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Post by overandover on Dec 10, 2007 22:00:13 GMT -5
Where's the real hair? I don't know what real looks like anymore
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Post by overandover on Dec 10, 2007 22:03:58 GMT -5
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Post by overandover on Dec 10, 2007 22:04:35 GMT -5
That stuff looks like glue
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Post by overandover on Dec 10, 2007 22:09:09 GMT -5
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Post by overandover on Dec 10, 2007 22:11:14 GMT -5
They are connected, like they are mating. I don't know which one is the real hair, I really don't know anymore.
Anyone got a picture of normal hair? This is so crazy.
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Post by robertalouise26 on Dec 10, 2007 22:36:43 GMT -5
Dear dear one I know how you feel. I DONT KNOW WHICH IS REAL HAIR ANYMORE. Kyras hair my hair and this false hair. The ones I get are thinner than normal hair but have branches off them and a little tiny knob at one end, they cause terrible terrible itching until the vaseline reaches them and then they come out. Honestly dear one this is really really freaking me out. I have coped with this for nearly 12 years and I am getting to the end of my tether. I just can not take much more of this. I believe that hell would be better than this. I will do my best to make Christmas happy for my daughter but after that maybe I should just bow out of this world. Much much love. Roberta.
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Post by felixwillford on Dec 10, 2007 23:16:25 GMT -5
www.paulayoung.com/IF things get too confusing...............................we can just get our hair from Paula Young. Look at the beautiful Fake hair and they do sell human wigs, but I wonder..................... most people who sell their hair are from other countries and grow it long and sell it for money and the USA uses their hair for FASHION and or medical reasons. BUt what if those people who sell their hair have morgellons??This website has the least expensive wigs. I know a woman who owns a beauty school and she said the heads of hair ordered for the students to work on arrive from out of the country with LICE on them! Not Kidding!
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Post by felixwillford on Dec 10, 2007 23:18:15 GMT -5
I'm getting confused,
overandover are you Suebe?
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Post by grady on Dec 10, 2007 23:37:50 GMT -5
Roberta, no bowing out. What are your major symtpoms, perhaps I can offer some tips? Please don't speak like that, I was just majorly down and am back up again, you too will be on the upswing, tell me your symtpoms ...
Try taking 400 mg of Magnesium and a Cal/Vitamin D tablet each day, drink some OJ for loads of potassium, this stuff sucks the minerals right out of you, it really does wonders, might take a week or two but it does work.
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Post by robertalouise26 on Dec 11, 2007 1:43:10 GMT -5
Dear Grady it is so nice to know that you really care. My major problem is the most HORRIBLE HORRIBLE ITCHES , my dog, my house, clothes are infested with this thing and no matter what I do or take we both get reinfected. I cann't take orange juice I suffer from migraine headaches and oranges and red wine and chocolate are just not for me. Look Grady I appreciated your love and concern but I am soooooooooo tired of this that it will be a great relief to me to just bow out. I will try and make sure that my daughter has a Happy Christmas. Her God parents are over from England so it will be a happy time. But Grady I AM NOT GOING TO GO THROUGH ANOTHER YEAR LIKE THIS!!!!!!! I just cann't. I am worn out and hate waking up every morning just to face another day of hell. Thank you soooo much for your friendship. Much love and best wishes. Roberta.
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doraisabel
Full Member
Have Faith in the LOrd, together we will get through this.
Posts: 203
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Post by doraisabel on Dec 11, 2007 2:05:48 GMT -5
Use lots of willard water my hair is my own hair now its amazing the first time in 2 years and it looks really good. use willard water and das waser willard water you can get from their own website or Dr.Hildy has both very helpful.
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Post by Niels on Dec 11, 2007 2:26:53 GMT -5
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Post by suebe on Dec 11, 2007 3:14:08 GMT -5
Thank you Doraisabel, I'll order some, my hair after I shaved it for well over a year, got to be to much time taken from Josh, me in the bathroom all the time, doing full body shaves so I stopped. That was around Jan. 06 and my hair didn't grow for over a year. I thought I'll really don't damage by shaving but Dr. said no harm could be done from keeping head shaved. It did start growing a bit, about a 1 1/2 inch so I went to see my hair stylist and she said it wasn't growing back because my scalp no longer moved, getting no blood flow, told me to go to derm. and get hubby to rub my head weekly, huh I hate derms. and I'd never let Tom put his hands in my hair, no way would I do that to him, but couldn't tell her that. I ask her to wear gloves and she thought I was nuts. I don't think blood flow is the problem, but maybe. I do get tons of fiber out when I pull a hair out by the root, they grow in the root. ILL post a pic. of whats under my scalp, yuck
Kmarie yes it's me the same in one. On lap top I'm Suebe but office computer is Overandover. I hate having two names, I've registered six times over the years and I always have a heck of a time getting registered. I ask Admin. if they could combine all into one but haven't heard back, after I wrote them I was able get get on under Suebe on my lap top and I just love them for that. I don't want to cause a mix up, but I am a big ol mix up, lol.
Grady you are such a kind man. I hope to meet you one day, lots of good folk here. We will have a great "MORGELLONS FREE PICNIC" one day and I can't wait for all of us to get together, we've been to war together and when we get well we need to have a good time together. I hope to keep in touch with everyone here for the rest of my life because each of you have a place in my heart.
NOW ROBERTA, Everyone close your eyes. Roberta I know this crap is the hardest disease, I do. And to make it even more painful a lot of us are treated like pure chit by doctors and family. But you came here, we all love you now and if you think doing yourself in is going to help, you may find youself very wrong. What makes you think a good Christmas will make it Ok to off youself, your daughter will forever be devistated, forever. And so will your friends here.
