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Post by jwf on Jun 9, 2006 16:19:35 GMT -5
If anyone here is going to the hearing in Raleigh, NC on Wednesday to support Dr. J, give me a holler and we can say hello in person. If you need information about the time and place, let me know.
Blue Skies..............John
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Post by DOCP on Jun 10, 2006 14:17:49 GMT -5
Are you referring to a Dr. Jones? He was recommended by two different Dr's in regards to treatment for my children. He apparently prescribed antibiotics to a patient he hadn't seen. If this is Dr. youre speaking of? It's got to be, all though theyre implicating so many these days that it's not unreasonable to assueme there is yet another who's name begins with J.
If it is him... while I think it should not be common practice for any Doctor to prescribe anything sight unseen... life does not always lend itself to ideal situations and sometimes we're forced to make judgment calls. I don't know the details and I don't even know who the plaintiff is, but I hope it's not the mother of the child. There were two adults in that situation and the Doctor certainly did not solicit her help and advice. Abx are not controlled or addictive or mood altering which is why I was a bit bewildered for the arrest. I hope someone (the attorney), will bring up this fact... two years ago I had a tooth that began to be incredibly painful and throb. It was a Friday afternoon so I called my dentist that I hadn't seen in over a year, but had seen times in the past I needed work. Well they had closed at noon and I got his exchange. Then a doctor on call whom I had never seen or heard of, who was not in same office and had no access to my charts called. I explained my situation. He said it's infected or abscessing and would phone in some medicine. I asked if I could meet him instead to get it fixed or removed or whatever it needs. He said, "well lets try the meds first." So he asked what pharmacy and then said... do you happen to have the number cuz I'm actually golfing right now and don't have a phonebook. He calls in an antibiotic and a codiene. I call back like 6 hours later saying... hurting like crazy can I just meet you. He now sounds like he's in the clubhouse with friends and says... the abx need time to work, and says he would call in some stronger pain medicine. Which helped get me through weekend till my regular Dr. fit me in Monday and did a root canal. My point is that this other Dr. gave me all sorts of meds sight unseen and to this day I've never met him. It happens all the time apparently. I was a bit miffed cuz I got the feeling that on call Dr. didn't want to meet with me out of inconvenience, but at least he saved me from suffering so much. I would think that such a common occurrence not only sets precedence as being routine and allowed, but would render the charges against Dr. Jones a mute point or pointless.
In any case, I'm glad you're going to support him. I hate to see another targeted remarkable Doctor take the fall for some agenda that I can't understand. And it ruins it for all the other doctors who are borderline trying to cross over and do the right thing... but now are afraid of loosing their reputation, license, and everything they worked hard to become due to all the examples being made.
It would be nice to meet you in person John. I always appreciate your calm, well thought out input, truthful, down to earth, input. I hope all goes well on your trip, and that the judge presiding uses his heart and mind to reason and sees the very humane intentions of Dr. J. <--- gosh I'm gonna feel really silly if you're meaning someone else.
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Post by jwf on Jun 10, 2006 17:20:35 GMT -5
Hi DOCP,
You shouldn't feel silly at all, but we do have a very well thought of I.D. Doc here in NC who is definitely Lyme literate and is up against the medical est. for treating Lyme disease aggressively.
If he withstands this storm, it will signal other medical boards to give more consideration to patient rights to choose their method of treatment.
