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Post by ebgbgms on Aug 31, 2005 23:18:10 GMT -5
I was just wondering, u know I was dx with Dystonia, similar to MS. I believe misdiagnosed. My neurologist insisted I cont. with my botox injections and get a second oppion, as he says we don't have LD in MO. BS ha ha My husband, I was so proud stood up for me and I don't believe these injections will help. But, they hurt like heck. I wont be going back unless they do end up helping, haven't in the past. Anyone else tryed these due to neurological problems? I'm curious. What about the injections Dr Crist does, anyone had these? Please reply if u can. Love u guys, ebgbgms
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Post by Administration on Sept 1, 2005 10:02:18 GMT -5
I was instructed.. No Botox injections if you have Lyme. More crap put into your body on top of the stealth bacteria.. The Drs here suggested it for my back.. Lyme Dr said NO...
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Post by ebgbgms on Sept 9, 2005 7:20:06 GMT -5
Thanks Kerry, Your Dr was right. I have been down since the injections last Tues. I will not go back. All he wants is the money anyway, doesnt believe its LD my husband said he would not see us again. I was so glad he was there. I appreciate your response. I was afraid of infection I was in such worse pain and Morgellions got 5 times worse. So anyone reading this that has neuro problems and probably have been misdiagnosed dont due it.
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Post by Administration on Sept 9, 2005 14:39:37 GMT -5
You are very welcome. Just odd you brought this up. The muscles in my back were affected so badly and I happened to go to the pain management place around the same time I was told I had Lyme.. The Drs here didnt think I had it either. Luckily, before I let them touch me I was able to ask my LD about it in time. Funny thing is I had the appt with the Pain Management Drs a month before but couldnt find the office.. so I missed the appt and had to schedule another..had I found that office a month before I probably would have gotten the Botox shots. Maybe I had an angel watching over me.. or maybe just coincidence. Also, if I havent mentioned this before.. never let them use steroids either..they suppress the immune system and may cause permanent arthritic Lyme symptoms years after. Ive learned this is a very difficult disease, but worse yet is you have 2 sets of Doctors telling you 2 different things. By experience alone..I trust only what my LD says.. Just seems she knows so much more and has always been right. The other Doctors I think mean well (some of them), but really just dont know. Some will be arogant and tell you "this just isnt so", others, who I believe are at least honest will tell you "I just dont know enough about this disease to make that judgement". At least honesty I can respect. If only they would all get together and agree to learn and get all on one page we would be so much better off. In the meantime..trust your gut.. and the people here who have been thru things in the past can at least tell you what they know..or what they have learned. Glad I could help... Kerry
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Post by ebgbgms on Sept 15, 2005 10:28:14 GMT -5
Oh Kerry, I went for one last time. My doc did say it would be ok for one last time. Should have trusted my gut. I was down for two wks. and still am so tired I can't do anything. I hope we live to see the docs all get on the same page. I can't believe how stupid it really all is how they treat and judge how they will handle LD. They have know idea how awful it is here where I live. My husband almost went off on this neurologist, he laughed when I told him. I won't go back. Not many honest ones just the gem LD I have, the rest I have seen are so close mined and rude. Thanks for your repy, glad you missed that visit!!!!
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