenaline at work keeps him going throughout the workweek. Once he slows down, he collapses until it is time to go back to work. He doesn't really want to talk about this thing though. He has a difficult time coping with the fact that he might have a disease that the doctors won't recognize. This new doc that Sue found might be different. Then again, I'm apprehensive about doing a course of antibiotics for a year. I don't think that is even an option with my kids, is it?
Anyone know what the costs of antibiotics are when purchased in Mexico? I don't think any health care org will pay for a year of medication for a disease that is not in the books.
Spec, you've been doing so many different things, and you know your meds better than I do. I have a difficult time keeping up with what you're doing, or what does or does not work for you. Maybe we'll figure this thing out based upon the success of various meds.
Take Care, Linda
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linda
New Member
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Post by linda on Jun 28, 2005 12:37:03 GMT -5
Hi again Spec,
I did seem to be having a herx reaction with the MSM. I've cut down to half the daily recommended dosage and I'm not feeling so dizzy and tired, but my sinuses are tingly and seem to be opening up. Perhaps the MSM is just what I needed.
Linda
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