I knew when Josh died I would also, I knew it. I was so sick at the time and I just knew my heart would stop when his did. My son always had me at his side when faced with hard things. And he was faced with the bigest and I was so ready to take that trip with him.
When he died I just stood there and waited, I waited and I kept breathing and I was mad, so mad at God for letting my child take that journey alone. We had talked about me taking my life so I could go with him. I will regreat that conversation for the rest of my life. The cry that came out of my child sounded like that of a wild animal.
Robbie I know it's hard to keep going, I know. But we don't really know for sure what death brings, we don't. We will only find that out after we pass. Then we will know.
And I thought long and hard about it, letting him go without me was the hardest thing I've ever had to do in my life. What stopped me? The unknown. I do hope that when my time comes, my beautiful son reaches his hand down to me. I want it to be his hand, no one but him. So close your eyes and picture this. I've taken my life because I can't fight this anymore, my son reaches his hand to me, I reach to him but then I'm ripped away, going down, never to see my child again. That is my worst fear, the not knowing will keep me here, even suffering, to wait for my babies hand. He will know when it's time to reach down to me. That may sound corney, stupid. But we don't know for sure till it happens do we.
Now I remember that stage, I call it full blown Morgellons, I never want to go back there and I'm sure that fear is burned into us all.
I promise you will get to the point that it's not gone but yet you'll be able to live with it without wanting out 24/7. A lot of us have made it to that point, we don't have our normal life back but we don't wish to die in our sleep anymore. It can be done Robbie and i'm going to send you some stuff to help you get to that place.
Now you hang in there, I'm not kidding, I do understand but I wish I could get on a plane right now, come over and shake the chit out of you and then hug you like I'll never let go.
We will get there, I promise I'll help anyway I can. We are all her for you. I love you Robbie, now you behave yourself
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Post by suebe on Dec 11, 2007 3:20:20 GMT -5
Neils thank you sweetie, I'll try it all. Would love to have a bit of real hair. Do you know what a normal hair root looks like?
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Post by toni on Dec 11, 2007 9:21:10 GMT -5
Suebe,
For the last 20 min I've been trying to take a pic of a hair root I just plucked out, and I'll do it, but I had to give it (me) a break...because I couldn't take the pic.
The hair will NOT stop going up inside the scope. The hair won't lie flat for nothing...it keeps going up to (where the light) is up inside the scope. So, I then snipped it with scissors so it would be 1/2" long and hopefully lay flat on the slide. NOPE...it then went right up inside the scope and I tried it again and again...it's not gonna do.
So...before I scream, I'll give it a break and try again in a bit.
You've gotten some excellent photos there.
Is your doing this?
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Post by lilsissy on Dec 11, 2007 9:39:09 GMT -5
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Post by suebe on Dec 12, 2007 0:11:57 GMT -5
Thanks Toni yes I remember how they could get up out of the jar I'd put them in, about drove me insane. I don't have that problem anymore, they stay still, it's because now all of my hair roots are loaded with that black oil in the roots, very sticky stuff, so the little chits stick to the paper now.hehe, I got em I guess I could do a search and find a healthy hair root. I really don't remember what they look like. I never had a reason before to look at my hair roots anyway I'm such a dodo I found a cd with a ton of pics. from the full blown stage so my next goal is learning how to do a album. But for now I'm having a good time posting pic's here and there. I thank you so so much for teaching me, your a true sweetie and a real cutie pie Mrs. Clause. I didn't go to bed last night so once again I'm sick from lack of sleep and behind in my work. I just took two sleeping, gonna get in there before they ware off. Love to all, Sue
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Post by suebe on Dec 12, 2007 0:24:53 GMT -5
Yess lilssissy they do look like those. I have taken so many pics and I've broke two computers doing it. One guy told me he'd never seen a file so big, just I went a little far. I was spending 14 to 16 hours a day with my big head under a scope. I've broken 3 digi's (well maybe not broke, lets say wore them out, hehe) and now use the dino light, I like it. My daughter has been trying to teach me how to get the pics out of the programs and into a file. I was not good with computers before this and now I'm just a mess or good at making one anyway. I can't wait to get a album up so that I can show you guys some of the crazy looking shots I got, oh and I have a great video of some springtails & fake/nano springtails (I think thats what they are.) I hold my head over the sink to use the shed enders and many times I've got out what looks like black specks in the sink but are under the scope, spingtails. I can't wait to show you all those video's and the strange way the springtail behave.
Gotta sleep, love you, Sue
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Post by prevenge on Dec 12, 2007 1:02:05 GMT -5
aaaahhahahahah CHA-CHING! the next bubble after the U.S. dollar collapse and institution of the Amero... morg-wigs... grow flies to feed your kids! -M
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Post by overandover on Dec 12, 2007 11:49:04 GMT -5
I'd love to get a pretty wig but no-way. Dr. S. treated a lady that said she got Morgellons from hair-extentions.
Yep Prevenge Morg-wigs are on the market.
Don't invest in wigs, real or non- real hair.
I'm saving penny's in a jar :0 and when the for sure "treatment" is found I'm going to invest everything i've got in that stock.
Yep there are many ways to treat now, but I want to put my bucks in the treatment that is a total Morgellings kill, even after treatment is stopped.
I've got a sick feeling that the regular Joe's like us won't be able to afford that treatment so only the rich will be able to get well. Poor folks will have to spend there time left, feeling like crap and looking like lepors.
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