--- Original Message ----- From: Elizabeth Jordan To: Sent: 5/25/2006 1:31:01 PM Subject: INFORMATION REGARDING DR. JEMSEK'S HEARING( June 14,15 and possibly 16th )
Hello Everyone, The NCLDF would like to give you an update for Dr. Jemsek's hearing now that more information is available. It will be June 14th, 15th and possibly 16th. The most important day for you to be there is the 14th. First ,it is important that everyone dress professionally for this event. We are requesting that there be no signs, no protests and no civil disobedience of any kind.This type of activity will only hurt Dr. Jemseks' case with the medical board. Second the NCLDF will provide green armbands for everyone to wear on their left arm. A quiet show of support has been shown to be the most beneficial in these types of cases. Third, it is very important that everyone understand how very critical your presence is at this event. A large number of people at this event could very easily sway the Medical Board in favor of Dr. Jemsek. If we lose Dr. Jemsek , the lyme community will lose important ground. The message will be sent to doctors all over the country that if the medical board can revoke the license of a well known and highly reputable infectious disease doctor ,then they can do this to any other doctor. None of our doctors will be safe at that point. I am appealing to all of you to please find a way to make this event more important than anything else right now. We really need you. Dr. Jemsek has been there for you and he needs you to be there for him. Thank-you for your patience with this matter and for your help, Sincerely, Beth Jordan, DVM
Thanks for your well wishes and complement. As my wife knows, flattery will get you everywhere. Maybe we will have a Morgellons rally in the near future so that we will no longer be faceless friends.
Blue Skies...............John
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Post by Patti on Jun 11, 2006 9:30:51 GMT -5
John, I'm so glad you will be able to attend this function.....wish I was closer so I could meet some of you. I hope that it's a huge success and look forward to hearing about it when you return....safe traveling!
DOCP, unfortunately there are two Dr. Js who have been targeted and some of the circumstances surrounding this are pretty fishy. As you know, these doctors have no personal lives anymore.....there isn't enough time in the day for them to see all the people who are trying to make appointments.
For others who are not aware, true Lyme docs will often spend countless hours on the phone with patients who cannot afford to wait three months for an appointment......this is after working 16+ hour days, seven days a week and always on holidays. They discuss all of your symptoms and ask the same questions they would if you were sitting in their office. Lyme is accepted as a clinically-diagnosed disease, so occasionally this has to be done over the phone until the patient can be given an appointment. In the meantime, antibiotics are prescribed so the doctor can see during the appointment if any progress has been made in the interim.
I realize that their fees are often sky-high but considering they are literally putting their careers and lives on the line, I can understand it. We can only pray for the day when all insurance will cover Lyme visits, and these doctors won't have to choose between saving lives or saving their licenses.
Hugs, Patti
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Post by jwf on Jun 11, 2006 19:50:22 GMT -5
Hi Patti, Thanks, it should be an educational experience. Get to meet Tincup, Lymescience, Melanie Reber, and quite a few other Lymenet folks. I've heard it said that Dr. J here in NC doesn't turn patients away just because they don't have funds. To make him especially rare-- he's an I.D. Doc. A definite keeper for all the chronic Lymies.
Blue Skies..............John
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Post by jwf on Jun 15, 2006 22:51:51 GMT -5
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Post by DOCP on Jun 19, 2006 2:19:21 GMT -5
JWF - I can't believe I had the wrong "J" but actually (as Patti pointed out), I can. Before your trip, I read up on Dr. Jamseck and signed the petition of support. A petition I might add, that was incredibly long in which I derived a false security that the outcome would be in his favor. For how could a medical board refute droves of ppl. with heartfelt stories of improving their health? Sparing their suffering? Saving their lives? I mean... every story I came across was filled with appreciation and ex-patients willing to go to bat for him. I assumed that would carry tremendous weight. I can't imagine a doctor being THAT attentive and helpful to people... turning around and treating patients A, B, C,... H, I, and J carelessly and inadequately to the point of wanting to report him. Their claims did not even seem very severe. And I wonder if those former patients even raised the issue themselves? I wonder because the Plaintiffs listed law codes saying that the State could seek a charge and reprimand for misconduct regardless if they the patients themselves are pursuant. I am so disappointed in this outcome. Though I have not had a chance to read these links, so I'm just going by your mentioning of the suspension. Thank you for going. I mean it... thank you. Because you went for me as well. When you go... you go for us all. Patti - Thank you for further explanation. I am still trying to figure out WHY WHY WHY they are so resistant to Lyme doctors, patients, treatment regimes, new tests available,... it's just not logical. Surely they don't want us to suffer, yet... they try to block and combat us at every turn. They bring up every bogus study and bit of research that's negative to prove their point. Why do they purposely cite these references. Like their mission is the exact opposite. And they seem like thyre on a headhunting mission for our doctors. Medicine prescribed for over their recommended 3 to 4 weeks is considered "long term" or excessive? For the treatment of Lyme stages which can disable and destroy your life. Yet one of the leading meds used Doxycycline can "legally" so to speak, be prescribed for several years for the treatment of acne? Not logical.
