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Post by suebe on Jun 21, 2007 11:57:59 GMT -5
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Post by bugsy on Jun 21, 2007 12:20:48 GMT -5
OMG OMG OMG....THIS IS HUGE!!!!! THANK YOU SUEBE YOU JUST MADE ME F'IN DAY.WOO HOO.
~Bugsy
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Post by toni on Jun 21, 2007 12:29:17 GMT -5
YES YES YES
Oh...this is very good...finally a crack in the wall! ;D
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Post by jj on Jun 21, 2007 12:43:05 GMT -5
Thank you everybody. Looks like persistance in many areas by many people has paid off. Lot's of baby steps you couldn't necessarily see or believe was happening are now evident because they have now made themselves 'publicly' accountable for their actions through their own site ... JJ
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Post by ed on Jun 21, 2007 12:49:32 GMT -5
ah......it takes a country to rattle their cage.. .Ed.... .ah......(((WOW)))
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Post by toni on Jun 21, 2007 12:56:29 GMT -5
I'm soooooo happy I'm in tears! And yes, it sure has been all our efforts hammering away at their steel wall....thank you ALL!  |
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Post by Sidney on Jun 21, 2007 13:12:45 GMT -5
I haven't clicked on the link yet, but just want to say that like Tonisue, I just want to cry.
Whatever it is, it's a beginning and for that I am so very grateful.
Heartfelt thanks to every one of you. You've stayed the course, suffered, endured, consoled and have been consoled, and it seems as though the chipping away at the brick wall is paying off.
Thank you GOD!
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Post by Sidney on Jun 21, 2007 13:25:21 GMT -5
Special thanks to Suebee........Thanks for being vigilant!
(You done good, honey)
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Post by microdot on Jun 21, 2007 14:20:04 GMT -5
Tears of pain and much happiness.  Thank you my friends. microdot |
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Post by bugsy on Jun 21, 2007 14:43:17 GMT -5
 ~Bugsy |
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Post by godog on Jun 21, 2007 16:05:22 GMT -5
Wow, hee=hee, can't wait to throw that up to that last doc I saw, l0 days ago. Who quoted CDC or at least used their name to tell me it (morgellons) didn't exist and that psychotic drugs were in order as they would make the fibers disappear. Ohhappyday!
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Audrey
Junior Member
Posts: 59
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Post by Audrey on Jun 21, 2007 16:16:56 GMT -5
I knew this would happen eventually, but I am sure that the efforts of the many people on and off this board who have our affliction has hastened their final acceptance.
God bless us all, and let's hope they find a cure!
Audrey, New Jersey
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Post by Sidney on Jun 21, 2007 16:31:23 GMT -5
Admins, don't you think this should be pinned?
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Post by cozmikanjel on Jun 21, 2007 16:35:56 GMT -5
Thank you Suebe yep, tears...before i could even get the words out to my friend standing nearby. |
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Post by suebe on Jun 21, 2007 18:08:08 GMT -5
I want to say a big THANK YOU to all the wonderful folks here in our group, the letter writting, phone calls, prayers and yes even all the unhelpful dr. appts. helped us because we all got "out there" and demanded the help we so much deserve. There are many many groups out there that has helpped with our cause but there is someone very special to me that I want to thank. MARY L. I will wish only the very best for this wonderful lady and her children the rest of my life. She is always in the back round working her "you know what" off for us. Hell I'd be rich if I had a penny for every for every phone call or letter she's done. I'd be rich if I had a penny for everytime someone has hurt her by saying ugly things about her. I AM RICH BECAUSE I KNOW HER. THANK YOU MARY FROM THE BOTTOM OF MY HEART. I was blessed to meet her a few months back when she met with legislators at the Senate for a meeting on our behalf and then again at a lab where a wonderful doctor is doing research on this horror disease. Everyday and I do mean everyday this lady works her tail off for us. She will probably wish I hadn't done this message because Mary wants no praise for her work. She just wants her children well. Most likely none of us will ever know just how hard she has worked (her tail is so small, just about gone) I just had too  I love all of you folks on this board so much, things will be moving fast now. I sure hope we all always keep in touch. We are one hell'uva group. MARY GIRL I LUV YA, SueinMD |
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Post by ladybug on Jun 21, 2007 19:02:52 GMT -5
This is excellent news!
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Post by ladybug on Jun 21, 2007 19:07:04 GMT -5
I see the info at the very bottom says "Content Source: National Center for Zoonotic, Vector-Borne, and Enteric Diseases (ZVED)" - I am not sure what all that means, but it doesn't sound anything like "National Center for Delusion of Parasitosis" so that's probably a good thing.
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Post by hannah on Jun 21, 2007 19:45:19 GMT -5
I see the info at the very bottom says "Content Source: National Center for Zoonotic, Vector-Borne, and Enteric Diseases (ZVED)" - I am not sure what all that means, but it doesn't sound anything like "National Center for Delusion of Parasitosis" so that's probably a good thing. Great news! ladybug ZVED sounds better than DOP any day. |
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Post by laylo on Jun 21, 2007 22:08:54 GMT -5
I really needed to hear something like this today. just about all day I cried and prayed and didn't think there was a reason to go on. So thank you Suebe for posting this today. Just gave me that little bit of hope that I didn't see coming from any other place or person.
My teeths and gums hurt really bad and I can't get them well. thank you.
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Post by microdot on Jun 21, 2007 22:38:52 GMT -5
I see the info at the very bottom says "Content Source: National Center for Zoonotic, Vector-Borne, and Enteric Diseases (ZVED)" - I am not sure what all that means, but it doesn't sound anything like "National Center for Delusion of Parasitosis" so that's probably a good thing. Great news! ladybug ZVED sounds better than DOP any day. What this means is we are all screwed because these people are just a cluless as the doctors!  I remember seeing this twice. Once was from tamtam's reference site. Remember this?  What did he know? CDC Employees Raise Concerns About 'Serious Issues' At Agency In MemoMain Category: Public Health News Article Date: 02 Feb 2007 - 5:00 PDT Employees from the National Center for Zoonotic, Vector-Borne and Enteric Diseases at CDC have raised concerns about "very serious issues" with the agency that have affected their ability to perform their jobs, according to an internal memo obtained by the Atlanta Journal-Constitution. www.medicalnewstoday.com/medicalnews.php?newsid=62070So that's what the rucuss was all about. microdot laylo, please check your PM. |
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Thank you my friends.
What did he know? 
May 1, 2024 14:29:24 GMT -5