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Post by jwf on Jun 19, 2006 13:59:41 GMT -5
Hi DOCP, The only day that I could go was Wednesday and I was rained out. The skies opened up, streets were flooded and blocked. So like many others I kept up with reports of those who got there early.
The real culprit (no surprise here) is the CDC. The NCMB used their outdated criteria to judge Dr. Jemsek and his methods of treatment.
New evidence coming out soon will underscore that long-term IV therapy with antibiotics is helpful to those with chronic Lyme. Dr. Jemsek even stated at his hearing that new research might embarrass the medical board in the near future.
Old standards die hard, but resistance to change is futile.
It's now proven that a large group of medical authorities is resistant to Lyme disease and many of those put much faith in the post-Lyme syndrome.
Blue Skies..................John
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Post by DOCP on Jun 19, 2006 19:35:23 GMT -5
I am glad the Dr's Fallon and Phillips testified. I am looking for Fallon's study on iv abx. On a personal level... I can't understand how I took so many abx (two kinds at once), which began to work but only for a few months, skip to more recently my elisa and west blot says still active and I not only meet the required cdc bands... I have positive bands to spare. It has got to be the Morgellons complicating it all. Whether Morgellons is a new and evolved strain of lyme or a seperate organism all together... it has allowed for the takeover of even more things. In any case, I am always reluctant to try i.v. I'm afraid it will be too much for me in my present state. A year ago I could have, but I have dragged it out for so long I am so weak it seems.
I'm sorry about the rain, that's always frustrating. I 'm glad the Veterinarian was helping with morale in pointing out the outcome could have been worse, but I don't see it as a win. Considering there was a death involved... I suppose she's right though. That's tough. Who's to say the abx weren't the reason. Or that they were. Or they were part of? You can die from anesthetic alone when going in for a simple routine procedure. There is always a risk. But it is the exception. Not the norm. Sad for that woman's husband and twins and sad for the Doctor... all the way around.
Yes the CDC I imagined to be the puppeteer. And perhaps Big Insurance or Pharm... the stage. A trickle-up nightmare of greed and fear. I understand the pack mentality egging eachother on. But somewhere in there, sometimes, an individual will say... hey, is this really right? Should we be conjuring up statistics to deceive the public? Or turning a blind eye to the success stories of lyme specialist? Where is that guy? This whole board is full of "that guy" all willing to speak up. And I know we're all sick and pushed to new levels of advocacy, but I believe many here were like this before. Okay, these are rhetorical and impossible questions. There are just so many illogical things happening it seems when it comes to human behavior. Lately I mean. When did we stop valuing the lives of others? Oh brother, I'm rolling my eyes at myself. A bit ideal. A bit naive. Stalin, Hitler, duh...
Isn't it more criminal to undertreat, full-well knowing that if you do this patient will fall outside or miss his window of opportunity to the point of no return? And two, three, years later of suffering you test positive again and again but by this time the longest of long term abx may not save you at that point. That's what's criminal.
I'm just talking talking working it out, no need to reply. But I appreciate all the info. I like to retreat to this board cuz it gets a little crazy on the other. But never as crazy as it would be if I were churning it over back in the pre-board pre-information tech days.
I shall now try to find out what's going on with the other Dr. "J"
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